Multiple Sclerosis - How I Knew I Had MS 

Thank you for your video. I had a nerve conduction test done about 12 years ago. I was told i had nerve damage, but it was not MS yet. I often complained to my neurologist about other symptoms and basically just given another pill or shots to take. Passed from Dr. to Dr. I finally after 12 yrs. figured out for myself what was causing the nerve damage and other symptoms. Gluten. I was an undiagnosed Celiac for all my life. That was causing the headaches, dizziness, loss of function in my legs, etc. Celiac can cause you to not absorb the nutrients your body needs, causing a host of problems. Osteoporosis by age 40 (bones of a 78 yr. old) and 3 spine fractures starting at age 32. Just treated with chemicals for that, not trying to find the cause. I've been gluten free now for about 2 years and am so much improved. No longer bed ridden for 4 or 5 days from pain in head and face. When I have anything with the tiniest bit of gluten, even cross contamination, I can feel all symptoms coming back. Don't know if this will help anyone, but it's worth a try. I am in charge of my own health now. God bless.

I just got diagnosed. My symptoms were vertigo, depression, tingling in my feet and hands, pain in my legs. I also could not write anymore. My hand won't just listen to me. I have such strange symptoms that in the past I've been diagnosed as mentally ill. Finally i have the right diagnosis. Now i know I'm not crazy.

I have had MS since my 30's I was treated with steroids and it would come and go. They would tell me that it was all in head. I finally found a good neurologist. Who was wonderful. I went into remission and now I am 73. And it has come back. We moved from AZ 14 yrs ago. My new doctor here in FL. would not believe that I had it, until she saw my MRI. She was awful. I now have a good doctor. But there is nothing worse than a doctor that won't believe you. Thank you for this video. And I will include you in my prayers.

I saw one of those Dismissive doctors yesterday. With a little smirk like smile, and a wave of her hand, she said oh no, you don’t have MS, we’re not going in that direction. And hopefully I do not have it, But she was not listening to or caring about my symptoms. I couldn’t wait to get out of her office.

I was diagnosed in 2018 at 30 with complete left side numbness and disfunction when i stood up(leg and arm), debilitating migraines, and leg pains. Delt with this for 10 years. Finally, I found a doctor who would listen, and i was sent in for an mri. I found out my frontal lobe was riddled with lesions. I also found out I had scoliosis. I already knew about MS because I had an aunt who passed from complications. So, of course, i was terrified... i immediately tried dmd. I tried 2 different ms medications within the first year and a half, and I lost my eyesight due to optic neuritis. at this point, I was done. I chose to apply what I have read about MS to my life ( because again, my aunt had it, and i read so much about healing her. Just didn't know i would be healing myself). I stopped the MS meds and focused on a heavy metals detox, changed my diet (alkaline/ whole food plant based as well), and i consumed lots of herbs and supplements. Tips: Have your vitamin d levels checked. My levels were 7 ng/ml when checked, so I now take higher than normal doses along with vitamin k2. Mushrooms are also beneficial. I drink chaga tea daily( balances the immune system) , Willow bracket, and lions mane( google the studies done on these 2 for Ms) . Focus on an anti-inflammatory diet. Meditation is so good. 😌 look into the book, the medical medium, and he has interesting things to say about what MS actually is. He suggests lots of supplements, and I consume lots of what he suggested... look into things that calm the nervous system. I take lemon balm and passion flower tinctures, and they are amazing! Sorry if I'm all over the place. Im just passionate about my healing journey. I still do yearly MRI scans with my neurologist, and i have not had any progression in years he calls me his miracle patient because my ms was very aggressive in the beginning. I still have some eyesight loss in my left eye but regained perfect vision in my right. I have some fatigue when i overdue things, but that's it....I encourage those who are reading this, to not be afraid, take your life back, and heal! You got this! ✨️ 😌 🙏 ❤️

I've been going to the doctors for 20 years with complaints. Always treated like I'm a liar and sent away. The last 3 months I've been home with severe pain, daily all day migraines, severe cognitive decline and lethargy. Went to the doctor and told I have a sinus infection and sent away. Why won't doctors help me but help others?

I really feel for you and I do understand. My wife was diagnosed as having a stroke because the symptoms were predominantly on her right side. Then she was diagnosed with MS. Finally the neurologist got it right. She had it for 26 years. I was her carer for almost all that time. We even built a disabled home where I live now. Take care. Enjoy life as much as you can.

