Profile of Dr. Caroline Hastings of Children's Hospital & Research Center Oakland and her patients, Cassie and Addy Hempel. The Hempel twins are part of a FDA drug trial, supervised by Dr. Hastings, to treat Neimann-Pick Type C disease.
Thank God that there is hope. It is hard enough to live with and succumb to this disease, but to fight everyone and every health care professional out there is awful. Dr. Hastings is an angel in the darkness. I am so happy for the Hempel's to have someone there for them. It gives me hope, and reduces my own resentment and anger towards the medical profession from my own negative experiences. Though we cannot blanket all of the medical profession based on one individual, we can hold the belief that there is hope that more people will stand up and fight ALONGSIDE our families and incorporate us into the TEAM of healing.
i work at children's hospital and my daughter died of this horrible disease at the age of 20 in 1996. any advances in slowing progression or eventually curing it will save many families such devastating heartbreak.
