Meet the woman facing ALS with heart and humor

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Brooke Eby was in her early 30s when she was diagnosed with ALS - but she is determined to show the world what it is really like to live with an incurable disease by sharing her journey on social media with grace and laughter. TODAY’s Savannah Guthrie shares her story.
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Опубликовано:

17 май 2023

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Комментарии : 137

@3554Ladybug Год назад

It seems ALS takes the very best among us. Lost my husband in 2018 to this horrific disease. He faced it with a positive attitude as well. He was determined to live his best life for as long as he was able.

@yvonneplant9434 Год назад

Stephen Hawking lived many years longer than he probably should have. I don't think anyone knows why he did.

@3554Ladybug Год назад

@@yvonneplant9434 My understanding is that he had the type of ALS that is considered familial (meaning genetic). Sporadic ALS patients don’t live as long (for some reason). A large percentage of sporadic ALS patients are military veterans.

@anneturner2759 Год назад

My deepest sympathy ♥️

@savagemoni. 7 месяцев назад

I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor

@AbdulMajeed-hr1gp 19 дней назад

How many years he suffered in this disease

@SandraBugler-vq6co Год назад

My friend's sister just passed from ALS on April 14th. Horrible disease. She went downhill very quickly after diagnosis. But she kept her sense of humor up until the end. At the end, she was there one minute and gone the next. Please donate.

@rachellllhines Год назад

What a beautiful person.

@jolynnhill8502 Год назад

What a beautiful person dealing with a horrible disease. My husband died from ALS 14 years ago and it is still difficult to deal with. He lived 9 years and walked until he passed. It started in his upper body first. I pray they find something to help, but first they need to find out what causes it.. Same with Parkinsons and MS, all neurological dieases.

@savagemoni. 7 месяцев назад

@joannadee3565 Год назад

God bless you Brooke. My sister died from ALS when she was 69 in 2021.

@anamericanprayer1967 Год назад

This is inspirational. Social Media has a positive side ❤

@jeanetteh.9240 Год назад

What a precious human being. May God keep her in His care.

@al-pan Год назад

People who struggle with serious illnesses deserve great respect.

@chrisfreemanmastin9358 Год назад

My husband died from ALS at 46. He was a remarkable person and it seems that many with ALS are as this YOUNG lady is.

@skygazer6898 Год назад

Sorry, Chris.

@savagemoni. 7 месяцев назад

@michele5695 Год назад

She's beautiful, inside and out

@littlemissshihtzu Год назад

What an amazing human being Brooke Eby is! I hope ALS gets the funding and attention it needs so that a cure can be found! Love, hugs, prayers, positive vibes and best wishes to you Brooke! 💓💞

@alexshatner3907 Год назад

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@amandamiller6656 Год назад

This hits close to home. I had a friend who fought als for a while. I was so close with her, and ive been thinking about her a lot lately. Brooke reminds me of my friend. Her sense of humor is amazing. Super inspiring.

@savagemoni. 7 месяцев назад

@kathivargo1743 Год назад

I lost my mom to ALS…. God Bless you

@amitk4139 Год назад

ALS found our family 20+ years ago and so little has changed sadly. Thanks for bringing attention to this debilitating and fatal disease❤

@savagemoni. 7 месяцев назад

@kristenjones3965 Год назад

So happy to see Brooke on the today show sharing about ALS to bring more awareness!!! She has such a light!

@birgittekristenyogaandmedi9941 Год назад

I learned so much from her! What a beautiful woman inside and out.B

@graydmg Год назад

Brooke, watching you on Today, I truly admire you and your are so inspiring!!! While I feel bad, at 59, recently being diagnosed with arthritis and a slipped disk, your story put things into perspective!!! God bless you along every moment and thank you for making me smile!!!

@savagemoni. 7 месяцев назад

@figmo397 Год назад

I'm glad it hasn't yet affected her speech. When my uncle had ALS, that was one of the first things that went.

@juliannelouman Год назад

Same with my dad. His voice was the first thing affected

@savagemoni. 7 месяцев назад

,I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor

@natasharodriguez2579 Год назад

My mother died of ALS she only lived 2 years after her diagnosis. May God bless her to forward and speak up for the ALS community

@adrianagonzalez8868 Год назад

Let’s donate anything we can to ALS🙏🏽❤

@savagemoni. 7 месяцев назад

@danazyskowski6580 Год назад

This disease killed my mother when I was young. She never got to know her grandchildren. This young woman deserves a chance to live. Someone has to stop this disease.

