Almost my story exactly! I was 58, in perfect health, got a 16 cm (and still growing) fluid-filled cyst (never had pain, just found it by fluke), had it removed laparoscopically, (ruptured), and then it turned out to be high-grade serous adenocarcinoma, Stage 1C2. Same surgical path and chemo regimen. And five years out, I'm fully cancer-free (q3months Ca 125 checks). You got this, Randalynn!!!
A tumor that grows teeth and hair is called a teratoma. My sister-in-law found out she had ovarian cancer when she was pregnant with her first child. As her baby grew so did the teratoma due to hormones and eventually there was no more room for both. She delivered at 29 weeks, and two days later she started chemotherapy. Thank God for big extended families - We all took turns caring for her and the baby 24/7 for the first year. My sister-in-law and my nephew are 100% happy and healthy 25 years later!
Lost my sister to Ovarian Cancer. She was diagnosed when i was 28 and she was 31 and pregnant with what would have been her first child. She had a couple of occurrences and died 8 years later. It’s a real shame there is no screening for this. We need to do better.
I was diagnosed with stage 3C Ovarian Cancer back in April 2017, I was 3 weeks short from my 45th birthday. I had the chemo, full hysterectomy, and debulking surgery, the avastian afterwards. I was told I had 6 months to live, I remember being so poorly. The symptom awareness is terrible, here in the UK anyway. I did really well on all the chemo drug's. The beginning of this year (Jan 2024) I went for CT scan so I could officially complete the 5yr remission. It now turns out I have one 3.5cm and 3 smaller cysts now found on my pancreas 😢 I'm waiting for more investigations to be done, but we know our own bodies. I'm scared, but I've fought once, I can do this again ❤ btw I rocked a bald head, showers were so much quicker lol! But shout out to all my Teal Ribbon sisters. We are truly built of strong sh*t. Much love to anyone waiting on results, going through treatment, post and in remission and to those dear angels that have passed from the awful disease 🙏🤧💚
Hey girls, thanks for checking in with me. I was diagnosed on 4/4/17, and the beginning of this year, I had a CT scan and CA125 (8!!!) but as I said above about the 4 small cysts on my pancreas. So on Friday (exactly 7yrs and 1 day after ovarian cancer diagnosis) I went into the hospital for an endoscopy and biopsy (not a nice procedure) anyway, when he took the biopsy the cyst popped and he said it was watery and clear (snotty consistent, is not good) so he's very certain that it's not cancerous 🥳👏 but that's been sent off for more investigation. So, all good news yayyy!! I see my (oncology) gynaecologist on 1st May and we will see what and where we go from there. I'm not gonna lie, I was terrified that it was back, the timing from the first diagnosis until the biopsy this year is just bad luck. But for today, I've been given another reprieve 🙏 thank you to all that sent prayers 🫶🫶❤️❤️
I had an ovarian tumor the size of a football. I tried to get help from my doctor and he acted like I was drug seeking. I was sick, never felt good. I couldn’t use the bathroom. One night the pain changed. So I waited for the middle of the night to go to ER. They did ultrasound, then cat scans. Basically told me I was going to die. I never had any fear. When I left my home I knew I would have surgery and back home in 2 weeks. They sent me down south to university of Seattle. I said this healing prayers from my faith. Thy name is my healing, O My God, and remembrance of the is my Remedy. The doctor said it was a miracle. They did a debulking, took out some lymph nodes and the cancer didn’t spread outside the tumor. When they brought me to my room, on the nightstand was a beautiful bottle of lotion and across the top it said Remedy. I belong to the Baha’i Faith. Their prayers are amazing. That was in 2011. It’s now Dec. 2023, no recurrence of cancer or tumors
@@boraborabob1 Those creeps, I’m an Empath and Healer. Get a Baha’i Prayer Book and everyday I want you to read with your heart open. I will be praying with you. These prayers are very powerful, reading this prayer book will give you all the strength to beat this beast.
@@sj9410well duh yourself, if you had more than a superficial understanding of the world & the patient story channel you might ACTUALLY understand the comment that you took a swipe at. The kind comment left by JuanDiaz acknowledged how articulate & compelling her story was. Not everyone is body aware. Luckily for her, she was. I would be interested to know why you felt it necessary to leave this ugly comment. Was it helpful to anyone? Did it make you feel clever? Did it advance the goals of the patient story channel?
