Thank you for your work to bring awareness to PANS/PANDAS. It is real and devastating. We had success with Plasmapheresis treatments and great help at AMEN Clinic for our son.
Fatjon Taullau I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
it is so weird looking at the comments on this video. just for the reason that I have never met another person face to face that also has pandas. It sometimes makes me feel like im alone in the world and that no one will ever understand what i am going through. So seeing these comments with other people expressing that they have it, honestly makes me feel a lot better. :)
OMG this is what I'm currently struggling with in regards to my daughter.....my heart goes out to every family and every person dealing and living with this horrible sickness....so sad watching ur child struggle and as a parent u can't fix it
His withdrawal phase sounds very reminiscent to Hikimori. People with PANS & PANDAS need monitors they can wear to regularly test their blood throughout their daily lives & send results immediately to emergency contacts, primary care physician, & the wearer’s smart device. Sort of like those wearable glucose monitors. This way, the6 wouldn’t have to wait for behavioral signs that the levels may be changing; don’t want any other PANS/PANDAS person to suddenly have supe4 elevated levels that get them killed before anyone has a chance to save them.
Wow what a testimony of answered prayer thank you Jesus, praying for more knowledge and permanent treatments in Jesus name. Praise God for researches seek and you shall find :)
I’m so thankful you’ve made this video of awareness. Your sons story almost mimics my sons. We’ve tested for all sorts of things and doing the cycle of meds with zero improvement. He’s now 20 and I’m blessed to have found your video. I wasn’t sure this could be it due to his age. I’ve found a pans dr and will hopefully see him next month and get answers/help. I’ve watched this a million times. Just wanted to say thank you and it’s gives me hope and increases my faith we can get his life back.
Out of all the stories ive watched and read, yours stands out because you spoke about praying for your son and behold, you found your answer. The Lord heals through prayer and I’m saddened that most families with this disease don’t consider praying for their child. We wrestle not flesh and blood but against principalities, against fallen angels. God bless your son. 🙏🏻
Wow! This video is very informative, you are doing a great job on explaining the symptoms etc. I am so sorry that your family is going through this and for the loss of your friend's son. Glad that you guys found the diagnosis and are bringing awareness to this disease. I came here from the ABC snippet on PANDAS, hopefully this will get more views. And congratulations to your son on starting college, that's wonderful. Take care.
Hello! Thank you for you’re article, I am a college student doing research on PANDAS and every bodies stories are so helpful! Hopefully we will find a full cure for this disorder
They need to be put on low doses of antibiotics for a year. They need to do cycles of 3 months on and 3 months off, otherwise the immunoglobulins therapy alone is of limited usefulness. This is how it is treated in Europe.
Thank you for this! My son Jace was diagnosed at 3 he is 4 now. He got sick at 2 and was not diagnosed untill a year later. He's been on antibiotics since October. We tried to take him off but he regressed. Can't afford ivig so we're completely at a loss.
Stacy Higginbotham In Canada treatment would be paid for! Nobody has to suffer or die because they don't have $$$. Stop believing what you are being told about healthcare & vote accordingly.
Stacy Higginbotham why dont u look forward for ivig treatment in other countries . Some countries have really cheap medical facilities . I am from india i m hearing abt this diseases first time . I dont know much abt treatment but india is cheap for Americans may u can find ivig treatment here
This family has been through HELL AND BACK. This vid doesn't begin to describe their intense suffering. Lesser men would have melted in a puddle on the floor or run away from their family by now. Many props to Jason for being a faithful and strong man of God; he made it through the crucible.
God bless all of your families. And for bringing this to light. I am struggling to find out what is going with my 4 year old and it fits these so close.
This is my family’s exact story. I’m blown away watching this video. Georgia needs to speed up their support for families like mine. Insurance covers none of the treatment in my state.
Thank You For sharing your Story. I being praying for an answer . Thank you I'm glad that your Son is doing better. My deep condolences goes to Max Family God Bless You All🙏❤️🙏
Years ago 3 people in my family had some kind of coughing illness. None went to doctor. It lasted longer than a cold. My younger sister was one of the 3 that had the cough. Within a few months or years my sister went on to have paranoid schizophrenia. She wasn't able to tell us when something changed in her brain.
