NON EPILEPTIC ATTACK DISORDER - MY DIAGNOSIS 

I have them too!!!! I hope you’re doing better 😥💜

@@Markzuckisacuck I now have depression and ptsd and now suicidal but I’m fine. Been inpatient four times this year three times in the past month

I had these too when I was 13. I’m postpartum from twins now and am experiencing them again. Do they affect your brain? Is this going to make me stupid?

@@brookelynelanee9179It is actually stupid what you’re saying. I think your pregnancy hormones fuck you up. It’s an insult the fact you say having those seizures is going to make you stupid, it’s not. Neither Epileptic or Non Epileptic Seizures make people dumb or stupid. You are going to be fine, take care of yourself and don’t carry that baby if you’re feeling a seizure is coming, as a matter of a fact try to be away from things than can harm you if you fall.

The same is happening to me and its frustrating.

Bless u x i was abused as a child

Connie Long Wow, I’m sorry that happened to you ❤️ Just know that I’m here for you if you wanna talk and that I believe you. You didn’t deserve what happened to you, no one does. Sending you lots of love and hugs your way 🥰

@@camillelemarchand ty x been crying

Connie Long If I could, I would hug you right now ❤️❤️ Please, know that you’re not alone, you can talk to me. I won’t judge you, I know how trauma can mess us up.

@@camillelemarchand ty xxx

Me toon

Pillar Family I have dissociative identity disorder I get what's called dissociative seizures also known as pseudoseizures these happen when I dissociate into a certain alter I have no control over these because when I dissociate I lose control over my psychological and physical state it's a psychological reaction causing a physical reaction I have no memory of the moment I black out and I experience anemisa I only know from what people tell me I turn blue because I experience chronic breath holding in that state and turn blue and sometimes pass out I just try my best not to dissociate

How you can get rid of this? Plz help as my sis is suffering.. thanks

Which medicines you took

@@mediwise2474 Fluoxetine (antidepressant) and Lamotrigine. I was assured that the initial prescribed dosage was reasonably low. Also advised to consult psychologist if I was to be weened off them. I ventured to ask that the dosage was reduced after around 4 months.

@@loafersheffield can we talk on watsap or facebook

@@mediwise2474 I presume that you are contacting me to further your understanding of this condition. It will allow you to get a better understanding of this particular condition and as such benefit others. Regrettably, I value my anonymity and as such I am not willing to be contacted. I sincerely hope that you have every continued success in benefitting people with this malaise.

Any updates you could share? I am dealing with them this year.

They’re just gunna say “yeah the mind does some weirrrrrrd things, hahahaha but good news there’s therapy”

I had one yesterday for the first time and it was terrifying..

Will do :)

No there isn’t. They recommend CBT (cognitive behavioral therapy). It’s to get to the root of the issue that’s causing it. I had then too. It was from past trauma. Anti anxiety meds helped me some.

​@@JillianNoelle are you better now ,I think mine are also from different traumas or does it have to be one trauma only???

Yep, lonely life and your treated like your a child. Very sad

Darren, were your seizures always normal on the EEG and were they different than a typical seizure? We are in that situation, my son's are very traumatic, loud, he yells different things, has walked said the most outlandish things. Most Neurologists think they are seizures but three over the years have said differently. We are trying to get them under control now. Most meds do not work or make them worse. A few have worked over the last twenty two years. Did you have a traumatic event when you were young? Are you seizure free now? This field has changed very little over the last twenty years, very sad.

@@tamifromvirginia4046 Hi Tami, the seizures are very infrequent - once a year or so - and so they have never been captured on eeg or even witnessed by a neurologist. But when they do occur they are full blown grand mal seizures. They are violent, traumatic and can and often do cause serious injuries. Despite the incredible suffering I'm not considered by anyone - including neurologists - to have a serious illness. I've been concussed at least 20 times in my life which is of course very serious but because I'm not having seizures every day or so I don't fit the mould of having a serious problem. I lived in an abusive family home as a child and that I believe is the main reason I got into this mess. I am 100% convinced that they are intimately tied to stress, fear and anxiety. I have a good understanding of how those 3 things tie together and most of my efforts in recent years has involved applying that knowledge to get my life under control. I'm in better shape now than I have been for a long time and I don't live in fear of having another seizure - which is good because fear is a seizure trigger (because fear causes stress which is a known seizure trigger). I have learned through my own research that my seizures are closely related to gut issues so I take gut health very seriously. In my opinion the main culprit is the stress hormone cortisol. I can't be 100% sure that I'm seizure free because I can't use the seizure frequency as a guide because they are so infrequent, but I know that I'm less stressed, fearful and anxious than I used to be so that's definitely a positive sign. Best wishes.