@cherylhart5955 Год назад

My brother passed away from this monster. Wish her health

@kellyrobinson6220 Год назад

My daddy died of ALS 5 years ago 😢 I miss that wonderful man.

@sallyphillips9175 Год назад

My second cousin Doug died from ALS. He really suffered, cos ALS is horrible. It paralyzes your whole body, and you eventually die from not being able to breathe. I can't imagine dying like that.

@romanaecavallaro2283 Год назад

Brooke My cousins wife had ALS. She lived in Jersey. I am her former husbands cousin. I helped her for a few months as I am a caregiver. Shes no longer with us. She was a fighter, you be too. Hugs, Ro

@savagemoni. 7 месяцев назад

@pattiducato8461 Год назад

You are amazing! You make the world a better place!❤

@geneziogenezio3299 Год назад

SHE IS GORGEOUS GOD BLESS HER

@vicmaine05 Год назад

I have ALS at 58. However horrendous this disease is, my heart goes out to Brooke!

@savagemoni. 7 месяцев назад

@jennymassengill8319 Год назад

God bless this girl 🙏Please do a miracle in her life🙏

@christybezzant1176 Год назад

This is so close to me, my Mom had ALS... you have a beautiful soul and such a great attitude... may God heal you in every way...

@savagemoni. 7 месяцев назад

@beckymigdal3140 Год назад

God bless her.

@gerardpritchard657 Год назад

My aunt passed away from ALS in 2004. Your humor in the face of such sadness is inspiring! May God be with you 🙏 ✨️ ❤️

@DannyGautama Год назад

Such an inspiring kid. All the best to you.❤️❤️❤️

@MToya-dv1xz Год назад

As a medical student, you’re the best kind of teacher! Thank you for sharing your story.

@emmarubenstein9085 Год назад

Such a brave young lady...sending healing angels...light... prayers...lots of love from Melbourne Australia 💜💜💜🙏

@angelachinnis3154 Год назад

Extraordinary attitude! Wish all of us could look at life this way! My sincere thoughts and prayers are with you and your family! 🤗

@Tracy-rf7ri 8 месяцев назад

Omg. Brooke, you are an inspiration. Don't ever change. Bless you.

@jenniferg749 Год назад

What a beautiful, amazing soul! She is incredible! Love her sense of humor!!💗 Proving it is the quality of life that is so important when you are not sure about the quantity. Prayers and hugs to her!

@Shadowfax85 Год назад

I just lost my best friend Miacha about 7 months ago. It was heartbreaking. She lost her ability to walk a few months before her diagnosis.. Slowly, everything just started to stop working. It was like aging backward. She couldn't feed herself, dress herself, or get to the bathroom. It was devastating when she lost her ability to talk. She used a notepad to communicate with me as long as she could. Difficulty swallowing is what put her in the hospital. They did everything they could but it wasn't enough and she died. 😔 I miss her so much.

@leannesmith9809 Год назад

Sorry for your loss

@marcylevitt278 Год назад

Puts things in perspective. Thank You for this story

@louisefitzgerald4400 Год назад

What an inspiration. Bless her!

@markkearney Год назад

wow such a strong beautiful woman you are helping a lot of people go strong girl

@debisusan1037 Год назад

You are amazing! Helping others is awesome. You are too young to be dealing with this ugly disease! Bless you.

@marciaEK17 Год назад

This girl just "CHANGED MY LIFE"...

@stanogrady893 Год назад

You are a wonderful light to the universe. Bless you.

@jillcnc Год назад

That there are no survivors is not entirely true. Jason Becker, who was a guitar prodigy, well-known in heavy metal circles and briefly the guitarist in David Lee Roth's band, was diagnosed at age 19. He is now (I think) 51 or 52 and not only still alive, but composing music. There is a documentary about him called "Not Dead Yet" and it's fascinating. You might also consider doing a segment about him. Yes, it takes a small army to maintain/sustain him, and he's the exception rather than the rule. But it's an extraordinary story. I'm grateful that this woman is out there raising awareness.

@edythesandefur1298 Год назад

im thinking maybe he was mis diagnosed. cos i have known 3 who died from this horrible disease. and my hubby has MS. so im thinking maybe jason has ms instead of als. big difference in the outcome, but not different in the symptons. just a thought.

