This session was held on March 17, 2023.
An arteriovenous malformation (AVM) is a tangle of blood vessels that connects arteries and veins irregularly. An AVM may disrupt circulation, may lead to ruptures in vessels resulting in bleeding in the brain, stroke, or brain damage. AVMs in children may be detected in the first few days of life or more typically in school-aged children. Lifelong risks must be understood and managed, while any resulting damage due to hemorrhage likely requires intensive rehabilitation.
Listen to our expert panel to learn more about AVMs. We begin with the story of Raylene Lewis and son Kyler who had a brain bleed nearly three years ago that led to the diagnosis of an AVM. Then, two neurosurgeons, Dr. Edward Smith and Dr. Nina Moore, share their clinical and research expertise.
Raylene Lewis is a dedicated advocate for families dealing with pediatric brain AVM, aneurysm, and stroke. Her passion for this cause stems from navigating her son's diagnosis. In April of 2020, Raylene's oldest son was diagnosed with a grade 4/5 brain AVM at the age of 15. Like many families in this situation, Raylene felt overwhelmed by the task of finding information, treatment, and support. In response, she devoted her free time to creating AVM Alliance (www.avmalliance.org), a resource for families dealing with brain vessel disease sharing the story "Stroke has no age limit."
Podcast: www.avmalliancepodcast.com
Dr. Edward Smith is a professor at Harvard Medical School and the R. Michael Scott endowed chair in neurosurgery at Boston Children’s Hospital. He serves as the co-director of the Cerebrovascular Surgery and Interventions Center, vice-chair of the #1-ranked department of pediatric neurosurgery in the US and leads a translational research laboratory in the Vascular Biology Program, focusing on development of non-invasive biomarkers and novel therapies for brain tumors and stroke. Dr. Smith heads one of the largest pediatric cerebrovascular programs in the country, and innovations from his research and clinical efforts have been incorporated in current national guidelines, with the goal of improving patient outcomes.
Dr. Nina Moore is a staff neurosurgeon at the Cleveland Clinic and clinical assistant professor of neurosurgery for the Cleveland Clinic Lerner College of Medicine. She is the Director of the Cerebrovascular Biomechanics Laboratory in the Lerner Research Institute and is the Lead of Cerebrovascular and Endovascular Research for the CCF Cerebrovascular Center. She performs both open cerebrovascular and endovascular surgeries. Her research uses her background in engineering to work towards patient specific predictive models of arteriovenous malformation biomechanics to improve treatment planning and natural history prediction.
The session concludes with a discussion based on audience questions.
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28 мар 2023
