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Parotid Salivary Gland Tumor: Jubenal's Story 

Johns Hopkins Medicine
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After discovering a lump in his neck that was diagnosed as a malignant parotid gland tumor, Jubenal, a Connecticut-based firefighter and paramedic, traveled to Baltimore to seek help from head and neck surgeon David Eisele. Visit www.hopkinsmedi.... For appointments, Maryland residents should call 443-997-6467, and out-of-state residents should contact 1-855-884-6754.

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6 окт 2024

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Комментарии : 167   
@carlstroter3805
@carlstroter3805 3 года назад
I'm a paratoid cancer survivor as well. Was diagnosed on my birthday March 6th of 2020. Had my surgery in April of 2020. For my Bday this year I'm gonna tell my story. God bless
@mariomessiah8862
@mariomessiah8862 3 года назад
Hope all is well 💜
@ookipuki
@ookipuki 3 года назад
Are you ok? I love you friend. You are brave
@carlstroter3805
@carlstroter3805 3 года назад
I'm great thanks for asking.
@preminaidoo8229
@preminaidoo8229 Год назад
Did you have radiation My son had the tumour removed...however his facial nerve was cut and has impacted his face severely. He is now preparing for removal.of teeth and radiation
@Anita20PeAce
@Anita20PeAce 9 месяцев назад
Can you tell me please the symptoms? Thank you
@MrDmarciniak
@MrDmarciniak 5 лет назад
Just had a biopsy yesterday of a pair of lumps in my left parotid gland. I’m hopeful that the results are benign.
@KrysDlite
@KrysDlite 5 лет назад
David Marciniak What ever came of the biopsy result? Would love to know and hope you’re doing well. 💜
@drekavacx5673
@drekavacx5673 4 года назад
KrysDlite these comments with no followups kill me
@unitor699industries
@unitor699industries 4 года назад
@@drekavacx5673 guys are you oke?
@KitchenTime322
@KitchenTime322 6 месяцев назад
Can biopsies only be done if the lump has a liquid or also if it is a hard bump
@MrDmarciniak
@MrDmarciniak 6 месяцев назад
@@KrysDlite the tumors were a pleomorphic adenoma, benign, had them removed surgically along with about half of my pareticd glands and all is well!
@ebb.D
@ebb.D 6 месяцев назад
My brother got diagnosed today. He is very scared. I am gutted for him. My ❤breaks
@markkesler6278
@markkesler6278 5 лет назад
I just wanted everyone to know that I had my parotid gland removed almost a year ago and while it was of course scary (first time I had ever had surgery), and recovery is still ongoing, it was worth getting done because it will not go away....I waited a year after finding it and it more than doubled in size in that time. Perhaps it would not have been as large a scar otherwise. Pluck up the courage and just get it done. The post-operative pain was not that bad (3-4 out of 10) and controllable with drugs.
@agf1700
@agf1700 5 лет назад
@Mark Kesler Just diagnosed with a parotid tumour and scheduled to have the complete gland removed. Can you tell me did you have facial nerve paralysis for a time after the surgery? My specialist has told me to expect that for a time after surgery.
@markkesler6278
@markkesler6278 5 лет назад
No I did not have any facial nerve damage although I still don’t have any feeling in my lower ear. The surgeons are quite aware that the facial nerve runs through the gland and will do everything possible to minimize injuring it. Best wishes...you are doing the right thing by getting it taken care of
@mochipeachie6902
@mochipeachie6902 2 года назад
Hi i hope you're doing well...i just got diagnosed with parotid tumor...I'm so scare of the thoughts of surgery... because of the facial nerves are included ,I'm contemplating with the decision of getting the surgery or not...i hope you're doing well..your comments really give me hopes and make me feel at ease..
@radityasuarditanjung7680
@radityasuarditanjung7680 2 года назад
@@mochipeachie6902 how did you discovered that you have it?? i have a hard lump on my submandibular gland and im really scared right now
@mochipeachie6902
@mochipeachie6902 2 года назад
@@radityasuarditanjung7680 i went to the clinic,and tell the doctor that I have a hard lump under ear..they get through your symptoms first then the doctor refer me to an ENT doctor.. then the doctor schedule an appointment for me with ENT specialists...the first thing they did to me is taking a sample ,FNAC test (a fine needle inserted into the lump to take the inside of it...it's not that hurts don't worry..u should get yourself checked too the early the better
@bulandsiddiqi5569
@bulandsiddiqi5569 5 лет назад
I am 60 years old male and had been diagnosed having “Low Grade Mucoepidermoid Carcinoma in my left Parotid Gland. The very first thing I did to find a surgeon who is expert in Parotid Gland Surgery and can safe my facial nerves if possible. Luckily I found one and surgery went very well. Hospitalised for only 2 days and recovery was made in 10 days. Tumour was removed completely but due to tight margins the surgeon advised for Radio Therapy to avoid reoccurrence. I have gone through 33 sessions (5 sessions per week) of Radio Therapy (RT). This period of 2 months was Most difficult time of my life while having a severe after affects like reduction of Saliva, loss of taste buds, swelling of throat , gums and tongue, loss beard’s hair and head’s hairs, swelling of ear and inflammation inside the ear. Part of the face and neck skin become like first degree burnt. The worst part was that slowly I had to switch to liquid diet which resulted weight loss. I am recovering now from the after affects and my taste buds have slightly improved even after 4 weeks from RT. I hope it may take further 2 more weeks for normal recovery.