I was diagnosed at 39. I am now 54, I have RRMS. Looking back I had symptoms as a very small child. I started having strange attacks during my teens and after my babies were born. I started different Meds they made me worse. I have found the best thing is resting when your body is telling you l believe changing habits and routines, learn to say No to others demands. Light weight gym workout also helps. I decided I have had this all my life I only take pain relief when needed. Being diagnosed was the best thing that happened. I finally knew I wasn't lazy.😢❤

My first symptom was with my eyes. I was sent to three doctors in 3 hours. The last one, an optic neurologist told me it was a virus and injected steroid behind the eye that was now half blind (bottom half). It halted the episode. Two years later I had a severe bout of dizziness. A year later I lost my balance so bad at work I was sent to hospital and finally diagnosed. That was 25 years ago, and I am still here, have had cognitive issues, fatigue and weakness. Rest and Less Stress is key.

I knew I was sick, some autoimmune illness since my 20’s and then finally was diagnosed at 52 last year. For 27 years I had been going to doctors because I was an archaeologist; work that demanded 10 hour stints a day, walking 14-16 miles off trail a day. During my 2nd to last year of arch. in 94’, I all of a sudden became exhausted, started falling down the mountain. Two years later, I was in a ball of pain for 2-3 days until the flares broke. Then was accused of pill shopping or psychiatric disorders for decades to come. At age 33 I could no longer work. I diagnosed myself with Reiter’s Syndrome(can’t see, can’t pee, can’t climb a tree). Rheumatologist agreed. Maybe I have both. Still working that out. Unfortunately they cut me for tarsal tunnel syndrome. Biggest regret. Then last year, my wife got me into a Dr. who looked behind every corner. Inflammation so high that it was MS or Brain Cancer. I would be careful when researching your conditions as simply putting in the search terms can you contaminate the results. The landscape of the internet is so polluted. It used to be full of very helpful information then goofballs started inundating the web with nonsense, anecdotal and quick cures. You have to fight for yourself. Nobody cares but you when it comes to you and a doctor. You often find you’re the least important person in the room and it’s some kind of ego trip you are paying for…..over and over. I’m bitter. I’ve lost my life as I knew it and only because someone loved me did I make it this far. Optic nerve damage, mass lesions in stem and other parts of the brain. Still great balance but lots of other problems. Ms is as unique as the nervous system it is attacking. Last neurologist said MS isn’t painful yet trigeminal nerve pain a.k.a ‘suicide disease’ is nearly impossible to control and can last for years. You feel parts of your body, that most of us are aware of.

Wow. Did I ever need this video. I'm 67 years young. 10 years ago I began to have what I thought we're symptoms of fibromyalgia. I was in a stressful relationship and my diet was not very good. I changed both the status of the relationship and the diet, the symptoms greatly reduced. Then I got COVID. Not once, not twice, but 7 times over three years. During that time I was diagnosed with long covid. I was in a wheelchair when I went out and my mobility in my house was aided by a walking stick or walking frame depending on the severity of my symptoms. I would go through periods of time like two or three weeks or maybe even a month where I thought oh I'm getting better and I would literally dance around my house not use a walking device feel really terrific have a lot of energy have my cognitive stuff back.... But eventually I would have a a relapse of symptoms... The entire time I'm going through this I have a friend with MS. And to be honest I didn't know very much about MS. But it began to be obvious that we had many similar things happening in our lives. Then about two weeks ago, I became so ill I could not get out of bed I could not walk I could barely feed myself I was an excruciating pain I had been diagnosed with long covid and so had been given gabapentin that I could use at will and I also used ibuprofen but it was getting to the point where none of these things were working. I got in touch with a friend of mine in the United States who is a medical assistant and she sent me a form of symptoms and she said would you please just check over these and tell me which of these symptoms apply to you. She purposefully didn't tell me what it was for. I had about 80% of the symptoms on the sheet (including the famous MS hug symptom). She told me that it was an MS symptom sheet and I needed to make an appointment with my GP and try to get in to see a neurologist. That's the moment. That is the moment I said to myself 'oh my god I have MS'. Not only do I have MS but I have had Ms probably for the last 10 to 15 years. I burst into tears in a combination of shock and relief and a not a small bit of fear. I am in full relapse mode can I have been on this internet looking for information because like you I believe information is power When I ran across your video it resonated with me so completely and I felt so encouraged by it. About 3 months ago I switched to a plant-based diet. My mobility is such it is difficult for me to exercise but I am going to pursue something for my strength. Thank you for this video. So so so encouraging. Blessings. ❤️❤️❤️

It is so frustrating that some neurologists are just unwilling to diagnose the MS, even with all the positive test results and clinical signs staring them in the face. It took me 3 neurologists and a lifetime of reporting symptoms to numerous Drs throughout my life. I finally got the diagnose at age 55. By then, I had so much damage that even though I am on medications for the MS, I still have some severe residual damage that has affected my life in a negative way. I’m a warrior though, age 65 and still going.

