Maureen "Mo" Jurgens was born in 1995 with a rare disease as yet undiagnosed at that time. Mo's mother, Kate, a neonatal intensive care nurse, recognized the signs of birth defects right from the start: turned feet, closed fists, and a cleft palate. It wouldn't be until over nine years and seventeen surgeries later that a key discovery would lead to the diagnosis of Loeys Dietz Syndrome, a rare connective tissue disease that allows aneurysms to grow throughout the entire body as well as wreak havoc on the j
23 янв 2013
