Parkinson's personality and identity changes

Подписаться 5 тыс.

Просмотров 1,2 тыс.

50% 1

Things in life are changing and evolving all the time, and sometimes it is extremely difficult to keep up with those changes. Today we look at those changes and look for ways to try and keep up.
Check out our website! - lifewithparkinsons.ca/
Connect with us on Facebook - / davidslifewithparkinsons
I've included some helpful links in the video description.
NexStride - the award winning mobility device built for people with Parkinson's. Use the code to save 10% off your order and support Life with Parkinson's indirectly. USA only.
yes.getnexstride.com/discount...
If you're in need of some comfortable bedding to help you stay mobile in bed, check out Comfort Linen: comfortlinen.com/lifewithpark... They offer high-quality, affordable friction reducing sleep system that's perfect for anyone living with Parkinson's.
Additionally, if you're looking for some high-quality Red Light Therapy products, take a look at Rouge Care: rougecare.ca/?ref=LifewithPar...
If you're interested in finding out more about Kizik shoes, check out my affiliate link: kizik.sjv.io/75mGRO These shoes are a game-changer for anyone living with mobility challenges.
For all of your aches, pains, and strains of Parkinson's Disease, BraceAbility is there to help you. With their dedication to quality, as well as quick worldwide shipping options, you don't need to worry about getting your order on time.
www.anrdoezrs.net/click-10106...
VILIM ball is a state-of-the-art non-invasive handheld medical therapeutic device providing neuromodulation therapy and able to temporarily reduce hand tremor. It is the first and the only one CE0197 marked medical class 2a therapeutic device for hand tremor reduction. Use promo code LWP50 to save $50 EUR on your order.
vilimed.com/shop/
A FOOTWEAR SOLUTION
If you are looking for a new way to do shoes check out the link below. I will be testing these out in the near future and will let you know what I find. I am grateful for the opportunity to share this product with you. Thank you for using the link below to indirectly support this website and RU-vid channel.
kizik.sjv.io/75mGRO
Reship is a global shipping company that takes care of all the hassles related to cross border shopping. Ship to yourself in the country you are shopping in such as Canada, The United States, or the UK, then ship your package, or your consolidated packages to almost anywhere in the world. Save on hassles, and save on shipping. Check out a free membership account with Reship today.
www.tkqlhce.com/click-1010612...

Опубликовано:

24 май 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 57

@JohnMcCreery 2 месяца назад

Great video. As a late-onset PD person I am both appalled and inspired by the videos created by you and other YOPD RU-vidrs. To me PD feels like accelerated aging. stiffness, fatigue, brain fog-pre-diagnosis I just thought I was getting old. Now I have PD to think about and a whole lot of other folks, like Dave, to inspire me.

@LifewithParkinsons 2 месяца назад

Hi John, thanks for the encouraging comment. We are glad and thankful to share our journey with you. I look forward to your thoughts each week.😊😁😀

@GoProGoalieUzi Месяц назад

Long time friend. Good topic. Keep the battle going!! ❤

@toryberch 2 месяца назад

Hey David 👋🧑👋 I totally get it! I have that same feeling too and have actually had it now 2 yrs but didn't know what my problem was. I just knew I felt beyond Meh' blah the apathy kicked in without me knowing. It was like I wasn't me anymore. I had no joy nada zip. Then one day last May I found real joy again it was in the reborn doll community. Binky's and Blankey's channel started at that time and over a thousand subscribers later it's still a happy place. Will this fade I don't know but for now there's life again outside of Parkinson's for me 😊

@LifewithParkinsons 2 месяца назад

Hey Tory, so glad you are getting involved in something you enjoy, that is a good thing. I hope you carries you forward for a good length of time. That's good news!😊😁😀

@adawehi55 2 месяца назад

Thank you, David. My diagnosis was years in the making. I feel like I am me, but not the old me. Apathy and agitation were not part of my original personality. As a former teacher and retired (early) therapist, I never expected the difficulty I have talking with people. Self-isolation began in 2013. Diagnosis in 2022.

@LifewithParkinsons 2 месяца назад

Hi Karen, yes, years of self isolation must be a heavy burden to carry. I hope you are able to get out a little bit at least. Thank you for sharing a bit of your joureny.😊😁😀

@joshuabriggs7114 Месяц назад

I was diagnosed 6 weeks ago and I'm really struggling with my new identity; thank you so much for putting into words the nature of that struggle! I am given hope by all of you PD sufferers who seem to have found acceptance and perhaps even optimism.

