My Pituitary Tumor Story 

Omg! thank you so much for making this video your so brave it really helps to get an insight on the scariest parts of life

Thank you for sharing your story Bettie! My surgery is scheduled this week. Your story helped me understand and calm me down a whole lot . Best wishes to you and stay safe!

I've had so much anxiety on this. So scary. I just found out I most likely have this and I'm waiting on a specialist to get back to me. Your video helps me feel a bit less scared. I found out because I had a panic attack and they tested me for this.

So happy u are feeling much better, u look great! Actually I had mine done in 2015. Sometimes they said it can reoccur, I hope not... Can't go through that again, I stayed at the hospital for almost a month doing alot of testing. I pray for everyone who has done the surgery and recovered and those now going through it.. Be strong, it was hard for me to be away from my kids, especially my son at that time he was 10 years old and hard for him to concentrate in school. Good luck, be safe and if u start getting symptoms as being fatique, eyesight blurry, extensive headaches, menstrual changes. Pls have yourself checked out and request an MRI. It was not until after I was sent home, after 2 days I was called back to the emergency room after seeing the MRI. The rest is history..take care of yourselves, there's no specific reason for this tumor....

I'm so thankful i found your page. I am 32. I have the same issue. Irregular periods, headaches, nasal issues, weakness, fatigue all the time and mood swings. I cry and am angry more than I am happy. Went to doc n found out I have a 2.5 cm tumor. My endocrinologist says I just need to take 💊 and it is possible tumor will shrink and prolactin level may decrease also. I start my meds next week but first I have to take this injection. Forgot what it's called. I really hope this all works out for good as I am suffering horribly from more constant daily headaches and weakness. My life is just declining when I can't do the things I love at a normal level any more. 😢😢😢 pls pray for me bcs I am very nervous. Also, thank God you are now better. Thanks again for sharing your story. Much 💜 and aloha from Hawaii!

Thanks for taking your time to share your testimony.

This video help me so much I was diagnosed this month and I’m gassing my surgeon next week and I’m so scared I’m glad u made a full recovery

I just found out my 18 year old son has a pituitary tumor and finding your video has given me hope and eased my mind a bit thank you so much

i was diagnosed in 2018, now in 2020 i’m still having inconsistent complications such as headaches, lower left side cramps, and irregular cycles. praying that when the time comes, it’ll go smoothly! keep your heads up ladies, we will get through this💕

Thank you so much for posting your journey! I just got my diagnosis and being a nurse I just scare myself with what can go wrong. Thank you for calming my fears. Good luck to you.

Thank you for sharing your experience... My daughter is only 15yr old and we’ve been dealing with this since she was only 2yrs old. Now thinking about surgery for her. Blessings 😷

Thank you for sharing your story I'm going through this now it's just round here it's hard to find a good doctor I've had this I found out like 6 months ago 7 months ago I've had headaches I vision problems. where I live I was trying to get into a Pittsburgh hospital but they will not accept my insurance. And I was at that point to where I was upset scared didn't know what to do and then I seen your story it gives me a little hope also will my sister from the church God bless her she young refer me to a local doctor I haven't been to her yet but that's exactly how they found out my tumor my paroxetine level was high and I just want to say thank you for sharing your story and please keep me updated on how you're doing how you're feeling. I'll keep you in my prayers

Thank you; I am in the position where they suggested the craniotomy and I want the endoscopic nasal approach . This really helped me a lot in coping and building my confidence for success. Sending love!

Thank you for this video because I'm going through this now. this helped me not to be so nervous about the surgery. thank u

Thank you for posting this. I’m in the middle of figuring out what is next for me. My pituitary Adenoma is 3.5 cm which is about 2 inches. Good luck with your recovery.

Thanks for sharing! I was diagnosed with this too, I was taking medication for this, but since it seems to not be doing much to shrink my tumor, I’ve been considering surgery, but I am sooooo nervous, but after watching your video I feel a lot more at ease. Thank you!

Thank you so much. I've just been diagnosed with a functioning microadenoma. I'm worried. I'm seeing my neurologist and endocrinologist tomorrow 😭 the NHS missed this and put my hormone disruption down to PCOS and stress and its neither! So glad I went private for a second opinion and an MRI x

I'm 41 and just had a baby. I came out of anesthesia to a blinding headache I thought I was leaking spinal fluid from a failed spinal block but the hospital assured me I wasn't. However I was going blind and the headache was intolerable. 2.5 weeks in the hospital and I finally have a diagnosis. A one inch pituitary tumor. Thank you for the information. Prayers to all suffering as well.