Many of us are having all over chronic body pain. Inflammation and it’s being completely dismissed by the doctor! We are being neglected by doctor and hospital! And MS is horrible! And to over look it or think that someone doesn’t have MS is nuts that they didn’t do more, she should sue them!

Your story is so similar to mine! NO ONE believed me, especially the doctor that I didn’t click with. The orthopedic person I visited, who insisted on cervical blocks even when I wasn’t in any pain, was actually a blessing in disguise because the anesthesiologist who administered the block asked about why no one had completed a full head scan on me. I went on my own to an autoimmune specialist who ran did lab markers; when he didn’t see anything but knew my weakness was evident, he sent me to a neurologist. Even the neurologist didn’t think I had MS but ordered an MRI with and without contrast to rule out other factors before he investigated my weakness. I had not made it home from the MRI when I received a call with the MA diagnosis.

My mother had MS. She passed in 2018 At age 60 from complications (became a quadriplegic). She regularly said the treatments nowadays are sooo much better than her options were when she was diagnosed in the late 70s.

Hello! Thank you for this video. I’m 21, almost 22. I just started having MS symptoms in the last few months. I went to the ER yesterday and I passed my physical, my reflexes are still intact. The doctor said I don’t currently meet the requirements for an MS diagnosis, but he said that he doesn’t promise that I’m not developing it. I’m extremely dizzy and lightheaded, shooting pain and numbness in my extremities, etc. I don’t know what to do moving forward…. I’m a healthy person, grew up playing sports and I’m a yoga teacher… and so young! So it’s a bit shocking. Regardless, your warmth and honesty in your videos drew me to you and I really appreciate your videos.

Thank you so much for your video. I'm preparing to see a neurologist for hopeful diagnosis on Tuesday. What you said just before the 10 minute mark really struck a chord with me. One of the reasons getting a diagnosis and a name for what's wrong is so important is that I want confirmation that my symptoms are real, the pain and confusion and numbness is not all in my head or manifested stress, and I honestly want the support from my family to make changes beyond just what I can do. I need the understanding and belief of others. Your confidence and warmth and ability to still remember and articulate things gives me hope. Lately I have felt like my future is unraveling. Thank you again ❤

…you don’t need to suffer- keep advocating for yourself- such a powerful ending. thank you ❤

I relate so much to your journey. I haven't been diagnosed yet but hearing you talk about your experiences feels so familiar it makes me feel less alone in this process. Because damn, just getting to the diagnosis is exhausting.

I have that voice in the back of my head. I’m just not sure how to go about telling my Dr to test for MS without him looking at me as though it’s all in my mind. Thanks for sharing!

The unknown is the worst. When my older sister was alive, when she was finally Dx with MS, it took a long time... The drs would tell her, her symptoms were in her head, etc. It was ridiculous the run around she got...

Funny that your video popped up in RU-vid tonight. With Mother's Day this Sunday I have felt very sad the last two weeks. My Mother died going on 12 Year's ago. She had MS. I hear your story and it sounds so much like my Mom's. Multiple year's of mild symptoms. Doctoring and journaling through her life until my Grandmother died. My Mom's Mother. That's when the MS presented itself. Somehow, I'm finding some comfort in hearing your story and reading other comments. The comfort is coming from your strength. My Mother was the strongest Woman I have ever known. And I hear that same strength in your stories. Your so Brave for sharing your story to the world. Stay Strong and continue sharing it. You are an inspiration! God Bless! ✝️💜

Thank you! I was diagnosed 3 weeks ago and I'm very scared. Hearing your story helps me a lot!

thank you for sharing your story, as well as how you care for yourself now. i'm really glad i found you on here :) hope to keep learning from you! (edit - i also have MS, diagnosed april 2022)

Great video! Vickie, you are so positive and loving in sharing your story and how you’ve learned to live your best life with MS. Thank you so much ❤

Great information, Thank you. I also have scoliosis and wore a brace when I was a teenager, the worst possible time to experience that! But I normalized it with my friends and kept my confidence and sense of humor. My brace had a name and was considered just part of who I was. After watching this video It opened my eyes. I now know that I have been having symptoms for years! I just never thought it would culminate into MS! I see the MS specialist this week. To be honest, I am scared. I do believe that diet, exercise, and meditation will help me get through this. I have done it before, I just got off my path for a bit, but will find my way back. I will continue to watch your video for support. Thank you for doing this!

Sorry about your diagnosis. So glad you're sharing,and helping other's.

I love your attitude and personality. I think your outlook on life makes a huge difference towards how you feel. Wishing you the best!

