OCC RACE REPORT & MEDICAL RESULTS | Finally some answers

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14 days ago I took part in OCC by UTMB, a 55km mountain race. It was EPIC!! You can watch the video here:
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In the lead up to the race (for the last 8 months actually) I've been suffering from a range of symptoms, and despite a million doctors visits, I was pretty much told that nothing was wrong and I was probably just hyper aware of my body and training a bit too hard. But after ordering some tests privately, I realised something really WAS wrong, and insisted on another doctor's appointment. Finally, this week, I got the results.
I am NOT looking for sympathy or advice, I'm only sharing because a) I am sadly unable to take part in the 250km ultramarathon I was due to join next week in Sweden and b) I know unresolved fatigue is super common, and thought this would be worth highlighting in case anyone else is suffering. It's super common but I imagine under-diagnosed.
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Опубликовано:

14 сен 2023

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Комментарии : 89

@jenniferschwegler7831 Год назад

I'm sorry Flora, but I'm so glad you were persistent in getting answers!! I feel like I know so many female athletes with health issues that take a long time to get diagnosed, probably partly due to females being less included in scientific trials. I also had heart palpitations and major fatigue November-December last year and finally got a blood test and thankfully it was just low iron which I could correct easily. Anyway, take care of yourself and I look forward to seeing updates! I also had mono after college and it totally took the doctor by surprise because I was still exercising, but then very fatigued in general 😋

@jessicadavis2169 Год назад

I am so sorry you contracted EBV. It has such frustrating and potentially destructive long term effects, especially for runners. I contracted EBV when I was 16 and it wasn’t picked up on for almost 10 years. The constant fatigue that I’ve been plagued with just wasn’t taken seriously and Chronic Fatigue Syndrome still isn’t accepted widely enough. I hate that if I push past the fatigue that I will be recovering for weeks and I have to monitor my fatigue levels daily. The main thing is to keep up your nutrition, hydration and sleep. Back off the physical activity when you start to feel a bit off. Keep yourself as mentally well as possible too. You know yourself well enough. I hope that you get on top of it really soon and I’m sending love and hugs your way ❤

@FloraBeverley Год назад

So sorry you had to deal with that! Yes i think it's super common but absolutely not well treated by doctors. My partner has had CFS for 20 years now, so he understands the frustration. Thank you for sharing

@chloeemmawells Год назад

Aww Flora, I’m so sorry but also pleased you have a diagnosis. I had a similar experience a few years ago and my only advice is to be incredibly kind to yourself. It’s easy to get frustrated when the body doesn’t cooperate. I tried to treat mine like a bank account. The more energy I could bank (by resting) the bigger my pay out would finally be. It payed off and I’m sure with your level head you’ll find a way that works for you. Wishing you all the very best. Xx

@FloraBeverley Год назад

I love this analogy!! Thank you ❤

@_Mountain_Dave Год назад

Congrats again Flora, great self analysis and indeed a stellar result given your 2023. Don't feel bad about pulling out of Tribe, absolutely the right thing to do - esp given the 225 distance and multi day stress, its one event at the end of the day re EBV. Better to skip one race than miss 5 or be out for a long time due to overstressing the body and then gettng really ill/doing damage, or getting injured due to making a mistake when fatigued and not being as alert. I'm sure having a diagnosis for your varied levels of fatigue will be of mental relief, which should help reduce your stress levels. Sometimes its the old (and frustrating when wanting to be active) slowly slowly catchy monkey expedites a better ending rather than chasing it! Good luck with your recovery and yea take it really easy, i had EBV - then Glandular Fever when 20 and carried on pushing myself training/eventing. It quickly caught up with me and put me on my arse for 3 months, literally, and a further 6 months to make a recovery of sorts, was 9-12 months after that before getting back on true pace. Definately time to listen to your body and get some easy dog walks in or even some fossil hunting down on that Dorset coast 😉!

