I was diagnosed with YOPD in 2013 when I was 38. My mom was just diagnosed in March of 2022. Parkinson's For Two, me first, and then my mom. Here is an introduction to my sweet mom and our Parkinson's story.
You’re Mom is an absolute delight! I love the way you both affirm each other. I really appreciate her going out of her comfort zone to make this video with you and now I’m going share it with my Mom too.
Awe thank you!! I appreciate her going out of her comfort zone too....and am happy to say that she loves it!! Especially the woo hoo during the applause, it makes her laugh :)
What a wonderful video this is, Jennifer!! As painful as it is to know that your Mom has developed Parkinson's too, what a blessing you are and will continue to be to her as you affirm and encourage one another moving forward. I recently learned that my aunt was diagnosed with Parkinson's 6 years ago and she has reached out to me, offering wisdom gained through her experiences and encouragement to face each new day. I so appreciate your videos as you discuss symptoms, frustrations, and solutions that no one else has mentioned before. Your kindness and compassion shines through in every way!!
Thank you Jeannine!! It is painful that my mom has PD too, but it is a blessing for both of us that we have each other. My PD friends have been so immensely helpful and they have taught me so much! Not sure if you have found a good support group or have made friends with others with PD but that is my one regret....I wished that I had reached out to the PD community sooner, but better late than never :) Thank you so much for your kind words!!
Awwww, you two are adorable! You're mom did a great job....she's a natural like her daughter. :-) I rarely ever write, but my typing slowed down in my left hand. I'm so grateful for the meds cause it allows me to type fast again.
Thank you!!! She did a great job and was surprised by how much she loves it 🥰 I love typing fast when I’m on…think like piano, typing is good for the brain! In high school I took a “keyboarding” class! So funny!
Oh my gosh, your mom is so cute and you guys are great together. I’m so glad you have this. Mom did make me cry when she got emotional but I loved how sweet you were to each other.
So if the meds work , it 100% PD ? I am confused , my DR ordered a DATSCAN , came back negitive for PD or LBD . But through my research datscan is only 60% right ( like flipping a coin or 2 men's different opinion ) . My 2nd neurologist is wishy washy with words . Says I don't have but might have it and he can't tell . Go back in 6 week to only discuss movement disorder symptoms solely . I want to celebrate and also have remorse for me believing 1st neurologist and telling family and friends . Have had no one believe me including family ( so I feel like a fool ) . I will still support the PD channels I have e connected with ( all great people ) . That bakery must be something else . My great grand parents had a bakery back in the day in Laguna ( my granny would tell me about the stars that was customers back then ) . Merry Christmas , Happy Holidays to you 2
Hi Jerry!! I am not sure anything with PD is 100% and my understanding of the Levodopa test is that how you respond to it along with all of the other clinical observations that have been made are used together to confirm a diagnosis. It is also my understand that people who don't have PD will not respond to Carbidopa Levodopa therapy. Check this article out.... parkinsonsnewstoday.com/parkinsons-disease-tests-diagnosis/levodopa-test/
For some the diagnosis is easier than others but I do hope you finally get down to it once and for all. I wish that I had believed my first neurologist because the second one told me I had a stress induced tremor. But then I was like ok then why can't I wiggle my toes? My wanting a second opinion through me for a longer loop than was necessary, but I finally agreed that it was indeed PD. The bakery is amazing!! And I love pastries and my mom and I were happy to get a box of goodies :) Merry Christmas to you too!!
Thanks for sharing the link , I just feel I have had the run around , have done MRI I'm March ( was good ) and then datscan before turkey day ( was also good ) . I hope it's not ET because Dr has indicated meds for it are bad ( which leads me to think , he won't prescribe ) . What a emotional journey this has been . Want to push TMS therapy on me ( I have a shock device for fibromyalgia that is similar to TMS , mentioned the alternative fisher Wallace stimulator . If I do not have PD I have learned empathy for others for sure . People I know are so offensive when you just want them to understand , I have had fibromyalgia for 10 years and no one believes it either . Thanks for you and your mom sharing your personal experiences .
