PACING for Chronic Fatigue/Myalgic Encephalomyelitis. How I manage my energy. ME/CFS Spoonie

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Top tips for pacing with a fatigue condition like ME/CFS + managing my energy as a spoonie. Pacing can be difficult, but it is really important to learn for chronic fatigue management and recovery.
Are there any important tips I’ve missed? (let me know in the comments)
My name is Elinor, I am a 22-year-old sociology student who has been living with ME/CFS for 6 years. I started making RU-vid Videos consistently about my experience with chronic illness and mental health struggles in June 2020!
This video does not necessarily reflect everyone's experiences with ME/CFS because we are all different and have different experiences. This is because ME/CFS can be different than I have experienced, and each person’s situation will be different and therefore each person’s story will be different!
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Follow me on Instagram / ellellell_brown
Follow me on TikTok / elinorbrown3
Thank you so much for watching!! Make sure to like, comment, and subscribe to see more videos from me every other SUNDAY.... Ish!
#chronicfatiguesyndrome
#Myalgicencephalomeylitis
#ME/CFS
#Babewithamobilityaid

Опубликовано:

14 июл 2024

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Комментарии : 47

@emilyvbr1878 2 года назад

One of my doctors made me go on walks too, and I cried doing them sometimes too. At the time I thought I was just oversensitive, but now I know it was for good reason! I should have been listening to my body like you said. It's crazy what things doctors suggest when they really don't know what they're doing

@ElinorBrown 2 года назад

It is super difficult when a doctor tells you to do something that just feels so awful!! but you are not over sensitive, its just bad advice!!

@joclairemitchell9591 Год назад

Omg thank you thank you thank you for not promising recovery. And for emphasizing how everyone has different baselines and “ok”. And that expecting no symptoms might be too ambitious. It’s truly gaslighting and harmful to emphasize how important it is to prioritize “recovery” and having the “right” system to “recover.” Without calling out the reality that not everyone can recover. Thank you!🎉🎉🎉

@jasonmatthew8650 3 года назад

Been suffering from cfs for years now, I was very fit and active beforehand so it has been so hard for me to adjust to barely being able to shower without being bedridden afterwards. I also have arthritis so I have to manage my energy so much and it's hard because working out has always been what cures my stress and helps my mental health issues. It's very rough as you know, so glad that you are on here helping others with our condition!

@ElinorBrown 3 года назад

I'm sorry its so hard for you at the moment! I was also very fit and active before i got sick and its a big life change, that can be really difficult, but you will get there!! your welcome!

@jasonmatthew8650 3 года назад

@@ElinorBrown thanks! Yeah I have to do at least some light exercise every few days to help with my arthritis pain, also just to de stress and keep my heart healthy. But it's really hard on the days you feel good to know when to stop. You feel fine in the moment and then if you overdo it, you're down for weeks.

@kimm3473 3 года назад

I had a stroke and this is very applicable to me. Thank you! I am learning not to push too hard and crash. It's a work in progress.

@ElinorBrown 3 года назад

I'm so glad its helpful for you 💖 learning not to over work yourself is a long process for sure!! 💖

@esterfleurke9309 Месяц назад

Such good advice that mental activities take every too. I found that out only recently

@esterfleurke9309 Месяц назад

Take energy

@nnb02 6 месяцев назад

Needed these reminders thank you. I've tried to read 2 books all year and only got to chapter 2 of both. My energy is used up trying to work and keep a job so I have to spend left for anything else

@TerminalDoesntMeanGoodbye 2 года назад

This is absolutely fabulous! Very smart post! I am a new subscriber, new to your channel. What a wonderful find, you are! I have stage 4 cancer, and even though we don't have the same ailments, we handle things very similarly! Thanks for being you!

@ElinorBrown 2 года назад

Thankyou!

@cece9781 2 года назад

Don't have chronic fatigue but experience it daily along with my joint pain so this was super helpful since I'm an over-achiever who pushes themselves probably more than I should. (Just realized that this was a year old, whoops)

@kaz555 Год назад

Thank you for this video and your advice. Really helpful. I have chronic pain and fatigue. I now see I am pushing myself too much and feel guilty when I can't do things.

@ElinorBrown Год назад

Glad it was helpful!

