I just want to say you did an outstanding job explaining this disease. Probably better than half the Drs. They rush you in and rush you out like cattle. I hope that the treatments get better for people with this. I'm sure this is not easy to live with so stay strong.
This is so true. My boyfriend was diagnosed with UC about 2 years ago and they explained the diagnosis to him super quickly while he was still high on the sedatives from his colonoscopy. He asked for them to bring me in as he couldn't process what they were saying and they simply shoved a leaflet in my hand and ushered us out of the room. This video is so much more helpful and less daunting.
It's obvious that this video was not easy for you to make, and I'd like to thank you for pushing through. Excellent work. I wish you many flare-free days.
Thank you. My mum just sent me this video. I've been in hospital for a week and just found out I have severe UC. I was in pain for over a week at home before this, constantly going to the toilet and in extreme pain. I'm 32, have also been recently diagnosed with psoriatic arthritis. I've been so down but now I'm learning more its getting easier. They estimate ill be out of hospital in 5 days. Can't wait, I need my life back! Thanks again, from Western Australia :)
Great video. In a flare right now and I forgot how it feels. It has been a long time since I’ve been this bad. For anyone reading, cutting out gluten and dairy are the first two objectives I would plan for. Gluten breaks down the junctions in the small intestine. Most of us are also lactose intolerant, as we lose the enzyme that breaks down lactose after adolescence. Nutrition will go a long way in managing the disease! Meds are definitely necessary when things are bad, though. Everyone is different, but look into the SCD diet, the AIP diet, or GAPS if you’re up for real intensity. I haven’t managed to stay on one consistently. It’s a lot of work. A lot. I hope anyone reading this will find peace and happiness in their healing. Only those with IBD truly know how I feel. We’re in this together. Love.
Thanks so much my bf just got diagnosed with UC and we are at the moment pretty overwhelmed with everything but gradually we are trying to stay positive and research on any helpful informations that will help us as family in the new normal life for us now. Thanks everyone here for sharing their experiences and advice and of course for making this video ❤️❤️❤️🌈🌈🌈
I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?
I found your video comforting. 20 years I have had UC. The last 10 years have been tolerable. As a man, the worst part, is the lack of understanding, or even empathy. I had work mates mock me, for needing to go to the toilet, even though they had known for 5 years I had a chronic condition. My own mother has made disparaging comments, relating to me being sick. If I had cancer, they would be giving hugs, comforting me, but UC, they think you are not really sick. You just have diarrhoea (×20 times a day, for 10 years).
I’m sorry to hear that mate. As a Male it is harder and not only is it a condition that affects your digestive system but your whole body, mentally too, and thats not considered in people’s feelings and attitudes towards chronic conditions. I hope you find relief and ease in your life, as I wish with all sufferers
@@garythesnail7631 Was your diagnosis 'severe' UC? I didn't seek assistance until I was extremely unwell, fainted in the shower, from internal bleeding, and had to have numerous blood transfusions. I was given medical advice from a GP and non specific surgeon that hindered my management. Things turned around for me, by being included in a research study, being conducted by a professor at a university. His told me, not to fall into the trap, of looking for miracle cures, just eat a normal varied diet. Keep at the high end of a normal weight range, don't get overly fat, but muscle weight it OK. For an example, I went through Army basic training at 90kg, I wasn't an athlete, but didn't struggle through fitness training. When I was 30, really sick, and first admitted to hospital, I was less than 70kg. Now, at 50 years old, I am 110kg, and the doctors are not concerned by my weight. Once you have a good gastroenteroligist, follow pill taking regime ... exactly. When they tell you to have a colonoscopy, endoscopy, MRI, do it ... don't put it off. The drugs you take, may be different in your country, when I started on mine, it was always an issue, with the pharmacist, they didn't like that the 3 drugs prescribed were seemingly, contradictory to each other. I am still taking them 15 years later, and are in pretty good health.
She has Never one single time, responded to any comments on here or even given a single like. That is really lame and sad, especially after years have gone by.
@@Xuevium It looks like it isn’t her channel. Most probably she was asked to share this info. Also, probably for advertising the app she was talking about in her video….