My beautiful mum was diagnosed with Ovarian Cancer on 21st Dec 2014 and died on 21st June 2015. They said 6 months and she had 6 months to the day. Her only symptoms were some backache and a couple of weeks of what seemed like the flu. Then bam! Stopped being able to go to the loo and she was in agony. Like all of a sudden. I was 6 months pregnant. We’d been shopping for strollers 2 weeks before. It was like a bomb went off in our lives. I miss her so much. So much. A year later Dad took his life. It was just too hard without her.
The word " mum" is for me the dearest word and I know how you feel for I have lost my " maman "( I’m french) 18 months ago . She was everything to me . She always had the right word to confort me and now tears arei rolling down my cheeks. What conforts me now is one day it'll be my turn and I’ll see her again . I really love it when I hear my children call me mum . It’s a beatiful name and I feel proud to be à mum .
my mom was diagnosed w/ovarian cancer n it was removed in 1974. It was the size of a grape fruit. Drs told her it was all contained so no chemo or radiation was reco. It came back a 2nd time, this time she had radiation tx, she passed in 1992. I guess she had a slow growing cancer? I hope n pray that you stay cancer free for the rest of your life. 🙏
So sorry for your losses. At least you had a father who loved your mom. My husband of more than 20 years (and 3 kids) turned out to be a psychopath that was trying to cause my death. At least there was love in your family. Love would have been so wonderful.
Hi ladies.. I'm dealing with 2 forms of rare ovarian. I have mullerian endometriod type stage 3C and clear cell was found in the peritoneal wash after surgery. I've done 6 rounds of chemo and I'm in remission presently. I have to see my Onco every 3 months for a CA125 and pelvic exam. I did paclitaxel and carboplatin. I lost all my hair too and my big toenail started to detach!! I'm told I have a 70 to 90% chance for recurrence. I'm doing all I can to keep that from happening but I also have my 85 and 86 year old parents living with me. it's a little stressful. I had to help take care of my dad throughout all my treatment. he fell about 2 years ago and has been on a walker since, it involves a lot! Good luck to all you out there who are dealing with all this as well. I am also 18 years out from breast cancer, I'm 60 now. I was 42 when I had the breast cancer. take care of yourselves beautiful ladies.
Prayers for strength and courage! 🙏🏻🙏🏻🙏🏻🙏🏻 You have a lot on your plate for sure. You are a wonderful daughter caring for your parents while so ill yourself. That has to be very difficult. May God watch over you and help you each day to do what you need to do while caring for yourself as well. 🙏🏻🩵🙏🏻
I was a medical liaison for my friend’s non profit for women with GYN CA. She was misdiagnosed for months, and sued the PPO for malpractice. She had 2 young sons, and lived until they both graduated from High School. YEARS after her prognosis of “months to live”.
So beautifully said, especially at the end. We have no control when we get cancer. Just choices. I was stage 3c ovarian cancer, an exceptionally rare type. Chemo and radiation for me. It’s been 17 years. I’m very lucky. I always say I got far more from the experience than was taken from me. Yes, I have neuropathy and lower back pain/hip pain, but I learned more about who I am and what’s important. I’m so fortunate. Let’s enjoy each day!
