Renee & Scot you two make a great team. Renee, Did you keep all of your hair? Did you have any noticeable hair loss? Thank you I’m so glad you’re cancer free!
Your video was much more helpful than the paid "professional" we hired to train me (husband) for my wife's Penguin journey. I can't thank you enough. Her instructions under time pressure in the infusion unit didn't click and were different from your video. I bumbled through the first six caps getting more exhausted then rewatched your video at home and it started to click for the last six caps at home. It clicked for my helper friend too. We finished the long day exhilarated. Next chemo day in three weeks will be so much easier thanks to your easy to learn from video. Happy Healing to Scot and your wife.
Thanks o much. I watched your video before my treatment. I had 4 months of Taxol and 2 months of AC. Its very informative but I changed my hats much faster not leaving the head free from a cold cap for more than 3 seconds. I kept 95% of my hair. It is an amazing cap.
We have been these using cold caps and have had good success so far half-way through treatment (fingers crossed!). My husband said he could not have done it without your video(s). We are both very very grateful to you and your wife. The cancer center is watching my progress with bated breath to see how this turns out! Thank you again! We wish you and your wife the best.
Thank you so much. My daughter is starting her first treatment tomorrow and we using Penguin. Your video is very helpful. I am glad to see that Renee is cancer free and she kept her hair!
Thank you for your excellent “tutorial”. Tomorrow is going to be our first time using the Cool Caps on my really good friend. Two of us will be working together to keep her head cold during treatment. Your video has helped to give us the confidence we needed to know we can do it successfully. Hope your wife is doing well. She’s very lucky to have such a wonderful and supportive husband to help her during this difficult time.
We are super pumped that it helped take some stress away. May God put a healing hand on your wife and you to push through this cancer-free and with all her hair.
I left a message on your other video to say thank you for both of these videos. I recommend these to anyone regardless of whether you go through the professional training with Penguin. They are extremely valuable. My husband as the capper referred to these often
Scott and Renee, can't thank you enough for this tutorial video. Really shows the reality of what is to be expected during cold capping and just how much force is needed for a great fit that will retain hair. Along with everyone that's posted here (and those that recommended your videos on Facebook!), this is an excellent resource! Thank you!
Thank you so much for this video. My daughter will start 12 weeks of chemo next week and we are using the Penquin system. Your video is so helpful for us. We hope things are still going well for you both.
This was so helpful. The first time I went through a training session with a Penguin expert, I was shocked at how much work it would be. Some things I missed because it was too much info to process. Watching this video helped me remember, and I think the way you do some things is even better.
Scott, Thank you SO much! This is much better than the videos that the company shares. Mine comes tomorrow and we are using it for the first time tomorrow afternoon. I was feeling totally overwhelmed but your video seems to make it doable. I really appreciate your kindness in making it!!!
Just finished my treatment last Monday. I had 6 chimo. Your video really help me and my friend to manage my hair. As today I probably have 60% of them. It is great. And find out I have hight tolerance of cold in my head. Thank you so much.
I am glad we were able to help take some of the stress away. That is awesome you are keeping your hair. Renee said the cold was tough for about the first 7 minutes and then you just go numb for the next 8 hours.
Also, 👏 what great support you are. Incredible really. I'm also blessed with a supportive, very loving husband but he'll be working whilst I receive chemo treatments so ... just trying to figure out logistics as someone who'll likely be without a partner.
I’ve just been diagnosed with invasive cancer. I’m going to have to go through chemo before I have surgery on my breast. My hair is down to my butt crack. Losing my hair is extremely traumatic for me.. Thank you for making this video to help me understand the process. I’m alone at home and will have to do this to myself. Thank you so very very very much!
Thank-you Scot and Renee. We are just starting next week but really appreciate your videos and recommendations. Glad Renee is doing well and hope it continues.
