What's a chemo port and why may you want one? One multiple myeloma survivor shares getting accessed in the clinic using this handy item that makes infusion therapy a whole lot easier and more convenient. www.myelomacro...
I was diagnosed with breast cancer March of 2019 had a bilateral mastectomy and port put in like so many my veins are deep and they roll so I'm thankful for having a port, the 27th of this month will be 4 years that I'll be cancer free thank God. I pray God's blessings for all who face any type of cancer or sickness. Blessings 🙌
Everyone deserves great parents but there’s nothing anyone can do to influence that, the only thing we can control is how we are as children to our parents :)
I got a port in my chest last December and I'm only 10 so I want to numb it. I was diagnosed with ALL leukemia please pray for me. Love y'all ❤️ ❤️ I go to Helon DeVos Children's hospital. I might not look like it but I wear a wig most of the time.
My grandmother was diagnosed with stage 4 breast cancer in January of 2016. I went with her to her chemo treatment and I cried when I saw the port for the first time. Just seeing my grandmother having that done and her being so helpless and weak really made me wish I could take all her pain away. Unfortunately my grandmother passed away 6 months after being diagnosed and I miss her dearly and I would do anything to have her back on this earth. I love you grandma so freaking much!!!
I’m so sorry for your grandmas passing... my dad was diagnosed with Burkitts lymphoma cancer, he is going to start his first chemo in his spine tomorrow. Worst part is, nobody can stay with him at the hospital for five days, he’s going to be alone... I’m so broken, and my mom is so sad, she just don’t tell us, she’s so strong. I wish you the best, and I know your Grandma is watching over you. 🙏🏼🌧🌈🦋🤍
Also wish myself, I am stage 3 of colon cancer. If my blood test enough for treatment I might start my first round this month. Please pray for me from Cambodia 🇰🇭
Thank you for demonstrating use of a port. My sister has neuroendocrine cancer and has had her port fitted today. So I just wanted to see what she has been through and understand how it works so that I can support her.
I have a port for the chemo medication I'm receiving for lymphoma in my back. And like a lot of other people, I hate getting IV's. I also have hard to find veins and usually end up with a lot of ugly bruising. The port was a God sent. I've also received two blood transfusions through the port which made it so much easier. No one wants chemo, but if you have to, the port is the only way to go.
I know this is an old video but it just helped me in so many ways. I was just diagnosed with stage 3 Breast Cancer and I had my port placed in on November 9th and my first chemotherapy treatment will be on November 15th. So now with all these wonderful videos that I have watched...... I know I'm ready!!!!!!!
I’m terrified of needles too. I’m crying just by the thought of having this done to me. Crying for you as well. Trying to decide if I can do it. You make it look easy.
I'll do it if you do. I know this is 5 months ago but mine gets fitted next Tuesday 9/5/23 Stage 1b pancreatic- I went and got seen as soon as my morning "ritual" switched up and had abdominal pain like the wind being knocked out of me..3 days later, my journey began. Tumor marker of 1800 doesn't seem right for my small 2.1cm invader but PET is tomorrow. WE ALL CAN BEAT THIS
I love my port too! I have a cancer called MDS, & it made me transfusion dependent - I needed at least 2 units of blood weekly for nearly a year. My veins were getting harder & harder to find & access, plus I was going to be starting chemo, so port was recommended. I really didn't want to have the surgery (minor procedure), but once I finally did it, I wanted to kick myself for waiting so long to have it done! It's SO much easier, & virtually pain free. No more bruised arms & needle marks making me look like a junkie! I highly recommend getting a port to anyone with an illness that requires frequent I.V. infusions & blood draws or transfusions. My chemo regimen was 5 days in a row, every 28 days, so they would access my port on Monday, & leave it accessed through the whole week, & remove the little needle/tubing attachment on Friday at the end of treatment. Only had to be stuck one time instead of multiple times during each week (round) of chemo. Ports are a great invention!!
My mom just got diagnosed with stage 2 breast cancer she has to get her port on Tuesday so I’m watching the Just to educate myself on what she has to go through
I got my port put in today. It wasn't as bad as I thought it would be. They started me of with antibiotics in case I had any infections, started my fentynl. That made me super loopy, shot lidocaine in my neck which was the worst part of the procedure that only lasted about a 10 second pinch and after that it was minor pressure and sewing and we were done. I must have had great crew,great meds or both 😆 because I went from nervous to laughing and singing 80s music play in the back which also made it easy.
Thank you I've had over 40 mid lines and picc lines in my arms which seem like the same. Minus the fentanyl, just the lidocaine and some pressure . I'm getting a port on Friday and just saw a video of a woman having a problem with hers and was screaming in agony as the nurse accessed it. I got terrified and almost changed my mind. I've been tortured in the past with nephrostomy tube insertions on multiple occasions n was afraid it would hurt like that.