Wow 17 years Really Blessed . May I ask did you have a reoccurrence ever? Did you have a debulking? I am so happy to hear how long its been. I am always googling looking for hope so many beautiful young wives and mothers have passed I followed on you tube 🥲
@@sddrunner I never had a recurrence. My surgery was extensive, with a lot of lymph nodes removed. My cancer was mostly retro-peritoneal. It was called endometriod andeno squamous carcinoma. Maybe 300 cases in the US per year. They took everything including the cervix. Lymph nodes were involved above the midline so it was staged 3C. There really isn’t/wasn’t any stage 2 for ovarian cancer. As it walked and talked like uterine cancer, I needed six rounds of Cisplatin with Taxol. I stage in the hospital for over a day to get Taxol for about 20 hours and the Cisplatin for two. Next day I had to come back for nulasta. That shot hurt a lot. I also had to take the one to boost my red blood cells too. I had to have home hydration for three days post treatment as my electrolytes got shot. On the three treatment, I had a heart episode and they rushed me to the cardiology department where they stopped and restarted my heart. Radiation was a breeze, comparatively. My nurses were all angels. I was very lucky all the way around. For the record, I was tested every three months until Covid hit, so like for 13 years. I’m now every six months. I’m also tested annually with Signatera. Shocked me the could find an old tumor sample, but they did. Extra insurance. Life’s a journey and this wasn’t something I expected. There is no history in my family. Wouldn’t wish this on anyone. I will urge all women to get a transvaginal ultrasound every other visit with their GYN. I had a history of endometriosis. Years had gone by with no issues. But I had pain that I couldn’t ignore. They found with the ultrasound a mass like this woman had - with hair and teeth. No one suspected cancer. My pre surgery CA-125 was only 64. The found the cancer during that surgery. Oddly, I heard them while under anesthesia, when the pathologist called into the room. First thing I asked my sister and dad when I woke up. Sorry for the long reply, but I hope it helps you and maybe someone else.
What type of cancer do you have? I had granulosa cell tumor, which is a rare form of ovarian cancer. It was stage 1C but did recure 5 years later in a different location. I'm happy for you, 17 years is great!
@@sddrunner I thought I replied yesterday, but now am not seeing it. I’m not used to posting. No recurrence. Total hysterectomy including cervix. It was stage 3c because I had lymph nodes involved above the midline. Lots and lots of those removed. Let me know if you need more info.
@@christinef7739 it was - past tense very important! - endometrioid adeno squamous carcinoma. Maybe 300 US cases a year. Cisplatin and Taxol for six rounds. Then 31 radiation sessions. This cancer walks and talks a lot like uterine cancer…the radiation doctors were very puzzled as to why I was referred to them. I was lucky that the ‘discoverer’ of this type of OC was known by my surgeon, so I was advised to do both. I live in CA and it’s required in my state that if a hysterectomy is to be performed a gyn onc surgeon be present in the room. I didn’t know I had cancer going into this surgery. I had a mass like the woman on this video - with hair and teeth - and they were going in to remove that. At 47, with a history of endometriosis they said I just should take out my uterus.
Just had a 13cm mass removed from my ovary (lost the ovary & tube too) awaiting results. Still in a lot of pain! Suffered with symptoms for 2yrs, GP ignored symptoms so had a private scan, waited 6 months for surgery! Thanks for sharing your story, you are very brave & I wish you good health 🙏
Thanks for sharing your story your saving lives…..my mom was so sick and dismissed in horrible pain and after a year finally was in the hospital she died 6 weeks later I now tell people keep going back and advocate for friends family yourself thank you
My baby sister had what she thought was a bad cold for a couple of months.Finally went to the doctor and was told she had ovarian cancer this was on 3 Oct 20. She had her first chemo treatment on 26 Oct 20. She died later that day of her first chemo treatment from a blood clot.Her death devastated my whole family because she was the baby of the family and we thought she would out live all her brothers and sisters.Pam was 50 years old.
Gary 😭 I am so sorry. My aunt died of ovarian cancer. Because of her, I know my risk and I know my baby girls risk. I have two boys and a girl. I can't imagine my boys not having their sister. They are 3 peas in a pod
@@xxluaxx6 Boys (men) have increased risk of prostate cancer with these increased risk inherited cancers. All my uncles passed from the same prostate cancer.
This was such a captivating telling of her cancer story, something I would not have imagined saying before watching this. Randalynn painted the picture of her experience so well, and told it so bluntly while personalizing it so much, and she was so easy to listen to (soothing voice, good pace). I learned quite a few things about the cancer journey, things that so many of my loved ones probably went through, but which you just don't talk about in this depth. Thank you for sharing your story Randalynn.
Resentment is like drinking poison hoping the other does. Revenge is best served cold. Please don’t hold it inside…let them have ALL your anger! No more will I pay for the sins and failings of others…I hope you join my revolution of the soul. It feels good to say the truth and tell it quicker and louder without a bit of shame.
So horribly sorry you are going through this. I was not diagnosed at all ignored. Have to be your own advocate beginning to wonder about the title Doctor hmm. Hard to find a good one 🙏
@@MemeMeme-tu6fr I have constant bowel issues since the resection of my colon and part of my intestines. Cancer had spread wore a colostomy bag 9 months and had a take down so its gone. Always scary worry about reoccurrence. Unfortunately the trauma changes you or at least me.
