I had an optic neuritis flare about 7 years ago. I didn't know what it was at first I just thought I had a floater in my eye that wouldn't go away. That went on for about 2 weeks. I finally seen an ophthalmologist who thought he knew what I had but recommended a neurologist. Sure enough after the MRI he found MS. I've had 2 other attacks since. I've lost color in the eye. Even driving is hard without sunglasses because of the light differential in each eye. This was great information. You have a new subscriber! Everything you mentioned was spot on!
I had 3 episodes of ON and the doctors have not told me I was diagnosed with MS. I got pregnant and haven’t got ON since then 6 years later I’m not I’m having a left eye pain when movement but this is my second day with this..
My aunt has exactly the Symptoms he is describing days after recovering from COVID(omicron), her MRI, blood test and all the vision test he talks about, her results are exactly what he said, he was prescribed with solu-Medrol 1000mg for 5 days, she is still trying to recover, but doctors didn’t know what she has, so I just found this video!!! I’m so happy he talks about other options for the treatment, maybe that would help her for her complete recovery 🙏. We don’t want her to live with a vision like that. I wish I could have a zoom medical appointment with this doctor.
I'm experiencing ON as I write; same time as last year, same eye, no medication, but understand what it is and why. I have a big bottle of Tumeric in the kitchen. Taking one Teaspoon in water with a packet of Equal. Plus, going back on Whals Protocol; just what I did after last February's O Neuritis. Yup, eye got better and returned to normal by Late March Early April. Recommendation: This disease is going to be with her / us, so better to learn with natural herbs and spices are well-known to reduce inflammation in the body. This way, it may not be necessary to run right to the doctor or the hospital. ...They see this all the time, and don't do nearly enough to treat and cure Anybody, sigh. So try Whals Protocol and Tumeric in 6+8 oz of water. Seems to help slowly restore function. Best. Peace ❤
In October 2022, I had my 2nd episode of optic neuritis. This time the inflammation caused a hemorrhage in the back of my eye. Spent 7 days in the hospital. They found a few white matter lesions. I was diagnosed with CIS. I also have lupus and raynauds. I recently had episodes of diploplia and I suffer from migraines daily. I really hope my neurologist will put me on preventative medication soon.
Ughhhh this is the worst! MS patient for 6 years. Had this a few times, awful. One eye paralysed, double vision 🤦🏼♀️ id much rather my relapses made my legs not work, than vision problems!
I got diagnosed with MOG. It started with Aritas in both eyes, and then eventually body completely shut down, and I got intubated and woke up in a new world. My healthcare in my area let me go down big time.
My first symptom of MS was ON, but I realize now how little I knew about it. Soon after came the diagnosis of MS, so I never really thought about ON anymore. So much information in a single video, I had to go back and listen again on many places. And I'll have to listen a bunch of times more. Thank you, Dr. Beaber. Hope my ON doesn't return.
Best explanation available for optic Neuritis. In MS does damage caused by optic neuritis goes off completely with steroids? I mean how long it takes for an MS patient with optic neuritis to have his vision back if treated using steroids? We need your type of doctors. You are very good.
Recovery from Optic Neuritis varies widely. Some people have 20/20 vision in two days while others have permanent vision loss. Generally speaking, if the visual acuity in the affected eye is 20/100 or better at the nadir (worst period of the disease), the prognosis for complete or near-complete visual recovery is good.
Please doc we are really helpless please doc I watched your video you tell everything very clearly I am sure you will find out what happened with my sis in only 2 months and what’s her treatment please doc help us
Great video! When I was still waiting for a diagnosis, my ON (left eye) was left untreated. About 9 weeks after it began, I felt 3 consecutive buzzes of electricity down the entire right side of my body. After those buzzes, some of my vision returned - it was like somebody flicked a switch! My vision fully recovered after another 4 weeks and 5 day oral methylprednisolone. I’m still seeking an official diagnosis and have tested negative for AQP-4 and MOG antibodies. All my symptoms completely subsided after methylprednisolone (leg weakness, altered sensation in soles of feet and fingertips, Lhermitte’s sign). Only ever had one attack and don’t meet McDonald Criteria. Could this be CIS?
I have some insight but wouldn't feel comfortable giving direct medical advice. Generally speaking, the key test after optic neuritis is an MRI of the brain.
What was your vision like when it all began? Like did you had color contrast, dimness, and how much was your acuity? After you recovered did you get everything back to normal or is there some residue left? Appreciate your input into this.