@wildanimallove859 Год назад

@@edythesandefur1298 no he has ALS and has had it for around 30 years. Stephen Hawking also was very young when he was diagnosed and lived until 76. It's obviously very rare for that to happen.

@savagemoni. 7 месяцев назад

@kellymudd4908 7 месяцев назад

My husband has just been diagnosed with ALS and I'm so heartbroken. I'm not sure what to expect as we go into this next chapter of our lives together, I know it's not gonna be easy but I know we'll get through it. I have a huge support system already so one day at a time, that's all we have. Life can be difficult for us all, some just have a little extra to deal with

@savagemoni. 7 месяцев назад

@cecilyrodriguez6698 Год назад

My mother passed away from ALS. She was a woman of faith and she gave me the strength, to go through the journey of ALS.

@savagemoni. 7 месяцев назад

@63Jax 6 месяцев назад

I love this girl, i watch her almost everyday, she's so very strong!!!!! ❤

@Calicokit101 6 месяцев назад

What an amazing person

@carolbantegui2193 Год назад

So inspiring lady!

@skygazer6898 Год назад

Brooke's positive outlook puts many people to shame, myself included. Wishing this beautiful, vibrant lady all the best

@savagemoni. 7 месяцев назад

@hayleyhibbard7875 Год назад

My neighbor has ALS. It's such a terrible thing. It's wonderful, though, to see how positive this woman is.

@savagemoni. 7 месяцев назад

@cherylbelcher4507 Год назад

My partner died of ALS in 1995. She managed to live with ALS for 8 years but lost her ability to walk, talk and use of arms very early on. She was truly amazing. She never gave up and on the last day of her life she typed me a note with the one finger she could still use. This is a horrific disease and there is still no cure. This young lady is truly an inspiration to me and I am so grateful that she is bringing needed attention to ALS. Anyone that can, please donate to the ALS Association. They are behind funding research for a cure and need your support.

@oceandreamer1958 Год назад

What an inspiration! 🙏🏻🤗

@aprilstar3572 Год назад

What an angel 😇

@nannettesteyn4913 Год назад

Joy is the flag that shows the KING is in residence ! Shero ! Inspirational ! ❤

@theweysermanisback5205 Год назад

I saw a picture of Savannah Guthrie with Brooke Eby. These 2 are great together.

@ElaineR.-ft6tu Год назад

I sure hope something helps her and others. It’s taken 10 years to get a diagnosis for my daughters MS diagnosis. Because he took so long to diagnose it, she’s far gone. What a shame.

@michele5695 Год назад

@Elaine I'm so sorry for your daughter. Hugs to both of you. It shouldn't take so long. I have a disability also, that if diagnosed early wouldn't have ruined my life.

@ElaineR.-ft6tu Год назад

@@michele5695 it’s awful. 2 years finally on disability. This year she just went onto Medicare. 5 meds she can take and 2 are out of production as companies went out of business, all in all awful. She cant use a regular pharmacy, has to use a compounding one, of which there aren’t many near here. Right now she’s on nothing as there trying to figure out what they can give her. Anyway, life goes on, I guess. I hope you do well, I’ll be thinking of you. Hugs❤️🌺

@michele5695 Год назад

@@ElaineR.-ft6tuYou both are going through so much. At least she has you. I was recently taken off of a medication by a pharmacist, not my physician. I can't get this medication now and am deteriorating.

@ElaineR.-ft6tu Год назад

@@michele5695 thanks hon, but I’m not much help. Wish I could be. My health is shaky too. We do what we can. Take care of you. Hugs

@ElaineR.-ft6tu Год назад

@@michele5695 Michele, as I said she is too. Do you get migraines ? She’s been getting Botox and it does help the migraines but it’s a month since she’s had Keysimpta and it was helping. No longer on her list. It’s all so awful that you cant get Ned’s. Hers was 20,000.00 a month but of course the trial paid quite a bit, insurance covered some and she paid something. It’s a scam, what can I say. How are you failing? Right now I’m good enough to help, let’s pray that continues. I’ll be hoping you get a break in this awful disease,

@suestephan3255 14 дней назад

We can all learn & that heed to this disposition.

@jedaholmberg3211 Год назад

My prayers are with you❤

@nancyflaherty7038 Год назад

Bless you!

@umama5531 Год назад

I love her I follow her on TikTok she is so sweet.

