My Chiari Malformation Story | Labour Complications 

Great to see Irish people spreading awareness for EDS. Let's us know we are not suffering alone!

Thank you for this. I have Chiari Malformation as well and am very symptomatic. I’ve been worried about birth when I have children. This gave me a lot more insight and made me feel way less alone. I want to ask my doctors about EDS as well. I never thought to do that, so thank you. My knees pop out all the time and it’s so painful !!

I have had Chiari Malfunction since I was two, I am now 24. I had brain surgery at 7 and it went majorly wrong.... three cardiac arrests, two whole body blood transfusions and 8 days on life support. I have most of the same thing you have too. I have lot of medical issues and problems so I am used to it. Stay strong!!

Dear girl can i please offer some advice. There are some of us who have hyper sensory issues. This means if there is any noises while someone is talking or more than one talking, we are unable to make out what is being said. Hearing wires get crossed. And you have such a lovely strong accent, along with the music you added, i cant make out what you are saying at times. Best of luck to you.

I have had bouts of symptoms all my life but finally diagnosed in December last year at age 46. Having decompression surgery in June. Quite scary but it is good to watch videos like yours and others as there are very few people to talk to who can understand. Thanks.

I'm having issues in Australia as well. 9mm Chiari 1. I am not having seizures (I am sorry you are going through this.) My symptoms mimic MS. Weakness in my hands and tremoring. Losing words, mixing up my words. Falling down randomly. Losing coordination and balance. All of this sucks because I write music and create art.. I can't draw anymore with the tremor. Don't have the strength in my hands to play guitar. Neuro thinks my symptoms arent Chiari related.. just migraine.. but my first symptoms were Migraines with auras.. like being hit with a shovel in the back of the head if I laugh, sneeze, go to the toilet 😐 constant pressure in my head. No one seems to understand it here. I want to have a child.. but I'm scared. Thank you for your video, sis. I appreciate it. From 🇦🇺 down under.

Wow I was diagnosed in late June, those headaches are incredibly painful 😫 I'm so sorry you are struggling and you had doctors who didn't really know. I told my doctor and he listened to my symptoms and got me an MRI, saw something abnormal and said it could be chiari but sent me to a neurologist who did another MRI and confirmed it was Chiari and got me set up with my Neurosurgeon, but also asked that after I see my Neurosurgeon if I could come see her again to let her know what the Neurosurgeon said, they are both working together to make sure I'm treated. I feel incredibly lucky that my doctors are working hard for me and I'm so incredibly sadden you can't get this type of care because chiari malformation is so painful 💔 I hope your able to get more help. Thank you for this video.

Hi! You haven't posted in a while now and I just wondered if you are okay? I do hope all is well! Xxx

This is a nightmare. Completely unacceptable you should have absolutely denied the epidural..but I realize you were so stressed ..I'm so sorry that the treatment is so archaic ! Something has to be done thank goodness you are a wonderful advocate..hopefully you can sue for the atrocious treatment you and other zebras recieved

I have Chiari budd syndrome... And I am 2 month pregnant . Dr told me for liver surgery but the priority is baby and pregnancy .. I am so scared as my dr already told me about future complications. Will you please talk to me and suggest something..

I had my surgery when I was 7 but it wasn’t as bad as yours but I’m sorry