Psychiatric Drug Withdrawal Town Hall 1 - Introducing the Series

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This series aims to explore what we do and don’t know about safe withdrawal from antidepressants, antipsychotics, benzodiazepines and stimulants. We will seek to present and explore new understandings that are emerging from the professional and lived-experience communities. We will discuss the knowledge, skills and experience necessary to support those who may be having difficulty getting off psychiatric drugs. We will address questions of interest to both prescribers and patients alike.
Our initial discussion was aired live on January 15, 2021.
More information and links to papers can be found here: www.madinamerica.com/pdw/

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16 янв 2021

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Комментарии : 72

@thepresentmoment369 9 месяцев назад

Thank You All 🙏👍😊

@smilemor-phony5964 3 года назад

What a Great panel & dialog. It's so good to see Luke again after having his central nervous system rammed through the meat grinder as many of us have, unfortunately. He sure is looking good! All of you people are a godsend. Thank you...

@bullterror5 3 года назад

Best description ever 👍

@healthyone100 2 года назад

good morning i had a very rough night severe withdrawl i cut up a small amount of meds and i took them i hope the day i better!

@healthyone100 2 года назад

my brother thinks that the doctors knows best and thinks all you have to do is take a pill and everything will be fine, he's very stubborn and won't listen to me what am i supposed to do, i know the drugs are bad for you!

@georgettefokali9931 3 года назад

Thank you all for your great work and straightforward support & concern about the subject matter.

@as-xb6gv 3 года назад

Thank you for the great work you all do.

@carolcarol3938 3 года назад

Thank you for posting this discussion. As someone who is currently taking Venafaxine (and has been for approximately 9 years), and is now tapering off it (using a 10% of total dose decrease, every 4, or more if needed, weeks)....I'm very interested in the idea of informed consent at the onset of the taking of these medications and how that would work. I look back at the "state of mind/body" I was in when these drugs were prescribed and wonder about my ability to actually make an "informed consent" at that time. I felt pure desperation and fear and basically anything that had the potential to stop the hell I was experiencing was (I felt, rather than critically thought about) better than continuing as things were. A doctor describing in words the possibility that things may be difficult when the time comes to stop these drugs, is overridden, in many cases, by the everyday/hour reality of the "difficulty" that is currently being experienced. Even I, who was not completely oblivious to the difficulties (to put it mildly) of withdrawing from problematic medications (Xanax) felt compelled to go ahead and begin to take the Venlafaxine AND Clonazepam again...feeling like there was no choice...and not being offered any choice or being told of the problems with the Venlafaxine. I was the one who pointed out that Clonazepam was in the same class of drug as Xanax and that it had been a hard withdrawal process; but was told the 1/2 life made all the difference and was e-assured that things would be OK. I 'm unsure whether people in states of great distress would be capable of making an informed decision. I also wonder about the ramifications (legal and other) when say, here is such a thing as an "Informed Consent Form" signed off by a patient in the beginning, and then when withdrawal starts the REALITY becomes apparent and they think "I didn't consent to THIS...THIS wasn't my understanding". How is the clients/patients understanding quantified/qualified? It's a sad, sorry minefield...I look forward to further discussion and ACTION in this battle.

@bullterror5 3 года назад

If you refuse informed consent they simply lock you up until you give consent... I was even threatened with Electro Convulsive Therapy if I didn't give informed consent... So I chose my words carefully: "I do not consent to this treatment, you are breaking the Law, you are not permitted to threaten people & I am terrified of you" Now all I have to do is wait for the Lawsuits to Pile up! 😉 Given my experience is very different in the fact that I was sectioned for surviving Family Violence & Sexual Assault, I am not actually unwell, so I can stay on top of their game with appropriate language & civil action... So how are people who really are unwell, as you described, supposed to navigate, advocate & protect themselves while not even knowing what they are consenting to...

@kostaborojevic498 2 года назад

@@bullterror5 ECT is another kind of evil... I'm so sorry...but I hope you are doing good so far. Kosta

@marieflood6626 3 года назад

Thank you for making these series and covering very important questions. Something that hit me is that even if it's horrible that so many people has to go through this and more is to come for sure. (I'm currently coming off mine) Maybe this will lead to better treatment and new discoveries also for other drug withdrawal related issues. It may also give the broad public a bigger understanding for addiction and drug dependency.

