Neuropsychiatric Lupus and The Curious Case of Molly - What Does This Case Teach Us? - Prof Hughes 

Fascinating.

I wish my daughter could see this Dr she has been diagnosed with lupus she is 21 yrs old and has had heart attack and in mental hospital's many times. She suffers everyday with body rashes with boils, feels like her head has icy hot on her head and all blood in her head she wants to die tired of suffering and can't find a good Dr 😓

wish there is more awareness of neuropsychiatric Sjogrens as well, preceding onset of sicca by 10 or 20 years. happened to me. tragedy. all those years without treatment almost locked away

I've had the butterfly rash since I was 14 when I had my 1st flare w shingles & "convulsions" which are now called Grand Mall seizures. Coming out of the convulsions I felt like one leg was the size of a toothpick & the other leg was huge like an elephant's. In NY State, USA it took until I was 50 before I got a diagnosis, all the while with me explaining to doctors how I felt with them simply labeling me a hypochondriac. I've had so many episodes of nearly undescribable weird sensations that it would take more hours than I care to spend for me to list them. I've gone nearly 10 months without being able to feel the sensation of an impending bowel movement. My feet have been numb/tingling for the last 23 years. They sometimes have gotten so painful I could not walk with any sense of normality. One time under stress the pain went all the way up mid hip. I get sensations of bands tightening around different parts of my body. Depression has been with me throughout my life, yet I always blamed my highly dysfunctional family of origin. I've been a "health food nut" ever since leaving my parents toxic home. I feel fortunate that I learned about low dose naltrexone, LDN & was finally able to get a prescription for 5mg. The effect I feel from that is far less pain from a neck & back injury I had 40 years ago as the result of an attack by client at my work. Chiropractic adjustment, Acupuncture & finally osteopathic adjustment we're the only things that helped that before LDN. My prayers 🙏🏼🙏🏼🙏🏼 & good vibes 💫💫💫 go out to all those who are dealing with lupus whether it be as a patient, friend or family member, or medical professional. ☮️💞🙏🏼

Does it always manifest as mental illness as a prominent feature?

Forditast szeretnek!