POTS (Postural Orthostatic Tachycardia Syndrome): The Ultimate Guide 

Wow!! I'm visually impaired and have dysautonomia with pots and use a wheelchair to. I hope some day to meet other visually impaired wheelchair users! It's great to find your channel!!❤❤❤

This was so informative. Thank you so much!

Fascinating. Thank you for the information. But My goodness young lady I thought I had some interesting diagnosis. In any case Bully for you onto bring this information to the fore.

Wow. Again, you are super inspirational Tamara. I hope you find some accessible hiking trails ox

Yup have several friends that have it and myself still working with my doctor on one for me as I have other autoimmune issues like type 1 diabetes the passing out or almost passing out for me is scary but Maui my guide dog has started on her own to alert to the need to stay in one position or to help me up love your work being disabled is hard and it’s not always sunshine and rainbows but we make the best of it

I don't have POTS but I do have many symptoms that are similar due to my hypertension and aneurysm. Getting up slowly is important. I've found that I have to limit my fluid intake before bed time so that morning bathroom call isn't so urgent and I don't have to rush the process of getting up. I go from prone to sitting and then stretch for a bit. Then I grab my cane and use it as a third leg for balance as I slowly stand. When I was in physical therapy to recover some of my mobility and was completely blind my physical therapist told me that it wasn't just your ears that are responsible for balance. Vision is also responsible for some of your balance and can contribute to vertigo if you suffer from it. My hyper tension is what causes me to have issues with getting up quickly (which also contributes to increased heart rate). I have trouble with most hypertension medications. Fortunately for me the ones that work are the ones that reduce blood pressure by reducing heart rate so I'll take every little win I can get. I'm a on a low sodium diet due to the hypertension so extra sodium is out and I drink 2 liters of water a day to keep kidneys healthy and reduce my blood thickness to help reduce blood pressure. Having pain also increases your blood pressure (and anxiety) which increases your pain and increases your blood pressure in an increasing spiral. The only fix for that I have is to take it slow and not start the cycle (yes, very frustrating). Just as an aside my wonderful doctor gave me one of the best vasoconstrictors available. Dark chocolate. Good for the blood vessels and also good for the soul. A couple of squares a day can increase blood flow in the extremities and the brain by 12% in most people. Even if it doesn't have that affect in you dark chocolate causes your brain to release endorphins, which reduces your anxiety, which reduces your pain. A helpful downward spiral so its another small win/win and I'll take it.

I’ve never been diagnosed, but I have POTS type symptoms on occasion. I also appear to have vagus nerve dysregulation related to a bad back and neck which I have learned how to adjust to keep problems under control.

Hi. I’m visually impaired and getting tested for POTS and a slew of other things. I’m looking into getting a wheelchair for the bad days. What kind of chair do you use?

Did you have to Retire your guide dog now that you use a wheelchair?

Really hate that you have this, had no i deal how bad it was,heard of it but never gave it much thought -you seem to do ok living alone, how long have you had POTs

I don’t have POTS myself. But I know a couple people on this platform that have it. They even have Service Dog’s that alert them to passing out, etc. Dominique @Service Dog Paws and Aubriana @Service Dog Cedar. Thank you for sharing everything you know about the medical condition. I’m always interested in learning about different medical conditions and how they affect people.