Multiple Myeloma in 2023: What Patients & Caregivers Need to Know Now! | The Patient Story

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There are so many developments happening in multiple myeloma! While this is wonderful, it is getting harder to keep track of all the potential updates and changes for those living with and caring for a loved one with myeloma.
The Leukemia & Lymphoma Society (LLS) and The Patient Story bring you this program out of the biggest blood cancer/disease conference every year where top doctors and researchers discuss the most important updates (American Society of Hematology, or ASH) which took place December 2022.
Long-time myeloma patient and advocate, Jack Aiello, leads this conversation with Dr. Joshua Richter, Multiple Myeloma Director for Blavatnik Family-Chelsea Medical Center at Mount Sinai and Dr. Muhamed Baljevic, Plasma Cell Disorders Research Director for Vanderbilt-Ingram Cancer Center.
Thank you to Karyopharm Therapeutics for its support of our patient education program!
Full story & transcript → www.thepatientstory.com/medic...
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Contents of this Video:
00:00 - Intro
5:11 - What are bispecific antibodies?
7:29 - How soon will patients be able to start on bispecifics?
8:44 - When will bispecifics be available in Community Cancer Centers?
11:24 - Will bispecifics be given in the outpatient setting?
12:22 - Thoughts about patients needing hospitalization with bispecifics
15:40 - Limited duration treatment with bispecifics for relapsed/refractory myeloma patients
18:15 - Who would qualify for bispecifics?
19:36 - What is the overall takeaway for CAR T-cell therapy?
21:24 - How do you choose CAR T or bispecifics and in what order?
24:37 - What role do ‘novel therapies’ play?
25:30 - Understanding what dose is best for Selinexor
28:23 - How do we include more diverse populations in clinical trials?
#multiplemyeloma #multiplemyelomaawareness #bispecifics #CARTtherapy #CAR-T #cancer #stemcelltransplant #MMSM #ASH22 #thepatientstory #lls #myelomanews #myelomadrugs #cancerpatient #cancercaregiver

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9 июл 2024

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Комментарии : 70

@leonardwilson9876 8 месяцев назад

Thank God I'm going through it now in December I'll be getting my stem cell transplant and I pray that God gives me the same time if not I've lived a wonderful life.

@ursulak.2691 Год назад

Thank you for this video. And hearing you have lived 30 yrs with diagnosis has given me hope that when my mom starts treatment we will be as fortunate as you.

@beinghuman12349 Год назад

Hey How is your mom

@michelsooriah692 Год назад

Your mum diagnosed recently?

@beinghuman12349 Год назад

@@michelsooriah692 Yes last month She has been diagnosed

@michelsooriah692 Год назад

@@beinghuman12349 from What country. I am from mauritius. Diagnosed Aug 18. BMT oct 19. I am on remission👊💪🙏❤

@beinghuman12349 Год назад

@@michelsooriah692 I am from INDIA my mother diagnosed last month Please suggest me some information I will wish you Good Luck for your BMT will pray for your good health

@brianraupp8058 Год назад

Exciting to hear so much research is being done and the doctors seem so hopeful for the treatment improvements already in the pipeline. With so many other maligncies I could have been hit with I feel fortunate in a way that it was MM. With the aggressive treatment I received so far and upcoming SCT I could very well see my yet-to-be-born granddaughter graduate from high school. Keep up the wonderful work, MM researchers everywhere !

@thiscrazyfuramily138 7 месяцев назад

Thank you for this! Very promising!

@udayadiasnagahawatte8442 Год назад

I was diagnosed MM in 2018. and had treatment 16 chemotherapy four times per month. But Doctor refered me to transplant ( B.M). Its done at Maharagama Apeksha Hospital Sri Lanka by Dr. Prasad Abesingha and his staff. Since then gave me medicine for 24 months . Now I m not having medicine but appear to clinic in every three months with s.p.e and full blood count reports.. Thanks you all for explanation like this. Appreciative and brings me pleasure .

@Turtlenetural224 Год назад

exactly with my jouney. just done autologous SCT 44days ago. and im just 39 when diagnosed mm.

@MijelomCRO Год назад

Great seeing you and sharing your story. You never stop, thank you.

@KC-xh3rd Год назад

Thank you for bringing this discussion. We are seeing Dr. B now. He is great!

@indikajayawardana4952 Год назад

Thank for your valuable information ❤

@salemmouchref9174 Год назад

This was the best video I watched about multiple my Loma in a long time. Thank you so much.

@ThePatientStory Год назад

So happy to hear this! We just published this video yesterday: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-WmnXlozOvQM.html It includes some of the latest treatments in multiple myeloma!

@jimmoshinskie3955 Год назад

Thank you Jack. We go April 6 to St. David’s Hospital in Austin to determine possibility for T cell transplant. This video helped us understand more. God bless you all.

@rxmw40 Год назад

Who is your doctor? I am in Austin but travel to MDA in Houston.

@CHEMSTAR333 11 месяцев назад

Thank you for such detailed information. Please continue. It will be good if you do the explaining in some simple way; if at all possible. Thank You Very Much.

@BruceBarnes-el6ev Год назад

very educational and Jack , you did an excellent job as a moderator.

@ThePatientStory Год назад

Thank you for watching!

@marcosplanas1831 Год назад

My sister has been diagnosed this week, I’m now starting to educate myself with this disease, you have made me have a little brighter picture mm

@ThePatientStory 11 месяцев назад

We are sorry to hear about the diagnosis - glad that this was helpful!

@graciousgirl5161 7 месяцев назад

My husband has had it for almost 6 years... He has the most aggressive MM. We have done 5 clinical trials / car-t-cell treatment / 3 DCEP treatments.