@LifewithParkinsons Месяц назад

Hi Joshua, sorry to hear about your recent diagnosis, but at the same time glad you found this channel. If you have any questions please let me know. Thanks for saying hello.😊😁😀

@davidbarrett8348 Месяц назад

Dave, my heart goes out to you. After all the never ending analyses, what will really turn your PD around is Hashem, Torah, prayer, repentance, and acts of kindness; a whole foods diet, moderate exercise, and proper sleep will also expedite the healing. 🙏🏻

@LifewithParkinsons Месяц назад

Thank you David for your kind words and encouragement.😊😊😁😀

@davidgay6685 Месяц назад

Well said Big Dave. Really enjoyed and appreciated your insight and willingness to share your journey with others. 🌞👍

@LifewithParkinsons Месяц назад

Thanks Little Dave! Good to hear from you😊😀😁

@tomrio9914 Месяц назад

Thanks Dave, every day is a new beginning . It is human nature to blame others for our challenges. My idiosyncrasies and shortcomings now have a name and address its PD. The fact is my grandmother and her brother were diagnosed with PD before medications were introduced. They both lived to ripe old ages. For years my doctor was very aware of the distinct symptoms I was having. I had no tremor. I did have lots of pain, stress and anxiety. All attributed to a less than ideal work situation. I was even told I did not have PD yet. I retired and continued being active. After being tested for MS and just about everything else. I was sent to a Neurologist in ten minutes I had a name for what I have had all along. It is an ever growing big club. Luckily science is on our side. Now hopefully the US government officials will allocate moneys for more intense research. Keep up your great efforts. Thanks again!

@LifewithParkinsons Месяц назад

Thanks Tom. Wow, I could not imagine living without PD medication. That had to be quite a challenge. Hat's off to all of the people who managed that. Glad, after all of these years, you have your answer.😊😁😀

@LifewithParkinsons Месяц назад

Wow, living with PD but no medications. For the people who survived through those times, I take my hat off to them. Tough cookies for sure. Glad after all of these years that you have a diagnosis.😊😁😀

@SDWP Месяц назад

Great topic!

@LifewithParkinsons Месяц назад

Thanks Michele!😊😁😀

@rolsinski1 2 месяца назад

Your videos help me a lot to understand my frustation as a care giver for my wife's PD, specially your segment on on and off times.

@LifewithParkinsons 2 месяца назад

So glad to hear the videos are helpful. Thank you!😊😁😀

@user-fc9wy6zj8v 2 месяца назад

Thank you so so much for this and all of the videos that you do because it is so very helpful to me and I am sure so many others with PD. I am very recently diagnosed at age 52 yr old female. Although I have just a slight tremor, the majority of my symptoms are quite classic. I’ve been more educated from your videos than I have from my neurologist and that’s the truth!! Thank you so much David!!

@LifewithParkinsons 2 месяца назад

Hello. Sorry to hear about your diagnosis of Parkinson's disease but I am also glad that you found this channel. Thank you for your kind words and encouragement it is my goal to get at least 1,000 videos of good quality made on this channel. I hope there is more research also done to help women with Parkinson's as the research is very one-sided unfortunately. Thank you for saying hello. 😃😊😀

@LiberaTeTutemetExInferis 2 месяца назад

For someone like me who has just been diagnosed, your channel is fantastic, even though I have suspected it for years, the actual sentence is hard to take, in my early 50s, endurance sports fanatic, the earthquake shattered my world, watching your channel brings me hope and for this I thank you. My personality has changed considerably over the last few years, pre diagnosis, I don't know if this is common, everybody seems different, it is like Parkinson is in fact a large range of diseases with as many profiles as sufferers. I went from very introverted, socially inept, to open and even find myself enjoying socializing which 10 years ago would have been pure torture....

@LifewithParkinsons 2 месяца назад

Hello, everyone seems to have a different experience with PD, but I believe we all struggle with the annoying non motor symptoms from time to time. The diagnosis can be earth shattering for some, like it was for me and you. Not being able to take part in activities I used to enjoy is still difficult to deal with. Gotta keep going, it's the only life I've got.😊😁😀

@newworld6474 2 месяца назад

Thanks

@LifewithParkinsons 2 месяца назад

No problem😊😁😀

@newworld6474 2 месяца назад

@@LifewithParkinsons I take 1 1/2 levo pills around 5 times a day plus around 2 1/2 pills scattered around before sleep , during sleep(bathroom break) and if get up early... would you be similar?

@erinnoel4306 2 месяца назад

Great video as always David thank you.

@LifewithParkinsons 2 месяца назад

Thank you Erin.😊😁😀

@JeremyMcdonald 2 месяца назад

I completely relate to this video! Thx, David!!

@LifewithParkinsons 2 месяца назад

No problem!😊😁😀

@evied.4475 2 месяца назад

I think your videos are very helpful.

@LifewithParkinsons 2 месяца назад

Hi Evie, thank you for your kind words.😁😀😊

@Michael-he7xn 5 дней назад

Great thoughtful video David. PD is such a complicated beast to deal with. 14 years since Dx, about 7 years preamble, widowed 8 years ago, DBS 6 years ago. Still struggling with the “new me”, second guessing everything and trying to find purpose in this mess. It’s a waste of time but I kinda liked the “old me”.

