Nutritional and exercise interventions for FSHD 

I'm 52 and I have FSH Dystrophy and every time I've tried bodybuilding exercises, I've noticed that, although there's an improvement, the disease seems to increase in intensity and I feel the characteristic pain of its degenerative process a lot.

Thank you so much for the information!

Thank you for doing this video & posting. Thank u also for pursing US distribution of products. Need to look into that & check status since u estimated 30 days.

treatement

This guy did research on obesity and the aging muscles and says this "could" also be applied to muscular dystrophy, but it hasn't actually been studied under any scenarios with people affected by MD, so its also likely it "could" hurt the patient. This honestly sounds like a better worded versions of something a Doctor told me who had no clue about Muscular Dystrophy. Basically he said my disease would be cured if I started walking a mile a day and then doubling that every day. It doesn't work that way. 5 minutes into this video and we have covered the general consensus that 30 minutes of exercise a day is good. He then branches off into his actual study and it being about the aging and how people over 90 are greatly benefited, but this "could" be helpful for MD patients as well. If the 90 year olds in this study had no underlying neuromuscular disease im sure the would greatly improve functionalitie. For those of us half that age, who also have the lovely other add ons such as chronic fatigue its going to be an even harder battle for no real improvement of function. Your muscles not processing certain proteins correctly cannot be cured with exercise, PERIOD. Im not saying exercise isn't good to keep mobile. Im just showing my frustration with this study being shared with us that mearly resembles some of our symptoms, but really doesn't benefit us specifically.