I was just diagnosed 2 days ago and this really helped me understand a lot. I didn’t know how to tell me job nor have I ever called in or missed work, but some how I pulled through and told them what was going on with my body. I’m now working on a food journal to prepare myself for my new normal.
I just got diagnosed so this really helped me understand what’s going on. I’ve really been so embarrassed this past month because I haven’t been able to work and when I do I’m stuck in the bathroom. Thank you for giving me hope
I have been diagnosed with diverticulosis and get diverticulitis flare ups way to often. I came to this video to understand if I have symptoms of UC and might have been misdiagnosed. You have explained this very well, and I pray for everyone living with UC.
I was studying this topic today for my med school and glad i came through this video. Such a helpful and emotional video.. thank you so much for sharing your story. God bless you and my heartfelt prayers for you and everyone suffering from ulcerative colitis.
@@Michelle-qd9gm hey I’m from India 🇮🇳 and I got uc it’s been 1year I’m under medication I have a question will it completely get back to normal someday or I would have this pain my all life
@@graspknowledge8799 Hi I’m from Pakistan 🇵🇰 and I’m pretty sure there is no known cure for ulcerative colitis same as hypertension but yes it can be controlled with medications like it will calm the inflammation and it’s good that you manage the diseases rather than the disease manage you so I hope it will be a bit informative for you and you will feel better soon…
Got very sick in 2020 , was passing so much nonstop blood and bleeding , was very sick , very weak , thought I was dying literally was going to die , Entivio biologics saved my life , gave me my life back, thank God , all inflammation is gone and bleeding ulcers healed , in long full term remission thank God
When I was first diagnosed I was 215 and it dropped me to 165 and recently I have a lost of appetite and more frequent bathroom runs in the middle of the night.
I was diagnosed recently, I only dropped 20 pounds but I was already light so not good. I also have a loss of appetite, I cant even finish a burger anymore
I’ve also lost weight but I desperately needed to lose so that’s fine. I hear you about night time bathroom visits. It’s very disruptive of sleep. Sometimes I just give up and take a nap the next day if possible.
I am newly diagnosed and 67 years old! thank you for this wonderful explanation of the disease. It IS the best I've seen yet! I do so hope you are doing well and that I can get out of this flare and succeed as you have shown me is possible. I am a nurse and had many patients throughout my career with this disease but never thought I'd be at the other END of the issue! Thank you for your courage to do this for us new folks!
I've had it UC fir 2 years and its ruff but God is still good in the midst of everything goin on around us. Thank you so much 4 the video. Keep strong life is just a moment that leads to eternity. You will be in my prayers. @effie siamalekas
My heart goes out to you. My daughter is 22 and was diagnosed in January. Although she has had stomach issues for a few years and we went to so many doctors but none of them found anything wrong until this January. I thank you for sharing this video.
Hello, how was your daughter diagnosed? For example, colonoscopy, imaging, blood work, etc? I would appreciate it as I'm currently trying to diagnose myself.
Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now
what a sweetheart you are!! I’d love to be your Gramma! I’m really proud of your ability to talk honestly and very openly about your symptoms, Honey!! I’ve been having symptoms for many years.. but what seems to have started this OVER THE TOP EPISODE, seems to have been a terrible stress and anxiety attack concerning someone I. My life.. I became really sick, had awful unloads of bloody, mucous stools… along with serious pain! I’m still trying to discover everything I can about both IBS and IBD! I want to thank you most sincerely, for your enlightening video!
My 7 year old was recently diagnosed with UC. It's journeys like yours that you are sharing that will help not only parents but the patients. I hope your doing well and thriving😊 - thank you for sharing!
This breaks my heart. I dealt with severe Crohns for 8 years and it was the worse quality of life I have ever experienced. Somehow I came off of all my medications after strict diet and exercise including running. I know that sounds crazy because it seems impossible during flares but I was in do or die mode. So often times I wished I would die rather than live that way. Continual bleeding and pain. So after roughly 5 years of remission, I have let my diet go, gained weight, stopped exercising, and currently going through a divorce, I’m convinced the stress got me back to here. So back to putting in the hard work of doing all I can do to be the best me I can and hope for the best. Asking for all of your prayers and I will def be praying for you. Anyone who has ever experienced this knows that it’s no joke. However there are way more of us out there than you may realize. Keep your head up the best you can and treat your body well. Love all of you!!!!! Get well soon.