@joybird144 2 года назад

thank you for this you dont know how much youre helping

@ik7357 2 года назад

this was exactly what i needed. thank you 💖

@homemakersheart3614 Год назад

This is a great video. You have summed up the things that are said over and over. The hard part is what does that look like in life. That is my challenge. My to do list tends to be my focus and I forget to do one and then assess where I am at. Thanks for this. PS Bloopers are the best. It shows you are geniune and just like the rest of us.

@sarahyardley1923 3 месяца назад

Very wise words indeed! It's very hard to accept, but the very best thing for you.

@halessahmcraze2178 4 месяца назад

Thank you so much. I'm recently diagnosed with this, I'm in a crash rn. I need to figure out how to pace with 2 small children

@VeganCheeseburger 7 месяцев назад

Thank you!!

@crashtestdummy2686 Год назад

Thank you for sharing your story. Love the out takes😊

@ElinorBrown 11 месяцев назад

Glad you enjoyed it!

@suzannethompson9261 2 года назад

This is year 8 for me with mecfs and I can pace better with a heart rate monitor. I otherwise tend to push push push.

@ElinorBrown 2 года назад

That's so interesting!!

@lonniemason3084 2 года назад

great advice thank you. I'm 53yo with fibromyalgia and you help me so much💜

@ElinorBrown Год назад

I'm so glad!

@FinnTheInfinncible 2 года назад

Well you have another subscriber now! This was such a great video thank you. I'm trying to learn about pacing and I'm finding it all rather complicated and overwhelming! What you said about early days and looking for signs from.your body, specifically relearning these signs, makes so much sense. It's very early days for me, I've been struggling with fatigue on and off for a few years, thinking that it was all a side effect of my hypothyroidism, I thought eventually it would settle down. Unfortunately it hasnt. My fatigue and other symptoms are just getting worse and it's clear there is something else going on. I'm waiting for further tests, and ME/CFS is suspected. I'm not ready to accept that yet! Hoping its something more easily fixed! But, its clear in the meantime that pacing is going to help me. Thanks for your wise words, sorry for the essay....I'm off to watch some more of your videos!

@ElinorBrown 2 года назад

Thankyou! I’m so happy to help! Good luck with your diagnosis process! 😊

@JixieDyeAuthor Год назад

I have energy issues due to hormonal imbalances. I am still feeling guilty because of the things I don't get done. Its unhelpful when I can't keep my house clean because I get too tired to do things like mop the floor and then my mum comes round and tells me that I am going to get another infection because my home isn't clean enough (I keep getting sepsis)

@ElinorBrown Год назад

It's hard but you're doing your best!!

@melissma100 3 года назад

Just found your channel, love this video 💗✨

@ElinorBrown 3 года назад

Yay! Thank you so much 💖

@jackieedwards2023 3 года назад

This is a brilliant video so true so happy I found it thank u it has helped me so much u know so much for your age well done and thank u 👍😄

@ElinorBrown 3 года назад

I'm so happy to be able to help! I've had ME/CFS for around 7 years, so i have learned a lot through trial and error!!

@danw32 3 года назад

Really helpful, thanks! Great video 😁👍

@ElinorBrown 3 года назад

I’m so glad you found it helpful! Thankyou! 😊

@danw32 3 года назад

@@ElinorBrown 😁😁😁

@TheRoarWithin Год назад

I love the t shirt.

@oralie.bordeaux 6 месяцев назад

Have you considered stachybotrys mold being the cause?

@electrogeek77 2 года назад

Every explanation I find on pacing leaves me with further questions. For example, my pain and energy levels are at a point where I can perform one small task, then require a significant amount of rest before I can perform another. How does this fit in with pacing?

@ElinorBrown Год назад

sorry for the late reply! For me, the resting before you do the next thing is part of pacing, i would also say identifying what activities need rest break directly after them and making sure you have time etc to rest is a huge part of pacing (breaks could be ten mins or weeks) and not scheduling too many things of that nature in a row is also important in pacing. The main thing is listening to your body, resting when you need to! You got this! Hope this helps a little 💜

@electrogeek77 Год назад

@@ElinorBrown This helps a lot! Thank you!

@kuldipChoudhuryVlogs 3 года назад

How did you recover completely? Please make A to z video.

@ElinorBrown 3 года назад

I am not recovered!

@kuldipChoudhuryVlogs 3 года назад

Aw sorry to hear Elinor. I'm sure one day you will recover completely. Watch Raelan Agle videos on youtube. She recovered completely from her sever illness.