@FloraBeverley Год назад

Thank you for this! Yes that's the goal. It's horrible but if I'm sensible I hope it sorts itself out soon enough. Good to hear you've come out the other side! 🙏

@jillbuckenham9145 Год назад

Well done for persisting in getting a diagnosis and keep listening to your body, you're still young and you WILL recover. Be kind to yourself, that's something I've learned the hard way and I'm still learning, even now at my great age!! (I'm a 70 year old Ironman triathlete). Our instinct as long distance athletes is to keep pushing through the pain and fatigue but sometimes that's just not good. Stay positive, we're all here for you.

@FloraBeverley Год назад

Thank you! Wise words ❤️

@tomgubbins Год назад

Enjoying the race breakdown blogs. I had glandular fever at a similar age to you and you really do need to rest but the good news is that it does pass.

@amelia.jane1235 Год назад

Congratulations Flora! 👏🙌💗 I just think you’re amazing! Rest up and look after yourself. 💗

@davidculliton2615 Год назад

Great advice at the end .. 👍👍 always listen to your body it basically tells us when it needs a rest . Great effort by the way . Pretty inspiring to be honest 🫡

@FloraBeverley Год назад

Thank you so much 💓

@gerrybesworth7762 Год назад

Thanks Flora, certainly not ideal yet great that you can continue to be active. Perhaps not the intensity or duration you crave and love, though it will give you the opportunity to be creative in what you do and the content you create for us, your loyal fans! All the best as you take on this chapter.

@georgeormerod2531 Год назад

Great effort in the OCC and you’re doing right taking recovery seriously. All the best with your recovery. My mum had chronic fatigue in the 1980’s and it was dismissed by the medical profession at the time. Glad things have moved on a little bit at least.

@RickardNilsson Год назад

I wish you a speedy recovery! Not being able to run a race you've been training for is tough. Good decision though 👏.

@alig7747 Год назад

thank you for sharing Flora, and I hope you have a speedy recovery (or as speedy as possible!). It is really helpful for you sharing these things so we can be aware. As you say, GPs don't really know about problems in runners. I've even had difficulty persuading the GP I had an iron deficiency (my husband had even more trouble - and he was really deficient.) thanks again and all the best - ps I was in Chamonix too my husband did the CCC - amazing run on the OCC - well done!

@FloraBeverley Год назад

Thank you! Yes it can be infuriating with the GPs. I understand that they are run off their feet, but when you KNOW something is up its really upsetting to be sent away time and time again.

@melaniealessandrino3084 Год назад

Such a great vlog, so emotional and so refreshing to see the passion you have for your running journey. Such honesty which is very rare these days… Even with your positive diagnosis, you’re sharing, which is so helpful for others who may be struggling too! Keep sleeping well and look forward to all your running days to come 🩷

@FloraBeverley Год назад

Thank you so much, this means a lot 💗

@yves6073 Год назад

I'm in awe at your mindset and perseverance, and I'm sure you also have 'bad days' that we don't see. It's obviously been such a trying time, especially with having all these mystery symptoms and now finally having a diagnosis that really requires you to dial everything back. Wishing you an excellent recovery!!

@FloraBeverley Год назад

Just seen this. Thank you so much, that means a lot 💗

@Balintrebeka Год назад

Amazing achievement, well done Flora!! Well deserved rest period..Take care, quick recovery!!

@roisinmcbride_ Год назад

Congratulations on finishing, such an incredible achievement!! I’m so sorry about your diagnosis, but I’m so pleased you finally have an answer! I had glandular fever when I was younger and it was so frustrating just not knowing! Hopefully you will recover as soon as you can 🤍

@dansouth2088 Год назад

Congrats again on your great OCC finish! Take care of yourself and you'll be back very soon! I had to bail on my race which was last Saturday (Sept. 9th) due to covid. Was close to being recovered, but the race was way too hard for not being 100%. Targeting a race on Oct. 7th, so hopefully am back to being healthy.

@FloraBeverley Год назад

Ah no poor you! Sounds like a sensible decision though. Good luck with your next one!