@@tamifromvirginia4046 ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-wpY1_RxjZQ8.html

For anyone who might be interested in my personal journey (ie probably no one) my experience with this illness had a positive outcome. After I discovered that the health industry couldn't provide an effective treatment I began a personal search for an effective treatment, which primarily involved looking for a cause by analysing and reflecting upon the seizures. My thoughts were driven inward, to try to figure out how my mind works. Paradoxically this made the condition worse (and I knew it) because it created a nasty vicious cycle where thinking about the problem causes the problem. What I learned from that is that the problem was at least partly caused by my mind being too "busy". So then I began a search for the reason(s) for that which branched out to lots of different areas including spirituality, human psychology and our social environment. I could write a very large book about this because I learned so much from my personal search, and ended up discovering important connections between all of those things and more. One of the things I learned is that modern ("civilised") society is unnatural and puts intense pressure on people to live up to an "acceptable" image, which pushes most people beyond breaking point. Their inability to cope with that problem manifests in a variety of health problems - including psychogenic seizures. Obviously an effective treatment is to remove the cause which means accepting people as they are, which in turn means loving them instead of judging them and forcing them to be somebody who they are not. Trying to be somebody else is stressful and challenging for the human mind. For some people it's too hard and they suffer for the rest of their lives unless they can get help, either medical, psychological or spiritual to reverse the damage.

My 16yo explains hers like this too. She's extremely sore and exhausted afterwards.

I’m so sorry about this. I work with a young woman, she’s actually my age, and she has these. I never understood and I didn’t realize how deep it affected this community. I hope your heart heals. Sending you lots of love❤️

Andrea Lenardo I have the same thing. I have uncontrollable body movements happens if I don’t get enough sleep. Or somethings I won’t be doing anything and my arms will jump up. I’ll get a ringing In my ear. It’s gotten worse and I thought it was anxiety. Got Zoloft and now it’s worse. I don’t know what to do. I got an mri done years back. It was normal.

Same

Any updates?

What is relation with blood pressure

@@mediwise2474 I would assume physical stress would play a role here as blood pressure being too high or even too low could cause physical stress on the body. Although the doctors like to pretend its only caused by psychological stress

Thank you captain obvious

Are you a neuropsychologist? I'll wait.

You could call them attacks or dissociative attacks?

your doctor is wrong. The medical profession just don't know enough about these. They are absolutely seizures, they're just not caused by an electrical storm in the brain.

You can call them shakes. They aren't actually seizures as seizures is due to frontal lobe firing. These shakes or fits are due to deep rooted psychological issues

@@drhammad1 I was referred to Prof Marcus Reuber at Sheffield Hallamshire 8 years ago. A junior neurologist witnessed one of my "episodes". MRI and cat scans were inconclusive. I was referred to the psych dept. Stress undoubtedly was the cause in my particular case.

@@loafersheffield Thank you. This is useful info for other people who have similar experience

Have you gotten any relief? We need to get this figured out. Everything normal for 18 years except could have seizures day and night. He does not seem stressed and says he is not, but why is he still having these strange seizures. CBD Hemp oil helped alot.

Hi, with these seizures they can be mistaken for epilepsy but there is no medication as it won’t be effective because it’s not caused by the brain cells it’s just caused by past events, anything traumatic that happens causes the seizures they can reduce over time :)

I am on venlaflaxine really no help I don't think just gets you fatter

@@doemydear9651 thanks for your reply. I ended up going on antidepressants and its stopped them happening as often but still having them. Got CT scan tomorrow too. Have you been on them long? X

Pretty sure you can. I felt very weird and groggy. My body felt fuzzy and I was quiet for a solid hour. No idea what I just experienced

Yes I had 2 in a row slept for 2 days my kidneys stopped producing urine because the person did nothing. Left me. I had to go by ambulance and the doctors were worried about rental failure

really exhausted

YES , extremely

I do and my body aches sometimes

Pl talk

Yeah seizures can be caused by drug withdrawals too but i doubt in this girls case.

Are you able to share the brand and the strength as I need it for a family member who is suffering due FND.

@@Zbest1123 we took Quicksilver Scientific Hemp Extract and Blueb ird Botanicals Complete. We linceeaswd the BB a few times. Many good brands like Charlotte's Web, Haleigh's Hope and Palnetto Harmony. Many children use those brands and they have customer service people to help. We met with Dr Meyers and we were told we need to get an official diagnosis if PNES from an Epileptoligist.

I have and it's worked wonders for me I went from having more than 5 a day to maybe 1 or once a month

@@Zbest1123 the one I use the brand is Cali cbd and its 1000mg 5 drops 2 times a day:>