If you are concerned about the pain from the needle used to access the port you can ask your provider to prescribe either Lidocaine cream or EMLA cream for you to place over the port prior to appointments. @@IamRose718
Mi Prayers to u and to everyone that is in the same condition..Stay strong and keep that smile always..May God Bless u with Miracles, Happiness, Great Health and Protect u and Famili always😊
The day I got mine put in. My nephew told me to ask two questions. 1. How many ships I get with port? 2. Will each ship have a poop deck? I had Colorectal Cancer.
You are a beautiful lady....just wanted to throw that out there. Hope you are doing well. I had a port in my chest also but it only worked a few weeks and caused blood clots which I had to take blood thinners for and then the port was removed. The chemo pretty much trashed my veins but I'm all clear as of 2 years since my last treatment.
I got my port about 4 months ago, September 2023 and I'm getting it removed February 2024 before I finish treatment (only had two more to go before completion) because it had already caused a blood clot in the jugular vein in my neck. I have to decide on other options in order to finish treatments as I'm not too crazy with getting a Picc line. Treatment was going well up to this point.
I have a port a Cath. It's wonderful for me.. one very small stick .... that's it... I can have all IVS , meds , labs , with no pain or searching for venous access. Mine is done every 4 weeks when it's not in use..I recommend them... Mine was placed with light sedation and numbing medicine under sterile conditions...Even though I was awake I don't remember much of it...
I had a picc line inserted instead of this. This looks way faster. Picc line is a whole process. And the area has to be numb as well. Glad I’m done with all rounds of chemo as of last week
I also have a port, on my 3rd chemo. I find it sensitive and hurts a bit sometimes not too bad though . Nurse said its healed though i feel pain when needle inserted for chemo.
My mum I getting a port put in next week as in January this year she was diagnosed with breast cancer and this was helpful because I am 19 and I had no idea how it worked
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Just an FYI too, if the needle used to access your port is painful for you, you can request EMLA cream or Lidocaine Cream to put on at home prior to your appointment. It can be expensive, but most patients really feel it's worth it!
I’m having a port installed tomorrow and I wasn’t sure it was wise to seek out this kind of video. When the nurse called two days ago to schedule the appointment, I had no idea what she was talking about either. I’m sick and tired of being sick and tired and dreading another surgery to recover from. I’m so afraid of the fact that the side affect of the endless list of treatments and procedures and chemicals and toxins may very well diminish my quality of life to the point of no return I don’t know much about the Embryonal rhabdomyosarcoma of the uterine wall except that it’s highly unusual in a post pubescent woman; I’m 41 and was premenopausal until December 10th. I had an appendectomy and lymph node dissection during a radical hysterectomy exactly a month ago
We are sorry that you are experiencing such a difficult challenge in your life and it can feel very overwhelming. Don't hesitate to talk to the social worker or other professionals where you are being treated that can help you navigate these overwhelming feelings. While we are a organization speficially for myeloma, we know that having proper emotional support can be key to the health of all persons dealing with cancer.
Thank you for making this video. I'm getting mine put in in a few days. I was diagnosed with cervical cancer over 23 yrs ago had chemo n radiation. The radiation caused many strictures and adhesions throughout my abdominal area and as a result ive had 9 major abdominal surgeries. I now suffer from chronic complicated UTIs that I get admitted for every few weeks for IV antibiotics and i get Iron infusions. My veins are done and can not be accessed at all anymore not even with the sono machines. They all blow right away. I suffer with each visit.
Thank you for posting this video! I get my infusaport on friday n was trying to educate myself...I have had two dialysis ports one out of my neck n on tunneled with tubes coming out over my breast which are very thick tubes...n I was completely awake with no pain meds or calming meds so this should b a Breeze...but I felt like u were telling my story...I do not have cancer but I have horrible veins n I have ALOT of other diseases n issues that require lots of blood work ...the last time I was in the hospital they stuck me 14 times for an iv n dug in me for hours..they expended both of my arms, went in my shoulders n them started digging in my neck n got it after a while...I swear I have ptsd from all the trauma from IVS , labs, byopsis, dialysis..n I do good with needles so that says something...so this is a blessing!!!so the only thing I'm freaking out about is how they are going to get the Iv in me to get the surgery done ya know....😣😣😣😣😣
When the dressing came off, you never recovered as earlier you mentioned you need to wear a mask until it’s covered. Just confused a tad, wife has one I’m keen to learn about it.
I have breast cancer and it’s spread, I had my mastectomy 3-1/2 weeks ago , chemo is set for next week. I asked for a port even though I only have 4 doses. I also have Non Hodgkins Lymphoma.
@@HealthTreeForMyeloma hey there. Yep everything went fine. I was awake for the whole procedure. It’s a pretty noticeable bump on my chest cause I’m of the skinny type, but it’s in and works.
Hi how was the whole process for you? The reason why I asked one of my family members just found out that they had Hodgkin disease, and going to go through the same chemotherapy treatment. He just got his port put in a couple of days ago..
i work in a research hospital and i see patients accessed daily. 8/10 times they look to be in pain when accessed. Even by experienced nurses. Great video though and i hope your recovery went well!
