Patience | Ren Gill | M.E 

Thank you for sharing. Sending love and compassion to you and those close to you. Ren is a real class act and this just confirms it so much further for me.

I’ve typed so much and erased. No words for this. Bless you robertchale.

That he did that for you - I am weeping here - I hope your journey is not hard .

I want to wish you the best! I am a cancer survivor and know exactly how you are feeling! Stay strong and keep on being positive, your state of mind will help you immensely! I'm with you in spirit!

So much love to you.

❤❤❤😂😂😂AMEN

This version needs a release. So much better than the bear mcreary version.

Beautiful post. I'm sure it will cross my mind many times in the future, and My heart and thoughts will be as well.

I have lupus to,stay strong !am so tired now,but dont give UP 🖤💜

Sending you love xo

MCAS here likely linked to Ehlers-Danlos Syndrome (finally diagnosed at 41yrs) and the trauma of having so much unexplained serious medical stuff, lungs popping, serious atraumatic injuries including fractured vertebrae, and all the neurological and cognitive impacts alongside EDS; only to have them downplayed, outright ignoring hard evidence like scans, or dismissed as coincidental and weird for decades.... well anyway that really really hit my mental and physical health worse than anything my body threw at me. Even the fractured vertebrae were missed by the radiologist, I could see them clearly (former veterinary nurse) and a family member working in medical imaging managed to intervene from interstate for the specialist to have another look... meanwhile I'd been stuck with a broken back for a week and a GP who thought I was making stuff up for drug-seeking. He was a bit put out that I didn't want heavy painkillers, and then started implying Munchausen's. When the second report confirming the fractures came back he barely said anything just handballed me to another medical practice. Had a psychotic break not long after, the cause of which was never really determined, but my current GP believes likely brought on more by a physical process than the PTSD I was experiencing. This year diagnosed with MCAS, and it's both relief and all the manifestations of grief and anger at all the wasted years... the wasted time actually starting to believe the doctors who thought it was just hysteria and psychiatric illness/ personality disorder. I'm learning it's not only right to feel all that pain about how I was treated, but that it will never quite go away entirely. Us who were misdiagnosed, minimised, ignored and treated as crazy by clinicians have a lot of trauma to process. And a lot of motivation to push for things like that to never happen to anyone else. I've started with my younger family members who obviously had the same genetic abnormality for EDS and managed to get three teenage nieces formally diagnosed in the 6 months prior to my diagnosis. At least that will help them through any other "weird medical shite" when doctors can't connect the dots. It's helped with accessing a lot of preventative therapies too, that help address the worst manifestations of connective tissue disorders.

@@Skittenmeow wow! I actually suffered a fractured vertebrae as well! Spondylolisthesis Pars defect level 3. I will need surgery at some point but have avoided it for quite a few years. It is progressive though and something I am seriously dreading. I finally have found a doctor in my team of doctors that I really and truly trust and that has made a huge difference in my life...but I dont know if you ever fully recover from the trauma of being essentially abused as a patient for so many years. And YES, IMO telling people with real medical issues that it is "mental" is ABUSE. I hope you are getting better care these days friend. I was just blown away when you mentioned a fractured vertebrae as it is not something you can really find in common with very many people. I am fortunate that mine was diagnosed quickly, however the care was horrific. Pushed heavily narcotics on me which literally did NOTHING for the pain because it was all nerve pain. I had several nerves that were being completely crushed by the slipped vertebrae. Narcotics do nothing for nerve pain. Then you are treated like some sort of pill chaser when you tell them the pills are not doing anything for the pain. After two months in my bed never leaving it fate intervened and I was able to see a different doctor compeltely by chance. He recognized immediately that i needed something for nerve pain and with in two days i was almost pain free and went shopping for groceries. I remember having thoughts that my life was over during those two months and maybe I should just end it. To know that a VERY easy fix was right under the fingertips of these doctors, and a MUCH less addictive and harmful drug was the solution that i still take to this day to deal with the nerve pain...its absolutely criminal to leave people suffering in that way. I wish you all the best....always fight for yourself, and if something doesnt seem right then you keep fighting until you get someone to listen! Best of luck to you friend.

I was the 54th like? I’m 54 also. Ren is healing xx

Truth

Yes!

