Painful Bladder Syndrom 

I was diagnosed with interstitial cystitis a couple months ago, have been struggling with the symptoms for a little more than a year now. It's been limiting, isolating, stressful, and embarrassing, not to mention painful. I'm grateful to see someone talking so openly about something so little known, and even less understood. Thank you for being open about this and good luck.

It is very brave and admirable that you candidly talk about your condition on this forum. I too have some symptoms, I’m female understand the challenges. As a male I’ve been told information isn’t as widely available. Men certainly need to know where to turn, and the help and answers they need. Thank you!!!

So great to hear this talked about. In the U.S. we have physical therapy for this now. I thought it was silly because it feels like burning pain in the bladder and like it's related to the lining, but one session cleared up the symptoms for weeks after months. Apparently pain messages can get confused. Then I learned some simple massage techniques to treat it myself. Just massaging the inside muscles where the thigh meets the pelvis a few times on one day can get rid of a bout for weeks. Also, since wearing sweatpants and pj's for Covid quarantine for months, I realized how much a tight waistband triggered the chronic pain. Thanks for speaking out on this. Whenever I hear a woman blame herself saying, "I have a bladder the size of a pea" I think, no! You have an illness that can be treated!

Thank you for being so candid and honest about personal issues. Your sharing serves as a teaching tool for countless other people. You are the best!!

The mind body connection is so huge! Thank you so much for the update. I think its probably good to talk about it even tho it feels crummy. Sending ypu love and hugs!

Thanks for the update!! Watching the first video, my heart broke for you. I, like so many others that commented, suspected IC. I'm 44 years old and was diagnosed in my early 20's. I was fortunate enough to have a urologist who got it right the first time. I changed my diet and began taking Elmiron. Stress and anxiety are HUGE factors when it comes to flare ups. You'll be doing fine one minute then minutes after dealing with a stressful situation symptoms appear. There were times when I'd be at work and in pain but literally during the drive home the pain subsided. Foods with high acidity levels can trigger flare ups too. The fact that you are pain free and don't void at night doesn't discount that you likely suffer from IC. This disease doesn't present itself to everyone in the same ways.

I am 29 and have IC as well! It’s so nice to see someone famous or slightly famous, talking about it. Gives me hope. Try pelvic floor therapy if you have not already.

Wayne, So many helpful suggestions from your subscribers, you are loved by many. 💕

Thank you for talking about this. I’ve been watching you for years and I also have IC. This illness is so isolating, realizing I am not alone in this is healing. I’m trying to work past the stigma and embarrassment of this and be open about what this is, but it’s hard to talk about, as you know. Btw, I also have no symptoms at night. Very strange, but I’m thankful for sleep. Hang in there, you are not alone.

I understand you Wayne. I have your same exact problem, but it affects me at night, when I have to go to bed. Sleeping causes me quite some stress (I have nightmares everynight, sleep paralysis and so many other problems), and I guess my constant need to go to the bathroom at night is a sort of alarm from my body, like he is trying to tell me "if you have to pee, you will not sleep". I hope you manage to find a solution really soon, I completely understand how bothering this problem is!

I figured this was your diagnosis. I have lived with this for many years. Be glad you are symptom free at night. As I said in my previous comment, I ran a regional support group and am happy to help you with any questions you may have. And stress is a huge trigger. And your diet as well. Bless you Wayne. You're not alone.

Regarding stress, you say you have a lot on your plate that causes stress and that you're handling everything yourself. If you don't already, is it possible for you to hire an assistant, even if only part time? Perhaps they could handle some of the day-to-day tasks you need done like cooking, cleaning, running errands, etc. It could also be an intern you hire to help you with keeping your makeup and tools ready, helping with filming, etc. in exchange for you teaching them the make up biz. The reason I say this is because I have a disabled husband, I have back issues, and I'm a working actor. If I didn't have my assistant, I don't know how I'd function. It's amazing how much having tasks off my plate reduces stress and allows me the brain space to do the things that are most important. Maybe if you did the same, you'd have less stress during the day, and therefore less symptoms.

You help so many people when you face the camera and talk about it. Paying it forward feels so good. Love to you, Susan

Best of luck to you, Wayne. Stress is a killer. It releases adrenaline into our system which is very harsh. Praying you find THE answer. 🙏🏼😘💖

Wayne, my heart goes out to you. I have severe IC. People have good intentions when they give you advice, unfortunately it can be a bit overwhelming when there are hundreds of different "helps". I've had many health issues since I was 9yrs old (I'm 45 now) and the best thing I can tell you is, everyone of us is different. There is no quick fix. Keep doing your research, find a good well informed doctor and never give up in finding what will work for you. My heart and prayers are with you!