I have optic neuritis and have no pain. Went to an eye check up and had RAPD and further testing shows optic nerve swelling and disc swelling with blurred margins. Ordered a CAT scan 🤷♀️
I had idiopathic optic neuritis 14 months ago and was not treated properly by a neuro-opthamologist. He gave me low dose oral prednisone and it did nothing for my blindness. When I got my regular neurologist who was treating me for neuropathy, to give me the course of IV methylprednisolone, it immediately brought back 15% of my sight. So, in my opinion the IV worked. But I am now functionally blind in that eye. The neuro-guy insists that the IV is controversial, even though I have read many studies that indicate it is the FIRST course of action. I wish that my treatment had been better... Now I live with only one eye, and seeing this video made me again sad that my treatment was sub-standard.
The optic neuritis treatment trial showed that IV high dose steroids were more effective than lower dose oral steroids, though I presume that this is due to a difference in dose rather than route as steroid products like prednisone have very high bioavailability (absorption into the gastrointestinal tract).
Thanks for this. This was how my MS first presented. Although I have since recovered, it still doesn't sit right with me that I was never offered any drugs other than Advil.
Thank you so much for the very informative video. I learned a lot about this disease. My question is whether optic neuritis causes a teary eye. Thank you.
My wife lost her vision due to the tumor that compressed her optic nerve and pituitary gland. The tumor was ectrscted by surgery but my wife never regsined her vision. Kindly sdvise if there are new medical solution to regain her vision. Thanks Bob
My doctor said that my optic nerve is weak due to this neuritis. it will will take 1-2 year to improve natirally and if not there is the research is going on and it is in success track. and there may medicine will be available after one year. So what research is going on for visual improvement of weak optic nerve? Do you have any idea about research? Please reply...
subtle increased signal intensity is noted in retro bulbar part of left optic nerve likely optic neurities this show in mri my wife left eye focus see dark only upper and lower seen please reply what can i do
I was diagnosed with M.S. about 10 years ago. My symptom was very strange. When I would look left, my left eye would turn but my right eye would stay straight. The same vice versa. All I would see is a blur... After 12 MRIS and numerous cat scans and a spinal tap I was diagnosed with M.S. I had to learn how to walk again as well
Hello doc ,last sept my blurred vision starts then i found out that i have congenital cataracts doctor said its ok but my vision is getting much blurred especially the left side then yesterday i went to another hospital i found out that i have optic nueritis and they recomend me to go to the other hospital , i want to ask if theres a cure for this because i am worried with my vision. Thank you doc
Some typical regimens for acute optic neuritis in an adult would be solumedrol 1000mg IV for 3-5 days or oral prednisone 1250mg for 3-5 days. These medications are given with gastrointestinal prophylaxis such as omeprazole (prilosec). Sometimes, a taper of lower dose oral steroids is used.
This was a Great presentation & very thorough. It will be useful during my next visit to the eye Dr.-- who isn't all the familiar with MS & the fallout related to MS Please don't forget to post the link to the other video you mentioned about electrophoresis.
Sir my Small sister suffering from Optic neuritis last six days After six days started Methylprednisolone 1gm so sir plz let me know possibilities of recovery 100%
It would be better to discuss this with her provider. Most people who have vision 20/100 or better at the nadir (worst point on visual function) have a good recovery over time.
Hi Dr. Beaber, I am getting an MRI brain scan next week, but I am curious on your thoughts. I have a constant pain that feels like it is coming from behind the eyes. I had a fairly large fluid pocket in my right eye that water pills took care of over a couple of months. However, several months later my vision has not returned in the eye which is bad enough that I cannot make out 1 inch letters at any distance and colors are off like red looks pink etc.. and i see what looks like a kaleidoscope without the colors (lights only) I was also just diagnosed with POTS but this is probably not linked? The POTS could even be a misdiagnosis I guess.. You wouldn't have any suggestions as to anything that would cause this would you?
Food sensitivity can cause terrible illness, even blindness. Might want begin Lions diet...beef,bacon, butter and eggs. See Dr Anthony Chaffee MD neurologist & lots of great carnivore doctors on YT Thank you God bless you
The search that led me here was, "how the Pineal gland affects the optic nerves". Since you didn't mention Pineal at all, I assume either I've searched the wrong subject -or - you don't know anything about the Pineal either. No one seems to want to discuss it. Informative presentation though. Thanks for sharing.