@mikew6840 Год назад

You said something that really resonated with me - that runners know our bodies & know when something is amuck. Frustrating when you don’t get a thorough diagnostic response to an intelligently articulated, ongoing issue.

@FloraBeverley Год назад

So frustrating yes! They absolutely don't take fatigue seriously, even though it's impacting every single aspect of my life. ❤️

@melaniebailey3446 Год назад

Such a valuable video Flora, thank you. After your recent posts on Instagram I decided to get some bloods done too, and we’ve discovered some issues that I was unaware of that are also causing fatigue. About to start treatment, so I’m really glad I follow you on all your socials! Hope your recovery goes well. Xx

@FloraBeverley Год назад

Ah no way!! Really happy you managed to figure it out, thank you for sharing with me, it makes me feel like at least its been useful for someone! 💓

@aidanoc19 Год назад

Good on you for your sensible advice on not being lead by the the training and the just get it done attitude often seen in RU-vid running videos. I went to my doctor last year when every run seemed to wipe me out. I wasn't sick, just tired so I just let my body rest, walked and hiked till I felt ready to run and it worked, then built gradually. It really worked well for me.

@FloraBeverley Год назад

Thank you ❤️ this sounds like exactly what I'll be doing and hopefully it'll work well! Thank you for sharing 🙏

@Masamune314 Год назад

Hope you'll get the rest you need and that you'll be back stronger than ever!

@gwilymeades Год назад

You smashed it, one of your best performances, considering the elevation and mental struggles...(repeat) one of your best performances!!! AND you have recovered very well, and are living the life most of us can only envy! Amazing! You achieved all this despite being sick! As you said "better than I've ever done in any race before" (pacing). By the way, I was getting consistently very high heart rate readings, and found out that my HR monitor was 'cadence locked', and was reading my high 170s cadence many times. I switched HRMs and immediately felt better....something to look into .....well I hope you get some more races in soon as it seems you're in peak shape. You've done extremely well, both performance-wise, and in terms of recovery.

@FloraBeverley Год назад

Thank you so much!! Re HR - I use a HRM, so it's pretty accurate 😊 so it really was that high!

@gwilymeades Год назад

@@FloraBeverley I was using a chest mount hrm when I got the cadence lock. I’m just suspicious of the high 170s figure after what happened to me

@FloraBeverley Год назад

@@gwilymeades oh weird! But mine is defo high HR - I can feel when it happens, the HRM just confirms my suspicious 😆

@Kelly_Ben Год назад

Great recap! Congrats again on an incredible race! I'm so glad you finally have a diagnosis. I went through weeks of bizarre symptoms, and thankfully i had a proactive doctor. She had a couple gallons of blood drawn, and they discovered it was Lyme disease. It's a very common illness here that they rarely test for, which is outrageous, because without treatment, it destroys your body, brain, and life. I'm glad you advocated for yourself and got the answer. Your upcoming videos might not be exciting, but they'll certainly be relatable and helpful to many of us!

@FloraBeverley Год назад

Thanks Kelly! Ah no way, was this recently? I have heard about it, I might see if I can get tested just in case

@_Mountain_Dave Год назад

Kelly/ben just read your point, Great comment ! Yea i do alot in the Lakes and people are more on the look out for it given we are used to being around ticks/sheep, but it's shocking the ignorance around it, from both an indivdual perspective in the intial symptoms but also the medical profession. It should be taught in schools! I had a friend at Uni who was getting progressively worse and i said to her to get a check for Lyme's as she had tied it down to not long after doing the west highland way. Sure enough nearly 2 years of being told no abnormalities came back postive. It is super serious condition and so easy to catch, with life altering issues if not caught. It would actually be worthwhile in this being an episode in itself, as the amount of people that go off for weekend events in the Lakes, Wales, Scotland or up here for a weekend and not really appreciate the dangers lurking. Incidently its really prevalent on the South Coast also so even taking your dog for a walk across the fields!

