Melissa Sulpher, 38 years old, is not your typical person living with pulmonary fibrosis. Most are diagnosed, after several medical consultations, when they are in their 60s. Melissa’s case took quite some time to pin down, especially because of her age. “I’m the kind of person that looks forward, rather than back.” says Melissa. In this video she gives tips for other living with pulmonary fibrosis:
1. Take the time you need to process your diagnosis. It’s a lot to take in, for you and your family.
2. Stay as active as you can. Keeping in your best possible shape will make it easier to deal with future medical challenges (maybe even a lung transplant.)
3. Have someone go to all of your medical appointments with you. They can add their observations of your condition to your health care team and take notes about what the professionals are telling you. You cannot do it all alone.
Learn to accept help.
4. Connect with others living with PF. The CPFF has support groups. You can also connect with others online. I also met some great people when taking a pulmonary rehab program.
5. Get involved in the PF cause. Fundraise or advocate, be a resource for other patients, or share your story with the media. CPFF has plenty of opportunities for volunteers. It will give you a sense of empowerment and accomplishment.
6. Live your life, the best you can each day.
24 авг 2020
