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Mr Nicolas Nicolaou; Surgical management of OI 

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Mr Nicolas Nicolaou's address at our 2015 family conference in Manchester, which was live-streamed on RU-vid.
The Brittle Bone Society is a registered charity helping people affected by Osteogenesis Imperfecta. Visit us at brittlebone.org
This video should not serve as medical advice or instruction.
Please always consult your healthcare professional in the first instance.

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21 сен 2015

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Комментарии : 4   
@noblemoyo8865
@noblemoyo8865 7 лет назад
My wife has O.I and had a mayectomy on the 5th of december 2016, 2 days later her tummy swelled up, and she hd a CT scan done and it showed that because of her small frame her intestines hd buclked up , so she hd to go under for an explaratory laparathomy op to fix things etc etc. Now the Dr says under normal circumstances her uterua is supposed to be behind the intestines (cant remember if its the small or large) , but he said he placed it in front of the supposed intestines. Im wondering now, that if her uterus is misplaced in the front, where is her fallopian tubes and ovaries in there ? Are they ok? shehad the socalled adhesions and the Dr admitted her and said that its part of the healing process, today she woke up feeling bloated and hs some mild pain arond the pelvic area (assuming that the pelvic area is around the region wr they cut when doing a C section, arnd the area wr u feel your pee when yo bladder is full). Please advise, im worried
@clairekime9799
@clairekime9799 3 года назад
i have OI i have type five its a strugel everyday and when im at school i get to skip the dinner que bc i cant stand for a long time and i get to leave my lesson 5 mins early and i got in a fight with my bf bc he didnt understand when im aloud he says im lucky but in my head i just want to say to him when will u understand that i need these things and actually support me and come to a point where you understand. OI is a very hard condition to live with because its invisible the ONLY time ts visible (kind of) is when u have cant on
@shamunaabdullah9452
@shamunaabdullah9452 3 года назад
Hello Good day. Am a nurse from Ghana. I have a patient am currently managing who has been diagnosed with OI. Treatment in Ghana is very slow and is causing more complications to my patient. Please is there any one here who can help my patient recieve treatment outside? Thank you
@Saba.2a
@Saba.2a 8 лет назад
I'm 29 and i have brittle bone disease but not OI. I want to know whether i can get lengthening nail in my leg and arms for growth cuz im short ,4'6" well i used to be 4'7" but I'm growing shorter i suppose . Please can anyone answer ?