I had two patients, sufering from so called LIAS [ late onset of idiopatic aquaeductal stenosis]. They were about 50 and end 60 of age, the first end 60 of age, showed the typical magnetic Gaze and ongoing cognital slowing, evans Index about 0,4, and a callosal angle of 70°, but on mri a flow void concerning the aquaeductal syrinx. He went to neurosugia and was endoscopically foraminotomied. Some primitive wholes torn in the lamina tectalis, changed his further life, with a temorary latency from operation procedure, He developed nearly three month later, a nearly physiological gaze pattern. What was an important lesson for me to advice patients, that needs ventriculostomia , not to expect the operational benefit to early, it needs for creating a new equilibrium following op, at least three month.
I may have had hydrocephalus for decades due to a childhood brain injury. I have always been considered a bit off, perhaps LATE BLOOMER was a description. I also feel that I am doing better than I have previously. I had severe migraines for 20 years that came and went. The possibility of a diagnosis of A or P is a danger to me as I live independently, keep house for myself and my 50 year old brain injured son, do banking, shopping, etc. Walking almost everywhere may be a great benefit.
Get another opinion. You might decline rapidly and become incapable of representing your own interests. (My friend became incontinent, then suddenly in dementia and unable to get up, balance or walk. No diagnosis except Parkinson of eight years of which the first diagnosis was of essential tremor. Not seen by another neurologist in that time, although some were supposedly supervisory. { L-dopa can improve an essential tremor since it's known alcohol will suppress essential tremor. There is also a difference in that essential tremor appears when the person tries to make a voluntary movement, parkinson's occurred when there isn't an attempt at voluntary movement} Six months helpless, unable to feed herself, take meds, or move. Spouse was giving skilled nursing care. Finally seen by a new neurologist who ordered MRI. Now in process for further care. If the HMO refuses care, this person will immediately go to a specialty clinic In another state with backup plans to take them to UCSF or Mayo.) Note:'If someone else has control of the payment they might put off treatment and a doctor might feel they don't have enough evidence for the insurance company to obtain pre-authorization. If you have other resources you might wish to use those or at least fight for yourself while you are still capable of doing so. Get the second opinion from a university hospital specialist, Mayo, or a specialist surgical clinic for hydrocephalus. The NPH gait, the incontinence, the dementia... It can all be rolled back if the brain isn't permanently damaged...
