Hi again Dan. I have the same imprints as you. I understood it was due to bortezomid and superficial muscles wasting away. Goes with the territory I figured. A 4 month empyema last summer caused much worse muscle atrophy. I'm working on all that hoping some muscle mass comes back (sure doesn't help the oedema). I have an easier time cycling than walking and we'll see in a few months. Stay positive!
It's always dance. Two steps forward, five steps back. I remain very optimistic. Researchers are now writing about the GDF-15 biomarker for use in assessing renal health in amyloidosis al. There are a lot of recent scientific articles being published from centers of excellence, all over the world. If there are several institutions, practitioners and people that don't understand the complexity of amyloidosis, there are some that do get it. Keep the faith.
It may. My insurance company denied it previously, so I'm just rolling with it. If the pain were to get unbearable, I would be more aggressive in finding a solution for sure.