Praying for a speedy recovery. I was just diagnosed with this problem. Still trying to wrap my mind around it. I have a few more test to take before a treatment will be suggested. 😢

You’re a very beautiful and brave young woman. So glad you came through this OK. Stay well!

Thank you so much. This was very helpful. I wish you good health, always.

Grateful to you for sharing this.

Thank you! Helps to understand the process and recovery.

Thank you. I have some hope now. Glad you are ok

I thank God for your life and for the courage of sharing your experience. May God Jehovah, the God of Abraham protect your life and your family in Jesus Christ name!

Great video, thank you so much for sharing darl I hope the future is bright for you God bless 🙏🏼🦋😊xxxx

Thank you to everyone for sharing your stories!!! I also had surgery July 2022; mine was 2 cm and was a cortisol secreting tumor. Thank God for the doctors and surgeons that can so “easily” treat this condition. The sad part is that people seem to live with these things so long before they’re discovered. Also highly recommend Mayo Clinic in Florida for endocrinology/ pituitary disorders. They offer telehealth and have helped me a lot Post-op. Good luck to all who have and are going through this ❤

Thanks for posting this! I will have have this same surgery in 2weeks with the same doctor at Barrows in Phoenix Arizona! I am very grateful that you explained this I’m very nervous about it...

I am 6 years post surgery same as you they removed through the nose leaving an amount that was wrapped around my optic nerve and blood vessel supplying the brain. 6 months later the MRI showed it growing and a year after surgery they decided I needed radiotherapy treatment to try to kill the remaining tumour. this was completed over a 6 week daily dose of radiation lasting 20 mins or about. Because I could not drive with this treatment my dancing friends all rallied around and each day 1 different lady took me to the oncology department for my radiation treatment. The staff were lovely and treated me with great respect and love. They began to call the ladies who accompanied me my wifette's. This is a British thing that started with Lord Bath who had many concubines who became known as his wifette's. On the very last day of radiation treatment with all my wifette's keeping me company and my moral up I had finally run out of wifette's but a gay friend who is also a dancer offered to take me in and look after me. Now the nurses did not know this man at all and immediately commented on not having a wifette with me on my last day treatment. My reply to them all was that I was proud to say " WELL SORT OF and left a paring thank you of a basket of fruit for the department. I am glad to report that further MRI show no further growth and I live a full happy retired life on many drugs to compensate all my lost levels with my wife supporting me and making sure I take my tabs at the correct time.. So there you go I'm a survivor and I thank God for the NHS and the wonderful treatment I have been given saving my sight and my life. Happy Christmas and a good New year to you all out their with this condition.

Thanks for posting this! I’m meeting with the surgery team next week, 2.5 cm also with a cyst. Found it when I started losing my vision. Not that long ago this would have been so much worse, good times!

wish you the best, wish you are healthy, happy and well. take care the sun heat. be safe.

You are so lucky you should thank that great doctor that discovered it right away that was amazing he saved your life!

I will say a prayer for your future health. thanks for shearing.

Thank you so much for sharing this. I recently lost my peripheral vision and just found out I have a 3.7 cm mass. I will have my first appointment with my neurosurgeon in two days. Wish me luck! It is just nice to hear your story and know someone else made it through this OK.

HI Bettie, Thank you for sharing your story! I live in Arizona as well. I am currently an occupational therapy student in Peoria. I was assigned a paper on pituitary adenomas, this video helped me understand the topic more. Would you be open to answering more questions on how it effected your daily activities ?

Thank you for sharing your story. My husband went through the same procedure three weeks ago . He had slight headache . That is common due to inflammation inside. He is doing fine . We have to follow endocrinologist for hormones . Wishing you all the best for future.

I had a tumour in my pituitary gland and surgery was done ten years ago.Now l am feeling better.l also wish a better health for you.

