Thank you for sharing your story. I have RA & scar tissue on my left lung and shortness of breath with certain activities. I have a appointment with my pulmonary doctor this week. Keep me in your prayers. I will also lift you up in prayer. May God continue to bless you.😇🙏🌹
Hello, thanks for visiting. I pray my story inspire you. I only been dealing with Pulmonary Fibrosis since 2017, but RA since I was 22years old. Only God is the reason why I wake up daily. I will continue to pray for you as well. Please subscribe for medical updates. Keep me m ou sted on your updates as well.
Stay strong. I too have ipf and RA and on 02. Im 46 with a 13 and 18 yr old. The RA is what attacked my lungs but it's also hereditary. My granny, dad, and 2 of my uncle's died with this. My dad was 54. I'm going through so many emotions but I try to stay positive. After seeing your video, I have decided to find a new pulmonologist though. I'll check bk on you to see how you're doing soon. Best wishes.
Billie, I am paying for you every day. I also have Pf, I was told that a year ago. I am in no pain, thank God, I go to Rehab 5 day a week, feel much better than a year ago, I can now go for long walks, before I couldn't walk to the kitchen without having to stop. I do not have to have Oxygen, very thankful for that. Keep your head up, remember, God is always with you. I love you and will continue praying that you will find peace.
You are a very strong woman and your strength will inspire others in their battle with this disease. May the Lord bless you and your family during this difficult time.
Cyber hugs may God bless you! My mom has an autoimmune disease that’s affected her lungs and it’s driving me my heart is broken to watch her adjust to this new way of living... stay strong ❤️
Thank you so much for sharing about pulmonary fibrosis. I’m newly diagnosed and it’s a struggle to know what to do next. You have encouraged me so much and I really appreciate it! My PF is from radiation from cancer treatment 12 years ago. I really liked how you described your life changes as “adjustments.” That description, though difficult, makes life with PF sound more do-able. Like small bites of eating rather than trying to eat an entire thing at once. I wish you well on your journey and I’m especially thankful that you shared your story. God bless you!
God bless you as well. Hope you feeling better. Are you on oxygen? Do you need a transplant? I was taken of of consideration because my lungs was functioning much better. I, like so many of us (PF Warriors) live through this on a daily. It's how we cope with it that determines which path you will take. Life is short but who's to say how short but God. Thanks for viewing my videos, that they will continue to encourage you. Keep smiling and be blessed
Billie Thomas thank you for replying to me. All I’m on right now is a rescue inhaler and Flovent inhaler. I met with pulmonologist and he said this is the start of a journey and he considers me at baseline. He was discouraging. He said progression can’t be slowed, stopped or cured. He didn’t really talk to me much, but wants to see me in six months. He told me to keep a diary of symptoms and stats on oxygen sats. I got my tester today. I’m going to follow you and pray for you on your journey! Keep up the good fight!
You just told my story girl!! Exactly the same happened to me. I started with going to the ER with Pneumonia. I relapsed and the second time round was worse. But for the past year I would find myself sitting on the side of the bed and falling asleep. I was subconsciously avoiding laying down. I couldn't get a good deep breath. When I came out of the hospital, I left with oxygen, which i am now on 24/7. I was diagnosed with fibromyalgia and osteo arthritis in 2009. The RA test was neg at that time. Although I have wondered if it was incorrect. The pulmonologist in the hospital told me my RA factors were very high. I had a CAT scan with contrast which showed massive scarring. When I saw the Rheumatologist she said to get on the lung transplant list. That's when I found out how serious it is. Then I started seeing the prognosis of 2.5 to 5 years on every video I watched on ILD. Anyway. Gods in control. He will decide.
Be strong thank you for sharing your condition. I was diagnosed with scleroderma then lupus then Pf so many medications and chemo so much to take in so when you started to cry I can feel your pain. God bless you😍 I look forward seeing more of you.. take care of you..
@@billiethomas6483 I've been diagnosed 2 yrs ago so my rheumatologist is trying to keep me stable 6 mo ago it's progressing that's when I started chemo.
Hello, Wanda. I will be making an update video this week. I have been doing well. I have my semi-annual check up at transplant center on tomorrow. I hope you are doing better. Let's keep in touch and keep praying.
