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My toddler did a sleep study - SPOILER... we got no sleep 

Please Save Damian
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Most babies with ASMD at Damian's age are already having to be hooked up to oxygen while they sleep, so on May 28th, Damian had his first sleep study to see if there was anything problematic going on while he sleeps.
I wasn't sure what to expect - but all things considered, Damian did AWESOME 💙
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💙ABOUT DAMIAN💙
Damian is fighting a rapidly terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 LINKS 💙
GoFundMe: gofund.me/24dc...
Blog and More: www.SaveDamian...
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💙 AS SEEN IN THIS VIDEO 💙
Tinukim iFeed Self-Feeding Bottle: amzn.to/3ukTkCp

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19 сен 2024

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Комментарии : 26   
@robinmonroe1276
@robinmonroe1276 Год назад
Damian is so good natured little guy! Its awesome to see him fiddle with his hands!💙🙂
@user-tb9gv5rp9k
@user-tb9gv5rp9k 2 года назад
Wow, he is so brave! He is seriously such a sweet kid. I can see a lot of it has to do with you being an attentive and nurturing mama. The way you talk to him. 😍
@pleasesavedamian
@pleasesavedamian 2 года назад
Oh that is so sweet, thank you!! 💙💙💙💙💙💙
@jeanettejackson1315
@jeanettejackson1315 Год назад
Damian is one special littke boy. He was so brave and didn't make any fuss. I can imagine the thing across his nose was uncomfortable. Both of you need some rest. You are an amazing Mum. Keep strong.xx
@brockmarkham7188
@brockmarkham7188 2 года назад
His smile at the end of the study cracked me up. Haha!
@pleasesavedamian
@pleasesavedamian 2 года назад
Me too!!! haha 💙
@jaredmarkham7300
@jaredmarkham7300 2 года назад
I'm glad that it went well. This supper man is my hero.
@pleasesavedamian
@pleasesavedamian 2 года назад
Thank you JJ! He is mine too 💙💙
@susanlindsay4780
@susanlindsay4780 Год назад
You are the most wonderful mom to your beautiful son,💙
@nancyjones6428
@nancyjones6428 Год назад
Damien continues to be good natured, I'm sure he has his moments, he must feel safe in his environment, such excellent parenting and love.
@vanessatrujillo7734
@vanessatrujillo7734 2 года назад
💙💙💙
@pleasesavedamian
@pleasesavedamian 2 года назад
💙💙💙
@kathythureen9341
@kathythureen9341 Год назад
CUTIE PIE.
@malloryknox1637
@malloryknox1637 Год назад
Poor little man I totally sympathize I hate nose cannulas.
@sarabellum510
@sarabellum510 2 года назад
Don’t blame him at all about the nose thing! But he was a champ as always! 💙
@pleasesavedamian
@pleasesavedamian 2 года назад
Definitely!! I would've been the same way, poor little guy! He still did so awesome!! 💙💙
@janegott2472
@janegott2472 6 месяцев назад
Im sorry baby boy you are so beautiful
@gjergj7806
@gjergj7806 2 года назад
💙💙💙💙💙💙💙
@pleasesavedamian
@pleasesavedamian 2 года назад
💙💙💙💙💙💙💙
@aliceoke2818
@aliceoke2818 Год назад
Such a sweet Boy! ❤️
@susanlindsay4780
@susanlindsay4780 Год назад
🙏🏻🙏🏻🙏🏻
@Fabviv
@Fabviv Год назад
💙💙💙💙💙💙💙💙💙💙😊
@kathyzager9426
@kathyzager9426 Год назад
What were the results from this study? Did he sleep enough?
@sylvcas4318
@sylvcas4318 9 месяцев назад
C'est pas juste que ces maladies s'attaquent à ces pauvres petits et on dit que dieu est amour
@lesliekriel6498
@lesliekriel6498 Год назад
💙💙💙
@pleasesavedamian
@pleasesavedamian Год назад
💙💙💙
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