Did anybody face dimness issue - Like the whole world has turned lights off? Why would that happen? 2. I also faced eye strain when I look up close in my laptop like my eyes crossed ( in real they don't but the feeling) and you can't focus on things though you see them. It slightly uneasy. Text on the TV is blur for some hours. Everything around looks uneasy to focus. Not blur but like may be misaligned eyes? But in real your eyes look straight 3. I lost long distance vision. Slight clarity missing. 4. I had few seconds of orangs light which was griwing in concentric circles , when I closed ny eyes. Happened twice. Let me know if you came out of any of these. I must say I was crying a lot one day. The next week this happened while I was watching Tv sleeping lying to my left side on the sofa.
I’ve had it. There is some permanent damage. You may need glasses/contacts afterwards. My blind spot went away but i ended up needing glasses afterwards
Thanks for the video, it helped me understand more about it. I have optic neuritis and I have 20/100 vision in my left eye. I started treatment with 1000mg methylpredinisolone for 5 days IV and am now taking 60mg oral prednisolone. My vision went to 20/30, but I still can't distinguish the colors correctly, it's all very blurry and black spots, it's weird. Doctor, would you have any supplements that could help with the recovery of the optic nerve? For example lutein, zeaxanthin, omega 3 (thinking good amounts of docosahexaenoic acid)? I would also like to know if I have a chance of my vision returning to normal, as she has already had a good response with the start of treatment. I'm so scared to see it like this forever... A big hug from Brazil
@@mirhanan Unfortunately my vision was never the same. It seems that I see through a fog and when my body warms I can't see anything (Uhthoff's phenomenon) I did 10 sessions 1000 mg methylprednisolone intravenous + immunosuppressive. I am currently not taking anything
Citimate 500 daily 1 tab after breakfast Nervigen plus daily 1 cap after lunch omega 3 capsule 1 after dinner Take 1spoon moringa powder And for more u can ping me
Hi, I was diagnosed with Optical Neuronitis 3weeks ago and I lost the sight in my right eye as of today it still has not returned. We done MRI of head and neck, VEP test, IV Steroids for 5 days and NMO IgG Autoantibodies test. All test came back normal except the MRI of the neck. It showed I had 2 places where the vertebrae was pressing against my spinal cord. Could that be part of the problem? If not what should be my next step .
Pls dr i have this optic neuritis and k.c also 6 months ago i got my first pair of scleral lenses for keratoconus ..2 week ago ..i had pain in right eyes when i move it..can i wear my lenses or leave it
Citimate 500 daily 1 tab after breakfast Nervigen plus daily 1 cap after lunch omega 3 capsule 1 after dinner Take 1spoon moringa powder And for more u can ping me
Hello dear Dr My father had Toxic Optic (Methanol Intoxication)Neuropathy 5 months ago When he had this disease doctors injected Metylpredinisolon 1000mg 2x after 24 hourse he became will even he was able to drive and write. But after 1 week being well his both eyes again became dark and darker. Doctors said that you would be fine but it is a long process to gain your vision I wanna know would he become fine and gain his vision or not?😢
I am having pain in my left eye since 2-3 days when i did an all-nighter online study session and only slept 3hrs and did another all nighter next day. After this i felt pain in both eyes, then right eye got fine in a day, but still left eye has minor discomfort when i see Top-Right position (at top of nose), pain is between eye and eyebrow..i dont have colour issue, nothing blurry.. Can this be ON or just eye strain?? Plz reply Dr.
I believe I experienced Optic Neuropathy a month ago. and my vision decreased from 20/20 to 20/25, I have a new onset of floaters and formed astigmatism. Would a Dr be able to see that I recently had ON or do I have to be evaluated while it happens? I am doing better but still have bilateral pain with movement behind the eyes and it is everyday. Also is there any relationship between ON and dry eyes! thanks!
These are better questions for an ophthalmologist, but even after incomplete recovery from optic neuritis, people will often have an abnormal examination (relative afferent pupillary defect for instance). There are other causes of optic nerve disease such as anterior ischemic optic neuropathy. Optic neuritis should not cause dry eyes which is generally related to superficial corneal injury.
Hello Doctor, My nephew of 4 years is undergoing treatment for Optic Neuritis . He completely lost his vision within a span of just one day (the time we realised something is wrong with his eyes till he's completely blind) He was given Methylprednisolone for 4 consecutive days. Today he went for checkup and as there is no improvement whatsoever, the doctor is worried and couldn't proceed further. We are really helpless and need your help and suggestion. Please reply me.
@@meenakshijat2855 I don't have a way to explain clearly but after the doctor told us that there's no way to treat further, we went home. After a month or so, he slowly regained his sight and now he's completely heal without any treatment.
