I have psoriatic arthritis. And I’ve had it since my late 30’s. By age 47 I had to give up my career. It took a long time to diagnose it. My journey has been difficult. Very difficult. I’m thinking about doing a RU-vid channel to share my journey and hopefully it would help others out there. Leslye
I was in so much pain my unkles, left knee was always swollen and so much pain, toes ,lower back, fingers ..i've tried everything , methotrexate, alot different medicines, most gave me nightmares and excessive sweats at night.. ive tried fasting, for 21 days got better but pain was still there.excercise, Also i've tried strict diet still no relief..i was so depressed... i know how you guys feel right now, i absolutley feel your pain. I consider myself prety tough man but feeling tortured everysingle day almost 24/7 for 2 years almost none stop it will break u down slowlly..i will admit ive cried. Then this wonderful medicine came along humira..i will never forget it after 9 hours of injecting it i could walk normal again. Its been almost a year now and you appreciate lilttle things like walking normal. All im saying is dont be afraid to try different medications.. do what ever it takes to get better because i know what it feels like to be tortured everysingle day because of this disease.
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
Thanks for sharing. It was a comfort to see that I am not alone. I really get what you mean when you say people can’t see it, but I can feel the pain. I’m a retired math teacher.
I'm 54 and her description of her symptoms is literally me today - in bed with hip pain after vacuuming the apartment and doing laundry. I have psoriatic arthritis and am on immunosuppressants. I was walking with a cane for 6 years but had a knee replacement, and now walk unassisted. I work full-time, which is hard work and I get to the weekend with very little left, but I am also nearly finished a Master's degree (part-time). The fatigue and pain are tough but I am stronger.
Thanks Michelle, I've just been diagnosed with Psoriatic arthritis, which I had never heard off, which I am totally blown away by. I feel like I'm walking like a drunk person,, I feel like I have less muscle and leg control. Thanks for sharing your story.
I’m 48, was diagnosed when I was 33 and worked as a MA in Dermatology alongside a Rheumatologist. I use a cane most days now, have had neck surgery, am on immunosuppressants and no longer am able to work. I get ocular migraines frequently and even went into metabolic syndrome months ago. Two years ago, I was boxing and completing obstacle courses for fun. Now it’s a good day if I can get one load of laundry done. Walking is made difficult because of enthesitis. The most important advice I have for early stage is to knock out any physical goals you have while you can. If you don’t get to my severity, great. If you do, still find a way to enjoy the things you love. Don’t let it consume you because stress is the WORST. Learn how to meditate. My personal triggers are pork, beef, alcohol. This is a misleading video. Patient is young and in early stage disease. More needs to be understood about the dangers of this disease.
I'm 28 and was diagnosed with psoriatic arthritis a year and a half ago. I spent 4 years telling my family doctor about my foot pain and discomfort/pain throughout my body and arms. he was reluctant to refer me to a specialist because he said the specialist would say the same thing as him (which was him not knowing why I was in pain, which is dumb because that's what seeing the specialist would be for). He finally referred me to a specialist in 2021. She ran some scans and blood tests, discovering that I had markers for arthritis in my bloodwork. I was finally referred to a rheumatologist who has been so nice and helpful. I'm on a medication now that has been life changing. Before, I couldn't play sports let alone walk a few blocks (I'd take the bus for what should be a normal 10 minute walk). Now, I feel like my age again and can move around comfortably
I was just diagnosed 2 days ago with it by scalp and pain in wrists and shoulders. Can't wait too...i find my right med and feel better again after 2 years of pain!
@@michelleboston9231 Hey Michelle, I was recently diagnosed with PsA. They initially wanted to put me on Methotrexate, but I declined. The drug I started (in the first week right now) is Otezla (Apremilast). How are your symptoms going? What treatments have helped you the most? Have you heard anything about Otezla? Thanks in advance Michelle. I'm an old guy, and your story gives me hope.
I feel like my version is a lot worse, my crutches are with me for months at a time, the pain makes me black out some nights. I am just now getting treatment after 10 years (the VA does the bare minimum and I had to push them and educate them on psoriatic arthritis).Its too bad the tuberculosis I got on deployment is also ravaging my organs, and they tried to blow that off too, the VA does the bare minimum for vets and I am not surprised at all veteran suicide is as high as it is, sometimes it seems like the only option.
Definitely unfortunate, I've been diagnosed with it since 21, I'm a Male, self employed, I make good money but not enough to pay $600/m in insurance, denied for financial assistance, have it pretty bad in my neck, back, shoulder, and hip, often times its difficult to get out of bed. Tried changing my diet completely and did not help.
I am 34 and diagnosed last year with PsA. I’m a land surveyor, even my doctor can’t understand how much this is killing me. Because she does not have empathy. You’re lucky your doctor spent an hour and a half with you. My NP spent 15 min telling me about it. Probably because I have shitty insurance so I will remain in my poor grave with my poor family (deceased) hahahahaha this makes me feel like I’m going CRAZY.
yeah it sucks ,i had 80% plaque coverage then the last year hips and feet and other joints involved ,some mornings a cant move and the pain almost makes me pass out. sad thing is most of the meds will kill you in the end.
Take your chance.. i know its scary..and i tried lots of medicines like methotrexate, cant remember the rest. Diets wont get rid of the pain or fasting trust ive tried everything.. humira save my life..i pbbly would have blown my head off because i was in so much for 2 years. Now im running again, taking boxing.. i only came here because ive remember when i was first diagnosed psa i didnt know anything i was so depressed and hopeless..i just want to give hope.. those medication MIGHT kill u after 30- 40 years if your unlucky...or live for 50-60 years extra crippled and in agonizing pain every single day..i guess we just have to decide which one is better.