@rachelshirley8403 Год назад

So pleased you have a diagnosis Flora, and don't feel bad one bit for the decision to not do the 250km. EPV is not often talked about, yet as you say, so common. Enjoy that rest Flora and you'll get out the other side. Xx

@FloraBeverley Год назад

Thank you ❤️❤️❤️

@expatadventureturkey9324 Год назад

Congratulations on a strong effort and toeing the line, believing in your self is what matters and trusting in your ability. Stay healthy and self aware of what your body is telling you 🤙🏽 best of luck in your next adventure…Love the footage you created and the this video closing the loop of your OCC Race 🙏

@FloraBeverley Год назад

Thank you so much 💓

@ceegee7448 Год назад

Loved this video! ♥️ Thanks for sharing and well done, you are incredible! 👏

@berndweissflog5921 Год назад

Thank you very much for the report and your summary. What a super special experience in your life, Flora. Congratulations again! And now... Take your time! Get well soon! And stay disciplined!! ;)

@almspro12765 Год назад

Awesome job Flora , rest and relax, keep us posted.

@MrPhilsmithson Год назад

Great video, thank you! I was so surprised when you mentioned the IT band issues halfway through and how long you'd been struggling, I was in the exact same boat and have just recently tried doing what you recommended, increasing cadence and glute strengthening, as well as foam rolling which all seem to be helping. What do you think caused the IT band issue to come back this time? Do you have any other videos or info on the glute strengthening and anything else that worked for you? Thanks!

@FloraBeverley Год назад

I was really hammering the downhills and my form wasn't perfect, because my quads had started to cramp on the first descent, so I think I wasn't shock absorbing as much as I could have done. It's also just a really long way with a lot of descents, so maybe not surprising. I'm glad it held off that long tbh!

@Nayz13 Год назад

Take care Flora. My husband has struggled with chronic fatigue for 20 years without any sympathy or answers from doctors (possibly triggered by a virus or a significant life event) it’s a really difficult area. I was also sick for around 5 months a couple of years ago, you have my full sympathy

@jessicadavis2169 Год назад

I don’t understand how the medical community ignores chronic fatigue so easily when so many people suffer from it! Not to mention Long Covid is chronic fatigue as well. I hope your husband is managing ok and finds some more support soon.

@LukasD89 Год назад

@@jessicadavis2169they choose to ignore it cause they have no idea what to do and rather talk it down instead of facing their own inability

@FloraBeverley Год назад

I'm sorry to hear that! My partner has had post viral CFS so sadly I'm all too aware. And yes most of the NHS doctors have been useless 😬

@Nayz13 Год назад

@@FloraBeverley it’s so hard and so common unfortunately, I hope your partner is recovering from it?

@georgiawatts2465 Год назад

Wishing you a speedy recovery Flora x

@constancellc Год назад

I got EBV in April 2018, and it wasn't diagnosed until July (also had an ECG and blood tests etc). I felt awful until August and extremely fatigued until November. The tail was long, it is hard to know when I felt fully back to normal - in retrospect maybe by Feb 2019. It was mentally tough as I kept thinking "am I still fatigued or have I gotten out of shape...?". Hoping that you will feel better soon, but know that full recovery is the most likely option

@littlerunner4505 Год назад

Absolutely the right decision. Mono can really screw you up long term if you don't allow the rest required. Happy to hear you got a diagnosis and it's something that is recoverable with time and rest.

@KenParsonswasp Год назад

Take care of yourself Flora!

@iberiksoderblom Год назад

I was hit really hard by Mononucleosis when I was 21. Got hospitalized due to high fever. It lasted about a month and just one week later, I startet as a soldier... The first month was HARD! But then my strengh startet comming back quite quickly. One strange thing was, that for almost a year I could not have any alcohol. If I had any, I felt bad and sick, and I didnt have any desire for alcohol really, in that periode. It wasn't a social problem for me, as I just told the truth why I prefered to drink something else, when "the boys" had weekend partys (every weekend...). Looking back, I think it was actually a lucky and good thing for me. But I still remember the fever, the headache, the total fatique from when I was sick. Stay healthy, get all the sleep you can, relax and be patient. You will get through it.

