Talking about optic neuritis and the experience I had with it. In this video I discuss the different sensations I have with each episode of my optic neuritis and what treatment I had.
I have optic neuritis. It attacked my left eye. It occurred as a sequel to a herpes zoster virus. I don't have multiple sclerosis. I'm really worried because my eyesight is really impaired. I started on IV steroids and am now taking oral steroids. My vision went from 20/100 to 20/40. However, I see a lot of black spots and everything looks blurry, low visual acuity. I'm very sad. Very cool your video and your story. You pass a calm speech and show to be a very strong person. A hug from Brazil
I'm sorry I missed this, I'm also sorry to hear that you are sad. I know we have spoken a little bit on here but please keep strong, keep positive and have faith in time that your eyes will recover 💪🙏
Thanks Laura. I was diagnosed with MS back in 2011 while I was working overseas in Qatar. I was initially devastated and completely lost. I was on and off treatment for a few years but since 2015 I decided to not take medication and have focused on alternative well being methods. I have not had a relapse for some time. I think 2013 was the last tome. However, last few days my left eye has been bothering me. Today the eye specialist confirmed that it was Optic neuritis. Have been feeling very fearful of what this all means and thus came across your RU-vid channel. Thank you this has given me some ease.
Hello! It sounds like you had a really long period of remittance with your MS which is great, especially too when you are not taking any medication. Sometimes without realising we are going through stress or pushing our bodies, not getting enough sleep etc and that can be reason enough to bring on a relapse. Take things easy and look after yourself and check that eye out by a specialist too. Good luck I hope you feel better soon
@@lauraironstalksms thanks Laura your videos are really helpful and encouraging. You have hit the nail on the head, my sleep has been very inconsistent and I have had a lot of stress recently. Also, need to go back to focusing on well being in terms of regular exercise and good eating. I have definitely slipped off those things. Got an appointment for the eye later this week 🙏🏽🤞
I had optic neuritis. The pain with eye movement in my left eye was horrible. At the same time I got a cold. Every time I sneezed or coughed the pain would shot from the front of my eye to the back of my head. That was two weeks of hell. While my vision was never affected my eyes are now sensitive to light especially sunlight or snow.
I can only imagine what the sneeze /pain must have felt like. Snap, my eyes are so light sensitive too, sometimes when I'm watching TV and there's a sudden flash of light it hurts and I have to look away. Sunglasses are an absolute must! Hope you're keeping well 💖
@@johnnyr3105 My vision is excellent, but my eyes are still sensitive to bright light (sunlight, tv, cell phones, ect) but honestly bright lights aren't good for anybody's eyes. Turning down the brightness on screens and wearing sunglasses more ofter has helped me alot. On the other end, My eyes take longer then normal to adjust when the lighting changes all of a sudden. While this is easy to deal with. It's just another annoying thing thanks to my DAMN MS...😒 We can't let MS get us down. KEEP FIGHTING👊💪 Keep well and I wish you the best of luck!!!!🙏
Thanks Laura. I had diplopia as my first indication of MS. They put me on iv steroid, methyl prednisone it was gone After one dose. Got a slight case again about 10 years later snd it resolved itself. No pain either time but frightening nonetheless .
Hi Brian, thanks for sharing. I just had to look up diplopia, learnt something new thanks! Yep that methylprednisone is some strong stuff! I find anything to do with the eyes /sight is frightening and I'm all for looking after the eyes. I'm glad yours resolved fingers crossed it never comes back 🤞
interesting Laura, thanks.. diagnosed with MS 4 years ago but hadn't had any vision problems until recently. struggling to see words on my phone and screen, not really any pain yet, but could be on it's way. peace.
About the vitamins you said I recommend the consumption of lutein and zeaxanthin, which are two carotenoids. You can find good products. Then search for the VITEYE name you can buy. They are important for the health of the retina, macula and lens. It is already well documented in the literature. I'm a nutrition student and I study a lot about these compounds. You start getting the benefits after a few months. Also great is omega 3, especially high in DHA, look for above 500mg. I'm doing this supplement It's also important to pay attention to vitamin D levels. Steroids cause us to excrete more calcium. And in order to have a good absorption of calcium, vitamin D is necessary. So supplementing this vitamin is also very useful. Hugs from Brazil
This is such great information, thank you so much Pedro. I appreciate any help and advice. I will certainly look into the VITEYE vitamins. I take omega 3 but I don't think its as high as 500mgs So I will also look at this too. I didn't know steroids caused a lack of calcium?! That's very interesting. Thanks and hugs from Wales 🤗
@@lauraironstalksms You're welcome! Corticosteroids, such as prednisone, decrease sodium excretion, resulting in retention of water and sodium. Conversely, these drugs cause increased excretion of potassium and calcium; therefore, a diet low in sodium and high in potassium is recommended. In In general, calcium and vitamin D supplementation is recommended after prolonged use of corticosteroids to prevent osteoporosis
Optic neuritis can feel like a scary thing, make sure you have the support of your neurologist / doctors who should be able to help you through everything
I have optic neuritis in my left eye, i had intermittent vision issues and pain which grew in intensity and frequency over many months. Then it grew to a point where vision in the left eye was badly affected and it no longer hurt. I had lost my mum and dad in the space of four months, so i wasnt in the best of places mentally so didnt take action like i should have done. When i finally did go to the opticians all the layers of my eye had thinned out, the optic nerve was badly damaged and my left eye is not reactive to light. The optician told me there is little chance i will recover sight in that eye. Im now awaiting an urgent referral to eye department in hospital and referral for neurology as MS is suspected.
Oh no, sorry to hear this! Also sorry for the loss of your parents, emotional stress is always the toughest on the body (and unfortunately MS) I do hope that your appointment goes well for you 🙏
Thank you, at the moment I'm finding wearing an eye patch is better as the poor vision in the left eye throws my senses off if that makes sense? I feel like I can see better with the left eye blocked off.
Anyone on here who have not fully regained vision? December 2018 I woke up and was completely blind in my right eye. I was subsequently diagnosed with MS, admitted to the hospital and underwent steroids and IVIG. I went from completely blind to being able to “see” about 20%. It’s been 3 years and I’m probably at 35% with my eye? Apparently ON just goes away but I have had no such luck and I’m wondering if anyone else has this issue.
Hi, no I haven't had an issue where I haven't regained my vision, I'm sorry to hear that for you. I know you said it's been 3 years but sometimes it can take longer to fully recover. Hopefully someone may read this post and get back to you if they have had a similar experience. I am currently having another flair with my optic neuritis, so I imagine that when your body has a weak spot it targets that unfortunately. Wishing you all the very best
Hi, I’m sorry original commenter to hear you have been struggling with your vision for a while. I had have 2 episode of ON, one in 2012 that lasted 3yr after few course of steroids my vision did return. But recently had another episode and currently on a course of steroids. I thought the same thing wondering if my vision will ever return as many drs said “it’ll just return”. It might be be a longer journey but have faith.
7 месяцев назад
What are the other symptoms with MS besides optic neuritis?
