And the worst part is no one understands how we feel or see with tis disease... Operation is no cure.. It still fluctuates even after operation... It hits really hard on our confidence
Yes I have to take the bus everywhere and sometimes that's hard because I can't read the street signs. Have you tried scleral lenses? They help a lot. My doctor said I can go and get my drivers license now?
Danilo Castro Don’t be. It’s not our fault. Things will get better but it will take time. I’m just happy to have a license and car, because it was not easy to get.
My son has this he was diagnosed when he was17 1/2 ,he had been a glass wearer since the age of four his prescription changed twice a year only when he a new optician said that she can see a change in his eye shape that he had to see a specialist at moorfield eye hospital here in the UK He has to wear special contacts that are made to fit his eye shape ,so that he can see but once out he is almost blind but apparently he isn't classed as disabled . He also made a short film about his eye condition that he put on you tube it's called imagine by Robson mason . Know one in our family has this condition either .
I don't get it, everyone says it affects the young. But I had perfect vision all my life until I turned 42, then it went downhill and it did it fast. From the time I noticed my sight was getting bad at a rapid rate to being diagnosed was 6 months. Seriously, I was not young when my eyes went bad. And it stumped the doctor trying to diagnose me. it was 17 years ago, but not that long before knowing anything about the disease.
It's awful having it I have it too.. I believe that this is a man-made disease and it comes from getting a immunizationfor a routine physical from my doctor. if you can remember,,Did you or have you received a immunization before you was diagnosed with keratoconus I really need to know if u did🙏
@@axoxo9729 This disease is some hundreds of years old it has nothing to do with immunization.Its an unpredictable disease,it always was that is why doctor check-ups are important,at least every year no matter at what stage the disease is.I am 33 years old and my Kc started progressing again after it was stable for almost 10 years.
I love the fact that there was a laser eye surgery advert before this video. That’s why I have keratoconus because of crappy laser eye surgery. Good job RU-vid 👍
Nehaishu shukla shukla I also suffer from this and I have a really bad case of it ... one thing you you should really do is get RPG contact lens and it’s basically an hard contact that you place on your eye ... without it I wouldn’t be able to do anything
@@amirastar7935 i fell difference my vision was blur for upto 1 month becuase i have done both eyes at same day So after 1 month they gave me glasses and my vision was like same i mean clear but cxl does not stop shadow its just give your saftey i mean your vision will not damage more from this diseases. Also its show different results to each person for few people it actually restore eye condition. But my suggestion is do not play with eyes by doctors just use glasses and avoid cxl and other type of things.for money doctor will make you blind work in your eyes.
@@fawadali4285 you are right brother I'm asking God every prayer to stop it. it really scary. I have miopia since I was kid last 10 years I was all the time fell the difference between my eyes tell last year I goes worst and I have been told it's ck I'm 34 now doc said because of your age we going to see if it will stabilise if not you will do the crosslinking. he said you can put lenses but I heard that it could cause more damage for the cornia. I'm waiting. thanks for your time
Marcela Hernandez dont stop looking for the right doctor. It took me a couple years to find a great one. And overcoming all the misleading and heartbreaking information. My doctor is in Virginia Beach at Beach Eye Care. I traveled from another country to visit him and it was worth it all. I got better eyesight and peace of mind from him. Best of luck to you!
I feel for you! It is one of the worst things. Looking at things and not seeing it. Especially any text. I can't drive at night, not even a little bit. Street lights are my enemy, and brake lights from cars in front of me, and unable to judge any distance at all. It is a nightmare. I wear the special hard contacts, that are smaller than regular contacts, and that is a whole other problem, sometimes they just pop out of my eyes and allergy, or at the very least, severe irritation to make it hard to wear them for more than a couple of hours. Glasses only correct my eyes to 80/20. Computers and my phone are doable, but really tough. It is a devastating disease. You think you see things only to find out, you are missing so much.
Elizabeth Salvatore i had the small gas permeable lenses when i was first diagnosed. And it was great with vision but terrible with comfort. When i searched for further technology...My new dr explained how the small ones are outdated. And prescribed me with synergized lenses. And now im in scleral lens. Try asking your dr about those? Its 100% different from the small hard lenses. I definitely do not miss the spontaneous pop outs! It happened while i was driving. I looked to the corner to check my blind spot and accidentally blinked while looking back. It could’ve been a bad accident but i was blessed to have control
@@sadefox3411 that happened to me today it popped right out while I was washing my face in the bathroom over the sink and then it went down the drain because the water was on now I have to wait a month to get another one so I will be home bound the whole month 😭😭
