My Narcolepsy Diagnosis Journey - A VLOG

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Hello everyone! Thank you for clicking on this video!
I've struggled staying awake during crucial times like studying, reading, lectures, driving, and movies. Although I always just thought I was running myself thin with sports, school, work, and extra curricular activities, it turns out I actually do have a disorder that I can now explain to people. :) If you have an autoimmune disorder or narcolepsy & cataplexy specifically, tell me about it in the comments, I would love to hear about it!
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Опубликовано:

12 фев 2020

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Комментарии : 23

@isabelmasterson2072 3 года назад

I’m on my diagnosis journey too this video helped me a lot beacuase I’ve been really struggling💘💘

@fishbrainLTD 4 года назад

Great Vlog, I literally found out a couple days ago what Cataplexy was, which is great to give a name to something I've experienced all my life. Starting my own diagnosis journey now, but from what I've read about it, I'm 99.9% sure I'm Narcoleptic.

@Amy-yc8lq 2 года назад

It’s really interesting that you weren’t sure if you feel asleep for the naps but you obviously did quickly. Can you elaborate on that?

@louderthanwordsInclusivity

I have sleep apnea and it was indeed pushed out they had to wait until my OSA was under control and then do the MSLT with the Cpap so they know the day time sleepiness isn’t coming from the apneas

@sabrinahemerline6583

Thank you for this video. I go for Narcolepsy testing next week. After watching your video, I’m sure I have it as well.

@unpopularfitness2138 21 день назад

So, i have my first appointment today and holy crap, i am also in Green Bay 😂 that is so cool!

@lisahooper7578 2 года назад

This was very helpful thank you ;-)

@stephen6621 2 года назад

I’m getting the same sleep study done for narcolepsy, wondering how medication is working for you

@Amber-wd4ul 14 дней назад

I have to have a sleep study, my doctor put me on Adderall you have absolutely know idea how much it helps!

@ooladeleoodusanya1387 3 года назад

Thanks for info...

@taylorcranwell7561

ITS A LONG PROCESS, I wish it was just having oneeee sleep study etc. but for me it was a 2 yr process 🤪

@CajunA79

Were you on medicine during sleep study? I take narcolepsy medicine for ADD but need to do sleep study because im pretty sure i have type 2 narcolepsy. I still feel the need to pass out several times a day on my medicine . Especially when they lower my dosage.

@lindseywoods1905 2 года назад

I'm curious if you remember(or consistently) remember your dreams. I can't make it through a class. I have a number of comorbid diagnoses and I'm working to find what sleep disorder is the issue before I continue, but I have many visible signs of narcolepsy. I'm honestly hoping for a diagnosis at this point. I would honestly love to chat more about it if you see this/ Either way I hope you see this and are doing well in school and achieving your dreams! I don't know what I have, but your attitude has made me a bit more positive nonetheless! Thank you xo Elle

@tudormiller887 Год назад

Hi! I reckon I have narcolepsy Type 1, I often fall asleep during the day, although I sleep at night, I drift in and out of sleep, I'm in REM mode most nights. I've been diagnosed with obtrusive sleep apnea. I use a CPAP machine, because of my excessive snoring. It's possible I could have both sleep disorders. I'll have to get an assessment. Watching from London UK.