Our stories are so similar. I started having back pain November 2019. I started acupuncture to try to help the back pain. I had two episodes of severe night sweats. Couldn’t make any connection. Then in July 2020 just a couple months after Covid started I was diagnosed with stage four lymphoma. RCHOP & radiation and now I’m in remission. Will be 66 in April’24. 🙏🏻 Thank you so much for sharing your story. I had tears running down my face watching it. Because I can relate. But I went through it mostly alone. ❤️
My mom, had a distended belly and trouble going number two.. she went to her family doctor, who sent her to a gynecologist and did a fluid draw in her abdomen come to find out she had high-grade serous carcinoma… turned out to be stage 3C and she died 15 months later. This year it’ll be seven years and I still miss her.
My thoughts and prayers are with you. I don’t have cancer but have had LUPUS for over 40 years. I have severe pain but I take one day at a time. I have learned that how I react and deal with my health condition is crucial too my mental health. 💝
You're a very brave woman. Thank you for sharing. The more people tell about ovarian cancer it will make drs aware of it There is no test for it and the systems are so general they are mistaken for less complaints. In my opinion all drs should routinely check for ova cancer in females at age 25+. Im 82 and was diagnosed in 2021 with stage 4 serous fallopian tube cancer. Inoperable due to my age and fitness. Ive had 3 cycles of chemo and am now on maintenance PARP treatment. Its not permanent but will keep me going until the cancer returns or I develope other problems. I had no idea I was so sick. Iwish you the very best on your journey.
My tumor is the size of a basketball and I have metastasis in my lung and possibly my liver but we don’t know. I am grateful God didn’t give me children because I have a gene mutation that caused the cancer. It sucks. I am on chemo/immunotherapy and responding well, I’m only 2 rounds in so we will we where this goes. You are a warrior and one of the first videos I watched when I got diagnosed. You give me so much hope.
@@jyienger good! I had a hysterectomy last month and will have my fifth round of chemo on Thursday. As of now I am cancer-free! 3 more rounds for good measure and immunotherapy for life but that’s okay! Thanks for asking!
Do you mind me asking, what gene mutation? I found out I have RAD51-C. I also have a dermoid cyst but haven’t had surgery. My mom just recovered from breast cancer in 2021. I’m so scared 😢
Your story is incredible. I am so glad that you had all the support that you needed & it really sounded like you had a great support system. Unfortunately not everyone does. My gf in Alabama had to go through what you did all by herself. She literally had nobody to help her, can you imagine that? Imagine being alone while going through chemo? Imagine recovering at home all alone? You are so lucky & I think you know that you are. Blessings to you! Prayers for those that have to go it alone....
I went through my cancer experience all alone too. Even when a tumor ripped open my body and grew out of me. It was the darkest period of my life. My family are very disappointing and think only of themselves most of the time. My faith in God is what brought me through the storm.
You are such an intelligent, well-spoken person. What a challenging time you’ve had! Thank you for sharing. You just never know who you will help by making this video. 🤗
3-19-24 thank you for your story. I saw my Dr today and I am getting checked for ovarian cancer soon. I've gone through breast cancer 2 x with a mastectomy the 2nd time 5 years ago. It has been a long treacherous journey. I hope and pray I don't have to do this again but if I do, I will remember your words and take one step at a time. You are an amazing woman. God Bless!
