My Journey With POTS (Postural Orthostatic Tachycardia Syndrome) 

I just got diagnosed last month after 7 years of being told it was anxiety or I was making it up. I am so happy you were able to get a diagnosis!

120 is about the same for my heart rate. stairs gets me up around 135+. Corvid was my trigger. left me with what feels like brain damage, and a nonfunctional body. I have the sensation of feeling drunk almost all day. hang in there everyone. I sure as more people get taken out of the work force we will see government bullied by the rich to do something substantial.

I'm on year 2. So frustrating! Sometimes my heart doesn't jump up 30 beats but it's literally taken my life from me. Every day seems to be a struggle. At night I feel like I have electricity flowing through my body. It's so hard to find drs who will fight for you 😔 I've lost hope over the last few years 😔 I'm lost girlfriend! I'm glad you advocated for yourself ♡ proud of you! I guess I just have to keep insisting it's not anxiety because I know me..and this just decided one day it was going to take everything from me. I'd love to chat Sometime! 💕 sending you all the love! Thank you for bringing this to light ✨️ 🙏

im SO sure i have it, for the past 3 years ive been going through all these horrible symptoms, it has really changed my life 😢 i miss the old me, its sooo frustrating trying to get doctors to listen and take you seriously, ive had enough and just want my life back

Hi! Thank you for sharing! Have you spoke to a chiropractic neurologist? They know well about pots from my experience

** there are some people that recommend trying to increase dietary magnesium intake ** Magnesium is an essential mineral for health; it is required for hundreds of anti-aging reactions. Unfortunately, at least half of the people in the United States do not meet their minimal recommended magnesium intake. Most doctors don't measure magnesium levels unless their patients are in the hospital, as it requires a special test (red blood cell magnesium level or RBC Mg). Each year, I see several patients in my office with symptoms related to a magnesium deficiency. Cindy was one such patient. She came for her first visit, complaining of daily palpitations. She was a full-time homemaker with a husband and three teenage children - twin 15-year-old boys and a 13-year-old girl. At age 43, she was very pretty, slender, but not fit. She felt like a full-time chauffeur, driving her children to and from school events seven days a week. They had only one weekly family meal, on Sundays. The other evenings, the family mostly relied on fast food. Cindy drank a pot of coffee in the morning to get going, and munched on a white flour bagel with cream cheese for breakfast while driving the kids to school. Lunch was something simple, like canned chicken noodle soup. She ran errands, cleaned the house, shopped, paid bills, and did other chores until she picked up the kids from school. Her husband had a great new job, but he was working 50 to 60 hours a week and he didn't help much at home. Cindy didn't seem worried by her palpitations, even though sometimes they would continue in fast runs for 10 to 15 minutes. They didn't give her chest pains, nausea, or shortness of breath. After looking up symptoms of a heart attack online, she didn't think it was an issue, and figured it was probably due to the coffee - which she didn't want to give up. During her assessment, Cindy's history was noteworthy for bad constipation and frequent muscle cramps. Her physical exam was normal, but her food diary revealed that she was grossly deficient for nearly every nutrient. She certainly frightened me during the stress treadmill test I use to check for an abnormal heart rhythm. Her heart rate took off at 180 beats per minute, accompanied with a worrisome electrocardiogram pattern, even though she was only walking briskly. When we halted the stress test, it took 20 minutes for her heart to come back to normal. Fortunately, Cindy's laboratory studies clarified why she had this dangerous heart rhythm problem; they were not just mere palpitations. Cindy's magnesium levels were excessively low. This can lead to a rare but fatal heart condition - basically sudden death. The combination of poor nutrition and large quantities of coffee had depleted her of magnesium, and her heart couldn't function properly without it. When magnesium supplements and other foods were prescribed to restore most of her key deficiencies, Cindy's palpitation problems were solved. *from the book The 30-Day Heart Tune-Up by Dr. Steven Masley (2014)

my heart rate doesn’t always increase loads, but i get a lot of palpitations when it doesn’t jump up and every other symptom applies. do you think it’s worth trying to get a proper dx?

I've had POTS for 18 years....Stay very hydrated..avoid blood pressure lowering juices ( found out the hard way juicing veggies is diuretic). Fludrocortisone helps .

Dairy must have been causing a problem with your mast cells (MCAS) 🤔

A brisk walk for me is about 120-130

Thank you. Just made an appt with a doctor specializing in pots. Its great to see you can still thrive with diagnosis. Much prayers to you 🙏

Did you ever get the tilt table test done??

Good video. I've never heard of pots before. I hope you're doing well.

You did a fantastic job with your storytelling, and with explaining what POTS is! Thank you for sharing. I was recently diagnosed with POTS, and I’m super thankful my doctor was already familiar with it and I received a quick diagnosis through a tilt table test.

Does anyone also go into a rapid heartbeat when the weather is hot and humid? My heart rate speeds up to the point that my nervous system speeds up and I am nervous and panicky. Also I get lightheaded and weak and shakey.When I'm cooled off and finally calm down, I am completely exhausted. Anyone else out there have this. I am a caregiver so it's hard to take care of someone else and myself.

i felt this. im only 18 but ive been dealing with the symptoms since i was 8 years old. i only JUST got diagnosed less than two months ago. the medication im on has given me more relief than ive ever had in my life. i still have some adjustments to make with it because im still having problems but, im doing so much better. im glad you are too

I just realized also that whole wheat bred triggees my symptoms and I cannot understand why. It is only tha type of btead and it makes me feel completely off balance. I cannot tolerate magnesium either.

What is the name of the medication you are taking? Thank you for sharing your story. I have POTS as well and I take Inderal and Ivabrafine but still feel very dizzy and not able to function normally😢

Life changers. Vitamin B complex, Inositol and electrolytes. I just cannot drink plain water.

thank you for sharing!!! you didn’t mention anything about your blood pressure? was it normal?

I’m going thru the process to see if I have pots now. My symptoms have become pretty disabling and annoying omg. Thanks for sharing! I get presyncope but not syncope so I haven’t fainted yet thank god

I am not sure if I have POTS or not if someone wants to chime in…basically 16 weeks ago I got a sinus infection (Atleast I thought) , during it I got hit with severe brain fog for the first time in my life. After taking meds for the infection, my sinuses got better but brain fog never went away. I kept pushing it off but randomly since then I get very bad brain fog and lightheaded and feel like I am gonna pass out. It is nearly impossible for me to wake up when my alarm goes off cuz I am so exhausted. I lift 6 days a week and am a bodybuilder so I am relatively healthy. I am 21 years old, and all my blood work came back fine. Also a hot shower seems to activate it, as well as if I have one or two beers say I get really light headed and dizzy. What do you think?

Hi Casey Tyler

Did you have any gastrointestinal symtoms?