I too have IPF. I was diagnosed after a lung biopsy on March 8, 2018. So far I am doing ok. Even though it is called Idiopathic I know what caused mine. I have asbestos in my lung. My Dad brought it home on his clothes so I have asbestosis. My Dad passed of mesothelioma in 1980. Don't know what my future holds.
Thank you for making this video. I have Rheumatoid Arthritis and Pulmonary fibrosis. I recently relocated to a different state. I'm not working I don't have any insurance. My Pulmonary fibrosis is acting up, I had to go to the emergency room yesterday. The pain in my back and my lungs. It hurts to breathe in and out of my lungs. I just want to give up.
Sorry Billie that you have to suffer from this condition , My Great Grandmother and Grandmother had bad lungs The Dr told my Grandmother that she had the lungs of a smoker She never smoked , My Mom has allergies and COPD It skipped me but I believe if a baby sister would have lived she may have inherited their bad lungs , I now have a Friend with this she is 44 I feel so bad for all shes been thru and she was even a aide and helped me take care of my husband before he past away in 2012 I do feel so bad for her and all people who suffer with this lung disease , My friend has lost some weight to about the same as you , This is a year old I hope you are still here on earth with us ,
Hello, Hope Thanks for telling me your story. You're right, this disease is a mysterious one. I never smoked either. I'm doing much better with the help of God. I do have some newer updated videos on my channel. Be blessed❤
I'm stage 4 COPD. Was just given end stage status, but just a few days ago. I do know, while on oxygen. And anytime speaking, you inhale with your mouth as you speak. Not your nose. If your COPD was bad enough to be on oxygen. You would be out of breathe way before 9 minutes
@@ShahaswonLUNGSFORSHA , hey.... I'm doing better today. Lung capacity increase but having problems with kidneys, fractures and now stomach problems. It's good to hear from you? You look good. The transplant team said I was now too healthy. Thank God, Right!!! God is good .....
Hello, hope your doing better now , I have IPF too I was diagnosed in 20/16 , I on oxygen 24/7, and I have mix connective tissue disease and RA , The pulmonary doctors I was going to was knowledgeable about my condition now and I finally found a doctor that specializes in pulmonary fibrosis I hope you can help me get better because I want to live, God please grant me life for a long time , Amen
Hi Billi, Thank you for sharing your story. My mom has been diagnosed with ILD(PF)and RA. I am very worried about her. She had breathing problem since last 3 years and doctor told us its bronchiectasis but as days passed her breathing problem increased and recently she is diagnosed of ILD. Can you please guide me as how she should lead her daily life and be healthy
Ariieet, I pray that your Mom feels better soon. I post updates of my journey. I'm not sure of the treatment that your Mom is currently given, hope she gets better. If you listen to my other videos, you will see the various treatments. I'm doing really well as of right now. Doing physical therapy and later returning back to Pulmonary Rehab and aqua aerobics. She got to get moving, walking and learning breathing techniques to increase lung capacity.
I thought Ipf affects only ppl over 50 years old...I hope you are doing good...I too have a scar on my lungs I do not know what it is.. I'll do my CT Scan in few days..God bless us all
After my covid .... Regular alergic problems latest my lungs xray... Dr find fibrosis... Advice good food and always use mask..... This is very dangor?????please advice advance checking
Billie Thomas I was meant to start rituximab infusions on Wednesday but they cancelled it as my spine mri is showing an infection, they say spine infection is rare so they don’t want to believe it’s that and keep sending me for another mri. Three in three weeks and due another one! Not sure why I should go with it not being something rare when they said the same about Rheumatoid Lung disease and three years in had to admit that was what was wrong with me. I’m still not on oxygen which is great although at times I think I should have been. Steroids doubled my body weight very quickly, I take them when I need to heal my lungs but not daily anymore and I’ve been a lot better since losing the weight. Much love and breathe easy hun xx
Hello, Katie. Sorry to hear about your diagnosis. You may want a new RA specialist or request a Pulmonologist. The longer you wait, the worse the damage.
Katie, I increased my lung capacity by going to Pulmonary Rehab and aqua aerobics. It got me off of using oxygen other than bed time. Still on oxygen at bed time, only to provide oxygen to my heart , according to my doctor. I don't sleep with it daily, only when I need it. Only on 2 pluse of o2 and 5 mg if prednisone. I thank God daily.
People with IPF come on here to follow others with IPF to try and gain some insight. Try as I may for the life of me I cannot understand how you do not get updates and outcomes are important to those of us with the disease.🤷