Thanks for this great video Scot, it really helped my wife and I right when we needed help the most. Penguin now ships the kit with crappy digital probe thermometers instead of the infrared gun, which really sucks. You have to hold the probe on the cap for 45 seconds to get a reading in any single spot and it's just a joke. My wife's first chemo session was yesterday and after seeing this video I have ordered a heat gun from amazon. The only other problem I am having with the system is that my dry ice came in all kinds of random sizes and shapes and even though I put them into bags, it was a royal pain every time I had to take all the ice out. After 8 hours of swapping caps I was about to lose my mind. We have 15 more rounds of chemo to go, and I am now thinking about "trays" that I could make to lay the ice in and then set into the cooler so that I can pull the trays out without having to remove each piece of dry ice. Anyways, thanks again for this great video... you have helped a lot of people! So glad that Renee is doing great!
I don't work for cold caps we just did it ourselves and the cold caps are done on the day of treatment. Usually you keep them on about 4 to 5 hours after your treatment on that treatment day. We actually wanted to leave the hospital so we had made cold cap changes in the car on the way home. You pretty much changed them out every 20 to 25 minutes while you're going through the treatment. If I recall they are on for about 8 to 8 and 1/2 hours on chemo day. That's the only time you need to do them. There are other things that you need to abide by while you're doing this like washing your hair with cold water which is all explained in the instructions when you sign up for a cold cap treatment
Thank you so much Scott for this tutorial 💗. Happy to learn Renee is cancer free. Unfortunately, I cannot afford the Pinguin system and trying to create a cold cap system using caps from Amazon. Blessings.
My husband could not have done this without your 2 tutorials. So much more helpful than Penguin. Thank you so much for your humanity. ❤ How did you protect yourself from inhaling the dry ice ?
Thank you for sharing and thank you for supporting the young lady inn the video it's a very neat idea I was wonder if I was to do this for my step mom could I use 4 separate coolers because I would probably confuse my self with the caps
I don't think it's necessary to use for coolers that's a bit Overkill once you get it down it really is quite simple. Plus it would require a bunch more dry ice which can be expensive
THANK YOU SIR!!!! Very informative and intuitive videos. My wife is the first person in the hospital to wear the Cold Cap presently. I do exactly what you demonstrate and have all the suggestive items you have. She did her first treatment yesterday and her next one is two weeks away. May I ask if the Cap worked for minimal hair loss for your wife? Thanks again sir
We just went to the local ice company or supermarket and the pieces are usually bigger than the cooler so we just split them in half by putting them on the edge of the cooler and snapping them. Make sure you wear the gloves or you will burn your hands. Good luck.
HI - thank you so much for the very informative video! I started chemo yesterday and we watched your video a dozen times and practiced. It was quite the learning experience though when we actually had to start doing it. Anyway, regarding the shower filter, it appears you can only buy them from an hair extension dealer and must be a hair professional...is that right? Please let me know. Thanks again for this great information!!!
You would want to talk to Penguin about this but 50 degrees seems kind of high. I think we were changing them out every 25 minutes. I would set a timer for 20 minutes and by the time I took it out of the cooler, warmed it up a bit in certain parts of the cap because there were times where they were coming out of the cooler at -50 degrees C.
Well I’m am having a hard time getting information about how long each “treatment session” is how many days this continues. It seems like a daunting procedure. Is it done only on the day of the chemo infusion or every day or what. This information isn’t available on the website-or at least I can’t find it. Is it a secret? Also when I call no one answers the phone. I am a little concerned about the lack of readily available information. Anyone know anything helpful?
Thanks for the videos! What type of Chemo did your wife have to take? How often? Would your wife give tips on what she did to wash/ maintain keeping all of her hair during the process...I KNOW there is more to the process than just cold capping.
