My fingers will bow back and I can’t feel hot or cold. I’ll have a hard time talking without slurring or drooling the day before a migraine. My migraines started at 5 and it’s been a struggle to manage since then
I was 17 when I started noticing auras. I grew up in a family with 6 children, when we got sick we needed to be throwing up or have fever to get real notice. (Or blood) I didn’t mention the auras because I didn’t know they meant anything. Usually I had tunnel vision. One Sunday night I was at our church, on stage and while singing I had a terrible headache but I never let that get in the way of my performances. The song progressed to an extremely high note and I heard a pop sound and my legs went out from under me. The minister and minister of music caught me before I hit the floor. I was awake as I was carried out of the cathedral. This is November 1988 and when my parents brought me to the hospital the ER doctor ordered no tests and told me to stop faking, I was scaring my mother. Sent me home with muscle relaxers. Doctors afterward told me it was a migraine and to stop eating chocolate and drinking coffee. February 14th 1989 I was in a terrible car accident in which I hit my head so hard on the windshield that it caused a spiderweb of breaks throughout the windshield and the impact left a little hole right in the middle. I was knocked out and had a concussion but no MRI or even CT scan. Maybe that was too long ago, I don’t know. The auras only became more involved after that. It’s kinda funny, in college I decided to try doing a hit of acid and nothing happened. I was sure I would see the craziest stuff but nothing at all…. Until three weeks later when art came to life and a face on a painting followed me across the room. Visuals after that were more like hallucinations, not delusions but illusions. All in the realm of migraine aura. When I was 24 I had a migraine aura that caused me to lose the sight in my right eye for about an hour. Then I went to see a neurologist. I had two babies under 2 and they needed my not to lose my sight. (My husband didn’t believe me about the migraine auras or headaches) An MRI was ordered and they found something on the left side of my brain. They said it was the area that governed emotion and translation. This is 1996 and I have yet to pinpoint exactly what spot does that but it is an almond size lesion around the putamen. They said there was no way to know exactly what it was without surgery and I decided Surgery is something of a last resort and they thought that was best. They thought I must have forgotten about the tests run on me and requested records from the hospitals in my hometown and were actually shocked to find none were done. They believed what happened in front of the church was a stroke and more likely to cause the lesion than the car accident. (My husband never second guessed my pain after that) lol Since then I have done so much research and have found very little. I have Alice in wonderland syndrome symptoms because sometimes the things just seem like an exaggeration or what would typically would be there or a misjudgment of distance between me an a building. Many many times the things I see have emotion attached to them. It is strongest if is causes fear. So any malicious feeling or anger is easy to read. Have you ever seen someone that without hearing anything you knew they had malicious intent? Or angry? Those or usually the emotions I gather from the things I see. If I see something without a negative emotion attached I know I saw something if it didn’t make sense to be there. (Once I saw myself 3D, figured out later with investigation that it was a glass reflection from the other side of the room mistranslated visually as a person 2 feet away… yep, that one needed no emotion attached because I have no twin) but it scared the crap out of me and I booked it out of my house until my husband came home. I have always called my brain quirks things like visual migraines or emotional migraines. They have always seemed like migraines. The emotions hit me with no rhyme or reason. Like a migraine. I have never heard someone explain the connection migraines have to stroke. Everything you said made sense in my world. I have been diagnosed as bipolar with psychotic features for over 10 years now but I never actually fit exactly anywhere. If I don’t take lamictal my visuals are too powerful now so that is helping me as if I might have bipolar. Your video really spoke to me and I really want to learn more. My son who is 26 now has Lennox Gastaut syndrome and severe developmental disability. I would be willing to drive where you are to meet with you but it is hard to get away. So, if it is possible… Is there anyway I could talk to you about this? Please
I get the numbness in both arms and in my face and mouth, an sometimes lose the ability to talk. Some simple words don’t sound anything like the words i’m trying to say. A few days ago there was a tight feeling in my left arm along with the numb tingling feeling, it felt like my whole arm was in a blood pressure cuff squeezing my arm. This feeling lasted for about an hour or more. It all started instantly from a visual aura, i’ve noticed that some incoming storms trigger these migraines. I’m a 39 year old male Army Veteran who had a brain trauma on deployment.
Usually on a fine day high pressure i would get like a goo effect in the corner of my right eye. Hour later would get migraine headache, but if i took an aspirin first i could prevent the headache. Been this way 10 years or so. Some months ago had goo effect, didn't bother with asprin. But drove home from work my foot went numb. Test showed nothing on CT scan, but MRI showed small tia. I still can feel something in right foot and sometimes i notice slight imbalance. I find it hard to stand on one foot with eyes closed.