@masonstarship56 Год назад

I’m crying

@brendaciraola3831 Год назад

Bless you!!!! I am praying for you!!!!!!🙏🙏🙏🙏🙏😇😇😇😇😇

@PrincessK880 Год назад

My good friend was diagnosed at 64 and died 16 days before her 66 birthday. She went quickly. It is a HORRIBLE disease. Everything goes- except your mind.

@4UStevePerry Год назад

Three years after my brother s wife diagnosis she past away from Lou Gerigs another form of ALS.she lasted 14 months. God Bless you.

@thecougarexperience Год назад

My mother in law, aunt in law and brother in law all died of ALS. It’s devastating.

@savagemoni. 7 месяцев назад

..I kindly appreciate your kind gesture @Dr.ubarlo YT channel, you have always been able to help me with any kind of health issues, the ALS is something the world thought it has no cure, but I'm happy to say today that I've been cured and I'm happy to have you as my doctor

@user-vc9kw2my7b Год назад

What a Positive, inspirational human being. Truly A gift from God to humanity.

@strajearocks11 Год назад

Many blessings to her. What is her RU-vid channel?

@metime4325 Год назад

Now, we call such person a true "influencer".

@barbsedlock3388 Год назад

God bless you.💕❤️. Donate!!

@judyavelar3237 Год назад

I lost my mother 20 years ago to this terrible disease.

@joylong8897 Год назад

Love her! Just a girl❤ cane and I'm Abel❤❤ thank you so very much for sharing. Laughter is best. I use cane. You're beautiful ❤❤

@annallen1421 Год назад

I see me in you. I to have als fus with mosiac. I am in clinical trial . 1 year bedridden and now 95 % normal

@savagemoni. 7 месяцев назад

@mjblue84 Год назад

They need to find the "CAUSE" in order to find the "CURE". I notice more and more people are suffering from this horrible disease.

@amamo22 Год назад

I have known two people who have died from ALS

@Laila-ss8qy Год назад

Saying a prayer for u my child n all those who r plagued by this horrible disease,enjoy every moment u have left ,this world is not our home,Jesus is on the other side waiting for u

@bess8523 Год назад

🙏🏻

@ShelbyFarrow Год назад

I'm surprised that after so much time since diagnosis that she can still talk normally. I saw a guy here on You Tube that had been diagnosed two years prior and he could hardly talk.

@suhasinibaliyarsingh6958 6 месяцев назад

My father is suffering from this desease how can I prevent i don't know please help me

@Memory_Bears_by_Grams Год назад

❤❤❤

@river8760 Год назад

❤

@ina-wo2xl Год назад

Sad that so many of those who can give spend their billions /millions on trying reach for the stars” . While so much needs to be done on EARTH. So many children dying from potentially treatable conditions if RESEARCH WOULD BE FUNDED. And same for other diseases including ALS. What’s wrong with humanity? Life does not matter,only profit matters. So wrong on so many levels.

@michele5695 Год назад

@ina too much greed in this world

@Gemmarose9012 Год назад

We can ALL give. I give $25.00 per month to the ALS Foundation. That’s less than the monthly cost for a daily cup of Starbucks.

@alexshatner3907 Год назад

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@SherrysReviewsandResearch Год назад

The true God loves us and never forgets us. He has the power to and will resurrect on a grand scale one day. Death is like a long and peaceful sleep. One that we will be awoken from. ❤ Im sorry to hear this news for this young woman and my prayers she will keep her positive spirit.

@carolablue5293 Год назад

God and Jesus have the power to cure. Perhaps they will use it to cure this woman.

@alexshatner3907 Год назад

I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@alexshatner3907 Год назад

@@carolablue5293 I just saw whoopie goldberg on her second job, right at 0:45 job wow interesting

@ahoward3819 Год назад

So why does God let this disease exist in the first place?

@DickNasty480 Год назад

I would not wish this disease on my worst enemy

@kevinraymcgaugh7164 Год назад

ALS isn’t an illness it’s A word to Describe music 🎼

@metalpunkergrrrl Год назад

LIES Jason Becker is a survivor of ALS, got diagnosed back in 1989, is 53 and alive today

@savagemoni. 7 месяцев назад

@settingthewheelinmotion4978 11 месяцев назад

For every one dollar from the federal government that goes towards ALL medical research around twelve dollars goes to the military. Seems like we could do better.