Paul continues his story of battling two rare diseases - Ehlers-Danlos Syndrome and Periodic Paralysis. Both conditions have their own set of challenges; but Paul and his Mom persevere by finding the PPA and it's conferences where they learn of others with the same condition and tools to help Paul's quality of life. This is Part 2 or 2 of Paul's story, you can watch Part 1 here [URL to come].
#PeriodicParalysis #EDS #RareDisease
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
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#PPA #paralyzed #Ehlers-Danlos #Diagnosis #GeneticTesting #ARareAdventure
28 авг 2024