@thomaskrymkowski-om5mk 7 месяцев назад

My MM was in remission after velcade chemotherapy. Mspike could not detect any abnormal protein until a few months ago. Now they want to watch the MM with tests every month. I am 50 lbs overweight so my back pain may be related to being overweight but i will tell my MM doctor about it.

@hydie0079 Год назад

I had to call the ambulance for my dad and they thought he had sepsis but they did a scan and blood work and he was diagnosed with Multiple Myeloma and he died the next day 😭 They said he had cancer everywhere....he never had any symptoms until the day before he died... 💔 We just had his funeral Friday 😭😭😭😭 I don't understand why didn't his Dr catch it why didn't he have any symptoms??? I'm so angry and absolutely heartbroken 💔 God bless you I'm so happy you're doing well ❤️ xx hydie

@fay791 11 месяцев назад

God bless hope you get an answer x

@souravkg333 9 месяцев назад

God is shit@@fay791

@jemikabates9038 8 месяцев назад

Back pain is very common symptom. Almost every person my husband and I meet while he is getting chemo has had that very symptom which led to them getting diagnosed. Did your dad complain of a nagging back pain.. and I am so so sorry for your loss hun…

@graciousgirl5161 7 месяцев назад

I am truly sorry to hear about your father. My husband got diagnosed when he was 41 years old. The day he got diagnosed he was hospitalized.. The symptoms are back pain, poor vision, weight loss, no energy, & nose bleeds.

@deborahroth7579 Месяц назад

I did not have any symptoms & still don't going into my 1st relapse (including no back pain). I had some medical issues but doctor blamed other things due to not being familiar with rare cancer

@duasatukecil4128 Год назад

Thank you for sharing salam from 🇮🇩

@amypetra5021 Месяц назад

Sooo, does Bend Oregon have a multiple myeloma support group?

@myrnarito9267 Год назад

Thank you i have multiple myeloma iwas diagnosed on dec 2022

@beinghuman12349 Год назад

How are you now My mother has been diagnosed with MM Last week Please provide me some information

@natashab3412 Год назад

My brother diagnosed in dec 22 also. What type do you have?

@beinghuman12349 Год назад

@@natashab3412 Now a days Multiple Myeloma patients have various treatments available is it right

@natashab3412 Год назад

@@beinghuman12349 yes. Lots of difffent treatments available. More every year

@pollyannwells5173 Год назад

Is it OK to just go on hopise and how long can I live after Diagnosis?.

@docimma 27 дней назад

What is disappointing is that some patients only receive neuropathy causing chemotherapy which reduces their quality of life.

@docimma 27 дней назад

What studies are in Dallas (preference) or other areas in TX now? Need enrollment for formerly very active golfer 82yo with year 8 MM, no other comorbidities. Chemo has reduced his quality of life due to destructive neuropathy.

@markgriffith2473 Год назад

My dad had multiple myeloma he lived to 82. sepsis and kidney failure is what ultimately got him I guessing that a related progression . He did chemo ( shot form once a week ) and a pill that was really expensive Medicaid and his insurance pick up the cost it seem he went down hill faster . .My sister friend Dad had it and was taking a shower and his leg gave way and broke he passed soon after few days . You beat it , maybe treatment continues to get better.

@mrigankasaikia8444 Год назад

Same here my father is suffering from kidney problems one year remission of multiple myeloma

@mrigankasaikia8444 Год назад

How long your father lived after he was diagnosed with myeloma?

@mac5333 11 месяцев назад

Help, where can I get help for my loved one with the same diagnosis? Help me please, please, please!

@emmanuelking9988 3 месяца назад

Search on-line for the Memorial Sloan Kettering Cancer Center(s) and check out Dr Thomas Lodi's RU-vid channel, the Fasting Escape's channel and People Beating Cancer youtube channel. Look up benefits of turmeric (curcumin), Essaic tea, Soursop (Graviola) tea and water only fasting, Valto Lingo's studies on intermittent fasting. Lots your family member can do ALONG with conventional treatments...God bless 🙏

@emmanuelking9988 3 месяца назад

People Beating Cancer youtube channel and website.

@snowremover Год назад

I have had a break from it for 10 years after SCT, and maintenance, but unfortunately I think I am relapsed. PET scan coming up Feb 23rd

@sherrydaut4910 Год назад

So very sorry you relapsed after 10 year. By now I'm sure you've had your pet scan. I'm truly hoping you received good news. 🙏 If not, what is the recommended treatment moving forward. God Bless

@snowremover Год назад

@@sherrydaut4910 Thank God and Medicine, but I didn't relapse! There is no sign of cancer anywhere, but I am having inflammatory problems that have to be dealt with. I am very blessed 🙌

@sherrydaut4910 Год назад

@@snowremover Wonderful news! Hopefully your inflammatory issues are being treated so you can enjoy the life you deserve.

@beinghuman12349 Год назад

Hey My mother has been diagnosed with MM last week We are in much panic Please reply I am from INDIA I have no idea what is it 😭😭😭😭

@snowremover Год назад

@@beinghuman12349 it's a blood cancer, but there's so much they can do for it. Make sure you have a good oncologist who specializes with MM I WAS very scared also, but am here 10 years later

@GD-cr5um Год назад

Chemotherapy is so bad my partner has suffered neuropathy. Our medical system is fraud

@eltonlouiewolf-wilson8345 Год назад

I'm sorry your partner had a bad experience, but it saved my partner's life!

@GD-cr5um Год назад

@@eltonlouiewolf-wilson8345 it doesn't work for everyone and it screws Ur immunity. In cancer u need to treat it with healing intricate parts not throwing a truck full of poison to shut down the immunity. No wonder many patients in remission get the illness full blown in years to come.

@thomaskrymkowski-om5mk 7 месяцев назад

What should i take for back pain?