Im a stage 2 ovarian cancer survivor. Also had endometrial cancer same time. I had 0 symptoms until 1 day i had a cyst on my ovary burst & it was so painful i took myself to the er since it was midnight. And i was diagnosed that day
I had the same thing happen...they just let the cyst drain through out my body....did nothing then I had a full D&C almost hysterectomy....they still haven't done anything...I get pain and throw up ...I had severe endometriosis my whole life...I wonder who I should see😢
@@colettejaques2559 oh my. I would demand to get seen even if it at a ER. I took myself to the ER for pain and i was diagnosed with ovarian cancer on the spot and they did a complete total oopherectomy on me and i started chemo once i healed from surgery. Ill be cancer free jan. 28th
I have adenoid cystic carcinoma and the first thing you said speaks volumes. Once you get diagnosed you really don’t get a moment to process it because you become engulfed with treatments and appts. Thank you for sharing your story
Two year’s remission Ca125 and Pet Scans every 3 months. Now it will be every 4 months thank God so difficult to have manual checks. I had Stage 3C and months went by Primary would not listen. I was dropping weight like crazy my stomach was big and I was constipated painful back and tiered. Finally I said I want an Ultrasound she made a colonoscopy appointment which would be 3 months away. I said I hope I don’t have cancer she said well if you do all they will do is cut you open and sew you back up! Went to Ultrasound the Tech said you need a CT Scan like today! Wow I got up early went to Emergency. Got a CT Scan doctor on duty said you have Ovarian Cancer. He told my primary she got me an appointment with a Gynecological Oncologist. I was shown the Tumor on my test results. I was numb in shock. He wanted a Debulk we set it up. Then a Cyber Attack they cancelled I had to reschedule. Clock was ticking. Went in 9 hour debulk surgery three blood transfusions. Your right ouch. Was awful everything out cervix fallopian tubes appendix ovaries part of my colon and intestines. Left with a ileostomy bag. Life had changed 87 pounds a bag and a urine bag strapped to my leg. Then later a Port put in and like you same chemotherapy drugs . Blood test port cleaning constant appointments. Hair didn’t fall out until after chemo was finished. Now have neuropathy in my feet snd wore cold booties snd gloves during chemo oh well maybe be worse if I hadn’t. Nine months later ileostomy take down bag gone. Now constant bowel issues. Hospitalized for a blockage wanted to die. Its been hell and it does change you. Always concerned don’t want a reoccurrence. Like walking on eggshells. I had Stage 3C due to so many delays cancer was spreading fast. They were pulling it off my bladder. I am very lucky can always be worse. Two years now 109 pounds exercise daily eat healthy pray a lot. I look great like a different human then. Sorry so much more but you got the picture Trauma and PTSD side effects. God bless
@@sierragold Your wonderful Empathy is what we need more of. God Bless you too please be your own advocate. Take good care too many people getting Cancer. Pray 😘🙌🏻
I am a retired nurse. Ive seen dermoid cysts with hair and teeth. It is crazy what the body can grow! Not grossed out at all! I’ve always wondered why people feel compelled to explain their type of cancer to anyone. Even if it was on your hiney 🕳️. Which might be embarrassing. But that isn’t anyone’s business! Tell them whatever you want to tell them. They aren’t going to know the difference. I don’t mean sharing your story, this is outstanding advice. And I hate you had to go through this! Tell your story but only share what you are comfortable sharing. 😉 You are a beautiful soul! I wish you the absolute best. I pray you live a very long time, love! ❤️ Edit: “type of cancer”
I have a good friend who got a diagnosis when she was 33. It rebounded and she said the hardest thing was telling people and having to go through their reaction. When it happened we had the internet but social media was something just for college kids. Now people have social media and can tell most everyone online and not have to endure everyone sorrow at once. God bless you, you are a beautiful woman.
I'm sorry to learn about your experience, but I'm glad you've survived and you will continue to do so. My dad faced cancer years ago and successfully recovered without resorting to chemotherapy or radiotherapy. Through faith, a dietary shift, exercise, and supplements, his healing journey was lengthy, but he triumphed. Today, he's in his 70s, embracing life to the fullest.
@kristinakrypto8827 Sorry, I am just seeing your reply. No, he never had any surgeries he is currently 70 years old, with no grey hair and living very well.
That just blows my mind. I had an ultrasound and an MRI for a mass on my ovary and they could not define what it was and she refused to do surgery until she did every cancer blood test there was and then my doctor did the surgery and it came back benign.
Keep us updated @SatumainenOlento cause same! I had a complex cyst on my kidney also and all imaging they're unsure about, even mri. Dr's just wanna cut us open and get the most profit.
Thank you for sharing your journey. You are saving lives and helping prepare others on how to get thru it. I cannot even imagine going thru what you have experienced. Stay positive and strong, you are truly a survivor.💖
Oh my goodness! This is an insane story. I have so much love and respect for anyone going through treatment for any form of cancer. You are so articulate and self advocating which clearly has served you well. Stay strong.