@@cajungirl.462 no- when pt gets needle inserted into the port right below the layer of skin. I may have been a little dramatic when I said 8\10. Maybe 5/10 is more accurate.
Is it necessary to inject heparin after expiration for example Sol. NaCl 0.9% 500ml, knowing that the patient has the same solution tomorrow. Or is heparin only injected when the needle is removed?
Dear Omar! We have a specialized team that can help with all your multiple myeloma questions, you can have access to that free service once you create an account at healthtree.org.
Jessie Jones That’s normal. The numbing medicine doesn’t work on me at all, so I yelp with the needle stick. Nothing hurts after that, including removing the needle. I’m grateful for the port and not having to ruin veins.
Got a port today .. After I woke up stupid .. I felt like I was karate chopped in the neck with a 2x4 .. I must remember I just got mine a few hours ago .. Since my diagnosis of cancer . I feel every vein in my body has been popped with a needle . But now .. I am plugged into The Matrix
IVORY123100 Bless you and best wishes. I am grateful for my port, avoids ruining veins. Focus on laughter, as I do, and you will cope better. There is always something positive.
I had a port was uncomfortable for a while was in for 14 mths ,when it was removed surprised to see it was purple and shaped like a heart I thought that was very appropriate and it was quite weighty I have in jar ,a reminder that I am not going on that journey again
Hi James, I think one good piece of advice is to try to touch it as less as possible to keep it free of infections. If you have more questions about myeloma and treatments you can contact us at support@healthtree.org
+Kristina Shevlin for some people it doesn't hurt at all, for some it just feels like a pinch, if you have a high tolerance of pain you probably won't even care or anything!
I must be rare. I absolutely hated my port. It gave me blood clots and pts. It also failed and I had to have a second one put in on the other side. I hated having a needle inserted into it, it hurt so bad. Had I of known then what I know now, I would have refused it and risked my veins in my arms.
I know this has been up for awhile but I’m hoping I will get a response? How do you sleep with this? Does it make it difficult to sleep on your side? Thanks
@@no-ze9vx Thanks for your response. I had read that if you sleep on your side it would give you a problem but I can’t sleep on my back or stomach and very little on my left side due to an injury so I basically sleep on my right side. I may be getting one very soon so that’s why I asked. It would be a real bummer if I couldn’t sleep on my right side! Thanks again for your response. I hope you are doing well🌹
I don’t understand why everyone they access my Moms port, she screams out and cries. She dreads it because she said it hurts so bad. She even numbs it before.
Help can a large tumor near my port cause it to come loose inside? I'm asking because mine feels like it's pulling inside with pain. My port is not being flushed or used a so now.
Dear Carolyn We have a specialized team that can help with all your multiple myeloma questions, you can have access to that free service once you create an account at healthtree.org.
Thanks for the link. A surgeon removed mine it was causing some complications. Still battling with multiple myeloma. I need to find a good MM specialist near me. Wish everyone a positive response to their treatments.
I have seen some women on RU-vid screaming while having injections into their ports. Why are they having so much trouble when others seem not to have pain?
Whattt ? I will have mine put in Dec.24th. 2018. And my doctor say they will put me under to have it done & I'd have to have someone drives me home !!! Gotta do more research.........UGH !!!
@@kenwatson7771 I hope that you are doing fine after the port placement. Stay positive always. I'm on my third round of chemo as of today. There are 13 more to go. Long road ahead, but can't complain...Sending you positive vibes for all your treatments. Take care Mr.Watson.
Phiphi-Caroline Nguyen omg 13 more rounds ?!!! I’m be keeping you in my thoughts! I just got done with all my rounds but mine were just 6 however I was also told a few days ago that I have another cancer so I have to meet with oncologist next week to go about next treatment. And I got picc line instead of port. With picc line you get numb in the area.
It's good info for those who need to use a port (I do), but I do URGE people - when in a medical facility, please DO NOT wear your mask in the way she's wearing it. Her mask is far too large/loose for her face, and she's not using the nose clip on them to tighten it around her nose. It literally is offering no protection to her or the tech around her (if she were sick) - removing it halfway through the video while someone is in the room also does no good and warrants a "what???". Good info about ports - not a good example of mask wearing in a medical setting. My doctor would have had her fix it, given her a better mask, or not allowed the procedure until it was fixed.
that is not a tech, that is a nurse!! Also the mask is fine, NO MASK with the exception of an N95 that You have been fit tested for is going to have a complete seal! She is not wearing the mask to protect the nurse from illness she is wearing it to prevent any saliva from getting on her port site while it is being accessed and while it is accessed and open to the air, prior to the dressing being put on.
Hello We have a specialized team that can help with all your multiple myeloma questions, you can have access to that free service once you create an account at healthtree.org.