@unitor699industries
@unitor699industries 4 года назад
are you oke now?
@bulandsiddiqi5569
@bulandsiddiqi5569 4 года назад
@@unitor699industries Yes. I am well and recovered but still have some permanent issues.
@unitor699industries
@unitor699industries 4 года назад
​@@bulandsiddiqi5569 i am shaking i am really scared i have not slept for 2 days because the side of my neck is burns when i touch it and it is hard when you touch it
@bulandsiddiqi5569
@bulandsiddiqi5569 4 года назад
@@unitor699industries I believe your skin is burning after radiation? Is your radiation completed and what kind of cream you are applying?
@unitor699industries
@unitor699industries 4 года назад
Buland Siddiqi no did not go to doctor at all i am scared to go i have a little swollen below ear but it doesn’t hurt, can it be bacterial infection?
@l.m2994
@l.m2994 8 лет назад
My oldest child had Acinic Cell Carcinoma, of the salivary gland, much like what this guy had it sounds like. She was diagnosed with stage III 3 years ago. Had radical surgery, with multiple lymph node removal, not to mention tissue and muscle removed from her left jaw/neck area. She then had 30 days of radiation treatment, which the doctors admitted would not decrease her chance of re-occurrence by even 1%. She opted for the radiation because she has 2 babies to raise, and wanted as much in her corner as she could get. Even after that, she has been given an 85% chance of re-occurrence within 5 years. We called all over the country trying to find a place that had done any trials/treatment of this cancer. We could not find any, we were informed that it is a fairly rare cancer, especially in a woman in her 30's.
@normadodd4821
@normadodd4821 6 лет назад
L. M 7
@collinkennemore5788
@collinkennemore5788 6 лет назад
Hi after reading ur story abut ur daughter having staged 3 & made me think abut my mom she's been dealing with this pain along from the ear, jaw line & in2 part of her neck for quite some time now & also has a hard lump & she couldn't get much help through a oral surgeon & wasn't treated right & they just blown her off without any concerns. she's now planning to see ENT abut this because she has this thickness drainage & some swelling noise & has some pain in the throat & fuild in the ears along with the other symptoms. idk if these are the same symptoms ur daughter has had but if you could help by giving some intell on this sgc i would be so thankful!
@sudeeptalapatra3982
@sudeeptalapatra3982 9 месяцев назад
​@@collinkennemore5788 hi Collin, it would be great help for me if you provide some details regarding her diagnosis and if possible a brief note on your story....😊
@natalielear4902
@natalielear4902 5 лет назад
My 15 year old daughter had this same diagnosis last year. Pleased to say surgery removed the entire cancer.
@subudas937
@subudas937 5 лет назад
It happens in teenager??
@backcountrytundra
@backcountrytundra 4 года назад
Natalie , great news. How long was it between detection and surgery ? Thank you. My cat scan revealed a mass on my left parotid. Heading for biopsy next week.
@natalielear4902
@natalielear4902 4 года назад
@@backcountrytundra once they determined it was cancer and not benign, it was literally about 10 days til surgery to remove it. Had regular checks every six months since and no signs of it coming back.
@ty8473
@ty8473 3 года назад
@@natalielear4902 did ur daughter have tinnitus in the affected ear near the gland? i am worried i have this problem :( im only 21 and nervous about it i cant figure out what else would be causing the tinnitus, it gets worse when flexing jaw area only ringing in the one ear with some popping noises when moving my head like clicking in the ear almost...
@natalielear4902
@natalielear4902 3 года назад
@@ty8473 not at all, she was completely symptom free. The cancer was only discovered because she had a CT scan for sinusitis. At first they thought it was a pleomorphic adenoma, but the biopsy came back as an acinic cell carcinoma. 99.99% of these come back benign, she was just unlucky.
@viyau
@viyau 8 лет назад
much success to him.