Well done, and thank you so much for sharing, I lost my mum aunty's and sisters to this ovarian cancer HGSC stage 4, going through it now. Ginger root in canada has found helps. I miss my dearest precious sister and friend every day.. Hugmuggus warm heart felt hugs 💜 🙏🏿
My sister passed aged 60yrs of several years of illness symptoms - not once did a doctor consider ovarian cancer or order a CA125 - it was only done following collapsing at home and she ended up in ICU department they ordered a CA125 and it was extremely high ! She passed away with her family around her. Sorry to hear your story 😢
What an amazing job you did telling your cancer story. You are an inspiration to all. May the good Lord bless you and keep you cancer free, 🙏❤️✝️. Thank you for sharing your story!
My mother was diagnosed with stage 4 lung cancer NSCLC Exon 19 Deletion) in November 2020. She had developed a persistent cough that did not respond to treatment but otherwise felt fine apart from an ache in her legs. Referred for tests, and stage 4 lung cancer was a shock. Her oncologist prescribed a new TKI drug (osimertinib.) There were 15 months with a normal life, progression, radiotherapy, new drug, progression, and chemotherapy and whole brain radiotherapy that did not work. My mother died on 4th November 2023. She had a strong will to live and stay with her family, but her body had had enough.
My mom fought hard. She suffered from ovarian cancer. She was diagnosed in 2007 and passed away in 2016. It's a really tough disease. It's known as the silent killer. It's really sad that even younger women are getting diagnosed with this disease. These days. And I really don't think that it's only diet, exercise and not having a good lifestyle that is contributing to this. But I think it's also air quality and water quality. Which unfortunately, nothing is being done about. And not just ovarian cancer, but also other types of cancer as well. 😢😢😢
You be sure to be your own advocate. Get your mammogram and pap smear . Get to the emergency and get a CT Scan if you have any symptoms . You would know be good to yourself. Tell your doctor about Mom you may want genetic testing. God Bless so sorry for your loss😘
@@sddrunner pap smear and mamogram can't detect ovarian cancer. It's a tough disease to diagnose in early stages. That's why it's called the " silent killer" The only way is if one starts having symptoms like bloating, early satiety, frequent urination etc.. The only two possibly reliable tests for ovarian cancer are pelvic ultra sound where ovarian cysts can be be detected. Most ovarian cysts are harmless and go away on their own but if one starts having pain in that area of the abdomen then they would probably need to have another pelvic or even transvaginal ultrasound and a blood test marker called " CA125" to confirm the diagnosis
Thank you for sharing your insights about how to navigate this. I advocated newer symptoms aside from my lupus symptoms which weren't taken seriously for months. I was gaslighted. It took me a 911 call for a CT scan and ultrasound. Now I am pretty satisfied with my oncology team. I have stage 4 ovarian. I sway in dark moments here and there after researching and watching clips. It's tough sometimes and I try to be positive. Thank you!
Shirley here my mom had ovarian cancer. She always went for her test pap smears and the overlooked her ovaries. By then the cancer went into her colon she has a colostomy and other surgeries and lost her life. All the chemo for nothing. She survived 2 years.
Two years is not nothing. So far I have had two years and I’ve been grateful for every day. I do think the surgery and chemo was worth it for me, even if this is all I get. That said, I handled it all well and have not suffered too much so far. I hope your mom had some joy during those two years.
@@patriciaedel5714 She did there where times we thought she had it licked she felt great looked healthy. She have her chemo and be sick for just couple of days then she would feel great. Then she be done her hair would grew back just enough she didn't have to wear her wig. Then it came back but this was 15 years ago they have more drugs today.
I had Ovarian Cancer in 1985 on the brink of my 31st Birthday. Typically Menopausal women have it.Oncologist at Duke advised mine came from Endometriosis. I had a one time P32 Treatment Praise God coming up on 50 years 🙌
Wow. (This amazingly courageous, strong, and humble woman has been through hell and back. 😢) I'm so sorry that you had to go through this! Thank you so much for sharing your story- your incredible journey as a warrior! The medical system is replete with unexpected landmines, and those who don't know what they are doing. :/ Blessings to you, for getting through, against all odds~ and may your body's own natural and gentle healing processes take over from here!~*🌹
When I had my genetic testing done, they said oh you have the good type of lynch syndrome. It has the lowest cancer rates. My doctor didn't understand that when you have a genetic defect, it does what it wants. There is no rhyme or reason. We with the pms2 variation get just as much cancer as the rest, there's just not as much data known about it. Cancer is an awful disease and I'm so grateful for these stories. They make me feel so hopeful. Here's to hoping for continued health for you friend!
