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Robbie Edwards and Molly Duffy are among only 11 children in the world to be diagnosed with an extremely rare genetic disorder, called spastic parapalegia-47 (SPG47), and the only ones who live in the United States. On a recent fall afternoon, these two adorable girls and their parents met in person for the first time at Boston Children’s Hospital, where they both receive care.
Learn more about SPG47: www.childrensho...
29 окт 2024