Thanks for sharing. I know the pain all too well, every morning I feel like I’ve been hit by a train in My abdominal area. And the frequent bathroom trips are crippling, as well as the accidents that can and most likely WILL occur if you have this terrible disease. I’m so sorry for all the stress you’ve been going through it def makes things much worse, as I am too going through some hard times. Stay up, I’d say I would pray for you but i forget to pray even for myself lol. I’ll try and remember. Keep up!
Thank you for sharing..I was diagnosed as a child at the age 12..It sucks so bad..I am now 51 and I went into remission for a decade and now its back in my 50's........you are so brave and I am proud of you .. Covid stress brought it back
Thank you so much for this. Video saved for rewatching. I learnt more in these 10 minutes than I have talking with my doctor and specialists over the last few months. I found it encouraging as well, which for any sufferers of UC, is something sorely needed as it can feel like a lonely and pretty dark battle at times. Thank you.
Just diagnosed. Thank you for this video, it is much appreciated … I was taken aback when you said that it’s common within the Jewish community; as our Jewish community here in Southern Africa is so small - that the doctors here didn’t mention it me - but I guess it all makes even more sense now. Thanks again, wishing you much health.
We are all in this together. Words can help and has an impact on all of us. Wishing everyone that are having symptoms to stay calm and all storms end, eventually 🙏 so just hang in there 🤗
My mom was diagnosed with UC in her 50’s, I got it in my 30’s and my son, (who is now a physician!), started showing symptoms at age 10. My mother’s father died of colon cancer and we wonder if he had it too. It is very important to find a good IBD center to work with you to find the right treatments to achieve and maintain remission. This is a very difficult disease to live with but it does not have to take over your life. Please remember to get your colonoscopies once you’ve had UC for 8 to 10 yrs and especially if you’ve had pan colitis. That every two yr screening is one I never, ever miss. Thank you for speaking about this and for being a source of support for so many.
I understand every word that you shared. I myself going through this UC(ulcer colitis). The concerns when the urge comes to go to the bathroom is very stresful. My family is very supportive and also my job too. I hope that you get better. God bless you. Thank you.!
One of the best videos on that disease. Clear, to the point, no nonsense. Great to show people who ask me: How are you doing? No more do I have to add. Thanks.
Thank you so much for the clarification because I’m new to this horrible disease and nobody around me understands what I’m going through at times. You taught me more then the doctors smh
Hey, thanks for sharing your story. It took a lot of guts?! It was very informative and simply explained. Sharing your story helps destigmatize the disease. You’ve done a public service (PSA) by testifying to your trials + tribulations. You’re a super hero! I feel slightly better knowing that they’re other people also enduring through this like me. I think talking about it and sharing tips can help us get thru this. I’m currently immersing myself into yoga. I believe I’m on the right path. I believe ulcerative colitis can be managed and possibly cured taking a holistic approach. Meaning, it takes a bunch a “lifestyle choices” that will keep the disease in remission. Eat right, exercise right, sleep right!!! Thanks, again. Stay humble + healthy!!
Thank you for this video. It's 3:30 am and I was just diagnosed a few weeks ago. I'm struggling to eat and the bleeding is extremely constant. I just want to be ok and help people. I'm a nurse aide and there is no way for me to do that job in this condition. I feel so trapped. Thank you for making this video and making me not feel alone.
Great video. I have UC at age 51. There are many treatments. So far Xeljanz works for me. With that I’m 99% better. But yes, before the meds every place you went you had to know where the bathroom was.
Got diagnosed back in May, after about 6 months of panic and a lot of physical pain. This video gets the message across so succinctly, and it really helped me develop an understanding of what was/is happening with my body, and has helped me come to terms with my diagnosis (it's also a great resource for explaining this to other people). Thank you for sharing this with us, and I wish you all the best!