Wayne, my heart goes out to you! I have Interstitial Cystitis and pelvic floor muscle dysfunction. I echo the person who suggested pelvic physical therapy, it can be amazingly helpful for pain that seems to originate from the bladder or urethra. Find a physical therapist who specializes in this. My thought is that you may hold your muscles very tightly during the day, but may relax at night which may be why your symptoms subside at night. The Interstitial Cystitis Association has information about so much that may help you. Giving up soda, coffee, tea, and drinking alcohol only rarely will help too to get your pain under control. Best wishes!

Dear Wayne, when I see you make these videos, I could cry. I just want to give you a great big hug and offer you a solution. I wish I had an answer or could take away some of your pain. It's obviously a very difficult subject for you to talk about and I applaud your bravery for talking about it to your subscribers. I understand money must be such a difficult issue whilst trying to establish your own business, but would it help to get a manager who might be able to alleviate some of the stress you are suffering? Your health must always come first and although that would cost, it may take away a large chunk of your stress, I do also understand that the business is your baby & you understand every step of it, but at what cost to yourself? It's also important to delegate in business & I wish I could help you in some way. Just know that you have 3million people who love & support you and know the reason behind your hard work, we know it's for your mum and that is touching. But please take care of you also. Big hugs and love as always. Xx

Hi, your symptoms are exactly as mine were. At first I was fobbed off with its all in the mind, saying I just have a sensitive overactive bladder. My second cystoscopy showed the classic signs of IC in the bladder lining so that was confirmed. At its worst my urethra used to feel on fire, bladder, feeling I needed to go even after going etc etc. I felt housebound for a while, got a disabled loo key, knew where all the loos were wherever I went as urgency such an issue. Now I can say I rarely have any symptoms. I was put on Elmiron (pentosan pentosulphate) hope spelt ok. Plus tolterodine twice a day. But I think restricting my food and drink to IC friendly diet and being very strict about it has been my saviour too, my consultant says he thinks I understand my condition very well and manage it really well too. I haven't had a glass of wine, curry, tomatoes, orange juice etc etc for years. I found anything that had a strong taste in my mouth upset my bladder for days. Experiment, reduce those types of food and drink, no caffeine also and see what happens. Good luck to you and Thankyou for sharing this topic as it helps others x

Oh Wayne, I'm glad you're feeling a bit better! But you need to take care of you! Take a break from the stress if you can! We love you and want you to be your best self even if that means you have to take a break from RU-vid to eliminate some stress in your life! Sending you all my love and positivity! ❤️

It's amazing how the body responds physically to stress. I'm glad that you are getting some relief Wayne. Continue to be as positive as you can my love...you know that we will support you in any way we can. Blessings x

Wayne, PLEASE give up all diet drinks! It's like drinking pure cancer. How do I know this? Years ago I had a horrific allergic reaction to diet sodas that sent me to a doctor. She read every ingredient off of a diet soda can and every one was either sugar or salt hidden under fancy names. She gave me such an education that day; so much so that I have never touched any kind of soda since. I'm not preaching, only trying to help you and anyone else who reads this post. I wish you God's blessings and great health, sweet soul! 😘

I'm so sorry you're going through this Wayne. I hope you get relief from these symptoms ASAP. ❤️

Thank you for using your platform to speak out about this issue. The therapist I've been to told me a great thing. If you can't change the stress source, you can only change how you perceive it and how you react. It does sound like a big part of your issue has roots in your mental state. You are a busy man, but a cognitive therapy would be great in a long run. I'll be doing the same since stress causes an incredibly painful hand eczema in my body. Maybe you could consider it as well.

Wayne, thank you thank you thank you so much for sharing. I can relate to this so much.

Wayne, people suffer from a sudden onset of facial tics that are also stress related. It's something that Doctors don't really understand but they use Botox to help with the spasms. I think your connection to stress is very interesting when ever I feel the spasms coming on I have started repeating the Lords Prayer in my head as a way of distracting my brain and I can say that that has helped a lot! Perhaps if you have something that brings you peace like a song or quote you can repeat that to yourself over and over again when the urges come. Your brain can't focus on 2 things at the same time. Keep us updated as it's nice knowing the man behind the camera.