I had one as well. It weighed 3 lbs and was the size of a football. They found it on ultrasound for pregnancy. I had irregular periods for a couple of years, and they thought it was PCOS. I had a couple weird instances of sharp pain in my side that I almost went to ER for, but ended up deciding it was gas/IBS. They had to take out my left ovary when I was 13 weeks pregnant because there wasn't enough room for the baby to grow.
Thank you for sharing. Ovarian Cancer is not well understood like other cancers. Lost a sister who was 46, like you, with a large lump on her ovary. I pray that there will be a test like the cervical pap to help with early diagnosis.
I'm getting a scan for this soon. My Doctor feels that I'm fine but he calls Ovarian cancer the silent killer of women and prefers to rule it out early unlike most Doctors. I'm very lucky. I'm so sorry to hear about your Sister, my Twin is currently battling the after effects of throat cancer 🥰
On March 20 2024 I got the results from my ultrasound the doctor said it looks to be malignant. 10cm large ovarian complex cyst with multiple septations thick solid with blood flow I'm waiting on my gynecology oncology surgeon on April 2 202 I'm very scared but thankful for everyone's stories ❤ I'm 44 will be 45 in August
Just came across this video. Well articulated. You sound like a very strong beautifully woman. God bless you and your children. I wish you all the best!!!
I had an ovarian tumor that was the size of a grapefruit. My OB Gyno was so dismissive. It took 6 months to a year to get diagnosed. Thankfully, my cyst was benign.
My sister fought this for 5 years. We both did the genetic testing & came out negative for the genes. There needs to be more research on the cause & the cure. She did all the steps & the road never got easy. I miss her so much.🌈
I’m 19 years out from ovca stage 3b. I did have 6 carbo/taxol treatments and 12 additional taxol treatments. I now volunteer in a wig bank. Cancer pts are given free wigs and many additional services. I’m so happy to be of help to them.
Hello Karen! I LOVE this, very well done. I'm nearly 3 yrs since dx with OVca stage 3c. Doing well still NED. My hair loss was quite the journey as had waist length hair & was my image as a musician. I now LOVE my curly shoulder length regrowth. I'm thinking of volunteering in '24, my cancer centre has hairloss support groups. All the best to you ❤
I was stage 1A fallopian tube cancer. They now think ovarian cancer can start in the fallopian tube. It's the same kind of cancer. They told me I had a 95% chance of never seeing it again, but two years later I had a reoccurrence. Apparently this cancer is really persistent. Tiny tumor, they removed the whole thing and I did chemo a second time. I was on a maintenance drug that I hated. 18 months later I had my second reoccurrence. I had chemo again. And now they've added a Avastin. I am five years down the road since my surgery. Aside from being anemic, and easily tired, I've never had bad side effects that couldn't be managed. And because they consider this disease chronic, I'm sure I'll be going through it again. But I'm always hopeful it will be a long break!
When you are post menopausal an ultrasound of your pelvis can’t see your ovaries. Then doctors tell you are fine despite pain and bloating. Push for additional tests!
The day before Thanksgiving this year I had a complete robotic hysterectomy by a gyn onc. I went home within a few hours to recover. I cannot say enough good things about this provider. My story ends well, I am one of the truly lucky ones, all the pathology came back as no evidence of malignancy and I will be discharged from his care in a few weeks.😮
@@pchaynes I’m so glad to hear that. I had severe endometriosis so after 2-3 surgeries I said just take everything out. I went home the same day and didn’t have any pain at all.
My mother was diagnosed with ovarian cancer back around 1985-86. She wasn't feeling right for several months before that and she had gone to primary care provider two or three times before she got the ovarian cancer diagnosis. Doctor did pap text and it of course came back negative. Doctor couldn't feel anything in her pelvis so nothing was done until a piece of tumor fell out of her vagina. She had extreme tiredness and unusual pelvic pain before she was diagnosed. Unfortunately, they didn't have ultrasound or other diagnostic abilities they have now. I'm sure they would have gotten her an ultrasound scan and CA-125 test immediately when she first complained of tiredness and pain if she had been going now. Chemotherapy gave her another good year of life but it did not rid her of the cancer on her intestines so when they had to stop the chemo it came back. You know your body. If you have unusual tiredness or peivic pain tell primary doctor or ob/gyn to schedule you for an ultrasound immediately.