@LifewithParkinsons 5 дней назад

Michael, I kinda liked the old me as well. Love that thought. It is very difficult to find a purpose in this mess of life I know. But there must be something in the old you that you enjoyed doing. Thank you for sharing your journey, appreciate it.😊😁😀

@Michael-he7xn 4 дня назад

Thanks David. There’s no shortage of stuff to do. Just need to wade my way through the clutter in my head, exercise helps and the PD community is tops.

@troopergray 2 месяца назад

Very good. Thank you.

@LifewithParkinsons 2 месяца назад

Thank you too!😊😁😀

@LifewithParkinsons 2 месяца назад

Our pleasure!

@aalliaandreadis5109 2 месяца назад

❤

@LifewithParkinsons 2 месяца назад

Thank you😊😁😀

@mstramgrampiketpiketcolegram 2 месяца назад

thank you for sharing ッ

@LifewithParkinsons 2 месяца назад

You are most welcome!😊😁😀

@TOMMYSURIA 2 месяца назад

Still got no clue what my new identity is 4 or 5 years in.🙃

@LifewithParkinsons 2 месяца назад

Hi Tommy, yes I understand where you are coming from with that. I hope you can find something to do that you enjoy, I really do.😊😁😀

@danacaro-herman3530 2 месяца назад

David, my husband was just diagnosed with Parkinson's disease a few months ago. Although he's had it for quite sometime. His personality has changed due to apathy. He takes no meds but does physical therapy. The fatigue is real. Vigorous exercise helps him, he has severe neurogenic bladder. This is a very difficult disease

@LifewithParkinsons 2 месяца назад

Hi Dana, I am sorry to hear that your husband was diagnosed with Parkinson's disease but at the same time I am glad that you found this channel. I am curious as to why he is not medication has he not been prescribed any?😃😀😊

@danacaro-herman3530 2 месяца назад

@@LifewithParkinsons We adamantly refused medication. We were also encouraged by a few of my husband's specialists to keep off of meds for as long as possible. I'm an RN and have treated Parkinson's patients. We're working hard to keep Mark from progressing by vigorous exercise and physical therapy. Mark has no tremor but he has other bothersome symptoms such as bradykinesia and stiffness. He's doing fairly well thus far, but IT'S WORK!! Doing supplements as well, NO VACCINES WHATSOEVER. Many are being newly diagnosed after the "C" shots. We know they are👎

@LifewithParkinsons 2 месяца назад

@@danacaro-herman3530 Hi Dana, it is so much work. I have similar symptoms to your husband, I basically have little or no tremor. It sounds like he has an excellent caregiver who knows a lot about PD. Looking forward to hearing more of your story.

@danacaro-herman3530 2 месяца назад

@@LifewithParkinsons Thank you, the next thing we must work on is diet. I want our diet to be very similar to yours, however Mark was a runner for over forty years and it's very difficult to keep weight on him

@rosered9029 2 месяца назад

I observe that the wind outside is strong. The trees are bending. The leaves are new: they move with the wind, their form subject to the will of the other...🌬🍃🥀 We are ALL born...to die. "I die daily..." "To live, I need to die." These are the words of courageous souls who discovered that much of life is...oxymoronish. Life is weird, and dying is a mystery, known only to those who experience what we cannot understand. My hubs dipped into a new low that finally made my eyes pop and my heart freeze🧊 I watched his long limbs move oddly, as in suspended animation. His brain sagged, yet willed a connection between it and a body that could not hear him. This was a profound moment, different from those I witnessed as dyskenesia or dopamine lows. He recouperated, but it took a bit longer for me this time...

@LifewithParkinsons 2 месяца назад

Hi Rose, so sorry that you and your hubs have to go through this. It is heart wrenching for those on the outside, as for those on the inside. So glad he has you to care for him. I heard this line on a show a little while ago, I thought you might like it. "A flower is only a flower, because it falls." 😊😁😀

@rosered9029 2 месяца назад

@@LifewithParkinsons Hmmm, that quote... I tried to think deeply, feel deeply, dig deeply...it just AIN'T happening, Dave! That's sooo nonsensical that you really helped me squeeze out a GIGGLE😆😂🙃🤣. Btw, the weird thing about that difficult day, is that he's had some way-better days since then, for which I am profoundly grateful!! Hugs to you and yours((💔❤️‍🩹))

@LifewithParkinsons 2 месяца назад

@@rosered9029 the quote was on an episode of Shogun on the Disney plus channel 😀. Glad your husband has had some better days

@aalliaandreadis5109 2 месяца назад

I think it's time we acknowledge that too many have gotten Parkinson's from "safe and effective". Not just the latest version but all of them especially the flu shot. My best friend's mum got it after the latest and the brother of a friend of mine from a flu shot years ago. People in their twenties now have it.

@LifewithParkinsons Месяц назад

That is definitely something that should be looked into 😀😃😊

@aalliaandreadis5109 Месяц назад

@@LifewithParkinsons 🙏🌹