@lazy_reader9468
@lazy_reader9468 3 года назад
I had my first CT and have the lump for 4 months, nervous about the upcoming appointment with my ENT day after tomorrow. I also have swollen cheek, temple and head pain .. worried if it is close to facial nerves 😞
@N16-u8t
@N16-u8t 2 года назад
How are u now?? I hope its not tumor :(
@reemrahim4225
@reemrahim4225 3 года назад
My surgery was done on 25 November 2020. I'm on recovery process.. THERE is numbness on surgery side....But It's improving
@NKofman
@NKofman 3 года назад
guys i have had a lump aswell and it grew a bit since last year, i did the scans the doctor said it is a 'benign lymphoepithelial cyst of parotid gland'. Multiple doctors said it was not cancer, but still said need operation. But they want to wait a couple months to see the evolution in size. What do you guys think about it? i'm freaking out about it since i discovered the diagnosis.
@pattimercer9357
@pattimercer9357 2 года назад
Call Osborne Head and Neck Institute in California!!! The best of the best!!
@N16-u8t
@N16-u8t 2 года назад
How are u now? I have the same issue and doctor made ultrasound and blood tests and said that its not cancer ! But its getting bigger ! Im very worried
@NKofman
@NKofman 2 года назад
@@N16-u8t hello, a doctor did a comparison 6 month after and said that it didn't grow in size, and need to do a new scan one year later. he said as long as it stays the same size its not dangerous
@roxannepearls901
@roxannepearls901 Год назад
Have it out now! I waited a year for every excuse I could come up with. All I accomplished was to need an extra two hours under the knife to get it out, now have a very noticeable divot on one side of my face, and an ear that is totally numb up to the very top. Lab work indicated that it was not going to be long before it went malignant. Do not wait until it gets bigger because they always do.
@NKofman
@NKofman Год назад
@@roxannepearls901 after one year they re did the scan and said it didn't move at all, still not cancer and that is has nothing to do with cancer... I have to check every year to see if it's growing. Did your doctor say that if you had it removed before it would of not turned malignant?
@pattimercer9357
@pattimercer9357 2 года назад
Osborne Head and Neck Institute in California. Look them up!
@ookipuki
@ookipuki 3 года назад
I don't want to lose my nerves💔 i have a lump in same spot and i didn't get checked yet.
@compassion333
@compassion333 3 года назад
Did you get it checked?
@ookipuki
@ookipuki 3 года назад
@@compassion333 i got it x-rayed almost right away... they said it was a "bony mass" ... it's not bone. .. year later I'm having strange symptoms and its hurting me. I'm getting it checked again on the 22nd September...
@N16-u8t
@N16-u8t 2 года назад
@@ookipuki how are you now😞
@rd0303.
@rd0303. 5 месяцев назад
@@ookipukihow are you now
@mrlatnemis1849
@mrlatnemis1849 5 лет назад
I have a lump on my parotid gland my lymph nodes are swollen in my neck as well. I'm going to go see a a dr this weekend. I'm nervous...
@sscott504
@sscott504 5 лет назад
Believe in the power of prayer...I have the same issue going on...MRI scheduled the day after Christmas...but by HIS stripes we are healed!
@bulandsiddiqi5569
@bulandsiddiqi5569 5 лет назад
Mr Latnemis Don’t be nervous and first get it investigated without wasting time. Earlier detection may reduce complication.
@samwd5039
@samwd5039 5 лет назад
@@sscott504 What sort of MRI you were suggested? in my case they have suggested me for Brain MRI, is that the right MRI for parotid?
@LaZeREclipZ
@LaZeREclipZ 5 лет назад
Mr Latnemis got my tumor taken out about 5 months ago. If it does happen to be ACC the odds of it spreading are extremely low. It will generally all be taken out with surgery and your survival rate is through the roof. Don’t worry if it is something like ACC.
@samwd5039
@samwd5039 5 лет назад
@@LaZeREclipZ What sort of MRI or CT scan you were suggested?
@chantalbarry3023
@chantalbarry3023 Год назад
Bonne vidéo intéressante merci Docteur Salutations distinguées Respects🎉❤❤
@marcusrice501
@marcusrice501 3 года назад
Oh man I know who this guy is, firefighter in a town next to mine. 😳👋
@chantalbarry3023
@chantalbarry3023 Год назад
Courage a ce Monsieur Bisous
@ookipuki
@ookipuki 3 года назад
Its probably my fault for using glues and sprays known to cause cancer. I really hope it isn't cancer 💔 ..... but i love this video. 💖
@N16-u8t
@N16-u8t 2 года назад
I hope it isnt cancer 🥺.. its not your fault
@niceguy4928
@niceguy4928 6 лет назад
How is he doing now
@lisasheppard5317
@lisasheppard5317 3 года назад
Wow i never realized how many other people have had or have the same tumor as I did. This guy is in Conn. And i'm in Mass. Iif you ever want to chat let me know. Respond here and i will be notified. I'm south of Worcester.