I was diagnosed after a long history of urinary problems until a CT showed stage 4 ovarian cancer. The tumor made me look like I was 6 months pregnant. After 3 chemos w taxol and carboplatin I had debulking surgery. The tumor was wrapped all around my colon so I have a temporary iliostomy. Post op I became septic and spent time in the ICU. 3 weeks later I was feverish and a CT showed a fist size abcess on my colon. That led to another 7 day hospitalization. Currently I just completed all 6 chemos. My tumor marker is 8!!! The comfirmatory CT is in 2 weeks. I’ve been blessed by God to have a great support system and the very best Gyn Oncologist!! All glory goes to the Lord!! 2:58
Your story needs to be heard! You’re such a positive and encouraging survivor! I have worked for a specialist for endocrinology and I have a question … have you had a full thyroid panel? I say this because the left side of your thyroid in the video and also in a couple pictures, appears enlarged. Just a thought… Well wishes and prayers for you! You have beautiful children! God bless
Her nurse practitioner prescribed antibiotic for a "UTI", without seeing her or examining her??? My healthcare provider don't prescribe anything without seeing me, even if it's something I've been prescribed before or am in the middle of treatment.
Almost all if OC cases are terminal as it's being found too late in majority of cases. This type of cancer is very very difficult to be detected when it's still treatable + there are NO symptoms at this stage and nothing can be seen on ultra sound. This is something I'm really really terrified of as no matter what the others say it IS a death sentence. Plain and simple.
After surgeries that big you use a pillow squeezed against yourself when you try to sit up. (I have had 4 different huge abdominal surgeries in my 50 years).
Have one on my right, it’s 14cm they say it looks like a fallopian tube, with solid and fluid components. I had a hysto and right fallopian tube removal 11 yrs ago. That ovary is starting to torsion, left ovary is enlarged with solid components. I’ve had so many stomach surgeries due to endo and cysts since I was 13. They say it could cause further damage. They want “aspirate” the cysts in the end of April. My ca-125 is a tad high but still in the normal range. I’m 42, single mom of two. Drs aren’t listening to me. Constant feeling of having to urinate with no relief, slowed kidney functions etc. Ontario health care system is so broken. Not sure what else to do but pray. They say I’m too young.
i was bleeding more than usual and constipated. Noticed i was getting a belly. I had a cyst 20 years prior and had it removed. Spoke to my my female primary care physician about my symptoms and she told me im just getting older and hitting menopause. On vacation, i was trying to get a nice photo on the beach and couldnt for the life of me hold my stomach in. It was pouching. On return from vacation, laying flat on my bed, i saw a mass finally pushing up. It was growing fast and kind of moved around. Went to the doc and had the ultrasounds and had both ovaries removed along with the cyst(s) one with cancer on it. It was the size of a baby and I am a thin woman. Giant scar from the surg and internal scar tissue Issues after. ER visits and hospital stays. another surg to clear out internal scar tissue. No other treatment otherwise. If only my pcp would have recommended an ultrasound when i first went to her. ive been thru a lot because of her not recomending. Thankful I am alive but it changes you. I get anxiety when i am not taking care of myself or eating healthy. "Chris Beat Cancer" gave me information on how to help myself. God gave me peace and strength. After surg, my oncologist told me that God was looking after me. Noone seemed to think I would make it, but me, "Chris Beat Cancer" and God 🙏🙏🙏
I lost 2 friends to ovarian cancer (10 years apart). Both never used birth control or other hormonal therapies therefore never considering cancer of the ovaries. Both were convinced they had irritable bowel syndrome due to stress but had very healthy lifestyles. Both were at stage 4 - one died after an operation and 1 year of treatment and chemo and the other one died of heart failure before her treatment could start (from South Africa). I use HRT and go to my gynecologist every year for a full check-up. All women should go for annual check ups - with or without the use of hormones
