at the 40:01 mark I would love to see someone explore possible thiamine deficiency as a trigger. This deficiency affects and lowers immunity and especially the ones she mentions in this video as causes recurrent infections. It was used to treat MS by Dr. Klenner a long time ago for MS cure. Our diet, processed food, diet of mother (teas, tannins, phenols, alcohol, sugar, high calorie malnutrition), environment (mold toxins with thiaminase enzymes, also in raw fish, certain bacteria make this like staph, strep, deslufovibrio makes sulfide which also induces the deficiency, etc.), Vitamin antagonists are in our fortified foods and prenatal vitamins (high doses of B6 an antagonist). PLEASE look into this.
High dose allithiamine in combo with magnesium got my son out of flares without use of anything else. He takes it daily now, and he has been in remission from PANS for 4 years.
I’m researching to see if this is what my adult daughter Dx’d with ASD has. At 3 years she had an onset of Obsessions but not tics she became hyper and sleep issues but there def no tics. These things became observable after a bout of strep. But I don’t rembrr if it was a sudden change so…I am skeptical that she has this. Q: why test the parents for strept? Why so many relapses. ? What happens to those who never diagnosed and become adults with neuropsychological problems? Is it too late for them?
Could i have this? I'm bed bound and desperately trying to find out what's wrong. I have ehlers danlos syndrome (eds) and i have had severe back and head pain for years. I'm constantly having to turn over due to back pain. Also my neck got locked in one position and has been stiff ever since. Often i find that my back wants to lay one way and my neck wants me to lay the other. I also have had severe sickness and have had to be taking anti sickness ever since i got d&v. Ive hit my head several times and have had concussion. I have audit and visual hallucinations and eye sight issues. Dizziness. I have had stuff run down my throat causingvit to feel blocked for years. Sudden behavioral issues/ changes. I now can't even sit up or keep my neck up straight. Now i can't sit up without lower back pain and sickness. Agitation. Numbness in hands and legs. Can't feel pain. Sensitive to light. Memory issues. Panic attacks. Can't feel emotions, yet with a flick of a switch, I'm angry or crying. I have no idea why after. Aggression. Anorexia. Depression. Autism. Virtigo. Brain saps. Not responding to pain meds and i can't have morphine as that doesn't work and makes me sick. Nothing works. Normal mri and blood tests testing for antibodies. Frequent infections. Resistant to most antibiotics now. Also i have constant ringing in my ears. Also I've had a really bad ear infection, where i lost my taste buds and sense of smell. I've lost my taste buds now and sense of smell. Also, i had urinary problems growing up and found that as soon as i laughed or bounced on my trampoline, I'd end up going. It was very embarrassing and i had to take this little blue tablet to help (can't remember what it was called) My neurologist has diagnosed me with FND but i disagree! I'm aware that not all my symptoms are relivent, but i thought I'd add everything
I hope you can find help! May God be with you as you search! Maybe join the PANDAS FB group or search for another support group, it will help. What she said about Vit. D makes sense, as I have an autoimmune issue too, and Vit. D has really helped. I will pray for you, hang in there!
my son got torticollis as an infant (wry neck) and mobility problems (stopped rolling over, drop foot, body weakness) with a severe thiamine deficiency that no doctor caught, I figured it out, but a little too late. it takes years to recover from the motor damage of this. Check out the documentary Zombie Alligators on Nat. Geo.