Wayne, I am so glad that you are feeling some better! You have been in my thoughts and prayers since you shared your story. Sending love your way❤️

Wayne, I am a fan, but I also suffered from painful bladder. I say suffered because my suffering has ended. I had a procedure that implanted a sort of pacemaker on the nerves that control bladder and rectum and IT WORKED! It's called interstim implantation and my gosh it has changed my life. I'm no longer chained to the loo. I can go on road trips. My surgery was done in Melbourne, FL by Dr. Ronald Silver. They do a trial run of the device externally to see if it works for you. I got a full night's sleep for the first time in years. I wish you the best on your journey.

I'm sorry you're going through this🙁. I don't have any words of comfort, but I can say that you're my favorite makeup artist. Even more than Charlotte Tilbury. You're just so relatable and sincere, and I've learned so much from you. Thank you for sharing yourself with us. You make the world a better, even if it is just making girls like me feel a little better on our bad days.

I can't relate to this at all, but I want to say that you are so sweet and honest. A true gem. I wish you healing from this AND some stress. Sending you love hugs and good vibes.

Get better and lessen your stress. Life is short you need to enjoy it. Thank you for all you do for us.

Whenever I had bladder issues and went to the doctor, they insisted I go caffeine free. It took me a while, but I did it. This lessened the frequency of the bladder spasms and frequency with pain. IC is a symptom of another syndrome that I have, so I'm quite familiar with the awfulness of this thing. My heart goes out to you.

I have interstitial cystitis too and right now im in the middle of another major flare up. Stress is the biggest reason for my flare ups. It's exhausting dealing with all the pain and it can be excruciating. We are all IC Warriors dealing with this horrible bladder disease. We can't give up and have to stay strong.

THANKYOU xxx. I have just suffered from a relapse of this 'I C' which I thought I had nuked via removing stress and twice weekly Accupuncture. The 7 years of repeated antibiotics,at one point was on IV antibiotics twice a week, and scans for kidney stones , cystoscopies and hospitalisation subsided one year when we had a very hot dry summer and I decided to invest in accupuncture and traditional Chinese medicine as a last resort. Trust me I wanted the pain gone so bad that I had given up chocolate, sex, coffee and all the joys of life that could possibly be contributing factors. Anxiety is a huge component but like u said it's a combination deal, and nobody talks about it. A lot of medical professionals are dismissive cos it is so freakin complicated. Since I am going through a relapse due to stress cold, my ex etc your video really caught my attention and I wanted to send blessings and ask you if you had tried accupuncture. Ironically I have some concealer issues for the red under eyes this condition can throw at you. Anyone who has ever had this would consider that the most minor symptom. I hope you give Accupuncture and TCM a try. Reiki also helps. Love and light xx

Hi Wayne, I also have Interstitial Cystitis and I completely agree with you that stress can bring on or worsen symptoms. In fact, my doctor has told me that is true. In my case, I sleep so soundly that I rarely need to go to the bathroom in the middle of the night. Perhaps that is one reason you don't. The diet changes are very important. I hated giving up coffee. I wish you all the best, and don't totally write off your urologist's diagnosis. In your first video on this subject the first thing that came to mind was interstitial cystitis/painful bladder syndrome. Have a beautiful day.

So sorry about all the craziness Wayne and glad u are better. Stress is BAD. It does a lot of strange things to the body or makes things already there seem much worse. When u are asleep, your body is at rest so less issues. You will be just fine. *sending healing rays your way*

Yay! I'm so glad you are making some progress. Still try to find AZO. It naturally numbs and stops the urges. I'll have to send you some. NO side effects.

I understand you may not want to talk about it however by sharing your store you may help someone as well as yourself. Hope you are able to find ways to deal with your stress as well. You are an awesome person. Thanks for being you.

Thanks for sharing your story! I dont know any men who battle this! I have IC, and it really disturbs my sleep making me a grumpy person and taking over my life! That's great it doesn't affect your sleep. Im on a water only diet! Nothing else! No juice, soda, caffeine, or alcohol. Keeps the weight off! Ha ha. Hope you can get your symptoms managed!! 😘

Wayne, don't despair. I got an issue after surgery. I have not done cystoscope because it seems futile and horrible. Here's what made mine go into remission: desert harvest aloe Vera pill 3 x day, prevail (otc ant-acid esp for urine), turmeric 3 x day, and physical therapy made the biggest diff for me. You need PT who specializes in pelvic PT. The med side effects are not sustainable. Diet yes you must alter and it's temporary until you heal or have a relapse. Caffeine and bubbles trigger me. Also no chocolate or tomatoes. I also try Benadryl for a few days when I'm having a flare. Mind and body are inter related so if bladder is spasm then yes stress will matter. Best wishes Wayne! Thanks for sharing. You can make it through this. Again highly recommend PT!!

