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Peripheral T-Cell Lymphoma Facebook Live: A Rare Disease Day Event 

Lymphoma Research Foundation
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In honor of Rare Disease Day, the Lymphoma Research Foundation hosted an hour-long Facebook Live with world-leading lymphoma expert and LRF Scientific Advisory Board Member, Steven Horwitz, MD (Memorial Sloan Kettering Cancer Center) and LRF Ambassadors Rich and Chris Zavadowski, to discuss the diagnosis and treatment of peripheral T-cell lymphoma (PTCL), research coming down the pike, as well as a look into the patient and caregiver experience.
The Lymphoma Research Foundation is the nation's largest non-profit organization devoted to funding innovative research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer.
LEARN MORE!
lymphoma.org/
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/ lymphoma
/ lymphomacommunity

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9 авг 2020

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Комментарии : 1   
@bbunnz9792
@bbunnz9792 3 года назад
I feel like this is what my 4yr son has. He had seen a hemtologist when he was 7 months old because of his wbc was so low it was almost fatal and they was clueless what he had they knew they said wasn't leukemia and could tell he got sick from a virus and had prolonged fever after recieved immunization shots I believe it was second round of his hep b shots and not sure off hand other ones and thought it was def bad reaction from that but they were was the drastically low wbc and able to see he had a certain virus that shows up in test. That night at the after being poked and proded cause they were clueless what was going on with him he beat his fever cause we were planning staying for qt least a week maybe more but they let us go home so he could be comfortable and didnt want to keep him there cause of his immune system being so week we were litterally quarantined in there for his safety. So now four years later he's 4yr he broke out in looked like hive pin point red spots and some looks like the head of a pimple on his thighs all around some on lower back legs back of upper arms and couple right above wrist and couple one cheeks below eyes also couple but not much at all on trunk of body. They never went away at all and its been about 7months his primary gave him hydrocortisone cream revisited cause wasnt helping at all referred to local dermatologist with his history of nutropenia because the hemtologist wasn't still sure what happen but thats what they called it cause he recovered normally in numbers in his blood normal but I wanted to be very careful he sees the right doctor with this pandemic he is high risk and the dermatologist didnt give us the option for video apt and I understand why cause those apt stink by showing them on phone instead of person. I like the idea getting the pics from labs and get second opinion from the institution and prob the best decision you made and God bless you for that! I think this video is such a blessing im from mass and now I have a plan i know exactly how I want to go about this situation to get truth! Ty so much God bless you again I recently opened my eyes to religion and accepting into my heart of Jesus fully trusting I have been researching alot of what my son may have and I dont want him to go through every test under the sun also misdiagnosed and also I know what he has is serious cause its affecting the largest organ of the body so I want to make sure he get the right care and what type of treatments he may need. This video is so informative and its local where im at in mass and where get other help to get support. Im scared he does have this not gonna lie but this video again just makes me have hope and more comfortable how to go about this ty💖
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