Disease experience experts like Sally Webster and Matthew Herbert from the Gorlin Syndrome Group U.K. are increasingly involved in medicines R&D, advising on, for example, the design of clinical trials and related strategies. People afflicted by diseases - or have loved ones who are - want to be involved from the very start or at the very level of setting the research priorities in pharma. The Rare Disease Unit at LEO Pharma has made the global patient movement ‘Nothing about us, without us’ their mantra: Nothing about you, without you.
12 сен 2019