Thank you so much for this video, this is our 16 year old son exactly and finding help in Arizona is just not working for us. We are trying very hard and our Immunologist is trying to treat but he is not an expert. I wanted to ask you a few questions do you have a website or a contact that I could ask you a few questions. We will do anything to save our son and refuse any other psychiatric treatment centers. We need help and feel so desperate.
Thanks for sharing. My son started with symptoms at 13 and was diagnosed with Tourettes and due to his OCD he was bullied at school and having to be schooled at home. His OCD got bad at 16-17 controlling food intake and had gotten so thin he would pass out. Praise God he’s doing better even though OCD is there with hand washing and bathroom visits for 2 hours, but he’s been able to complete high school and now online computer courses. People need to know PANS and PANDAS is real. A psychologist was the one who diagnosed him, but no available treatment in Spain, it is unknown here too. Awareness is essential!!!
@@conniegonzalez7797 oh wow Im great he is doing good so far like you said some OCD the only issue I have now is that she was recently positive for strep no symptoms yet but I’m worry
Yesterday I told my daughter about Pandas, and she didn't believe it. Today after reading about the "Girl Who Couldn't Stop Sneezing", she believes. I'm glad we know, because she thought she was to blame for the (depression, anxiety, and rage) exhibited by her daughter. We thought it was hormones /ADHD, until she started talking about wanting to die and running away. She is also hard to reason with. We both have medical backgrounds, and are herbalists. The blood purifiers seem to be helping, but traditionally, Amoxicillin sounds right to me as well. An immunologist is using gamma globulin which seems to work as well and seems to be helping some young people.
Hello, I am just learning about this disease and all symptoms seems to fit my 7 yr old daughter and I leave in Arkansas as well. I am trying to contact several doctors to see if they are aware of it to help with my daughters issues.
Amber Loft yes because that is usually when it’s acquired. My daughter was 8. They don’t get automatically cured when they turn 18. My daughter is now 19 and still struggling.
My sister has PANDAS and I don’t know what to do. If anyone else has a sibling with PANDAS just let me know. Please. I know this is such a hard thing to go thru. I know. I’m young, so I won’t use the scientific stuff. Somehow PANDAS makes her crazy and she screams such hateful stuff. I know she can’t help it. Someone just talk to me. Please
Please try Anti parasites Seems to work with someone with schizophrenia symptoms which is similar My loved one has episode every month after more than six months almost normal but not yet cured
Did this family make this video? If anyone knows how to get in touch with The Puckett family please message me. We are going through something very similar with our 15 year old son. It is horrific and we need to talk to someone who has made it through. Please HELP.
My daughter is having horrible pans symptoms. I'm having a hard time finding someone to treat her. Do u have resources as to who I can take her to? We feel so helpless
This is a medical issue not a psychiatric one. The doctors HAVE TO help you. They can’t turn you away. Keep at it. Keep making appointments. Show them video of tantrums. Provide them with info on PANDAS. Demand treatment. It’s your right.
I’m 29 I had it since 15. Check for infections if there is no infection make sure they change there diet to a anti inflammatory diet I thought it was just strep but we found out stomach problems can flare me an other pandas people to. Once the inflammation is down I can recover
when i was 5 and had pandas bad, they put me on Penicillin for a year or 2 and also got therapy and it helped with my ticks and ocd. also healthy diet and exercise helps. Certain vitamins like probiotic or B12 can help. There is some specialists out there if you have the money.
@@dignal8399 Much better than when I was a kid but being a member of society is hard and forming intimate relationships is hard. It’s hard not to take drugs or alcohol but i’m trying.
Most patients develop Strep Throat days after their Vaccine the a month later got Pandas/Pans syndrome. To me, the medical industry just came up with a new name for the more severe Autism, Tourettes and OCD caused by their vaccines
So why is no one making the connection between auto-immune neurological disorders in children and adolescents and the increased vaccine schedules. This is something that now effects as many as one in every two hundred children. Just like the numbers of autism cases has steadily increased over the past two decades. This has to be something that has changed in the environment that directly effects children and early teens.