You told my whole life story 🤦however im still waiting on the diagnosis, i been falling like crazy. Thanks for this story it was very inspirational

Echoing what others have said but thank you for your video! Such a beautifully hopeful and gracious tone in how you share your journey - really encouraged me today. Bless you!

Really great, comprehensive health journey story. A great reminder to focus on using energy for positive changes where you can and practicing kindness.

Your story was so well told, and likely mirrors the experience/journey of so many people with a chronic disorder regardless of whether it is MS, Parkinson’s, etc. Your encouragement to continue to pursue answers is excellent, along with listening to your gut when you do not click with what is being recommended by a doctor. (Of course I’m not saying ignore the expertise of these people - just to weigh the information and consider what is right for you after understanding the pros and cons of their recommendations.) I am impressed with the effort you made here to share the unfolding of your diagnosis and the way you exhibit the vulnerability and strength required to navigate these events. I think it’s really interesting when you share what was going on in your mind then vs. now and the evolution of acceptance of your new normal. Best wishes to you and thank you.

I felt the same way as you! After 7 years of surgeries and meds (& I've been on crutches 10 1/2 years),! I was diagnosed with MS 11 mths ago. And even though it was scary, I was so relieved to finally have an answer! Because now I can know the Things to do to help myself! Diet, exercise, meditation,all the things you said!

Watching your videos, and reading the comments, helps me realize I am not alone in this MS journey. We also share a very similar story. I have yet, after being diagnosed 15 years ago, to find a neurologist that will see me. So frustrating. Thank you again

Thank you for sharing your story! This is completely random but I really admire your memory and ability to recall important details and the timeline of your journey. My brain fog and memory are horrible but I’m trying my best to document and track everything to really own my journey with MS.

I also have MS- diagnosed 20 years ago. Thank you for your story. ❤❤

Thank you so much for posting this video! For the last 10 years I have have bouts of episodes of debilitating pain, numbness and tingling.drs literally have said ‘you are just a crazy female’! I have gone that route even though I knew they were wrong and nothing has helped.last year I started following the Wahls protocol and have gotten some relief but not enough . Just had a work up at the rheumatologist and nothing showed up.🤷🏻‍♀️ I’m so proactive with diet and exercise that they all think I’m pretty strong but the people that know me all mention the dramatic drop in my strength. I just feel if I had a diagnosis that would help people understand a bit better when I am having a terrible flare up . Your story has inspired me to not give up . Eventually I will find the right dr interested in figuring out what is wrong🙏🏽

For 25 years we supported our state’s MS research group. It was just something I felt I had to do. For many years I have had little symptoms, like my right foot dropping for no reason. I also have mild scoliosis. Then, 3 years ago, my daughter was diagnosed with MS at 36. She encouraged me to see her neurologist because of my long term symptoms. He didn’t do any tests other than questioning and checking my balance. He dismissed my concerns and rated me ‘weird but normal.’ (Thanks doctor!) I still have my doubts, but I don’t seem to be getting worse, so I just keep an eye on it. In the same year my daughter was diagnosed, a friend of mine (same age as my daughter) was also diagnosed. They have very different symptoms. I am now my friend’s support worker. In Australia, MS patients can apply for funding to support them through the National Disability Insurance Scheme. My daughter is still able to work full time as a teacher because the funding provides a worker to clean and do household tasks for her. Still, in the back of my head…‘Sheryl, you have MS.’

Great video...thanks for sharing! I'm soon to be 67 and have had that little "you have MS" voice screaming at me for about 15 years now as I slowly graduate to using my new rollator walker. On my "7th" neurologist now with hopes and prayers I will finally get solid answers (he prescribed the walker). After all my years of researching my sometimes frightening symptoms I'm feeling pretty solid about an eventual MS diagnosis. It doesn't scare me anymore cause I've been living with these symptoms for so long now that I've grown use to dealing with them. "Baby steps, take one day at a time and be grateful for what you do have". God Bless!

Thank you so much for such a positive and warming video.❤ I got diagnosed just a month ago and in my case it was super quick, first symptoms started just half a year ago, but I’m happy I didn’t have to wait many years to know what is happening with me.