OMG thx so much for sharing. I was diagnosed yesterday with a 2.5 cmx 2.5 cm micro-adenoma. My pituitary & pituitary stalk is slightly inflamed. I am soooo severely fatigued and drained! No amount of sleep helps, high anxiety, missed period, mood changes, all kinds if things! I hope with the surgery helps with my symptoms especially the fatigue it’s exhausting

I also had same procedure done at UCLA because of peripheral vision loss. I'm now OK but, I had terrible headaches for a couple of days after surgery and developed diabetes insipidus for about 5 years (excessive urination and a severe thirst). Despite all those problems, such procedure was worth it. Your experience with such surgery makes it look like a simple and uncomplicated procedure.

Thank You for sharing. Drs. have been testing me for a year and a half. Finally did an MRI and found a tumor. Talking to the neurologist next week

Glad everything went well. I had a pit tumor 3 years ago as well so I can totally relate. Mine was very large also, about golfball size. I had no symptoms. I had woke up one day with a headache that got worse through out the day. Finally went to the hosp. Thought it was a migraine... they ended up doing a CAT scan and found it. Sent me to Ohio State University. Just as I arrived at OSU ER, my tumor had a stroke. Thank goodness I was at the ER. Stroke hit the tumor only thank goodness. It is a scary situation, they cant tell if it cancerous until they remove it because there is no way to do a biopsy. Mine was benign thankfully. Im doing well with a few minor problems. I go next month for my 3 yr MRI. My Dr said if they return it is usually the 3 to 5 yr range. Wish me luck.

It ws scary for me too to knw abt my pituitary macroadenoma !! It’s been a year... I ws daigonised in August 2016 and operated in November 2016 ... and yours is succha similar story ... cn totally understand d trauma ..bt we r al gud and healthy now 😊😊... all the best for your future👍 .. stay blessed stay healthy ..🙏

Hey Bettie, I can feel and understand your pain. I have a ganglioglioma brain tumour, had 3 brain operations (which I vlogged my last in August 2017) to try and get rid of it but there is a pea size of it left next to a blood vessel.

Thank you for explaining things so well pertaining to your surgery. I will be having my surgery in a few weeks. I have a macroendanoma as well.

I hope you're on the road to recovery ❤️❤️❤️ I have one too, I'm 33, and tumor is 3 cm but it's pressing on my optic nerves, I lost 60% of my peripheral vision in left eye and 50% in the right eye, I'm seeing through prisms and unable to read numbers as they merge, I've been living in constant stress as all the docs and eye 'specialists' were telling me I'm making this up. Until I ended in the ER and got an MRI. I've had visual issues for 7 months now and only hoping to recover my eyesight but I understand it can be so late into the tumor the optic nerve might be damaged permanently. 🙁 I've started seeing a black ball when I rub my eyes it's always on the opposite of where I press, I wonder can I somehow see it lol. Other symptoms I have is complete lack of sexdrive, no period, irritability, anxiety, feeling forever tired, sleepy. Brittle nails, completely hairless arms, my headaches were mild to none until around a month ago, now its awful, its a travelling headache that starts on top and moves to behind my ears. A lot of tension in my eyes.. Like they are ready to pop. I'm schedules a consultation with the neurosurgeon this week and a surgery hopefully next, ❤️Good luck everyone suffering, I hope you are on the way to full recovery ❤️

I’m so scared. I’m going to a neurosurgeon next month. I can’t wait.

Fantastic video Bettie

Im glad you found out. I just found out today that i havea microaowma in my pituitary gland

My husband had the same thing and it was a nonfunctioning tumor slow growing. He experienced severe headaches, always had sinus congestion, fatigue, double vision, ED, weight gain and extremely high blood pressure. He often told me he felt he had water in his head and could hear whooshing sounds. His tumor was as large as a man's thumb and he had it a long time but with no symptoms.... until the last few months before his diagnose. The doctor operated on him for 8 hours and found it very difficult to remove and caused the tumor to become angry. In recovery My husband fell into a coma only hours after his surgery due to swelling around the tumor, which they did not remove. He never regained consciousness and died 4 months later. You are truly blessed to have found this in time along with a knowledgeable medical staff. These tumors are very serious and if a tumor is large then in my opinion should really be removed by opening the skull. That may have saved my husband's life had the doctor chosen that procedure and not the nasal cavity.

Hello. I had a pit tumor that caused me to have type 2 diabetes. I had a really bad headache and an endocrinologist found out my tumor was in the same area. I had mine removed at SHANDS UF hospital in 2005. No residual problems and type 2 diabetes was cured...subbed...