@cowboyjohnsontown 2 года назад

I'm also currently tappering off my SSRI after many years. We got this! 💪

@tomtomsimonis 3 года назад

Thank you everyone

@hipnicity 2 года назад

I quit all prescriptions on 4/1/21 . COVID19 Psychosis made me start questioning my doctors. Depression has had an impact on my life since pre-menopause. I began taking meds to reduce the hot flashes & night sweats. I tapered off from November thru March & quit all on 4/1. Still waiting on my libido to reawaken.

@kathrynmansfield4134 7 месяцев назад

Thank you for all you do. I’m learning so much and finding this all helpful and hopeful.

@muradtalukdar4401 3 года назад

James Moore: Prof John Read Dr Swapnil Gupta: Luke Montagu Adele Framer

@matthewclatworthy3597 8 месяцев назад

Great conversation, thanks everyone. 😊

@GIRLSCOUTTROOP-zc4zb 3 года назад

It will be a future continued problem for the many kids and teens/young adults who seem to be the new target for doctors and big pharmaceutical companies. Many docs using drugs off label too. Early as age 5 for anti anxiety meds.

@bullterror5 3 года назад

Yep

@huntasoup 3 года назад

The most disgusting reason I heard for putting kids on antidepressant is this story, which is awfully sad. A mother went to the doctor with her 5 and 8 year old kids because they didn't want to go to their father's when it was his week to have the kids. They would cry and cry and not want to go. The mother knew the reason why. The father didn't take care of them. He barely fed them, didn't bathe them or make them bathe and she knew all this because a teacher called her and told her that when her kids were with their father, they were dirty and smelly, and didn't look well-fed. But the mother wanted to have her week off as she wanted to spend time with her new boyfriend and live her life. (To be clear, the mother had the kids one week and the father the next one, and so on.) So she brought them to the doctor for their crying and not wanting to go "problem". The doctor put both the little kids on antidepressants. Now the kids don't cry and complain anymore. The woman is happy because she can ship them to their bad father and live her life. How is this normal? What kind of human being does that to their own children? Your children are not well taken care of with their father? You ask for full custody or just don't send them period. The worst part about this is that the person who told me this story thinks the woman did the right thing. In what kind of sick world do we live?? :(

@clownworldhereticmyron1018 2 года назад

@@huntasoup Why arent you putting any blame on the father who neglects them?

@huntasoup 2 года назад

@@clownworldhereticmyron1018 I didn't express it in words because I didn't think that I needed to. To me, it is obvious that the father is a bad person and that he shouldn't even have shared custody. I assumed that people would get it too. But in a way, the mother knows what has been going on and shouldn't let that happpen. The whole point of my comment was to show how the system is broken and how some people prefer to put their children on medication rather than try and help them.

@huntasoup 2 года назад

@j thank you!

@heartland297 Год назад

My dr told me I may have to stay on Citalopram the rest of my life. I accepted that for awhile, but not anymore.

@Karen-mu7fq 3 года назад

In the USA, along with "treatment resistant depression," lingering withdrawal symptoms are also called "functional neurological disorder" (which is the modern brand of Conversion Disorder!) [facepalm]

@bullterror5 3 года назад

Face palm is right!

@healthyone100 2 года назад

please tell me what that is!

@jacqueline1752 2 года назад

Is it lingering withdrawal or a return if the original condition that put them on meds in the first place? I never had ANY withdrawal symptoms coming off lexapro because I did it very slowly over a few years. It seems to me that more education is needed helping people successfully wean off meds. The advice to stick it out when things become unbearable for those in withdrawal is outdated in my opinion. They are often told reinstate is risky and may not work. That has not been what I have witnessed over the many years as an active member of SA. People who have fully reinstated then done a long slow taper are much more successful than those doing it too quickly or those still in long term protracted withdrawal.

@mariekejansen7658 Год назад

Thank you so much . 🙏🙏

@silviamiller5332 2 года назад

Thank you here im Argentina we need this information and peer support

@Keltook 3 года назад

Thank you for the work you are all doing, much appreciated. In February of this year I will been off SSRI's and SNRI's seven years. I continue to have symptoms such as brain zaps, which are quieter than they were in the beginning, self regulation issues and deep depression which I believe was situational when I was first prescribed Zoloft, followed by Celexa and then Cymbalta. I continue to feel off most days, anxiety and despair is common place.