I was diagnosed with IC in 2011, IC is PBS, it's just another word for it. Now when you mention symptoms everyone is different with different intensity, different things foods or situations that make your bladder flare, feel urgency or frequency. IC reacts to stresses as well. My of my biggest differences that makes my type of IC is that I get increase pain while my bladder is full, while my Bladder is emptying (urethra pain) after I have emptied my bladder while 80% of IC sufferers feel better just after emptying their bladder..

I suffer with IC too. I appreciate you talking about it please keep it up if you can. I hope your symptoms get sorted out❤

I had those symptoms years ago and was tested for IC and several other things. Nothing tested out as a sure answer. I was miserable and depressed from the discomfort. I finally found a nurse practitioner that specialized in women with pelvic floor issues. She ran her own tests and finally she said my symptoms which were mainly a burning sensation but not when I urinate, just 24/7 were nerve pain. Nerve pain is a burning sensation and she said at that point it didn't matter what we called it, but what I needed was a medication for nerve pain. So I started very slowly on a drug known as Elavil by it's brand name. You work up slowly. I didn't care much what the side effect would be at that point because life was pretty miserable like I was. So slowly as I built it up in my system the symptoms started to get better. This NP was a life saver for me for several years. I no longer have the symptoms and no longer need the medication but I took it for probably 15 years before I got brave enough to get off. I weaned very slowly over the course of a few years. I've never known a man with these symptoms and I think you are doing a big favor to others by talking about your experience. I hope the best for you soon.

Bless you Wayne. I hope you find relief soon. Thanks for all you do for us.

Thank you for the update, which you certainly do not owe your viewers. I wish I lived near you so I could be your apprentice to help with your brush side of the business. You seem like such a cool guy to work with/for. Best wishes on your healing!

Hi Wayne, I've been watching you on and off for several years and for starters, I'd like to say thank you for sharing even a bit of your story. I was diagnosed with IC/Painful Bladder Syndrome at 23 (I'll be 27 in a few months) and the whole experience was so isolating in the beginning and I felt like my life had been turned upside down. I eventually learned how to manage most of my symptoms with diet and lifestyle changes but I also understand where you're coming from when you talk about the mental connection. I also struggle with generalized anxiety and bipolar depression. My mood and anxiety levels can definitely cause a flare up and this has become a more common occurrence over the years. IC really varies from person to person so it's not unusual for you to be able to sleep with no problem, I typically sleep well unless I'm having a flare with frequency. There are some great websites, forums, books, cookbooks, etc. out there for those of us dealing with IC and I definitely encourage you to do as much research as you can. I know it's easy to overdo it and Google too much, but one thing IC has taught me is to be my own advocate. It took a lot of ER visits, multiple doctors and as stiff of an upper lip as I could keep before I was correctly diagnosed or even felt taken seriously. Sorry to ramble but I just want you to know that you are not alone and there are so many things that may help you. I lived almost symptom free for over a year thanks to minor diet changes and better managing my mental as well as all around physical health. Sending you lots of love and good thoughts! I hope you find what works for you! 💙

Thanks for up date glad to hear your getting a little comfort hope it gets better

Not sure if anti-anxiety drugs have been discussed in conjunction with the other new meds. Made a HUGE difference with my PBS. Worth a chat to the specialist maybe? I wish you the best xx

Thank you for sharing some of your story. I also have a hard time talking about or dealing with it. God bless you on your journey.

Having an autoimmune anything is exasperated ten fold by stress. I've had to cut a lot of people & things simply to be able to be awake during the day. I wish you the very best of health and hope your Urologist can help even more to get you to the best state you can be in. Much love, hugs and kisses 😘

I was diagnosed w I.C in 2005. 90% of your symptoms are very noticeable during the day. Unless you have a flare up ( which a tbls of baking soda in enough warm water to dissolve it is the only instant remedy to stop the flare up and the pain) will be noticeable during the day. The other things you should know is I.C goes hand in hand with stomach and digestive issues as well is directly affected by what you eat. It is also extremely rare for a man to have it and BC it's overall so rare, many people are wrongfully diagnosed for years before they are properly diagnosed. It's also not curable.