Yup, worried abt the wee scone wen he was in America! ❤❤❤🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿🏴󠁧󠁢󠁳󠁣󠁴󠁿

great song, great comment

🔥🎉🔥🔥🔥🔥🎉

I second that motion

Wow…. Having a friend like this is special. Not just because of his talent, that’s amazing on its own, but watching him push through life with the strength of an army is infectious and inspirational. I hope you two are still friends 7 years later.

@@xbatman9649 heh We sure are. He's a busy boy between tending to his health and his work passions but despite living in different cities now we hang out and he's still like a brother 😌 I love reading how he's touched people's lives.

The film ‘Unrest’ will provide a lot of insight. Ren and this song were featured in it x

@@spellywelly thank you I'll check it out:)

Well put

Very well said.

This isn’t even his channel.

Exactly!!

Yes!! "When I was 17, I shouted out into an empty room.... that I would one day defeat the forces of Evil" - and so speaketh Archangel Ren.... and now he flexes and breathes blood into his tattered wings, rising like a Pheonix from the Ashes, a true Warrior of Light to shine the brighest light upon and into the Darkness, illuminating the way out for both our inner darkness as we reveal and explore ourselves, finding solace and strength as the spotlight is shone on our fellows who were there in the darkness all along with us, and the exterior Darkness that wishes to keep us captive in that darkness through corporate greed and control with most of us not realising, as we idolise and prioritise the wrong ideals that we are consuming ourselves into oblivion...

My same experience until Google came along and I figured out what I have, a chromosome mutation where I cannot clean my blood.

I completely agree with you. It’s heartbreaking how we have been treated.

Seriously well done finding that out, when dr's left you out of nhs. Hope you have the correct good treatment now.

Just started, I’m 48 and am blown away. 32M views now

@@TheSupra24ssv the growth is amazing!!!

I went down with this at 21. . Your heart gets broken as you can’t join in anymore. Your heart breaks again when the medical profession refuse to believe you, and then again when you find out there is no treatment. I can’t believe this is still the case after so many years, the state has failed us hugely. If they realized how much they are losing in out working taxes, as we cannot work, then they might spend more on research

​@@omygod9062 wishing you the best stranger

Thank you. These lyrics are so powerful. I am so thankful Ren truly does have the strength of a mountain.

Thank you for lyrics. Ren lyrics are solid diagold. Not one wasted word.🦍🐷🪘🎸🌕

Thank U for writing this ... Ur completely right :*

Thank you for the comment, and I needed a positive reminder I'm not the only person dealing with chronic illnesses. Ren, you are truly amazing and your ability to express the struggles of the war within impact a tremendous amount of people previously hidden in the shadows. Thank you

@@TryM.yVivier So true.

especially when you see that the comment is 8years old :O@@TryM.yVivier

It's amazing to read back to comments like this, knowing the amazing things he's gone on to create since then. Still so true, this guy is something else!

Welcome to the soundtrack of our healing . I wish you strength and support.

​@@carolinesser-miles6608 Thank you very much! I wish you the same. I'm learning some Ren lyrics and songs to continue carrying the chain of meaningful impact forward.

Yes agree, he brings out that maternal instinct, yesterday listening to his music I just wanted to give him a huge hug that I would give my own son of a similar age.

​@P M musik OK so it's not just me!

Same. I live with my 33yo daughter, we both have EDS and a host of comorbidities. I will do the same for her when i can. I've been living on my back because my vertebre are all either subluxing or disintegrating. The bones in my neck are slowly disintegrating and are compressing my brainstem giving me blinding headaches and screaming nerve pain. And I'm scared of surgery. Ren and my beautiful daughter give me hope for the world. These 'kids' are changing the world. My grandson doesn't appreciate music yet, but you can be sure that his musical education will include Ren! Love to all my Zebras and butterflies. Let's not forget the bullseye and all the other chronic sufferers. Sending a rainbow of Love, hope, and peace to you all. The light in me, sees and recognizes the light in you. Nameste. ❤❤❤ 😊

​@@deathbysnusnu1970I'm with you. Love 💗

For sure

I wholly agree - I pray he has so much success as an independent artist that he could start his own label and promote artists who resonate with his clear passion ❤