You are such a kind and sincere lady. Thank you.❤

I totally recognize this. I saw a psychiatrist recently in Colombia and they really understand the situation. I was diagnosed with Fibromyalgia and a few more of those osis and itis disorders. Hopefully I can receive the help I need in the nearest future. I feel exhausted al the time and having pains all over my body daily

Thanks Vickie. I'm 60 and like others, have explained away quite severe symptoms and episodes since childhood as they eventually passed. In the last 4 years I've had 3 very debilitating episodes that have taken around 5 - 6 months to mostly get back to a new normal, yet every professional I've seen has put me in the middle aged female with mental health issues basket. I've managed it all throughout my life with diet, exercise and lifestyle modifications which mostly works well. although I've always felt there was something going on, I didn't even consider MS until about 2 years ago and the penny dropped, and it all made sense. I manage quite well at present, but I'm watchful and fearful of the next major episode. I'm in a country where there is a severe shortage of specialists of all ilks, so the medical profession aren't encouraging in the public health sphere. Unless your have health insurance or can self fund, you won't see someone until whatever condition is more apparent or advanced. It's also very interesting to hear others stories in the comments section of your videos. It can be a lonely position to be in, but I see there are others who can relate.

Thanks for sharing your story. You tell it well.

I'm seriously suspecting ms for myself ( numbness, weakness, rls feeling unsteady, blurry vision, brain fog, cold hand and feet) but the worst by far is fatigue for me. The fatigue is my worst symptom. I'm so worried about going through a barrage of tests and a long amount of time only to not get any clear indication of diagnoses. Thank you for sharing your experience with this!

I have this, or MG. Waiting on the blood work. Thank you for doing this. You are a brave, beautiful soul. Keep up that gorgeous attitude. The world needs you. You're light is magnificent. God bless you, dear soul.🙏🔥✨

Thank you so much! Your video is helping me to clarify where I am on this journey. Currently, I am waiting for the results of a lumbar puncture. Have numbness and tingling, fatigue, bowel problems, and one lesion showed up on the spine. I started eating healthier and attending PT for balance issues. You are an inspiration. My next step is to move more and do strength training. Not a regular routine yet. Blessings to you and thank you for making the video. You are helping many people, like me.

I had several doctors where I felt so uneasy, I learned to listen to that and never go there again.

Thanks so much for making this video. I am like you, in that I feel that knowledge is power. I haven't looked at the worst of MS just researched symptoms and how to help them. Also, looking into how things are linked in our bodies. I love to have an idea of why. I have had subtle symptoms sincs childhood and dx with Fibromyalgia 15 years ago. I think this has slowed my chance of MS dx as I always put things down to that and never got to see Neurologist. Recently, my GP saw me and mentioned MS, refererred me to urgent care who thought the same. Now waiting on my Neurology appt. I have had the voice in my head for years saying "Sandy, you have MS".

Thank you for this. I am seeing my doctor today. I was just on a 10 day trip to Israel and my legs and body did not want to climb and hike -- very frightening. Today I have flu symptoms - unreal!! I do not want a diagnosis like this, but I also know I can't live with the pain and weakness. Thank you again!

I appreciate you making these videos to educate people and spread the word about chronic illness. I was diagnosed with Granulomatosis with Polyagitis, a rare auto immune disorder, in November 2023 after ear and kidney problems. My disease is likely progressive, and watching your videos, plus others with chronic illness, helps me feel less alone.

Thank you for sharing your story. My mom was in denial a long time too and had some symptoms since childhood. She never really did get officially diagnosed but she knew she had MS too. By the time we were sure too much damage had been done already. It is so important what you are doing sharing your story and for we as individuals to learn and advocate for our own health. I could not agree more with what you said. Knowledge is power. Unfortunately, medicine in the US is big business. Sometimes you have to keep seeking the doctors who care and really listen. ❤ Love your spirit and your attitude.

I currently don't know what's wrong with me, I just know something is wrong. I have lots of inflammation and am seeing a retina specialist in two weeks for vision issues I'm having. Thank you for sharing your story and making MS seem not quite so scary.

Thank you so much for sharing your story and experience. I have been sick for years they have no clue. Its really really really hard. ❤

Thank you so much vicky. This is very encouraging. Hope u best of luck!

I was just diagnosed at 62!! I have symptoms many years ago..and 2 years ago started having leg weakness..they said my hip needs to be replaced..my back nerves are being pressed upon. But I didn't know years back eye pain..skin sensations. Had MRI that showed many lesions. Waiting to see what treatments I will soon begin. Be positive..be strong!

Great info...you are inspiring. Stay healthy...you are doing this!!!