I had optic neuritis in both eyes, very severe but almost completely recovered at least on the eye test. I don’t feel like I see as well, or as quickly as I did before. At night, I can’t drive because I frequently misunderstand what I’m seeing. I simply don’t do it, I don’t even like riding in the car at night because I always think we’re about to hit something or run off the road. There are also a lot of things I need a magnifying glass and flashlight to see, which I used to see just by wearing my glasses.
I can't comment on your situation, but many people with optic neuritis with vision 20/200 or better in the affected eye have an excellent recovery over time. I wish you the best of luck.
hey, how is your vision currently? Did you feel any improvement? . I have optic neuritis and I am very concerned about my vision. I noticed an improvement with IV steroids but I still don't see much
I lost 100% of my vision in my left eye. Recovery started immediately after starting cortisone therapy and I had my vision back in 3 days. Now after 3 months the only problem I have is that I can not see the colors as bright as I can see them with right eye. The nerve is not damaged so I hope I'll go back to 100% normal one day 🙄.
I had optic neuritis in September, my only treatment was IV vitamin C and B. Is this normal? I still have some vision problems in my right eye but I think things are better.
@@DrBrandonBeaber I am so glad you said that the steroids only speed up the process of recovery without impacting the result. The medical system here where I live is broken, so I guess I can't expect proper care :/
Experiencing ON atm. My symptoms are eye movement pain and vision dimness in my right eye. My doctor put me on IV methylprednisolone 1g for 3 days... last day was two days ago. My vision has still not returned. I'm a little worried but hopeful. Hoping to comeback to this comment with positive updates soon. Researching on how to reduce inflammation generally in the body.
@@amieemaan100 pain in my eye is gone down, but my vision has still not returned. I did an mri and various blood tests and my neurologist said everything seems normal. He's put me on Lyrica for 30 days, observing and still being optimistic.
@@Revo15Official The eye pain is completely gone and my vision has improved but not all the way. It's still a little dimmer is that eye than the other.
Now I use a rollator otherwise a wheelchair that my wife rolls me around then because my hands don't work that great either I'm right-handed and it shakes all the time most of my lesions are in my cerebellum so it affects my balance and coordination and all kinds of things a plethora of things
Devic disease is an old name for the disease neuromyelitis optica (NMO) which can cause optic neuritis, transverse myelitis, and inflammation in the brain in some cases. About 70% of people with this condition have an antibody called the anti-aquaporin-4 antibody which is likely the test your doctor performed. I may do a separate video on NMO at some point.
I had ON first in 1996 then again in both eyes 1997. I only need glasses 3 years ago. But my latest script is a huge change. 2 questions. Does past I ON mean my eyesight will get worse and worse? How do I know that my latest glass scrip isnt just me getting ON
Sir we are in darkness my parents are really poor my sister is in pak only 9 years old doc save her life she wants to study but doc don’t tell us any thing clearly please check her reports for once please
You may want to see an ophthalmologist to confirm that this is optic neuritis as many conditions can mimic the condition. Optic neuritis can be treated with corticosteroids in the acute phase.
Hello Sir🙏, I hope you are doing great. Sir I need your consultation regarding this problem . Sir, one day in the morning my father before 4 years back they weren't able to see anything. We consulted the doctors and doctors did same . Doctors pass the light in the eye but they said that light isn't passing and doctors said that nerves got dry. So till from that time my father still now not able to see anything. Pls guide
Hello. After my cataract surgery in both eyes i have a grey block in the left eye on my focal point. The Vep test showed nerve weakness. It's been a year and no improvement. Kindly tell me what i should for this.
Hello alomost one half year I got LHON I’m taking some Idebenone 300 mg and Coq10 100mg with the vitamin C 1000mg but it didn’t help me Please advise me what do I need to do
I have NMO and Lupus. In 2016 I lost my vision on my left eye but regained some of it. Two days ago I started experiencing pain in my eye, now my eye can barely see, I cannot see color or small objects. Do I need to go to the ER?
One year I experienced for the first time 3 episodes of ON and I shortly after that I got pregnant and six years later still no relapse and i now am experiencing the same eye pain for 2 days now. I wounded if it’s comming back although it’s been a while… 🤔 during past ON treatments wasn’t diagnosed MS.
I have foot drop bad leg weakness i walk with crutches .Severe tinnitus ,pains and cramps all over my body > .I have just had an episode of this ophthalmology can,t find the problem .My vision has been affected in 1 eye where the colour is less than in the other eye ,when it happened i lst just about all vision in my right eye.I am also now border line diabetic .Had these problems for 5 years and still can not get a diagnosis.
I do have optic neuritis but and it's been active for 3 years but I don't have any symptoms except small black dots in the eyes and sometimes about 10% loss of vision...
