Wow as a mom of a heart kiddo who has been wheeled into an OR 2xs so far, I can totally relate to the NICU, the long hospital stays, the waiting and watching as doctors do what they so very skilled at, I will be praying for your little guy. ❤ Trust in the Lord, ask him to give you his strength to endure the hard days.
Thank You for this video... you'll never know how much you have educated, encouraged and provided emotional relief for others dealing with similar issues. Thanks to you, they will know what questions to ask and how to advocate for themselves or loved one... assuring the best possible outcome in their situation. Seeing a happy baby who is still facing challenges is very encouraging. Wishing your whole family total wellness and continued blessings. ❤
I just found your sweet little family and im absolutely captivated by your story. From jump i want to say what WONDERFUL parents you both are and the way your facing this journey as a team is truly inspiring. I also want to add what a extremely precious lil guy Sully is he has already stolen my heart. ❤ I have subscribed because i would love to join in The Ransome Family journey. I will pray for the 3 of you and end love and light yourvway always. I hope i can provide help and an uplifting word in the dark times and share in the joy when a win is made. Maybe i can tell you about myself at another time. For now i would like to say im a grandmother of 4.. 3 girls 1 boy. They call me Mimi i would love to be Sullies Mimi from afar too. 😊 May the Angels keep you all safe tonight. In Jesus name. Amen
Wow sounds like if you stayed in the first hospital they would have let Sully die. They should have admitted that they didn't know what to do and transferred you to some where where they did know what to do. Certainly they shouldn't have argued and tried to stop you going some where else. The nurse that catherterised him after poop got on the catheter should have been sacked. There is a reason for having a sterile field and she should have known better. Causing more issues for Sully, when he had so many already is unforgivable. Sounds like a crash course in learning to strongly advocate for your child, even if you know nothing at the time. I have heard stories like this so many times. Especially with children that are diagnosed with "not compatible with life" even if the parents have not signed a DNR if the child lives the medical team seem to want the child to die. They go slowly, make awful mistakes and generally do not seem to care about that child at all. Thankfully everything went well and Sully was OK, no thanks to the first medical team. I wish you all the very best going forward.
Thank you! A crash course in advocating is a great way to put it. We were shocked at the lack of care at the first hospital for him, pushing to be transferred was the best thing we ever did! So thankful Sully is live, here and thriving!!
I had similar issues I was a vesicorital reflux but they didn’t catch my VUR until I was 7 my left kidney is shot from all of the scarring my right kidney is scarred but actually grew bigger to compensate as an adult now my main issues are that I’m on 2 blood pressure meds and I’m more vulnerable to uti . I would be dead if it wasn’t for my dad advocating for me and getting a second opinion.
The doctors should do a better job of notifying the labor and delivery nurses. Cuz my son had mcadd but also the placenta got knocked loose from the baby so he wasn't getting enough nutrients. The doctor did not dumb that dow we didn't know it until after birth. He stayed 3 more weeks and so lucky nothing happened to him. My doctor just said call if stops moving....it's crazy it happens everywhere!
Thank you! And wow that is nuts. The communication could definitely be improved, I guess we live and learn in some ways! We hope your son is doing so well ❤️