Thank you for sharing I was just diagnosed with ms and your information is giving me hope 🙏🏼

Same things happened to me. I had extreme fatigue and other symptoms that sent me to a urologist and a gastro. Would visit my primary care doc for something that could not be explained for years. Finally I was sent to a psychiatrist because they thought I was mentally ill due to all of the symptoms that couldn't be explained. In the back of my mind after searching on line the voice saying "you have MS" was there. It wasn't until I went completely blind in one eye that an eye specialist said "you will be diagnosed within 10 years with MS". Thankfully vision came back and still no brain MRI. Asked for one several times to no avail. It wasn't until I was covering the other eye in my shrinks office because vision was getting blurry that he suggested a brain MRI. They found lesions in my brain even without contrast and diagnosed me with MS. IT TOOK YEARS to finally know what was wrong. Was on many "depression"drugs, misdiagnosed and the list goes on. It still was shocking when doctor called me and I knew what he was going to say. Now like you trying my best to eat right exercise and do a bit of yoga in the mornings 10 minutes beginner but it helps. I wish everyone the power to be their own heath advocate as doctors who do not have this do not know how it feels. There are vision problems or walking problems or numbness and tingling so many to list. Its been over 10 years and have good days and bad days. Thank you for your video and speaking up. Suspect there a lot of people thinking they are just tired and having a few weird symptoms that they are on the wrong meds for.

Thank you for this story. It was so relatable. I had some vision problems five years ago, the optometrists couldn’t find any problems with my actual eyes, so he sent me in for an MRI. He found some lesions and thought it might be MS, but I should see a neurologist. At the time I was living abroad in China, and I didn’t have insurance back in the USA. I was more than happy to ignore his advice as my symptoms went away. “It must be I’m just getting older. Everyone in my family has poor eyesight.” Etc. I also ignored my tiredness as just being out of shape and in my 30s, and my clumsiness as well. Last year, I was hospitalized for a serious relapse where I was so dizzy I couldn’t lift my head off the ground. I still didn’t want to believe it then. I was 1 month postpartum, so I thought “maybe I’m just having a really rough recover from the birth.” When I finally got an MRI again 4 months later, it showed that: Yes, I have MS. I went through the same thoughts you did. It was like “ I can’t take control of having MS, but I can take control of all other aspects of my health to hopefully minimize the effects of MS or at least prevent other illnesses or diseases from being stacked up on top of my MS.”

you're awesome! I was diagnosed with MS in 2020. I so appreciate hearing your stories and encountering your warm spirit Thank you!

Thanks for sharing Vicki. I appreciate your opinion and knowledge. I too feel I may be at the beginning of MS. I’m sixty-six and a retired school teacher from Los Angeles. During the pandemic I had a bad case of sciatica. I had never had it so, I checked it out and yes, so I worked on my exercises to relieve the pain. However during the pandemic since 😢we were all being very careful, I couldn’t go back to the normal routine that I was used to. Last year, as we were getting more comfortable with venturing out, I was better able to notice that my legs seemed really weird. It was a different feeling that I have never experienced. I would feel very unsteady and unsure of navigating around when shopping. I did fall a few times but I must have very strong bones since I never injured myself. I was very active before, like dancing, skating, riding my bike…I became more concerned about if this was really tied to my sciatic problem. I always get my yearly physicals, more so now that I am aging. Since I lost both my parents while they were in their seventies, my sisters and I feel we need to be proactive. My parents lead good clean lives yet, my mom got Parkinson’s and my dad had type 2 diabetes. Like you mentioned I too am a good judge of character when it comes to doctors. I get that gut feeling when they try to placate me with all the medical jargon some use. So presently my balance and walking are still my main concern. My last physical my doctor told me a lot of it was in my knees, since I have arthritis. Yet, I still hear that little voice telling me it’s MS? Thank you so much again for having your channel. It does make me feel as if I am in very good company. Be well and stay safe. I’m Alexander from Los Angeles. 💙

Thank you for sharing your story! I can remember when I was a kid would wake my mom up saying I couldn’t breathe because I felt like my chest was being squashed. She took me to pediatrician and they said it was my “emotions” and put me on a very strong tranquilizer. I was 9!!! Still to this day I’ve gotten no answers and some days I can’t hardly walk. I also have a lot of pain though. But labeled as a hypochondriac. My pain tolerance is pretty high so idk. Idk what’s going on. I have horrible HORRIBLE migraines. Now I just take vitamins and antidepressants and just keep truckin.

I’m waiting on MRI results myself and I had similar experiences 4 years ago with herniated discs in my neck and a surgeon wanting to do surgery on my very first visit, first visit! Some doctors just want to make money over your health! Very sad. I’ve had so many symptoms of what I feel is MS - balance and coordination issues, off and on nystagmus and vision problems (already know I have swelling in both optic nerves due to tests done by my eye doctor), feelings of broken fingers and toes, times where my shoulders feel dislocated with days and days of pain, fatigue, ice pick feeling headaches and migraines where I can’t get out of bed, dizzy spells. Thank you so much for sharing your experience and being so compassionate and vulnerable, it means the world!

Thank you for sharing your story.

Thanks for sharing your story.

