Moth GrandSLAM at the Newman Center in Denver on September 29th, 2019. The theme was "The heat is on". Hosts were Betsy and Kevin. I finished in 10th place.
The person I met online after talking for few months he told me about his disease , that's he is diagnosed with LGMD2A & he is in love with me & I love him too.
John, It's Brenda Hillier from Vermont! You have inspired me for 10 years, I too have LGMD2A and LOVE myself. Acceptance was the hardest part of this disease. Now I move past and learn daily how to adapt. Thank you!
Jon M when i was 17 you couldn’t tell I had md. I ran awkwardly but was still physically strong. It wasn’t until I was in my mid twenties did the strength lessen and you could tell something was off.
@@JohnGraybill thanks for the reply i'm curious because i am 22 and have pretty weak legs and hips and both of my knees dislocate sometimes if i step in the wrong way as well as back pain, its like my muscles have depleted over the years and i'm thinking i may have some form of muscular dystrophy. How did the doctors diagnose you?
Jon M back when I was diagnosed it was through a muscle biopsy. But now a days I believe you can get a saliva test but I’m not completely sure. Do you see a neurologist? They’ll be able to get the ball rolling. Or ask your doctor to help with finding out why you’re losing strength so rapidly.
@@JohnGraybill Mr.john at present time how sever is your disease at this time bcoz it weaks a person day by day I want to know because u r three or four years older than me please uploard present video of your walking u r great inspiration for me thanks