@forestrunner8922 Год назад

OH...! so sorry for what you are going thru Fiona!!! I had this too and did (ozone therapy) it is natural treatment that fully oxygenates the system and its just me, but it really enlivened my body and pushed out virus ...really highly recommend will overcome this!!

@johngriffin7255 Год назад

You OK? Hope you are getting good treatment and rest.

@FloraBeverley Год назад

I'm OK thank you! Just resting up. New vlog out this week :)

@rdr571 Год назад

Take care. Good to know what it is so you know how to properly recover. Your occ race was awesome. Is going as a volunteer to tribe maybe an option?

@FloraBeverley Год назад

Thank you! I would love to but the days are long and mornings early, so I think it would be better to rest. I would have have the worse fomo!

@2spoons Год назад

Many thanks Flora for uploading this - Fantastic to watch you finish the OCC..... 50k - Massive well done But gutted to hear you've collared the EPV Epstein-Barr virus.... nasty - listening to your body is all you can do and slow recovery is not fun but it is uplifting too start running again even though is zone 2 ... just watch your heart rate and keep that low too - speedy recovery 🤕

@johnmcnulty1129 Год назад

Great news, sort of, that you now know about the EBV diagnosis. Cyclist Mark Cavendish had a spell. Some brilliant RU-vid footage out of Chamonix, as well as yours ! :) Marcus Kjellberg, Kofuzi's upload "Runners Weekend Chamonix 2023" a certain person makes a brief appearance at 24.34 ! :) Enjoy chilling out, best you can. Get that paragliding trip booked over Chamonix for next year ! Rest easy :)

@FloraBeverley Год назад

Ah yes I hear he has a great documentary on it! I will have to watch. Ooooh I haven't seen that, thanks for the heads up.

@markbowen3700 Год назад

Hi Flora, thanks for another great video. Do you have the link to the charity you mentioned? It's a real shame you can't do the run but we can still donate 👍

@FloraBeverley Год назад

This is SO kind. Thank you. I absolutely don't expect anything, but the money will still go to the charity, so if you'd like to donate you can 🤗 www.justgiving.com/fundraising/flora-beverley3

@st4331 Год назад

Sad news, but also good that you know and can beat the virus. My son had a similar virus that caused chronic fatigue and he couldn't do a few minutes of exercise without needing to lie down. It took several months to get over it, but he did, and you will, get through. He's running the 50K Ultra with me on 1st Oct, but I rolled my foot on a run last night and the tendons are sore and the foot is swollen! Hopefully, it will be fine in 2 weeks, but having prepared so well up to now, will I be able to do the run if I can't do any exercise until the race?

@FloraBeverley Год назад

Ah sorry to hear that about your son! Glad he's better now :) I would say a) speak to a physio if you can and b) try to get in at least one run a few days before the race to assess the damage. I imagine it'll be fine unless you've torn something, but you'll be more likely to go over it on the race again, so you want to make sure it's OK to run. 50k is a long way!

@st4331 Год назад

@@FloraBeverley Thank you

@traceykerr572 11 месяцев назад

Do you have a video on project BAM

@Kaz.2719 Год назад

❤

@traceykerr572 11 месяцев назад

Glutathione supplements can help your fatigue

@andrewstorm8240 Год назад

I suppose it gives you time to write &, research.

@FloraBeverley Год назад

Absolutely! I already feel a bit better

@harryc1567 Год назад

Your video intro needs upgrading.

@FloraBeverley Год назад

Your attitude needs upgrading

@Dora-bmrwarrior Год назад

@@FloraBeverley yes! Plus obviously, another troll with nothing better to do with himself :)

@gordonkocher5872 Год назад

Vaccine

@Nick-B78 Год назад

Really?? *sigh*

@mariefrench916 Год назад

It’s funny you say that, I’ve noticed a lot of people get EBV which attack the white blood cells and weaken the immune system. Am sure it’s been around before the vaccine but I wouldn’t rule this out. It’s good to be open minded. X