If there is anything I've learned from having IC is that each individual is affected differently and that friends and family have a steep learning curve. The pain can knock you off your game for days or can suddenly flare up just before a big family gathering. People with one auto immune frequently have others. Personally I have IC, IBS, and Fibro. Foods often trigger episodes (but different foods for differ people) as can stress, fatigue or alcohol or, yes, even sexual intercourse. I find riding in a car for more than a quick trip for errands to be difficult not only because of frequent stops but just the bumping (never thought our highways were rough until IC) causes flares. We can all give suggestions for supplements/tips and tricks but the truth is what works successfully for one person may not work at all for another. I will leave you with this. Be gentle with yourself and know that you are not alone.

Hi Wayne, love your brushes and videos. I have ic.....don't laugh, but 10 mg of generic Lexapro and I'm symptom free. I was on it for anxiety during my chemo for bc, went off it and boom symptoms reappeared. Back on it, symptom free.

I have similar issues trying to get a concrete diagnosis. I've had problems practically all of my life (20y/o now, earliest memory of problems from when I was 6). I've seen a lot of doctors, none of whom really understand what's going on. I feel my symptoms line up with IC but I also don't have any problems at night apart from the odd flare up being right before I decide to go to bed. Doctors seem to have discounted IC because 'I'm too young'. Thank you for making this video, Wayne, it's nice to be able to see that you're not the only person dealing with issues like this.

Thank you..My husband has been to so many urologists..finally when he reduced stress levels it was less painful. He is consult told by doctors it's prostatitis..nothing helped until he changed his lifestyle. You are correct..thank you

It's nice to know that I'm not alone when it comes to my IC diagnosis. Ive had to give up carbonated drinks, lemonade, & tea unless I want to suffer. Stress management makes a big difference too. I'm still hesitant to take medication because one of the side effects are patches of hair loss :/ best of luck to you!

Hi Wayne! I also have IC, and it most definitely is intensified by stress! Besides the bladder, it also effects the pelvic floor muscles, and muscles can contract due to stress. It also spreads to the ab and thigh muscles for me. Everyone experiences IC differently, so don't think that because your symptoms don't match up, you don't have it! I also don't get up at night to go to the bathroom. I'm a Diet Coke lover, like you. I still miss it four years later, but I feel much better without it. The diet works for me, as well as physical therapy and yoga to help relax those muscles. I love your brushes so much, Wayne! Please don't stop making them! I have a stressful, but rewarding, job too. I don't want to leave my job. I'm not going to let the IC win! Please use your platform to speak up about IC. If more people know about it, maybe it won't take all of us so long to get diagnosed. If you ever want to talk, please DM me. I know that it can be very hard to cope with this diagnoses. I've tried lots of medications, and I tend to prefer the holistic methods for managing the illness, though I do take hiprex now. I've recently cut down on sugar, and that seems to help with the inflammation, as well as the candida that can come along with IC. Wishing you the best! I hope you find a treatment plan that is right for you. ❤️

I think its important that a man is standing up and showing its an illness for men too.

hi Wayne, i don't have bladder issue but my ezcema spread everywhere and got really terrible and uncontrollable when i was in a really stressful, depressed state 2 years ago. i thought i can controll it like always and delayed treatment, and it just keep coming back. its been 2 years and now that my life is quite happy and stress free it finally starts healing better, having less flare up. stress really makes any condition worse our brain is that powerful! so stay positive, try to stay away from stress as much as poosible and hope you'll get better soon :)

Wayne...I am a wife of a husband who is in a constant state of stress and anxiety. He developed a malignant tumor on top of his kidney the size of a small football. He had to have his kidney removed as a result. Three years after his surgery he suffered a heart attack. Now he is faced with more stress, (all due to a divorce which by the way his kids are adults now), so he has constant GI problems that no one seems to be able to diagnose correctly. I believe in my heart that stress and anxiety will continue to make him sick. Please.....do yourself a favor..try to heal yourself mentally and emotionally. Don't be like my husband if you can help it. It is so painful to watch someone in such a state. I will pray for you to have peace. 🙏

Hi Wayne I'm glad to hear that you are on the journey to recovery. Take care and keep reducing stress it has so many impacts physically that we aren't always conscious of initially. Sending you lots of get better vibes 🙌🏻

Wayne, no advice, just lots of love and prayer for you! You are such a dear!