@@rickybobby8194 wait, those medications shorten life expectancy? i'm concerned because i suffer this too, i'm supposed to begin treatment in 2 weeks. in my case, it took 6 years for doctors to find out, that is embarrassing to say the least. good luck everyone who suffer this, you are not alone.
@@oOHiggsFieldOo That’s the scary part of being on medication, it definitely can shorten your lifespan but I guess we have to deal with the cards were given in life… I wish they had a cure for this but unfortunately nobody can figure out what causes psoriasis in the first place other than “genetics”…
Had a terrible side effect from a couple biologic injections and now I'm scared of trying anymore. Currently back on methotrexate and leflunomide but can't say they're doing anything for me.
I have arthritis, it is well managed, and also have mild psoriasis. I may have PSA, not sure. Knees, hips, lower back, one finger. I have never had it diagnosed but it seems likely in retrospect it is PSA. Have people tried keeping the affected joints warm? For example, by wearing extra layers of clothing, or insulating what affected parts touch. I find this stops the pain with knees, hips and fingers, and I think, slows the advancement of disease (when it hurts, the body is attacking itself). I am also reducing my bodyfat percentage to an ideal level by dieting... Protein Sparing Modified Fast. I am now overweight. Another thing I suffer from is anaemia, which means I have to eat more red meat or other iron-rich foods and vitamin C at the same time, or I get vague and my SP02 drops. I would be curious to see if others have tried to keep affected joints warm and found success. I have recently tried plant-based protein powder instead of milk-based, and maybe that has some impact. Not 100% sure.
This is my PSA healing story then, in 2020, I was diagnosed with PSA poliarthritis and my body was damaged, my skin was in bad condicion, i was stressed, but i haven't given up. I search information about healing this disease, and i found story. It helped me to choose plant-based diet. I cured this disease without medicine, only through nutrition and I feel great, my skin 90 percent is clear. I also do sports and enjoy my life, so you can try to overcome this diseasis on whole food plant based diet.
I went through many of the painfull problems described by the people in the comments below.Five years ago a I went Vegan as a last resort and my skin and joint pain cleared up in just 4 days.I know everyone is different but it is worth a try! I have had no repeat of the Arthritic pain since going on a p!ant based diet and my skin problems is restricted to dandruff in my scalp that I deal with by using a dandruff shampoo daily!
lol vegan diet cleared it after 4 days... its does not work that way!!! its an immune condtion where the immune system attacks healthy tissue, veganism does not temper the immune system. sick of these nutty lies man!
i got my diagnosis early january 2019...i have pains in almost every joint on my body exept my feet.shoulder wrist palms fingers my lower back pelvis and my knees...i take methotrexate and prezolon in pill form but i'm thinking of switching in either shot or switching meds all together cause i still have severe pains sometimes...
No don't skip methotrexate it will help out to control ur psoriasis arthritis, if u have a sever pain, u should take pain killer twice a day some few days Like i suggest formula, diclofanic sodium, Neprox is the best or nubral fort
Try different medicines..those things never worked for me.. humira did pretty good for me..9 hours after injecting it i could walk normal again..i felt like i was getting tortured every single day for 2 years. They are other medications too try other ones whatever works for u. You are pbbly depressed too because of the pain even when u sleep it wakes you up.
I did a gluten free plant based diet and leaky gut healing protocol and symptoms went away. Doesn’t hurt to try it. If you eliminate all inflammatory foods until pain goes away then slowly try to add one back at a time like first dairy for a week or two once you react stop and resume anti inflammatory diet then 3 weeks try gluten etc... meat etc... do muscle testing also helps or food allergy testing. Glyphosate poisoning testing etc...
@@leeyost9917 Ive had Bad P and PA since 2008 and was on methotrexate, then Embrel for many years. In 2017 I quit dairy and meat (went plant based) for 2 years and I have been 90% symptom free and off all meds. In the last year I have slowly introduced meats and dairy back into my diet and have discovered dairy was the culprit all along. I still limit my meat intake to once or twice per week. It truly amazed me when I found out how much the food we eat really does impact our body's.
There is no true blood test for PsA but if your feel deep pain & locked up joints flaky scalp eyebrow etc but you can or can’t have both at the same time .. tendons & joint pain .. buttock pain usually one of the 1st areas .. I had it from age 26 yet it was sooo mild & random but now in my 57 yrs of age it’s extremely hard & painful locked up knee flares .. I’m probably gonna have to start a dmard or biologic soon 😞PsA doesn’t tapper off like RA as people get older RA burns down .. but PsA continues ….
I have a sharp pain almost like a pinching nerve in my hip area it seems like it comes from the front and it really hurts when I go from sitting position to try to stand up
Yes, you can but a lot of ys with PSA don't. I was a competitive athlete, now I can walk a few yards and have to sit diwn. My eyesight is badly affected, I have chronic pain in my hands and I have trouble chewing and sometimes choke. The bilogics didn't work for me What about showing a video of some of us where PSA has ruined our life?
ThatBoyVenom Asshole ! The people who share her condition are the ones who do want to know so we can have hope to work through this chronic condition that can bring despair. At least it gives us patients the courage to pursue our health you idiot.
Nobody! It was her choice to make something nice like this. She wanted to share her story, by spreading inspiration and giving hope to others who are going through the same thing like her.