Best video ever, better explained than a doctor and or a nurse. I rather go to you to explain my illness. You are so good at this and this may be your calling. Please adventure into explaining other illness. You really capture my attention and clearly explain everything I needed to know and more. 👍⚘🙏💞 Continue to be blessed and a blessing to others. Thank you
Sorry to hear that, I have pancolitis so my entire colon can become inflamed, got diagnosed at 23, I've had about 4 flare ups since then I'm 25 now. I've found too much sugar and stress are my main contributors so Ive since cut out most sugar from my diet and take it easier at work. Tylenol and omperazole/pantoprazole are great for treating the flare ups and getting through the day
All these lockdowns, depression and having to stay home in a dirty, impoverished household I think certainly had its past. Of course the genetical aspect may be there but the environment has to trigger it.
I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?
@@speedracer8724 I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?
I was just diagnosed in march after being incapacitated for the entire month of February with this and it really threw me for a loop in every way. Your video made me feel so much better. I’m currently in a family vacation having the worst flare since my very first one. Hearing that you went through much the same things I did, like extreme weight loss over a short period of time, and total loss of muscle due to inactivity and lack of diet made me feel more normal myself. Even what you said about not being able to stand up and walk was the same. Right before my colonoscopy I was 124 lbs which was 18 lighter after just 10 days, and I wasn’t able to stand or walk or talk without gasping for breath and having my vision white out. When I was first hospitalized I needed to get three bags of blood transfused because I was severely anemic. I hope you’re doing well, and I hope everyone else in the comments going through it new and experienced are also doing well!
I was just diagnosed as well, the steroids are taking effect but the weight loss has been heart breaking as i was in great shape only two months ago. Ive been reading up on many people being in reemission for years with the right diet!
I was diagnosed with UC when I was 16. I've been in remicade for 15 years. Just got a colonoscopy last week, I am in Deep remission. No traces of anything wrong in my colon. I know this disease sucks when flared up. However, it is possible to go into remission! I am so happy , I beat it ! You guys can too
@@gdragon3541 Intermittent fasting was crucial. Also , I drink a lot of kefir. At least 8 oz daily. It's packed with probiotics. I cut out alcohol 100%. One thing I've been studying lately is medical marijuana suppositories. It goes directly to the colon.
Hello, my daughter(16) has been diagnosed with UC yesterday. Doctor has advised remicade or Humira. We are a bit confused considering Remicade and Humira works with Immune System. But looking at your post, if feels like Remicade is a very good treatment option. Any idea on what kind of food that she can try(I am trying grain free food from today) as we are vegetarians but take eggs.
@@ravibharadwaj5384 hi , sorry to hear your daughter is suffering from UC . Remicade has worked wonders for me. It takes the inflammation down significantly. I stay away from dairy , I notice that my body doesn’t react well to it. I can eat a fairly normal diet , I just always make sure to include my kefir smoothies.
Just got back from the ER with a 103 fever, unbearable cramps, and bloody diarrhea. I felt scared finding out this is a chronic disease. I can't thank you enough for this informative video! You have lowered my anxiety greatly. 💖
Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now
My Brother was just diagnosed with this a year ago. I was diagnosed with a different autoimmune disease. We are both Canadian. I feel all of this is connected somehow. The rise in autoimmune disease in the last 50 years is astounding. I have noticed for me, cutting out gluten made a huge difference. We need to investigate autoimmune conditions like theres no tomorrow.
First of all, I have had Colitis Ulcerosa since I was 13. I am now 26. This is all hard to explain but I am trying to help, I am not selling snake-oil. Through the years I have read a lot, and it seems one possible cause for IBD is candida. A strain of bacteria/ mushroom that overwhelms the colon, thus the gut-flora becomes unbalanced. Candida burrows itself to instestinal walls, thus making the colon infected in these areas. Infection creates ulcers --> All the bad symptoms. So, how does one even get candida? One explanation is the following --> one eats too many antibiotics --> the healthy bacteria is all out of whack --> one eats lots of sugar --> maybe stresses too much, drinks too much alcohol, smokes --> candida thrives and multiplies. Call me crazy but I believe a bad gut-flora/ bacteria is the cause of Colitis Ulcerosa and Crohn's Disease. So to get rid of those, one needs to get rid of candida. Probiotics (latero flora is what I use at the moment.) And probiotic foods go a long way. Kefir, bananas, blueberries, (unsweetened) cacao-powder help. Also it seems people with IBD have problems with lymfatic system? Exercise helps with that. I'm sorry for such a long reply. This is a mess. Just wanted you to know, there is hope.
Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now
For everyone going through this don’t give up! You will get better I have i got diagnosed like 1.5 months ago and now I have normal stools and no more blood just eating healthy its all in your diet dont lose hope
I watched twice and learnt more...again. Our NORMAL life is a blessing and we have this illness because we are strong enough to live with it. My BPD and ADHT are helping me to be distracted but I wish my life could be explained to make sense like this video. I would write a book or make an epic film about my life❤
Wow! sorry i am 7 years behind since you posted this, but that was a very helpful good and interesting video (also you are brave in coming out with all that) Thank You
Thank you so much for making this video. It makes so much sense. I have experiences so many flares up and was so confused for so long. Thank you for clarifying everything and making it so easy to understand.
OMG thank, thank, thank you for this wonderful video. I was just diagnosed. And it's so hard and scary for me because you don't know what to expect. I swear I saw different video and left it on auto play and your video played. Not sure if it was a sign but I honestly thank you for this video information 🙏🙏
Thank you so much for sharing!!!! Very encouraging didn't know if there was hope but you definitely have given me hope thanks for explaining in depth! Every point hit home brought me to tears God l you!
That was an excellent summary of UC. I hope you're feeling ok. I was suffering quite a bit from UC until I finally received an infusion of remicade. In addition to remicade infusions, I drink a big glass of water first thing in the morning. And I drink homemade kefir from unpasturized whole milk everyday too. In just 2 months, I've regained the 25lbs of weight I had lost, and I can hike Mt Baldy again! This guy, Kenny Honnas, has some very helpful youtube videos on how to change your lifestyle if you are diagnosed with UC. Good luck to you, and to all others who are suffering with UC!
I was diagnosed UC at the age of 20 last year. It's been more than a year living with this illness. I had terrible pains in the stomach, blood etc. I went vegan, taking salt baths, liver cleaning, fastings and I enter remission.
Testimonial: I suffered it almost one year. I found out three months after synptons begin (bleedings, pus) after a colonoscopy then I treated it using mesalazine. The bleedings reduced but not ended and so I lived for months. Unbelievably (to me, at least), soon after a strong dysentery, the bleeding ended for months and I stopped using of mesalazine. Pus back a time after and I took mesalazine again (one pill only). Pus back again and I repeat the previous formule. Then, I remembered reading a study that to say curcumin (here in Brazil açafrão) is good to colitis then I started taking one teaspoon of curcumin diluted in water, three times for week. No synptons after that. No bleeding, nor pus. Three years without synptons and I hope to go tô fourth year. Nowadays, I take one teaspoon for week. Ps.: Sorry my bad english, I'm not used to writing...
If it is true, thank you for sharing! 1) So, did I understand you correctly: in the beginning, you were taking one teaspoon of curcumin for three times per week. Am I right? 2) Did you take Curcumin supplements or actually Turmeric root or Turmeric powder?
@@dancerloverish I eat one teaspoon of curcumin with water per week to maintain my remission. I did a colonoscopy and my ulcerative colitis is better than when I did for the First time. ;)
@@dancerloverish I take curcumin powder diluted in water every weekend (but I can take any day of week). And also I already read about one person that stopped to eat wheat ending with the symptons (even getting rid of surgery).
I'm 45 and I was just diagnosed with UC. (12-2-20) Lost about 25lbs... Never in my life did I ever have any major illnesses or surgeries. Un freaking believable.
Before I was diagnosed, I was rushing to the bathroom 8 - 12 times a day just to pass blood in the toilet. I was even afraid to drink water because I knew I would immediately need to rush to the bathroom. I strongly considered just taking my lunches at work on the toilet but just decided to skip lunch altogether instead. I have been diagnosed for a year now. It's hard to explain the anxiety you develop from this too. You start looking at your poop in the toilet every time to see if there is any blood or mucus to see if you should quickly change an eating habit. I've seen blood and mucus recently after kind of relaxing my diet a bit. I've learned you really can't do that at all. Now I only eat the same foods every single day out of fear of doing something wrong. And of course, there is the C word that is always in the back of your mind.
I was diagnosed with moderate to severe UC only two months ago, and was hospitalized for it for two weeks. I relate to this comment so much, I used to be so scared of eating and drinking that I would cry eating even small snacks. Currently I’m really only eating peanut butter and jelly sandwiches, because I have no idea what will happen if I eat anything else.