Hi Amber, yes there is a lot more to keeping your hair other than cold capping. Also I was on the Taxotere and Cytoxan cocktail. Cold capping is the most important factor in keeping your hair however taking care of that hair is also just as important as it is very fragile for more than the 12 weeks of chemotherapy. #1. No pools or ocean swimming. That was really hard as I went through it in the thick of summer. #2. Was as little as possible and by washing I mean just patting your hair with a quality shampoo and then rinsing only in cold water. The same for conditioner. Also do not put anything on it after showering and let it dry on its own. I only used a hairdryer a few times and never ever let it get hot. #3. Use a very open brush or a large comb. Start from the bottom and never pull on it. It takes time but this is your precious hair. You wil still shed and the goal is to shed as little as possible. #4. Do not color before chemo and wait for 6 months after. And after that do not try to highlight or use bleach (trust me it it didn't work out and we had to go dark brown right after) Basically I had to wait a year before highlights again and I could have have waited longer for better results. #5. Do not cut your hair before chemo and do not cut it until 6 months after. Then I cut a little at a time until I finally got cut of all of the chemo hair and frizzy stuff from highlighting. It's been two years since chemo and I finally have a head of strong healthy hair again. I would say it took a good year and a half for that to happen. Other things I did. I bought a professional shower head from my hairdresser that had collagen and vitamin c in it. Can't remember name but there is something very similar called IR 15 online for half the price. I also purchased silk and Satan pillow cases so my hair would slide when I sleep. Your head will itch but do not scratch it. Do not let anything disturb your hair cuticles. They will be very fragile. I hope this answers your questions. And remember, this is just a speed bump in your life! You will get through this! Prayers and blessings, Renee'
@@reneestone8373 can you get in a pool IF you don’t get hair wet? Did you ever allow your head to sweat in the summer by sitting outside in the heat? I begin chemo in two days and thanks to your videos I will be cold capping. I will have the same chemo cocktail as you were prescribed?
I'm wondering if there'd be anyway to do this solo? I can't imagine who would be available to do this with me for 16 sessions. Nor am I sure I'm allowed to bring anyone with me during this crazy covidy time.
It would be harder to do it solo, but of there is a will there is a way. Maybe the nurse can help or just push a bit harder to have someone in the room with you.
Hi Scot. Do you have to order certain size blocks of dry ice to fit properly in the cooler? I will be doing this with a bunch of girlfriends, so I'm hoping that one can get dry ice that size...thanks, Susan
They are done on the day of chemo for about 8 hours if I remember correctly. You rotate 3 caps that are on dry ice every 20 minutes. Yes you can take a regular bath or shower, but it is best to wait a few days to wash your hair. She also did not scrub her head at all during chemo and she kept most of her hair. Never looked like she went through chemo. Good luck and God Bless.
Very informative. Thanks! What is the temperature of the cold cap when it is actually removed from her head. I did a test run and mine was about 50 F when I took it off after 30 min, it was -35 when I put it on. Is that too warm? Are my cold caps working properly?
I believe it was like $500 per month for the caps. There is an organization that helped with the cost. Hair To Stay (hairtostay.org). Also if you push back with your insurance and let them know that you did not use the insurance to get a wig since I think wigs are covered, but you have to keep pushing back to get them to pay.
Hi Scott: Thanks so much for the information. One more question, did she wear it after chemo session and wear it at home? Or during treatment also? I am so glad she is now cancer free. I currently have stage 1.
I can't remember how long each chemo session was but I do remember it taking about 4 hours. Then we got into the car and headed home. We're more than 20 minutes away when there's traffic so I had to pull over and change a cap. It's real important to keep the head super cold for 8 hours
Im doing the cold cap, but I wonder did she loose hair about 17-18 days after first chemo?? I’m nervous…2nd chemo will be on the 30th…I’m afraid I will loose more hair…???
T=Remember this is their own process. . THIS IS NOT RECOMMENDED BY PENGUIN COLD CAPS CORPORATE. This process causes serious burn risk for clients who do not have the same plan as her. Penguin Cold Caps provides individual plans for each and every client. DO NOT FOLLOW THIS PLAN...CLIENTS OF PENGUIN HAVE TO FOLLOW THE TREATMENT PLAN THAT PENGUIN SENT TO THEM. Call your Representative to learn how to follow your plan only
You’re showing it the opposite of the company instructions. Why? The coldest cap is the bottom one, so don’t « move them up » to be next, you’d be warming them. The blue headband goes OVER the black ones. Why are you doing it this way? More importantly, why are you teaching others to do it this way?