Thank you very much for you sharing your story 🙏🏼🤙🏼and I'm hoping that you never go back to q surgery room 🙌🏼 my prolactin is currently 37 and I'm about to see a Endocrinology to see why is my prolactin in that level 🥲 I'm praying n hoping is something treatable 🙏🏼

Thank you for sharing your experience Bettie. I have been battling with symptoms for many years and now I’m of the opinion that I need to get the surgery so I can close the book in this chapter of my life. I may also consider sharing my journey as well. Thank you for your story. ❤

I’m trying medication for a month to see if my prolactin level goes down, otherwise my doctor suggested surgery. Every case is different, my prolactin level was 367.9 on September, and now is 519. I’m so scared but for some reason your story calms me down 💜💕 (Edit: I just started the treatment today, & it took months before I got to see a specialist)

Oh my god. I just ended up clicking this as you look so much like my sister. lol

Thank you so much for making this video

Thank you so much for sharing your story .... 🙏

I'm a 38 yo male, and was diagnosed with the same thing two days ago, about a month after noticing vision blurriness. It's been a frightening journey, and listening to your story makes me feel slightly less anxious. I don't know if there are support groups for this, but there should be. Thank you.

Hi Bettie, my tumour was much like yours - size of a golf ball and silent, and finding it started with an eye exam for new glasses. I was lucky in that a bunch of people didn't like what they saw and referred me on until I was given a field of vision test on an ophthalmologist's hunch and that led to an MRI. Two years later my tumour is gone but in my case there are side effects. When the ENT was doing his thing, the blood flow was intense and the surgeons had to stop and try again 3 days later. When I came to after that first op, I had lost half the vision in my left eye and by half I mean the bottom half. Top half above the focus point I can see forms, patterns and colours and the bottom half is blank. It doesn't work - the eye doctor says it's vascular and that makes sense. How is your nose? Mine will not stop producing mucous, it's like I have a permanent head cold and blow my nose out so many times a day. Really annoying. But, I am not blind, did not have a stroke and am not dead - my tumour was really close to the carotid, the neurosurgeon was very worried about that. I guess I skipped a bunch of bullets, hey?

A few years ago I had a massive headache at work that blurred my vision and almost made me pass out. After work I went to the ER and they found a large mass in my brain. After an MRI it was found the be a 5.1cm pituitary tumor. It was pushing on my optic nerves as well as it had encased my carotid artery and was putting pressure back towards my brain stem. My headache was caused by a pituitary apoplexy which they said can be life threatening. I was lucky enough to be able to be treated with medicine (cabergoline...and a lot if it lol). Now it is less than 1cm. They said to remove the last of it they may do surgery which I was very nervous about until hearing your story. Thank you for sharing!

I just had an MRI tonight to check for this! Thanks for making this video :)

Its crazy i had this same surgery done and when they told me i had it i felt like my heart dropped and because i thought i just needed glasses lol i was losing my Peripheral vision so i was in the hospital like a month but long story short i got like 90 to 95% of my eye sight back.

Day 2 from surgery 2.5 cm. God is amazing!!!!! PRAY and seek God during this time of adversity. I stressed the tumor and the process so much until I Gave my life and tumor to God. The surgery took me 1:00 hr. 1:30 TOPS! Dr Jonas Sheehan did amazing 👏.. I have my eye sight back and IM Still recovering but BLESS BEYOND MEASURE 🙏 ♥ HEADACHES BUT MOST OF THE PAIN WAS OUT OF SURGERY Mucinex to keep nasal clear chest clear ...cough drops.. apple juice&milk for throat pain spit out any linking blood from nasal drip.. dap your nose from blood consistently to keep clear. But giving my life to God was the key part! I hived my doctors off the operation table and was ready for life after surgery !

I had something very similar. Instead of my tumor being below and pressing the optic nerves up, my tumor is pressing down on the nerves. Mainly the optic chiasm. I actually started experiencing vision loss when I was 13-14 and have had really bad vision and it’s slowly gotten worse. They can’t remove it because it’s in the most craziest of spots above the nerves. Maybe in the future but as of right now I just live with it. You should be very thankful you haven’t or didn’t experience vision loss. It’s not bad but there’s definitely spots in my vision where there is just holes. Also craniotomies aren’t that bad 😂, I recovered within 3 weeks but you are right the idea of breaking your skull and stitching it up is very noticeable and reaches from one ear to the other on the top of my head.