@@humanbeing5624 I think the foods people can eat differ from person to person. Bread is a HUGE no-no for me. One book that my doctor recommended to me was, "Breaking the Vicious Cycle: Intestinal Health Through Diet". I plan to read more and find a better solution to my health than eating the same meal every day. Hopefully, this book will set you on the right path too. I wish you the best.
Thank you for this video Sis. I pray that your condition has improved. I’ve shared the App with my close relative and I’m committed to helping them fight this disorder.
Thank you for sharing this stuff. Even though my doctors and nurses explained it well, it kinda meant more and I got a better understanding when it came from a person with uc, does that make sense lol. My disease rn is moderately active and I have a ways to go to recover. It’s nice to see someone talk about this and put it on RU-vid for people to easily access, thanks
@Marian Cook actually there is no cure for uc or any other forms of IBD. It’s called a "chronic" illness for a reason. Chronic by definition means continuing or occurring repeatedly. I think you may have been scammed. Flare ups come and go, so it may just have been awhile since you’ve had a flare up. (I am not in any way trying to spread hate, I just wanted to let you know)
I just saw this today, and I'd like to thank you for being so honest and detailed about what you have been through. I hope and pray you are doing well and spending the majority of your time in remission.
Amazing explanation on things. I always have odd looks when I try to explain. They should play this video to any new person diagnosed with this cause it’s so informative.
Thanks Thanks Thanks from the heart .. 😀 I can clearly see that it wasn't easy for you to make this great video (which is really useful), still you did it :) Appreciate a lot your efforts and help
Hi everyone I'm 25 and I had my first(and worse) flare up at 22 without even knowing what a flare up was. I was immobilized and on the verge of tears. I went to the hospital got written down as stomach ache and wait 4 hours. I was doing bad, to the point other patients started asking was I ok. Long story short I got to the back finally had some bloodwork and was given tylenol. I was back within a few week with a new flare up not as bad but now after the first one very concerning. They treated me way better this time and came back and said I could possibly have colitis. I'm currently in the middle of one now and I'm used to having it happen every once and a while but over the last couple weeks it's been consistent. I've had to call out twice in the last 2 weeks. Is that normal to have a week or 2 where it's worse than usual. Wishing you guys comfortably and peace. Glad to know I'm not alone in this, because to most others when I explain it they just think like oh stomach aches go poop.😂 Theyll never truly understand
Thank you so much! What a brave and intelligent young lady. You posted this 6 years ago. I would love to hear where you are today. I have just started this journey.
Just got diagnosed at 21 years old medication is helping please anyone that has a bloody stool go to the er - I literally went 1 year after my first bloody stool and my ulcer colitis is bad
Me too I was diagnosed with ibd this years and my stomach is actually getting better just waiting for the medicine I mean my stomach is not getting Better but way back last year it was terrible
I feel for anyone with UC. I got off of Simponi and started on Entyvio which is given every 8 weeks through a infusion. I also started taking a supplement called IBD assist and it appears to help. It's a terrible disease and I hate to have to worry about every time I'm out to eat whether I'll have to go to the bathroom. I pray multiple times a day for God to rid myself of this disease and rid everyone else of this disease. Stay strong everyone. My hope is one day soon there will something to put it in permanent remission. Last year, I had C diff that came back three times and I don't wish that upon anyone.
Straightforward explanation! Highly commendable! :) Understood UC in 10 minutes from you. My docs have not been able to simplify it over the last 15 years :( Wish you healing and blessings 🙏
Due a colonoscopy for suspected UC. I'm very scared about the whole illness, as I've been lucky until this point. So thank you so much for explaining it calmly and honestly, it's made me feel better.
