Most babies with ASMD at Damian's age are already having to be hooked up to oxygen while they sleep, so on May 28th, Damian had his first sleep study to see if there was anything problematic going on while he sleeps.
I wasn't sure what to expect - but all things considered, Damian did AWESOME 💙
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💙ABOUT DAMIAN💙
Damian is fighting a rapidly terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 LINKS 💙
GoFundMe: gofund.me/24dc...
Blog and More: www.SaveDamian...
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💙 AS SEEN IN THIS VIDEO 💙
Tinukim iFeed Self-Feeding Bottle: amzn.to/3ukTkCp
19 сен 2024