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Polycythemia Vera: Latest Updates for Patients & Caregivers in 2022 | Dr. Ruben Mesa | Blood Cancer 

The Patient Story
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2 окт 2024

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Комментарии : 17   
@KetovoreWayOfLife
@KetovoreWayOfLife 2 месяца назад
Per research on Besremi, you can only take the injection for 5 years. Within that time you could possibly get into remission. Fingers crossed 🤞 to be one of the blessed ones. After 5 years and you're not in remission then what is the question?
@MalikaBourne
@MalikaBourne 2 года назад
Thank you
@Vinu31715
@Vinu31715 Год назад
Thank you so much for the updates Keep up the good work! Love from Sri Lanka
@jessicamcaleer9093
@jessicamcaleer9093 8 месяцев назад
Is there any data or can someone speak on PV and chronic alcohol use, chronic Marijuana use and an addiction to energy drinks? My husband has PV and all 3 of those is a daily fight between us. He's made no changes because he doesn't see the need.
@KetovoreWayOfLife
@KetovoreWayOfLife 2 месяца назад
Seems to be in denial, doesn't care, or not taking it seriously. No data out on living that type of lifestyle and PV. Just know without treatment his symptoms WILL get worse, the itching especially after taking a shower or bath (aquagenic pruritis), headaches which can become severe migraines, vision changes, extreme fatigue because of the high blood count numbers (hemoglobin, hematocrit, and platelets). His mortality rate will also increase. Good luck on convincing him to change and get treatment. P.S. Sugar feeds cancer.
@jessicamcaleer9093
@jessicamcaleer9093 Месяц назад
@@KetovoreWayOfLife he's definitely in denial about how he lives his everyday life. He already suffers from all of those symptoms you mentioned. I wish he would take his healthy seriously but he just doesn't and when I try to talk to him about it, it goes nowhere except usually a fight. Thanks for your input.
@nadiaalvi5617
@nadiaalvi5617 Год назад
What if a person has high HB 19.1 high HCT as 63% but low Platelet count as 113 ×10^9/l and normal white blood count (TLC) as 7.7 🙄 what is this condition called ??? Plz reply as i didn't find anything about this CBC report
@nikhilanand3178
@nikhilanand3178 Год назад
@nadia alvi . Hi, did you find out? Plz reply i have similar report.
@nadiaalvi5617
@nadiaalvi5617 Год назад
@@nikhilanand3178 no not yet doctors are taking it very lightly...I think doctors are also waiting for the patients to get very sick or something happens to them so after that they treat them.
@nikhilanand3178
@nikhilanand3178 Год назад
@@nadiaalvi5617 even general physician doctors in my native are still waiting. I am a non smoker. I did another test known as EPO. Which was low ,which also indicated PV. But still no actions from doctor. May be there unware of this conditon.
@Aquarat86
@Aquarat86 Год назад
I have similar results. My hemoglobin is 18.5, Hematocrit is 52, but my WBC is 6.2 and my Platelets are at 173. I'm going to go get tested for JAK 2 tomorrow.
@natelindsey7778
@natelindsey7778 Год назад
@@Aquarat86did you test positive?
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