@Liveforhealthq
@Liveforhealthq Год назад
Hi am In Worcester mass too I have the. Same mass on left no cancer but I have recommendations for surgery, where did you get your removed and if you could recommend Dr. thnx
@lisasheppard5317
@lisasheppard5317 Год назад
@@Liveforhealthq Dr. Kim did my surgery. He is at UMass. He is an ent doctor (ears,nose, and throut). He is the best. No complaints from me. Good luck!!
@pattyf3984
@pattyf3984 Год назад
I had an ultrasound two days ago and was suggested by my ENT to do a needle aspiration after the ultrasound was read. Then was suggested today to do a contrast MRI..which I am hesitant about due to the dye danger. I'm feeling the needle aspiration could tell if it's cancer or not. The MRI seems much more invasive with the contrast. Anyone here have a MRI with contrast after finding the lump? Mine is 1cm right in front of my left ear lobe.
@MyNomDePlume
@MyNomDePlume Год назад
What was the outcome Patty?
@gurudevan6241
@gurudevan6241 Год назад
thank god......nothing happened.....
@genu1nemonsta640
@genu1nemonsta640 5 лет назад
Im worried cause i dont just have one lump in 1 paritod gland but both
@unitor699industries
@unitor699industries 4 года назад
are you oke?
@genu1nemonsta640
@genu1nemonsta640 4 года назад
@@unitor699industries I am ok he say they didn't any bigger so he don't think it's cancerous but later this year will do another CT with dye so they can see if any chsnges
@unitor699industries
@unitor699industries 4 года назад
@@genu1nemonsta640 omg i am very scared i have a little swollen on my right below ear but with no pain i have not slept this week and i am shaking
@genu1nemonsta640
@genu1nemonsta640 4 года назад
@@unitor699industries how long it was there ?
@unitor699industries
@unitor699industries 4 года назад
@@genu1nemonsta640 more then a year but it stay same size i don't feel sick can it be infection from bacteria??
@mochipeachie6902
@mochipeachie6902 2 года назад
I'm 20years old girl .. already got diagnosed with parotid tumor..the diagnosis said it most likely to be benign but they'll can't get ahead of anything because they will know the results after removing the tumor,I'm gonna have the surgery in August...im scared because the tumor is very near to my facial nerves....i don't know if I should do the surgery or not...
@Its_about_that_time
@Its_about_that_time 2 года назад
how did it go. I just had my tumor removed 2 weeks ago and the right side of my face is still numb and so is my ear. still need to hear back if it's cancerous or not. we shall see
@Shubham_68276
@Shubham_68276 7 месяцев назад
how r u doing now buddy@@Its_about_that_time
@Shubham_68276
@Shubham_68276 7 месяцев назад
how r u doing ? was ur tumor cancerous?
@mochipeachie6902
@mochipeachie6902 6 месяцев назад
​@@Its_about_that_time thank god it was benign im recovering well from the surgery except i got frey syndrome which is completely fine because i would rather having freys syndrome rather than having to fight cancer
@Shubham_68276
@Shubham_68276 6 месяцев назад
@@mochipeachie6902 whats ur initial symptoms?
@jg2283
@jg2283 6 месяцев назад
"As soon as I felt it, i had no doubt in my mind that he had cancer." ????????? 9.5 times outta 10 its gonna be a benign thing... Shes a medical professional?
@Rockstar69000
@Rockstar69000 5 месяцев назад
I have adenoid cystic carcinoma
@mamacass9557
@mamacass9557 5 месяцев назад
I hope you're okay!
@Rockstar69000
@Rockstar69000 5 месяцев назад
I fight every day. I am a musician with guitar videos on my RU-vid channel. Thank you.
@Rockstar69000
@Rockstar69000 5 месяцев назад
@@mamacass9557 thanks I have videos of me on my RU-vid channel. I am fighting now.
@levio-sunny
@levio-sunny 4 года назад
I have a lump in that exact spot...now I'm scared...
@MrMacadam777
@MrMacadam777 4 года назад
Me too
@dusahneastman6218
@dusahneastman6218 4 года назад
Same here
@dusahneastman6218
@dusahneastman6218 4 года назад
And I'm only 21
@levio-sunny
@levio-sunny 4 года назад
@@dusahneastman6218 me too...but I think mine is getting smaller, so I think that's a good sign that it might just be a swollen gland...I hope
@dusahneastman6218
@dusahneastman6218 4 года назад
You should make sure with a doctor I have to get an ultrasound on my cheek soon and I'm hoping it's not bad I have a son to raise and the last thing I want is to hear I have a tumor
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