Multiple Sclerosis - Neil's Random Ramblings 

The amazing thing about living with a chronic illness is we do cope even when we have been afraid we won't. There is no option really. After 30 years and the last 3 essentially in bed I still I have a life and a rich one even though it is so constrained. There comes a point when we must accept this is what it is for the time being. In a word I have given up bargaining with life about my health. It is just one aspect of ourselves. We don't enjoy watching you Neil because you have M.S. but because you are YOU! We are so fortunate to have this technology to take us out of our isolation and to share our ups and downs with other people who GET IT and to hopefully educate those who don't but are interested in learning. So pleased Molly still has a food that gets her digestive juices working and she enjoys....little and often, she knows whats best for her:)👿

My name is Mike 57 years had ms for 30 years on the 14th February , great Valentine's Day present, ms not to bad , try too stay on a low fat diet , balance can be a problem , going up and down stairs I'm very careful , love your site , you make me smile, fell over on Friday , but all right now, keep up the good work , sorry about the pain , and yes I suffer with sciatica in both legs , which somehow I just get used to , look forward to hearing from you.

Oh my goodness, Molly is so funny. Having opinions before you´ve even started talking to the cam, haha. On a serious note: Neil, you are NOT moaning all the time! I actually don´t think you ever moan. To me it simply sounds like you are explaining what is going on with you and how it makes you feel - that´s not moaning. Of course there will be much talk about the not so great things, because you have a no so great illness (to say the least). But you´re real. Authentic. For me personally, that´s what matters. Even if you *were* moaning, I´d be watching as long as you were honest and real. That´s why I can relate to you, and that´s why you´re really good at making these videos (just look at all the subscribers you have now!). As far as the fear and anxiety is concerned: you are definitely not alone. I go through that too. Not right now, as I am functioning well at the moment and don´t experience nerve pain like you. However, during my two relapses in the fall I was so scared. Scared that I would never be able to walk 20 meters without falling again. Scared I would fall and hurt my head and die from it (it sounds very dramatic now, but I assure you it was a genuine fear at the time). It was awful and I had lots of trouble sleeping at night because of the anxiety. It adds to the worries that I live alone, so if I cannot walk or feel too sick to go outside I have to ask someone else to do everything for me, which is both hard and frustrating. I am so glad to hear that you´re looking forward to the steroids next week. Looking forward to something instead of fearing it makes quite a difference, mentally.

So appreciate your honesty. It actually helps not feel so alone with this disease. I hope your steroids help I understand the fear and anxiety. It's hard not to feel doom and gloom. But somehow even tho your half the world away you've had a positive influence in a very scary prognosis. It's got to be hard keeping up the videos but please don't stop. Your helping a lot of people. Me. God bless you and your wife. Of course precious Molly too. 🤗 P.s. Watching to the end. 😉

Thank you Neil for taking the time and effort to upload your vlog. I quite literally feel your pain; in addition to my own that is... Please know that you are no alone and that we are in a club that we did not want to join, but also know that since we are here, we can participate in the elite "Mutual Commiseration Society" which in some strange way helps. Get thee on steroids!

Love the Molly moments, god bless her. By the way Mr Bradley, if we thought you were a moaner, full of doom and gloom, we wouldn't be watching, and subscribing. Someone I knew with MS also said also said to really understand MS, you have to have MS. I dare say other MS sufferers say the same thing Neil.

well I don't know why I didn't think about this but I just recently had and absess tooth which required antibiotic treatment and they think it's the reason for my symptoms getting worse which is very possible few more weeks and to the neurologist I go I am thinking about tysabri for my treatment course thanks again for responding on the manner you have you've been awesome through my rough time by the way how are things going for you? hopefully better ☺

Did you get the steroids your were hoping to get?