I can empathize with you Wayne. For years I suffered with "UTIs" which turned out to be IC, which took years to diagnose. Became deathly allergic to many antibiotics because of it. Eventually I took Elmiron and it got better but I still had bad times. What I realized, finally, 99% of it was being in a miserable marriage for 20 years. Psychologically I believe I used the UTIs/flares to be able to create distance from my ex (if that makes sense). As soon as the marriage was over, I haven't had a flare since--going on 6 years. You are wonderful. Do what you need to do to rest and relax. Even if that's a break from RU-vid. We will always be here waiting on you. xoxo

Cheers, Wayne. I, too suffer from bladder issues. Stress anxiety does often affect you in many ways -- none good, but often deadly. My issues are from a stroke in 2011. It's been epidemic for strokes among younger and younger people--both men and women--from stroke related issues. I'm trying to make it clear to everyone, that STRESS does kill--or leave disabilities in it's wake. What I was doing was to internationalize my stress--which felt like I was dealing with it. I wasn't. Your bladder issues, could well be your stress. Be careful people. I sound like a bearer of bad tidings. I'm just trying to make others aware of how deadly the effects of STRESS are. ❤️

I was just diagnosed with IC in March of this year and have been dealing with it for about five months. Recently started an anti-inflammatory diet in addition to my IC diet. Stress and anxiety definitely make my symptoms worse as well, and I don’t have symptoms at night either. I generally feel better in the morning and my symptoms get worse throughout the day as well. Thank you so much for the video, it helps to know I’m not alone.

Thank you for sharing this with us Wayne. I have never heard of IC until now! Best of luck!

Have you considered a metal detox? I have IC and after years of pain and pharmaceutical drugs and treatments that were miserable. I completed a detox with my doctor by company named desbio. It found relief after the detox and repeat it once a year.- it's such a relief to feel better and function normally. Also D Manose is an over the counter supplement it helps. I enjoy your work by the way and you lovely backdrop!

I have symptoms that you said. So my doc put me on neurotin or gabapentin. It has saved me . It helps with neuropathic pain, moods, depression, and it has been a life saver for me. It makes me thirsty so I drink a lot of water which seems to help my bladder issues. I stay focused and I'm not an aggravated raging bitch when I'm overwhelmed. Hope this helps. Stress is hard because it leads to depression. You need to hire some help honey. You need to take care of you first or everything else will fall apart. I've lived it. I ran myself into the ground in 2007 and it was a long journey back to health. Listen to your body. Get second opinions. Praying for you, love and hugs💫💫💫

Thanks for speaking up on this subject. I’ve been suffering for so long with a neurogenic bladder. I also believe it may be what you are talking about.

I've had IC for 20 years now. There's no rhyme or reason to it but stress does cause flare ups. Good luck!!💗

I was diagnosed with IC about 12 years ago. I had to adjust my diet substantially because there are so many things that intensify the discomfort of the condition. Stress can also intensify the discomfort levels too. If it is IC, after adjusting your diet and getting it under control with medication, you might be able to tolerate small amounts of carbonation from soda drinks as a treat from time to time. I gave up everything but coffee because I just could not picture a day without coffee. I have learned what I can tolerate and if I exceed that, I know I will pay the price. Sometimes it's worth it and sometimes it's not. I pray that they find what will get this in check for you whatever it is and that relief comes soon for you. God Bless

Wayne, I really feel for you. I have a very similar issue. Every time I get really stressed out my cystitis can come on within 15min and the pain is like nothing else I have experienced, excruciating . I usually then go to bed hoping to fall asleep as it always helps. Cannot explain why but as if you don't feel the pain while you are asleep. I hope you will find a cure soon x

I can relate sort of, I have Elthers Danlos Syndrome and when I become stressed or anxious my pain racks right up until I think I just want it to end no matter the cost!! Sometimes I think I am being punished I don't know what for but intense nerve shattering pain can make you think and do weird things! Wayne hun I think you need help, someone who can help with your stress and anxiety maybe start meditating it can really help calm the stress and anxiety your body and mind are dealing with and maybe think about hiring a p.a to help you with day to day things making phone calls and appointments etc I think you have so much going on and as brilliant as you are I think you need to let yourself be helped. Good luck Wayne and as always tfs hun xxx

I'm hoping you are on your way to feeling better Wayne!! Much ❤

Hi Wayne, you are in my thoughts. I have IC and take an antihistamine daily. Also, when I have a flare I get a bladder instillation at my urologist that usually calms things down. Stress definitely plays a role along with certain foods, like acidic and caffeinated ones (although I can't give up my coffee!). I hope things gets better for you soon and you get some answers. Take care.

