My Endometriosis Journey | Heavy Periods, Pain Management, and Hysterectomy Talk! 

Thank you so much💕💕💕

Thanks love! Not having you and the crew has been tough. Nevertheless, the sooner I get better the sooner I can be with my people 💕💕💕

I can't wait either! We miss you so much!

Thank you so much 🙏🏾💕💕

Wow! I’m so sorry to hear what you’ve been going through, but I’m also so happy that you have a doctor taking you seriously! I’m actually recovering as we speak from surgery which was wild lol. As far as the Luperon goes my experience was varied (this will probably be a long one lol). When I started it years back before my first surgery it was pretty great. I had the hot flashes but I was pretty much pain free with the exception of mild flare ups. Shoot my hormonal acne even cleared up. BUT Luperon is very expensive, and I had a lot of issues with the company. I wasn’t able to keep getting the shots and that caused cysts and adhesions to start forming again. Eventually I got back on it, but once things like endometriomas are there Luperon is not going to shrink them. I started having massive flare ups to the point where I frequented the hospital and at that point was when I took a leave of absence and had my first surgery done. Post surgery I had more trouble with the company and insurance. I wasn’t financially approved to go back on it until months later, and when I did go back on it it was terrible. Hot flashes to the point I was stuttering in front of customers. My moods were all over the place. And my pain was unbearable, still tons of hospital visits. What I didn’t know was that the cysts they drained when I had my first surgery was actually endometriosis (my doctor didn’t know either) and all that time it has grown massive and I had tons of adhesions that Luperon couldn’t do anything for. And truth be told, when I was taking Luperon I was pretty devoid of emotions. I wouldn’t say depressed, but cold. The thing to remember with this medication is that it’s a drastic estrogen drop. So it’s going to have a huge effect on your body. It’s also a shot so once it’s in your system it’s there for months. I’m assuming if your doc wants to do a one time dose they’re probably gonna put you on the 3 month dose. Has your doctor talked to you about steps after this or is the intention to see how you do with it before going full steam ahead? As long as you have your uterus there’s a chance for those adhesions to grow back without regular medication. Right now I’m on the new medication they released, Orilissa. I’ve only been on it for five days so I have no opinions yet but I can tell it already taking effect. My pelvic specialist actually says he really hates putting his patients on Luperon for those reasons, but sometimes it’s the only option for many. I’d say write down every question you have for your doc and inquire about the other options for medicine. Asking as many questions as you can will help give you peace of mind during your decision making process.

The Third Eye Angel thank you! All of this was super helpful ( more than you know) So far, the plan after the shot is to “see how I do” and reassess in 3 months. When I asked about alternatives he confirmed that Luperon was my best bet. I’m also having issues with my insurance and I’m currently waiting for the injection. I’ll ask about the medication that you mentioned and see what he says. In my experience, it took a male Emergency Physician to accurately diagnose me in October 2018, and I’m beginning to think it might have been the cause of my initial surgery almost 9 years ago. I have a crappy reproductive history (with Fibroids to top it all off) and this whole ordeal has made me feel alone at times. I know that I’m not, I have a STELLAR support system and I’m glad that I found a RU-vid channel as honest and comforting as yours to binge watch during my recovery. We are going to be alright. I wish you healthy and restful healing and you’ll always have subscriber in me 🤗

Ah I see! I wish you all the best on your journey. I know it often feels lonely, but I promise it gets better. Always feel free to drop any questions you have and thank you so much for the support. Women like you are the reason I do this 💕💕💕💕💕

Everyone I know that uses them says they are such a blessing. I may get one just for the in between months when I have to switch medications. For the longest I’ve been doing a balance of foods and supplements. I typically eat iron rich foods every day. It’s been a bit more difficult these last few months now that eating has become difficult and iron supplements can tend to cause constipation for me which is what I’m trying to avoid. I always get a blood test done when I’m on my period to make sure I’m not anemic and sometimes I do have to have blood transfusions. It’s been a difficult balancing act lately 😕

I’m happy you’ve gotten consistent treatment! Unfortunately birth control did nothing for me. I usually have to use something that blocks hormone all together and do a hormone ad-back. That won’t be effective until they clean everything out though. Hopefully this time will be the last time! Tfw 💕💕💕

I'm praying for a success outcome and strength. I have been hospitalized, pass out, vomiting. vomiting sooo much that I was vomiting the green bile from my liver. Couldn't feel the lower half of my body. I be looking half dead laying on the sofa, bed, hospital bed because I be so exhausted from the pain and vomiting. It's torture. I had my appendix taken out because the endrometrisos was wrap around it.

I’m so sorry to hear that. It’s shocking how awful this can affect our bodies. I’ve also been worried about my appendix. The pain I’m getting is starting to creep abnormally high in my abdomen. The colonoscopy and endoscopy should tell us all we need to know, but I’m super nervous about that too. I’m just praying it all goes well.

Thanks. I wish the birth control had work as it as work for me. Praying, Praying, Praying.