You are a star! Such a relatable video! And yes, to your question. Yes. yes. yes.

Thank you so much. I have thought for years that MS could be my problem, last week MS came up while in the emergency room. I'm scheduled for MRI'S spinal tap. I'm not sure how your website popped up but I'm glad it did. Listening to sounds just like me. For years my family thought I was hypochondriac. For the first I don't feel like I'm crazy. I'm sending your website to my family. I will let you know how my test turn.❤

I had a doctor that kept telling me I was fine. Twice over a week he said I was fine. My girlfriend came over to see me and immediately insisted I go to the emergency room. I had a kidney infection! My nephrologist said if I had waited another day or two, I might not be here. My son was four years old at the time.

Great video and content. Wishing you continued health.

Omg...I am so grateful that I landed on this! I'm now 56. At age 23 I was diagnosed with a rare congenital spinal condition called Klippel-Feil Syndrome. It is a "syndrome" meaning that many other factors/organs can be involved. However, my cervical spine issues were so severe that all the doctors (and then, I, too) just laser focused on the severity of my cervical spine and no odontoid process. I had 10 surgeries in as many years. During those years I would experience intermittent extreme fatigue, all sorts of symptoms that I rarely went to the dr anymore because everything was attributed to the Klippel-Feil but only because of the surgeries in the neck...nothing else was ever looked into. Now, I'm finally going to different doctors for a non cancerous brain tumor, double vision and frequent fatigue - fatigue so bad that I cannot get up some mornings to even make coffee or shower. I'm so thankful. I wish you the best!! Thank you

I'm 34 and after years of being in denial, like you I now know why after losing my employment and the excuses I made for myself now have a reason! I am scared but some how have to learn

Thank you so much for your video - really helpful. The gatekeeper to my neurology department is very dismissive of my concerns. I have cervical stenosis which she believes is the cause of all my symptoms, three orthopaedic consultants are all leaning towards the possibility of an MS diagnosis but not her. I am also the kind of person that works better with more knowledge, it gives you a sense of control over your medical journey. Hoping to get through to her at next appointment, fingers crossed. Take care

It took me 16 years to have the ms diagnosis. I too ignored many signs over the years. Looking back I see so many things I experienced that pointed to ms.

Thank you for sharing. Love your glasses! Listening to you is very motivational! 😊 Will be watching more of your videos. I don’t have MS, but I am trying to be kinder to my body and mind.

Thank you for sharing your story!

Thank you Vickie for sharing your stories with us! I was diagnosed with optic neuritis back in Jan and my neurologist and I are still trying to figure out if it's MS or not. I went through 8 sessions of solumedrol IV infusions and I've had 4 MRIs over the last 3 months (I also have claustrophobia and have to be sedated)...all showed no lesions. Lumbar puncture looks to be next. Bloodwork also confirmed not Lupus, rheumatoid arthritis or any other inflammatory disease. I've had inflammation issues since 2019 and lately the amount of fatigue and lack of sleep has been worse than usual. Like you in the back of my mind I keep saying everything is pointing to MS...I just hope we can get confirmation soon. Have a wonderful day! ~Rachel

Yes, information is power!

Thank you for posting this. I am on year 11 and still no diagnosis but my gut is like yours, it’s MS.

Was also told that. So glad you reminded information can be power: Treatment, success stories, work on sleep hygiene, stress reduction with work with kindness to oneself through exquisite care and others as if they are ill and need love who are living well with the diagnosis, movement throughout the day, western/eastern care balance are all empowering with the most being support to uplift the spirit and clarify what is needed! Thank you!

Thanks for your grounded, informative report on your MS experience. I am sure you will give hope to others in your situation. Keep up the great work. I would like to say I love your green (my favourite colour) glasses. Would they be available to purchase online, as I am in Australia. Nola

Beautiful video ❤ Thank u for sharing Vicky❤️🥰❤️

Its all making sense thank you ❤ maybe it's more than I thought saw my neurologist today and the tests begin

7 years ago I had a positive mri with lesions only to have a neurologist tell me that they could be that I was a prior smoker. Have had nothing but repeated health issues but I feel like it’s really me going crazy or my imagination and now have another doctor concerned about MS. I have known for 6 months without a diagnosis. Now I am just waiting on another MRI for a true diagnosis. Thank you for your information it really is appreciated.