Hi Wayne! I've watched your videos on the bladder discomfort and symptoms. There is a disorder called Dystonia, it can effect different parts of the body. Dystonia when sleeping, the symptoms disappear. Anxiety and stress can trigger Dystonia symptoms. The part of the in which effects, is not the issue. Symptoms occur because the signals in the brain instead of coming the normal controlled, now are flooding a muscle or muscles. As I stated earlier when sleeping all those symptoms disappear. The treatment for Dystonia are some oral meds like Klonopin, and also Botox injections. Botox was originally used only for Dystonia and other neurological disorders. It may be worth a discussion with your physician. I hope this information is helpful. Wishing you all the best and lots of love. ❤️ Suzanne

How did i miss this video?? Thank you for the update Wayne, cause i've be thinking of you and worrying about you. Wish you feel better and better. Love you.

My deepest sympathy Wayne. I can relate cuz I do have an overactive bladder and had surgery back in 1996. The thing that helps me is doing a parasite cleanse using diatomaceous earth. Followed up with probiotics. It helps immensely. Love and light

Thanks for sharing your update Wayne. I think you are very right to think that stress is a huge factor. It is well known that stress can cause flares of many chronic conditions. I have psoriatic arthritis and have had major flares during extreme stress. I had my last huge flare up after Hurricane Rita struck our town (I live in Louisiana). Keep being your own advocate with doctors and don't give up. Your internal feelings about what is going on with your body is usually correct. It's just a matter of finding the right physician to believe you and work with you to heal yourself (or at least manage your condition).

I'm so glad that some progress has been made with your symptoms and a possible diagnosis. I know my body so well that I know when something isn't quit right and I also know that mind, body, spirit all work together. So I know you will find the answers to your questions and will be able to finally be at peace with what's going on with you body and I believe that is when you will become symptom free.

Wayne I feel your pain. I have a couple of heart conditions that went undiagnosed for almost 10 years. No one could tell me what was wrong and I was told it was "all in your head". That was until I collapsed in the vicinity of a doctor. I'd been randomly collapsing for 15 to 18 years. She told me there was something definately wrong with my heart and I was taken to hospital. I finally had a diagnosis! 2 heart surgeries and a heart attack later and my symptoms are like night and day. I went from having daily debilitating symptoms to the odd dropped beat or pause. I can live with that :) keep persevering hun. You'll find out what it is eventually. I know it's disheartening and life impacting in the mean time bit we find ways to cope :) much Love! Xx

My favorite make-up artist have it too! I also had ureter syndrome at the beginning and I didn't have any thing at night. The the disease evoled and now I am full IC. I can touch my bladder through my belly and it BURNS. I can't sleep anymore. 😢 It took 2 years for me to go there

I was diagnosed 5 yrs ago with IC. What a major change that had brought about. I read so many labels now. I take Elmiron and OXYBUTYNIN for the bladder spasms so I'm not running to the bathroom every 5 mins. I'm considering Botox as an alternative to the Elmiron as it is expensive. Instills wreaked havoc on my bladder! I wish you so much luck! The diet stinks in the beginning but gets better. IC is different for everyone! How you react to one food/medicine/medical procedure will be different than someone else. Check out the national IC website and fb pages. It helps ❤

Stress affects you differently as you age. Unfortunately, most of the time, doctors can only diagnose clinically, not on an emotional level. Hope you figure it out & feel better soon!

Glad you're a little better .. The fact that it may partly be stress related is reassuring though and that's treatable .. Love you Wayne 😘

I am disabled by IC. It is not caused by stress, but exaserbated by stress. It is a breaking down of the bladder lining. Artificial colors and sweeteners are a big trigger for me. I wondered if flouride may be involved, but every sufferer seems to have different triggers. Years back, there were not a lot of subsets or types, now apparently mine would be considered subset 5, with the whole body symptoms- chronic fatigue, fibromyalgia, IBS, migraines, nocturia, etc... Mine began after a tick bite, and I have read that, in Canada, IC is recognized as a part of lyme disease, but were it not for knowing I had the tick bite, I would not have connected lyme to IC because for some reason doctors I saw in America seem clueless as to the cause.