I just read my mri that said I have a 10mm x 9mm tumor. I cried my eyes out. When my doctor called me and told me my abnormal prolactin levels could mean I have a tumor on my pituitary gland I didnt think anything of it. I knew that couldn’t be something I’d have to deal with. Here I am today dealing with this shock. I havent talked to my doctor yet. I’ll see the endocrinologist Jan 30th. The wait is agonizing. Would surgery be something I need since it isn’t bigger than 10mm in size? What’s it like taking the meds if that is my treatment of choice ?What are side effects that some of you all are dealing with? I’m so thankful to you for making this video. It’s so comforting, you have no idea! I know I was not but you feel so alone and scare after learning you have a brain tumor! God bless you and hope that you and your family are doing well!Sincerely So scared in California

In my personal experience, I was diagnosed with a Macroadenoma in 2017 when I was 18-19yo. I was having fainting spells. They said it was not related. But its now 2020 and its almost going to be 4 years since I haven't had insurance and wasn't able to get it checked again. I feel like my vision is getting more and more blurry. I'm getting bad headaches, migraines. My peripheral vision is starting to get wonky. I feel pressure in my sinuses A LOT. Now to add on top of it, I'm not sure if its related or not. I've been having super major anxiety. I've always struggled with anxiety, but NEVER like this. I just finally got my insurance back. I'm trying to get everything checked as fast as I can. Its been really stressful and just makes one feel very isolated. God will help us get through it. We just have to stay positive. We can do it. Things just take time. Much love and positive thoughts for anyone else who is going through this.

I found out I have a 1.5. cm pituitary tumor. Surgery scheduled in a few weeks. Thanks for sharing your story got more information here than with the doctors... Scar.y stuff

I have this and am pretty scared about the surgery. Mine is growing quickly and because I have bad health due to Lupus. Thank you for sharing this.

Thanks so much for sharing your medical issue 🙏

I found out I had a pituitary tumor once I realized I was losing vision in my left eye.. you’re right it’s scary to have surgery on your brain.. I feel much better.. I had my surgery on the 30th of September.. my hormones are very low.. also I mine was a mass as well.. 3.6 centimeters.. they removed the whole entire tumor..

thanks for your vid! very informative!

Thank you Bettie for this

Thanks for sharing your story. I found the results from my MRI that was done Friday the following day, 2.2cm tumor and I am losing eyesight on both sides which is what prompted the MRI. Your video is encouraging,! I was worried tthe size of this wouldn't allow access through the nose but it sounds like that may be possible. I am retiring in a month and a half, and hope to have this and recovery complete before then and my vision back to normal.

Hey I have a prolactinoma as well, I see you have had the surgery, I haven’t gotten mine removed, but nice to find someone who knows about it.

My prolactin levels are high and waiting for the MRI , having visual disturbances, Is the loss of vision reversible or is it permament?Please let me know.

Very helpful thanks you so much for the sharing your journey ❤️

I was just diagnosed w/ the same, pituitary macroadenoma. Curious to know how recovery was? TIA, glad it worked out for you so well. Thanks for the video!

I had my pituitary tumor removed on April 1, 2019 ... no joke. They went through my nose. I found it because it was adversely impacting my testosterone levels. My general doctor sent me to the see an endocrinologist. He ordered an MRI and the 3 cm tumor was found. It was not impacting my sight. It was soft and was removed easily. I used to do eye exercises to strengthen my optical muscles. This may have helped to soften it up as I had been doing it for years not realizing why I had some resistance in moving my eyes. Now that the tumor is gone, I can easily move my eyes and they are no longer as dry as they had been. Good luck to anyone/everyone who goes through this. You should recover fine with the right surgeon and medical team. I had my surgery at NYU Langone in NYC.

Hello I just had brain surgery 4weeks ago with dr. Little here in Arizona too! He was amazing:) I did not have the same tumor you had mine is called a Craniophrygionma and mine was growing in my pituitary stalk. I will be doing radiation next month to get the rest of mine out cause he was able to remove 95% of my tumor out. How are you doing now with recovery ???

