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Multiple Sclerosis Vlog - Cog Fog in MS 

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11 сен 2024

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Комментарии : 13   
@DrBrandonBeaber
@DrBrandonBeaber 4 года назад
Nice video. I actually did a review for an academic press recently for a book about cognitive problems in multiple sclerosis by a neuropychologist. The author did an excellent job explaining the research and testing of some of the subtler symptoms such as attention and multitasking impairment which are invisible to a casual observer.
@MyMSstory
@MyMSstory 4 года назад
@Dr. Brandon Beaber, thanks for this. I have watched some of your videos too. I didn't really understand what Cog Fog was. Just assumed I knew lol. It's funny how I can be so familiar with myself and this disease and still understand so little. Thanks for the work you do 🧡😁
@NeilBradleyMS
@NeilBradleyMS 4 года назад
Hi Ian, made a lot of good points here which I’m sure lots of MS’ers will be able to relate to. Personally I’ve never suffer with cog fog, however since taking recent medication (in particular I feel the culprit is Prednisolone steroids) I’ve noticed I’m struggling a lot to find words in the middle of sentences etc. Very frustrating. I’m also having small periods of confusion which are hard to explain. Hopefully when I’m off this medicine things will improve. I hope all is well with your good self. Thumbs up 👍 - Neil.
@MyMSstory
@MyMSstory 4 года назад
@Neik Bradley MS hey mate. I get the lost words thing and the key trigger for me is stress. If I'm in a stressful environment then it is so much easier to lose the words and you won't find them till the stress passes. It is a hard one to deal with but I now recognise it happening and I try to take a deep breath and relax. It helps. The confusion does sound like the symptem I had before when it was Christmas shopping time and man I felt panicked by it. I haven't had it since then but I don't know what to suggest for that one. Sorry buddy. Anyway I'm doing super great here. Losing weight and getting fitter and I'm feeling 10 years younger. I hope your keeping well mate and I hope to see a video soon 🧡😁
@FozillaMirefox
@FozillaMirefox 4 года назад
A tick on all. Sometimes it's a spiral which has led to a little bit of self hating outbursts, as somehow I see my own behaviours as lazy, despite knowing this has only been true since MS became a part of my life. It crushes any feeling of self worth. Still trying to figure it out. Thanks for sharing the perspective - doesn't feel quite as unique, and although I wouldn't wish it on others, there comfort knowing some people are out there and have, or in the process of overcoming these symptoms.
@MyMSstory
@MyMSstory 4 года назад
@Boldy Locks I love the name lol. I know how hard I can be on myself and it sounds like you are hard on yourself too. I like to think of my MS as someone else who lives inside of me. It tries to take control when it can and if I'm down or weak then It can take over. I find it much easier to cope with the idea that it's not me it's my ms, when I have those days. I definetly win more days than my ms does but sometimes it sneaks up on me and sucker punches me and wins. But you know what, that was just my MS and it all starts again tomorrow and I'm definitely putting him back in his place then. Start each day with a smile and be thankful for the time we have and you will be fine 🧡😁
@lauraironstalksms
@lauraironstalksms 4 года назад
Hi, I don't find that I experience cog fog but I definitely have serious mental fatigue when I'm over tired. I have had a few people tell me I'm rude because they say I switch off from them or the conversation 🙃 but understandable if you don't experience this yourself.
@MyMSstory
@MyMSstory 4 года назад
@Laura Irons talks MS when you have your mental fatigue do you find yourself nodding off in a instant? Like when watching telly or on your phone??
@lauraironstalksms
@lauraironstalksms 4 года назад
@@MyMSstory Yes! If I'm mentally fatigued and it's particularly bad, I want to literally just crawl into a ball wherever I may be and just sleep. It's strange how suddenly it comes on, or sometimes I will wake up with this type of fatigue. I like to name that Lassie 😊 for lassitude in MS. Hope you are keeping well. New video coming soon? Look forward to watching it ❤️
@MyMSstory
@MyMSstory 4 года назад
@Laura Irons talks MS I'm doing really well at the minute thanks, don't want to jinx it but best time in years. I dropped a new video today about Tecfidera but I don't think you use that now if I remember right. Have you anything coming soon?? I need to steal some ideas lol, I mean get some video idea inspiration 😁🧡
@lauraironstalksms
@lauraironstalksms 4 года назад
@@MyMSstoryThat's fab to hear that you are feeling great, maybe it's the lovely weather we're having at the moment 😊. No I don't take that medication, but I always love learning so I'll watch it anyway. 😂 Always good to be inspired, I have only put an update out about getting my MRI reports and images. Getting confirmation on Friday of what they all mean before I post anything on it but will be very interesting to see the disease progression after Lemtrada. Stay well 👍
@MyMSstory
@MyMSstory 4 года назад
@Laura Irons talks MS I look forward to seeing the new video. Stay well 🧡😁
@chickenladylibra1013
@chickenladylibra1013 2 года назад
Oh gosh yes. The memory impairment from MS is awful. 😓
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