@janetdrews525 3 года назад

How long did it take you to get off your medications and how did you do it? I started in March getting off 3 medications with one being Cymbalta and started with bad insomnia. I would appreciate any advice and thank you.

@Keltook 3 года назад

@@janetdrews525 As I recall it was a period a of month or perhaps a bit more. I believe my doctor who was against my coming off, did bring down the capsule strength. So i believe I took it every other day for a week, then every third day and on less and less frequently until off. I was determined so I put up with all the symptoms, increased anxiety, insomnia, paranoia and such. I had stopped the Ambien a couple of years before using the same method but perhaps a faster process. Let me say though I am definitely who I was going in, quite sensitive to many things, noise, groups, a lot of things that I seemed to ignore when I was on the meds have now caught up with me, I'd say I had little to no personal growth when I was on the meds and feel now I pay the price. The positive for me is I now concentrate on self growth and a desire for spiritual connection which I'd cast aside during the years on the meds. What I believe I needed back when the meds were prescribed was a real sense of myself which I'd never developed. Now I persevere and have slowly begun to love myself for who I am. Please be in touch as you need.

@as-xb6gv 3 года назад

Hi Patricia, if I may, for how long were you on the drugs?

@Keltook 3 года назад

Close to eight years.

@as-xb6gv 3 года назад

@@Keltook OK thanks. You seemed to got off them quite fast then (a couple of months); I have been on Zoloft for 6 years and tried the 10%/month withdrawl method but it still led to significant withdraw effects after a few months... I had to go back on the full dose.

@montesa9136 3 года назад

Someone needs to start a website on "How to Manage your Underlying Condition" once you have safely weaned off your meds? I am AMAZED this topic is never talked about. People's underlying condition does not magically disappear just because people decide they are going to taper off. In fact, most mental illnesses gets worse with time, so the illness is worse than when they were first medicated. This topic should be FRONT & CENTRE in discussions before any talk of weaning off meds. I was on meds for 30 years & have been off of them for years & doing TERRIBLE!! Coming off your meds can be a good thing for some but for others, it's the WORST thing you can do. Many people need to be medicated for life! Most of us were medicated for a VALID reason. We tend to forget this! BTW - I'm not Pro Medication, but I am Pro None Suffering

@montesa9136 3 года назад

@Spotek People (unless incorrectly diagnosed) are put on Psychoactive medication due to an underlying condition (depression for example). If at some point they decide to come off their meds their underlying condition is still there. This is because medication merely masks the condition. It does NOTHING to address the root cause. And in fact, there is not always a root cause to address. Depression, like other mental illnesses, can appear out of the blue. In my case I've suffered from Major Depression all my life. I came off my meds because of the Dozens of serious medical conditions I developed from long term med use

@AM-tz9jh 2 года назад

@Montero You make a valid point! I find this way of treatment to be very detrimental to the patient's overall health and outcome. Not addressing/ managing their illness once off the meds can lead to relapsing and make their condition worse. However, I do disagree with you that long term use of these medications can be just as equally detrimental. For the time I've been on antipsychotic drugs, I suffered severe symptoms such as tardive dyskinesia and etc. They didn't even help with my hallucinations. In fact, they made them worse. I found them to be counterproductive to what they were intended to be. I think the hardest part of dealing with mental health issues I that we have been told to believe that their isn't any other way of healing from them without medication and that we are to blame. This isn't true. Their is definitely a reason why you are experiencing major depression and it isn't because your brain has become faulty. I can't speak for you but trauma can come in all types of form. It doesn't have to be an extreme case for it to be traumatizing for you. You're not crazy for feeling depressed and it certainly didn't come about without a reason.