Sorry! Long post ahead: This is the most accurate and relatable video I’ve been able to find. I too have severe pancolitis and have now had two 10 day hospital stays in the past several months. My doctors are really pushing surgery and I’m just not ready to face the reality of potentially having a stomach bag forever. Ive only had this for 4 months. I’m still dead set on exhausting all medicinal options. I’ve started yet another medication (infusions this time) and I’m semi optimistic about it. I really struggle with diet. Even though I continually am told to cut out gluten it’s so hard. Dairy was much easier. When I was first diagnosed I fully eliminated gluten, lactose, sugar, red meat, raw veggies, most fruits, etc. And I did not improve, I actually got worse. My dietician has told me going low fiber is best-while my GI doctor has told me opposite. Deciding what to put in my body continues to be the most difficult adjustment. I have fallen somewhere in the middle now and really limit dairy, really watch what I eat overall, and have been going decently more low fiber. So far with the new meds and semi new diet I’m okay but honestly I NEEDED to find a relatable video like this. It’s made me feel much better. Thanks for putting yourself out there and being so educational about this. It has truly helped me.
@@xerilaun yes. Remicade infusions worked. I’m in full remission after a year of being in and out of the hospital multiple times. I can eat what I want and I’m able to function normal now.
I had a colonoscopy was diagnosed with proctitis, anaemia and had polyps removed. The consultant had a 2min chat with me while I was still on the table, I don't remember what he said. I was given a pack of information sheets and a prescription for pessaries and liquid iron. I was also told by the nurse the IBD clinic would be in touch, no one has. That was almost 6mnths ago, I've only just gone back to work since I've been floundering about the internet ever since trying to understand the disease and how to come to terms with pooping myself with zero warning. This was very informative, thank you.
THANK❤ YOU for YOUR 1)Personal Story 2)The Very Thorough Info/Education on a Very Topic to Discuss🎉🎉🎉 3)Your Detailed Info:"One Day /Meal@A Time This info will give OTHERS the FAITH❤ THEY NEED
@@robertyoung406 To be honest, I feel much better now. I don't know if it's because of the sun and warmth, me staying at home the past months and chill or the fasting and taking vitamins + cannabis.. I'm just glad that I refused to take any medication, like prednisone! In a few weeks I'm going to work again but I try to stay happy and stress free as much as possible :)
It is possible to heal. I have been getting better and better for two years. I was diagnosed 10 years ago and now it's only getting better. I've only bled once in two years. Before that it was getting better all the time!
I have it too. Had a remission for about 6 months after diagnosis then a flare-up started a week ago and this is worse than the first time. It feels like a volcano inside my tummy and I secreting blood clots with every bowel movement. Saw my Dr yesterday and he put me on some medsc
@@khanyisaboyce7724 yeah it's no fun.. I've been in remission for about 9 months now.. I hope everything goes well and that the meds help. I'll keep you in my prayers. Sending positive vibes... 🦋
I've just been recently diagnosed & doing lots of research. This video is the most concise, easy to understand explanation I've come across. I will be using this video to educate my family & friends. Thanks.
Thank you for such detailed information. My mother has been suffering from UC and I can relate to all the symptoms and experiences you shared. Really appreciate you coming forward and sharing this. Wishing you the best!
I feel your pain sucks there’s no cure but you can treat it and you can try to go on a diet and it can go awhile and come back stays with you for life colitis sucks but it’s better then Crohn’s
thank you so much for this video.....hope you are feeling better and you have found the right medication to keep you at bay. I'm truly sorry, i feel for you. I was diagnosed recently. take care of yourself.
Thankyou, had it since 1990, recently had a op that wiped me out. But I’m still going, never spoken to anyone so hearing a another voice is great. I avoided meds until recently preferring dietary improvements but that only worked for so long. Now I try to listen to my body, optimise my diet with as much unprocessed quality food, take time eating and rest. I take numerous vit. supplements and hope health care discovers something. All the best, thanks again
The worst part is when ur own friends don't even bother to atleast know the name of the disease ur suffering from...leave alone doing some research about it and taking care of u in school when everyone brings delicious food for lunch.I was diagnosed with this disease two years before .My cousin sister and my parents were the ones who made me feel better 😢at my worst times...am so lucky to get them...today is my sister's birthday and thought of putting a comment for her tho there's no chance of her seeing this😅
Great video. Well done! Thank you for sharing your story, and, like many, like myself, parts of it were probably very uncomfortable or difficult to share. The part about accidents, and always wanting to know where the nearest washroom is, almost got me crying. This was well presented and I’m sure I’m not the only one who appreciates what you’ve done here. Take care of yourself! 🤓👍🏻
