Meet Baby Faith Wilson: Our beautiful precious daughter born with anencephaly, she lived for 15 days 

You are a brave and beautiful mother. Love to you and your baby.

@sandy M Thank you sooo much I really needed to hear this. Alot of people disagree with my choice but they don't understand.

@@seannoslecheile960 Thank you soo much!!!

i just had a son may 2 at 22 weeks he had anencephaly i was in labor for 3 and a half days he was 10 inches 9.5 oz im praying for you and it is hard and if you ever need someone who understands im here i was alone when i had my son but the dad couldn't handle seeing it but saw him at the mortuary my dad saw him at the mortuary also my dad stayed the 3 days and i had him 5 hrs after he left and i spent as much time as i could with him

@@jenniferk2433 I'm sorry for your loss. Thank you sooo much.

hi Stephanie I am so sorry you have received this diagnosis please email us on vicky@everylifecounts.ie and we can offer you lots of different supports. sending you love x

I had such a child, carried full term. Never got to meet him. Back in the day, 50 years ago, they didn't want the mother to see a child like this. He lived 2 days. My one and only child.

​@@tugaroocrabso sad you never got to see him. If you know Jesus, you will see your baby boy in heaven.❤

You are a hero mom. Keep going.

​@@tugaroocrabWould have raised hell with the hospital, and demanded to see my child.

Yes you do and 1 day you’ll be with your little one again but she or he will be happy and healthy and ready to spend eternity with you in heaven.

God bless you

So much love to you. ❤

Did you get routine ultrasounds?

@@gmagain Yes, the first time i had ultrasound they're saying that it looks like the head of my baby is incomplete. And they say that it might too early to give me findings. They tell us to wait more weeks before we get another ultrasound.

Agreed. I’ve had two friends (we met via a grieving parents group) who’ve had babies pass from this, they each only had hours.

She is so beautiful. I’m sorry she left you so soon. But what an incredible life💖

Absence of a brain - or at least absence of the frontal lobe, means these babies don’t feel anything. Deciding to carry full term is a comfort to the parents, and that is understandable. Seems most of the people who make the decision not to abort are religious. It’s very sad, I don’t think I could do it.

@@geslinam9703 I support whatever choice a woman makes...but for me, I don't think I would carry to full term. These babies have no higher brain. There's not even a place to PUT a frontal lobe. Without that there is nothing but seizure activity & reflex movements coming from the misfirings of a dying brainstem. These people who carry to term believe these babies "feel" things yet they sort of skip over the fact that if they DID feel anything they would be feeling their brainstem being dissolved by acidic amniotic fluid every day they are in the womb. That's why these babies seem so "active". They flail & kick violently because their brainstems are slowly being destroyed. They also bang their exposed brainstems on the walls of the uterus causing seizures in the womb. Once born they die as their brainstems give out. As it becomes weaker the lungs fill with fluid & they literally drown. NOT something I'd want to watch. That & all the abnormal twitching these babies display if they're born alive. The baby in this video was doing plenty of that. I guess as first time parents they didn't realize how abnormal this baby's behavior was. But hey, to each their own. I just feel God would understand completely sending a baby who has formed no real brain back to Heaven early. There are no good outcomes here..it is what it is & torturing yourself over "losing" a baby with no brain seems so unnecessary to me.

TK Ryzon well said. There is a video here on YT where the parents document the few hours the baby lived after birth, and it’s death, as if it were a beautiful thing...but you could see it gasping for air and the only blessing was that it wasn’t aware of what it was going through - but it was very unpleasant to watch. The fact that this one lived for 15 days has everything to with advances in medicine, not miracles. But, having them brings comfort to the parents and families, and even if they are in denial, as you said, to each his own. As I mentioned above, they are usually religious, and I guess believe more in the spirit of their child, and so disregard the science. I don’t have that kind of faith, I just believe that occasionally nature screws up, and usually babies like this are miscarried early on...some can obviously make it to the end...but with a definite dx like this, I would also most likely abort. I’m thankful I’ve never been in such a position.

Geslina M I know you are correct, and have no doubt. I am grateful that I never was faced with such a difficult, tragic event. I do know, however, that the decision would be easy: terminate. Carrying an anencephalic is a hopeless situation and the compassionate thing for all involved, especially the non-sentient foetus, is to terminate. Mourn the loss of the dream of an intact baby, grieve as long as you must, then move on. When a human has no brain activity/ no brain, is it really alive? Isn’t that when life support is terminated, when there is no brain activity?

Liberty Hussein good point. But a lot of people feel differently about babies than they do about, say, an older person who is in the same position, who for whatever reason has no brain activity. I am, however, happy we at least have the choice, whether it be to deliver or to terminate.

Why does your god do this to infants in the first place? Why does he allow babies to not develop the entire frontal section of the brain so that they will inevitably suffer and die and cause their parents horrific loss and suffering? Baffling.

Tara, that was a really lovely thing to say to the parents. Do you come across many of these babes and if so, what causes it? Do you know?

Not everyone believes in your religion. I see this as incredibly sad, but the family had the choice which is the way it should be. I’d terminate

@@kathybrem880 Well thank god this little darling was given to these wonderful parents and felt the love they had for her however short on earth its a lifetime in their hearts.

What a beautiful thing to say. Blessings to all

❤

God bless u

Why did you keep doing that, making those little babies suffer. How cruel.

@@hopemccubbin8661 six miscarriages, they died before birth

@@hopemccubbin8661 That's an extremely cruel thing to say to a mother who lost her babies.

Do you understand what anencephaly means?

What a beautiful baby

Amen in Jesus's name 🙏❤️

👼🏼

@@essboxxessboxx3993 I K

“Bliss?” Do you understand what this condition does? The baby is missing the entire frontal lobe of the brain, has massive pressure on the brain stem and face as there are no bones to hold anything in place, and the baby suffers constant terrible seizures?!

@@4Mr.Crowley2 ..These babies have no feelings of pain hunger ect. The parents obviously wanted to meet their baby and loved her like any other baby. Just because she had anencephaly doesn't mean the parents didn't enjoy ever last minute with her. You should do some reading about anencephaly before you jump down people's throats. This baby wasn't in any pain and I'm glad the parents had lovely memories to cherish.