@montesa9136 2 года назад

@@AM-tz9jh @Amina Mohamed - I totally disagree with you. Just a litter of puppies all have unique personalities, hence, brain structures, so do we. Some will be get sick, while others will be healthy. Some structures work better than others. I come from a family of two depressed parents, & four depressed siblings, so OF COURSE I'm going to inherit the disease! Medication cannot heal this inherent disease. It can only treat the symptoms. Medication comes with a whole host of problems, but it's the most practicable & sensible thing we have. There is no cure for this ugly illness. Often going through life anesthetized is the better option, rather than struggling will lifelong emotional pain

@jacqueline1752 2 года назад

I’m surprised they didn’t delete your comments. All mine have been deleted. You are 100% correct and if you ever visit the forum Surviving Antidepressant you will find the majority of members in terrible suffering from ‘withdrawal’ but too frightened to reinstate meds because of the philosophy of the site. This channel support that forum and won’t have a word said against it. There needs to be many questions addressed such as the issue of people NOT being cured of their original condition just because they withdraw from medication. They need more than fish oil and magnesium.

@montesa9136 2 года назад

@@jacqueline1752 @Jacqueline - Exactly! We are totally unique in our mental disorders & our abilities live with them. Unless you were incorrectly diagnosed to begin with, it's Absolutely Absurd to think that you can simply decide one day to wean yourself off your psych meds and you original underlying condition will have disappeared, or that you will somehow be able to now manage it without medication. These Deprescribing sites should be banned for spreading simply Bad information. For some people, the best thing that could have happened to them is to go back on their meds, While for others, it might be the worst decision they could make. There is no "one" correct answer. Personally, I was 30 years on AD's. I've been off of them now for a couple of years & I'm completely Dysfunctional! For me the worst thing I ever did was to decide to come off my meds. However, I had no choice, because I developed a dozen Serious Medical issues, likely due to long term psych med use. For me, there is no clear cut answer, & I'm sure I'm not alone. As well, taking AD's was the only thing that ever worked to help alleviate my depression. All these "alternative" approached did. absolutely Nothing! "Alternative" treatments may have some effect on mild cases of depression, but they are no help whatsoever to more severe cases.

@edeancozzens3833 2 года назад

Where can we find help withdrawing from these?

@craftygirl17 Год назад

I agree with the gentleman with the white hair.

@naomimara3340 Год назад

Which facebook group do we contact, what are the names? Any link, thank you

@montesa9136 3 года назад

How would a doctor ever know who is Meant to come off meds and which patients are not meant to? Even patients wouldn't know this. I've been off long term Psych med use for a few years now & doing HORRIBLE! How do I know if I should go back on them? How would I know if I'm in Protracted Withdrawal? Who can help me?

@montesa9136 3 года назад

@Spotek Well, I believe such a decision should be made by whoever feels most competent. Sometimes it's the doctor while other times is can be the patient. I was originally treated for Depression. My symptoms now that I'm off all meds are: Depression, Anxiety, Anhedonia, Sleep Disturbances, Suicidal Ideation, Anger, Irritability, Negativity, No Energy, No Desire, Twitches, Agoraphobia, Photosensitivity, Sound Sensitivity, Impatience, Racing Thoughts, Rumination .........

@montesa9136 3 года назад

@Spotek It was 30 years ago, so It's hard to recall. My guess would be I had the Depression & Anxiety & small amount of all the others ......... Of course "ideally" the patient should decide, but that depends on how functional they are at the time

@montesa9136 3 года назад

@Spotek No one said the doctor should force drugs on anyone. However, if you've ever been Seriously Depressed, your Decision making ability is gone. This is when the patient needs to look to the doctor for guidance. I was on medication for 30 years. I've only been off a couple of years. Since being off I have had the Depression

@montesa9136 3 года назад

Good Lord! Decision making is COMPLETELY DYSFUNCTIONAL during depression. Google " does depression affect decision making?". I don't think you have ever experienced Major Depression. Like I said before, I was medicated for treatment of depression

@montesa9136 3 года назад

@Spotek I'm wondering if you have ever experienced Major Depression? Have you been diagnosed with Major Depressive Disorder? Some of the things you say Shock Me. NOTHING renders a person more incompetent than Major Depression. Why do you think people who suffer from the illness lose their jobs, their family, their friends, their homes, ther assets, their interests? Dysfunctionality is a direct effect of Major Depression, which translates to Incompetence! I"ve lost dozens of jobs due to Incompetence which is due to depression.

@mariekejansen7658 Год назад

Thank you so much 🙏🙏