I have low vision from birth but quite recently I have been experiencing slight pain behind my left eye. I consulted my optician who referred me to a doctor bcos there is swelling on the optic nerve of which im on waiting list to see the doctor. But im panicking at the moment. I need an advice
I had a lung infection , was put on TB medication for the full 6 months before the doctor told me I never had TB. a year later lost vision in my left eye because of the TB medication. thank you for the video.
i had an episode on holiday in 2000. suddenly it was like a shutter going down in my left eye, i couldnt see, anyway 2016 was diagnosed with PPMS. 2007 i had VEP test and diagnosed bilateral ON. 2016 another VEP which showed worsening again. in between i had attacks of terrible pain in my eye, and also lost colour perception. I had to ask my daughters to pick out paint for me lol as my red would be pink or orange. i often pick out wrong colours. in between 2000 and 2016 i had 3 lesions on my spinal cord in different places. i have steady progession and now 7 on the EDSS.
I just had an eye attack yesterday. I woke up and within minutes I felt such intense pain. Yes Dr. (It can be extremely painful.) I just started screaming and crying. My husband took me to the ER and they gave me a steroid shot and I started feeling better. It scared me so much. Now I’m scared for it to happen again. I just got diagnosed with MS. I was getting dizzy a lot and when I fell, I knew I had to get help. So, I didn’t even know what was happening. I’m watching videos to learn about MS. Thank you for explaining it so well.
😂 This happened backwards foor me. I got an mri, then boom 2 days later got covid and few days after that optic neuritis in right eye. At least I think thats what it is. I have to wait 10 days in order to get in and get it looked at. I think its covid that caused it as my lymph nodes on that side of my face and neck are also swollen. 🙃
My very first symptom in primary Progressive multiple sclerosis was vision in just two years I have went from division problem to taking 90 mg of Baclofen a day
I have optic nerve damage. Without glasses I can’t see or read properly on the computer or RU-vid videos. I am getting worried now. Please help me. Thanks
Hello.Dr. Beaber, Recently, I was diagnosed with optic neuritis in my left eye. I was sent to ER by a Retina specialist and I was treated with ivy steroid for 5 days. All the MRI and blood test results came clean. Upon discharge I was on prednisone 20mg for two weeks. I was told by my neurologist vision should be fully restored in 2 weeks. It's been more than 2 weeks and my vision is still not fully restored. I feel like it's around 80%. How long usually does it take before the vision is completely restored? At this point, I am starting to worry.
@@kazi8026 thanks for your reply. Did you take any other treatment apart from what you have mentioned. Also if you dont mind could you share your contact/email. I really need some help.
***Attn: Dr. Beaber*** pertaining to the treatment against the relapse of the Optic Neuritis (both eyes) that originated specifically from MOG antibodies(not MS or anything else) where patient had a full vision recovery using IV steroids... In your "Rituximab(Rituxan/Truxima)" video you have shared your opinion on having a lesser doze of this IV infusion(500mg instead of 1000mg) and no particular need for a commonly used doze after 14 days, and than 6 month follow up with the equal doze(500mg instead of 1000mg) to assure no issues with low levels of hemoglobin down the road... Since your Rituximab video doesn't mention about MOG antibodies caused Optic Neuritis, does your opinion of 500mg infusion doze(single doze without 14 day follow up)equally applies? In other words, does the presence of MOG antibodies would for some reason require a higher doze(1000mg), and the 14 day follow up doze? Thank you ahead of time for your reply!!!
My brother aged 25 is been effected by optic nurve dieses and lost is vision of left eye completely .... doctors results are negative . saying that.. vision cannot be bring back....so please help us with some type of treatment that brings his vision back ..tq from India
I swear it feels like I'm suffering from this shit now, the nerves behind my eyes are constantly vibrating, my eyes are slightly sore and these symptoms make me feel unusually tired especially if I am not wearing my glasses
Hi I was told in late February that my optic nerves have due to too many optic neuritis attacks I have spent the past three months watching my side absolutely crumble to the point of visual snow has happened my central vision is going fast and sub peripheral in my right eye no doctor will help me where I am as I personally don't think they have dealt with this I am definitely going blind really fast? I am so terrified
Hi sir I need your help to save the life of 9 years old girl she got similar symptoms you talked about please sir reply back for God sake I have all reports but doctors from Pakistan disappointed us please sir help us and check her report for once may be you tell something
@@DrBrandonBeaber my eye doctor warned me of my swollen optic nerve a year ago and again about 3 days ago, I’m going to see a specialist in the am for the first time. I haven’t had any symptoms at all. Can this maybe just be an infection?