I was diagnosed with Painful Bladder Sydrome/IC five years ago. I had a cystoscopy, Uro Dynamics and even exploratory surgery. At first when I was really flaring I was up all night with it but then I had to start taking Ativan at night to help me sleep and that gets rid of my symptoms all night. So I know it's related to nerves. I also got rid of alcohol, carbonated drinks, and eat Alkaline. However the big discovery this year is that I have Lyme disease! Which I never would have thought!!! I actually have Lyme and co-infections Bartonella and Babesia as well as EBV. And these are KNOWN to cause bladder issues!! My Lyme doctor says once I put them in remission the bladder issues will be gone. You have no idea how many people with Lyme have this till you join a support group

I have interstitial cystitis and have had it since I was 18 years old and I am now 44 years old.. I don't get up at night to go either... I take myrbetriq and sanctura and elmiron and narcotic pain meds... and yes stress does make a huge difference to your symptoms... so sorry to hear that you have this... I would not wish this disease on my worst enemy... I will tell you that over time and with less stress I have gotten so much better than I was at the beginning... I wonder if you have ever tried taking pyridium and seeing if that helps you at all??? It can be taken long term you just might want to find a urologist or doctor that would be willing to prescribe it... foods and drinks can affect your bladder and we are all different so different things affect us all differently ... it's a trial and error... but as soon as I saw this video title I subscribed!!! I want to thank you for talking about this and making a video about how this has affected you... I can't thank you enough for that... god bless you and I hope you find something that gives you relief soon... I take the max and sometimes double the doses of the myrbetriq and Sanctura when it is a bad day and I have done good on it.. I wish you the very best and thank you again so much...

Thank you for sharing your update. I've been hoping that you've been finding both answers & relief!

Hugs and love. I pray you find relief from this problem.

I was just diagnosed with fibromyalgia, which causes a lot of pain and is stress induced. I hope you are able to get relief from your disease. Hugs.

Wayne, stress is a HUGE part of IC! I'm mostly symptom free, but, when I get anxious or stressed, it will flare up. If I sit too much it will flare up. And like you, my symptoms aren't always in the bladder, but feel like urethra irritation. I take Cystoprotek and it has helped so much. Diet is important as well. Big hugs to you. You will find what works for you and get some relief, I have no doubt. Just try to be patient and not get too upset about it, because that will just make it worse. I will be thinking of you.

Thank you for speaking out- I have it too, if you haven’t tried Cystistat please do it’s tough but I now have my life back again I can go to uni. Please try it anyone if you haven’t.

It sounds like you've made progress in understanding about how stress affects your condition, that is great news! I imagine you are already looking into different kinds of stress management that could help not only that, but your whole body and mind health. I applaud you for bringing this up, even though it is uncomfortable for you to speak about, because I imagine that there are also other men who may find your video and feel as though they are not alone. Best wishes for your ongoing improvement! ❤

Will keep you in my prayers Wayne, that you will feel better soon. Thank you for all the wonderful makeup videos! I have learned so much from those videos!

Hi there, I agree that you should try EMDR or the 'next gen.' Treatment along these lines CMR. I am now in the 'processing phase' of CMR and it is really helping my anxiety. I feel so much for you. I love your videos and your brushes! Nothing, however, is worth making yourself ill for. Lots of love, James and Steph

Best wishes for a full and speedy recovery Wayne . Have you seen an endocrinologist? My painful bladder was related to previously undiagnosed kidney disease.

Feel for you man. I suffer from the same thing. OAB, PBS. Flared up a lot recently and I am waking up many times a night, as well as having a 24/7 constant urge to wee. All the best with curing yourself. Edit - stress is definitely a huge factor like you said.

I have only recently got a diagnosis for prostatitis. It gives me painful bladder, hips and back ( including rectum). Doctors have treating all these parts of my body individually for years, but one gland is causing the pain. If you have multiple symptoms like me, consider its prostatitis.

Glad you are feeling a bit better. I hope your doctor can help you. Sending positive thoughts.

So sorry you're suffering. Interstitial cystitis is a hard thing to treat. Where I live, the urologists sometimes instill chloropactin in the bladder for a short period of time (an hour or so) to help relieve the symptoms. I sincerely hop you find relief.