Your are absolutely lovely lady! Thank you for this video. Your energy is radiating in such a beautiful positive way. That is exactly what my inner voice says too. Currently seeing doctors, soon getting MRI and other tests. Hope my inner voice is wrong but unfortunately I doubt that. Hope you are doing well 🙏🏻

I told my doctor, when I was in my early twenties (now 64yrs), that I had MS…don’t know how I came to that conclusion, it was back in the 1980s, no internet back then. I had very few episodes. Fast forward to age 32, I went blind in one eye, started having dizzy spells….time to go to a neurologist and voila, I had predicted my illness. Still to this day, I don’t know how I knew

This is a great video...first of all, you are delightful and have a beautiful smile! God Bless. I do not have MS but was "blown off" for 10 years as my vitamin D was very very low and my blood calcium high no matter what we did. But it become "status quo" with my doctor. If I had not researched myself, I would have never discovered that I had a parathyroid tumor that had been there for....TEN YEARS! I kept telling my doctor that "something" was wrong but it fell on deaf ears. After while, I began to think it was all in my head. Thank you for telling your story...you even gave me hope to keep on keepin on!

Nice lady. Wishing you the best 💕

It's not denial is 20+ years of being gaslite into believing anything that is wrong with me is because I'm overweight

Wow. My journey sounds almost identical to yours. I had an episode about 11 years ago. After 3 days in hospital and mri, nothing was found. Went about my life with very subtle symptoms every couple of years until 2021 when my symptoms become noticeable/worse. I'm currently seeing a neurologist. MRI found nothing again and neuro gave me two choices. 1. Monitor/repeat scans in 6 months 2. Lumbar puncture. I, too, have that voice in the back of my head saying, "You have a MS."

I know someone that was diagnosed with MS over 25 years ago. She is now 64 and has NEVER experienced any symptoms whatsoever. Never took any meds for MS. She is healthier than most. She went to a Dr. recently and the Dr told her she was definitely misdiagnosed bc he watched her walk and watched her speech. He said if she had been diagnosed a year ago....ok....he would work with that...but if she was diagnosed over 25 years ago....no way does she have MS. He said he had patients with MS and that it doesn't go into remission for 25+ years. She was very angry and fired him. Any comments about this? Thank you Thank you for your video. You are a beautiful lady and I wish you well on your journey ❤️

Excellent video. Thank you for sharing your experience. The WFPB lifestyle and integrative medicine approach is very powerful. Wishing you continued success in your health journey. Liked and subscribed.👍🏽🛎

Thank you for doing this public service. My Dad had MS. It was devastating and aggressive. At the time no one really knew if it was hereditary and I worried a lot. Years later I decided to be Vegan for ethical reasons. I felt so good that I wanted to understand why. I started to research the health benefits and was again devastated. Both my Father and my Mother, (who also suffered decades with chronic disease), could have been spared. If not completely, at least partly. If only I had known.

My heath abruptly changed 16 yrs ago. I was misdiagnosed with fibro and asthma. I was actually having hug, fatigue, cognitive changes etc. I had this reoccurring over the years and each time I was treated with prednisone for “asthma”. Six years ago my arm went numb and MRI showed a large cervical lesion. Neuro said he didn’t know what it was and it eventually got better. Last year, I got optic neuritis and all the pieces came together. Even then, the neuroopthomologist said he would not have referred me to the MS specialist until I made him aware of my cervical lesion.

Great video. I wish I found this when I was first diagnosed in 2018.

U r helping me alor rn I have a lot of the symptoms and have had them for years in in the process of going to doctors and getting tests but I hear that voice " Angie u have ms "n my aunt had it n now that I have seen n heard a lot of this stuff I almost feel better to know what's wrong with me n I just hope my doctor can figure it out for sure cause my quality of life is greatly affected n thank u so much for ur insight n knowledge cause I need this so much right 💜💙💜💙 I'll be praying for you

I was diagnosed with rapped remitting MS in 2015. My flares were bad and always included cognitive function. My last flare was 7 years ago I could barely walk, count...just lost strength to grip and strength all over my body. I got pregnant and went into remission then stopped all grains and Sugar, taking high dose D3K2 and some other supplements and havnt had a flare and gained most function back.

I’m having a similar experience, in my quest for answers! PCP says MS…I have the same issues as his wife who HAS ms so he’s familiar with the situation. A neuro consult insists the lesions are damage left by migraine. 🤦🏻‍♀️ An anti-inflammatory diet is helping me manage symptoms in the mean time… I’m now looking for a new doc where we moved to, hoping for answers. Thanks for sharing ! Remember y’all…you know your body!! 🙏🏻💜🙌🏻✌🏻

I dont have MS. Not sure why your video was recommended. But i really like what you said about treating yourself like you are somebody you love.

I've been waiting for 15 months I've had 3 mri, lumber puncture, lots of blood test's, clinical coordination examinations ect .. finally I have an appointment on the 19th of this month ... your story I so similar to mine .. thank you for sharing.