Your video very inspirational my symptoms different had also this tumor pituitary glad my symptom jaw disorder and finger size thick after surgery one half year now radio therapy fighting with this my blessings all them suffering from this God always with us

Thank you my sister just found out yesterday she has it and she’s only 18yrs old 😞😞. We live in Az too and she had the same symptoms that you had thank u for sharing and I’d definitely ask my parents to look into Dr little. Hope you healing gr8 at the moment too. Not sure how far my sisters is but hoping for the best

I am 27 years old. I have little bit ear pain and feeling imbalance and my head feels heavy. I am very scared i may have brain tumor. GOD BLESS YOU.

I found out on Saturday that I have a 5mm microadenoma. My Neurologist didn’t even know what it was and referred me to a Endo. From the looks of it (as a medical student) it’s pointing to Cushing’s. I am devastated but determined to fight!!

Thanks for the inspiration. I had no sex drive. I couldn’t maintain erection. My wife and i were worried. She asked i quickly go see a Dr. We did and they took blood samples. The test came back that my Prolactin is scaringly high: 66,683 mu/L. This is way out of range. My testetorone level is 6.8nmol/L. Also low. Now i have been scheduled for MRI scan to rule out or confirm size of any tumor. That being mentioned, 10 months ago i had a small cyst in my breast and the GP ruled out any cancer and put me on antibiotics. I didnt know that it was as a result of hormonal changes due to Pituitary. My life has turned upside down. But i will fight whatever happens.

Thank u for sharing ur story. I have one too and am so nervous

Thank you so much for sharing your story I am also from Arizona I also ended up getting a 74 value for prolactin in my blood work with only two symptoms one being irregular periods. I was sent to have an MRI done today and I wont be receiving my results until Friday so im feeling extremely nervous and quite scared.. I was wondering how old you were when they found it for you and if you had any other advice you could give? Im 19 and I don’t know anyone who has gone through this before.. Thank you

Hi, I got my brain tumor removed through medication. After 5 years at present experiencing same headaches again, and I suspect that my testosterone levels are at bottom, whom should I visit, endocrinologist or neurologist.

thanks for your story! due to crazy prolactin levels, i have an appt to see an endocrinologist and get a head mri done. my prolactin levels are wreaking havoc on my body.

Thanks for sharing your story x

My doc referred me to an endocrinologist and I’ll be seeing him soon. Wish me luck. I think this could be my problem.

I found out I had a pituitary tumor at the age of 25, i was very devastated. Prior to not knowing that I have the tumor, I had severe headaches everyday and milk coming out of my breast even though I wasn't pregnant. I'm on medication, but I want to get surgery. Whenever my endocrinologist tells me to stop taking my medication my prolactin level would go up and milk would start coming from my breast. I been trying to get pregnant being on the medication but it's been unsuccessful. 😭😭

Prayers, God heals.

Thank you for sharing your story and wishing you all the best

They are not brain tumors! A prolactinoma is a benign tumor of the pituitary gland that produces a hormone called prolactin.

well I'm a bit scared now

I am so elated to have come across this group. I was diagnosed of the same pituitary tumor recently after i have lost 60% of my left eye sight. I have seen the Neurosurgeon and i am about to have the surgery. I could ready that probability of getting the vision restored is high . I pray i get mine restored fully too. I will keep you guys updated with my experience after the surgery. Please pray for me. Gog bless and one love.

You poor thing. I am worried between this and adrenal tumor. I have anxiety, heart palpitations, never had normal periods, and often just dont feel right . Glad youre ok.

To everyone reading this please turn to Jesus He loves you and wants to save you from what you are going through, Only Jesus can truly heal He is the God of miracles, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the lifes of people I know, God saved someone I love from illness leading to death, There is nothing impossible to God, Its as simple as asking Him to show you He is there and if you want to know He will answer you, I know this because it happened to me when I called out to God

Hello Bettie I hope that you are well and enjoying good health now. What was your prolactin levels when they diagnosed you?

Thankyou for sharing, puts my nerves at ease a little💗

Thank you for sharing your story I was just told by my MD that I need an mri due to prolactin levels being elevated. The reason for my concern was an odd symptom, breast pain severe pain and sensitivity in both breast. I was like oh wow it almost prob feels like what pregnancy feels when lactating. My mammogram came out good so now due to these levels being elevated. I need to get an mri scheduled. I kind get where this can be heading. Thank you for sharing your story. I hope that you are well.